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Found 11 results

  1. A little over 2 months ago I was diagnosed with celiac disease, and began a gluten free diet. Since then my cycle has been really irregular usually it is maybe one day off but the last one was a week late and my most recent is two weeks and counting...? Did this happen to anyone else when they started their new diet?
  2. I've been gluten free for 2 months now. My doctor is still not sure whether I have non-celiac gluten sensitivity or celiac (blood tests positive, biopsies negative, still waiting for gene test results). Since going gluten free my hormones seem to have changed. My acne is suddenly back after being gone for years, my nails split and peel (something they did my whole life until I got pregnant, and then they were strong until now), my breasts are suddenly sprouting these odd tiny white hairs that pull out with no resistance, my PMS symptoms now include a delightful 4 or 5 days of loose bm's, and I get irritable and emotional around ovulation time. Has anyone else experienced something similar? I would've hoped any hormonal changes would've made me feel and look BETTER, not worse, but so far that doesn't appear to be the case. Is this typical while the body is healing?
  3. Hello, this is my first post on here. I'm about at my wit's end, dealing with these symptoms, and the back and forth in my mind is almost as annoying as the intestinal trouble, so I thought I'd get input from others... Some background first: I'm not fully diagnosed with Celiac, but I strongly STRONGLY suspect it since I have had most of the symptoms and I have siblings riddled with autoimmune diseases (3 siblings with Type I diabetes, one of whom also has thyroid trouble, and a brother who can't eat gluten and isn't yet diagnosed with celiac but we strongly suspect it for him as well since he had the major and minor symptoms associated with it). My GI doctor was not working with me and barely even talked to me and instead stuffed me with meds, saying I had IBS. I never got the chance for an endoscopy (maybe at the end of this year...), even though I requested it to rule out Celiac. He didn't even support me going off gluten, just to see if it would alleviate my intestinal troubles; I had severe symptoms for a quarter of a year (some of which were embarrassing and put a huge damper on ANY out of home activity), was EXTREMELY fatigued (and I've always been a sparkplug), and I lost a lot of weight quickly once I hit my worst (almost 15 pounds in 2-3 weeks). I finally couldn't take it anymore and decided to go gluten free, as we'd done for my brother, because I could no longer do anything except force myself through a day's work (literally FORCE; I had to mentally gather myself while alone in the bathroom several times a day just to plow through) and practically beg for sleep each day. I wanted to see if it'd help. After going completely gluten free, for the first time in MONTHS, I noticed an improvement, and felt so good I was almost beside myself with happiness. I thought I'd found the solution. However, I've still had up and downs which make me really upset, because I start second guessing... But after several weeks now, I'm about 99% certain it's the gluten, since I've had more good days than bad. AND NOW MY INQUIRY! Does anyone (women, of course) have "Celiac symptoms" during their period, even when they haven't ate anything (so they think) with gluten? I'm starting to wonder if that's a common problem, because I'm currently on my period, and am having the same "glutened" side effects (severe bloating, constipation, cramps), and these are NOT my typical menstruating problems! I'd had this before but it was early on in my gluten-free venture, so I thought I was merely healing... I had also second guessed a restaurant choice early on, and thought maybe I'd contracted gluten (although it was made on a dedicated line; the place caters to food allergies), but now I'm wondering if it was only because I was on my period. The only questionable things I've eaten this week were 2 Jolly Ranchers.... I wasn't sure if I can trust them yet, but thought I'd try them out. Bad time to try, since I can't isolate a cause now, but... I suppose I'll see how I feel during my next cycle. Hopefully that all made sense.... Please write if you have "gluten" problems during your cycle!
  4. I About three weeks ago I happened to be eating a bun. Since then, I still have stomach aches, my defections are not normal, and my cycle is over a week late. I am 21 years old, I have been diagnosed with gluten sensitivity in my infancy. I'm really stressed out, and I'm afraid to go to the doctor and hear that I've caused permanent damage. Does it make sense that it has been so long and I still suffer from pain and unregular defections? And did it happen to someone, that her period was late after consuming gluten? Did the period come back after that, and did you have to take any pills? And if I go to the doctor, which doctor should I go to, general, endocrinologist, gynecologist?
  5. My 20 year old daughter was diagnosed with celiac in January 2017. Her last normal period was just days after she stopped eating gluten last January and hasn’t had a period since (9 months!!!) She went to gyno and all hormone levels are normal and ultrasound showed no problems with uterus or ovaries, other than a few “normal” cysts which apparently we all have. Her doctor really didn’t have any answers and did not want to rush to put her on bc. My daughter is so frustrated and obviously concerned and I don’t know what to do. I’m wondering if my daughter should get a second opinion from another gyno or see a nutritionist. It can’t be a coincidence that my daughter’s very regular cycle completely stopped right after she stopped eating gluten.
  6. Celiac.com 03/22/2016 - The US Food and Drug Administration (FDA) has extended the period for public comments on a proposed rule for fermented and hydrolyzed foods, or foods that contain fermented or hydrolyzed ingredients, and bear a "gluten-free" claim. FDA is extending the comment period for the proposed rule on gluten-free labeling for fermented or hydrolyzed foods by 60 days. The agency originally introduced the Proposed Rule for Gluten-Free Labeling of Fermented or Hydrolyzed Foods on November 18, 2015. The original public comment period was set to end on February 16, 2016. The new closure date for public comments will be 60 days after a notice appears in the Federal Register. The new rule's Federal Register Docket Number is FDA-2014-N-1021, and the relevant Federal Register Docket Name is: "Food Labeling; Gluten-Free Labeling of Fermented or Hydrolyzed Foods." The proposed rule does not require or establish standards for "gluten-free" labeling. Instead, it establishes compliance methods for fermented and hydrolyzed foods, or foods that contain fermented or hydrolyzed ingredients that bear a voluntary "gluten-free" labeling claim. Source: Lexology.com
  7. I've just recently gone into my gluten free diet being diagnosed in early December of last year. I am 18 years old and I had a normal menstrual cycle in both December and January but now that February hits I am now 4 days late for my period. Not really having any major PMS problems, headaches are the main thing, I've had some acne but no real cramping. I am definitely not pregnant considering I've never had sex, so just wondering if going gluten free is affecting my menstual cycle?
  8. Hi everyone, I was diagnosed in November of 2013 with celiac and have been EXTREMELY strict (never ever cheat, possibly sensitive to trace gluten, etc.). I started hormonal birth control about 3 months after my dx and never really considered how the BC may be impacting my gut flora. For the last year and a half I've had my ups and downs of recovery; slowly figuring out what types of things are easier and harder for me to deal with or what creates symptoms. I decided recently to stop the BC, because I wanted to see how I felt physically without it. I didn't really notice much change except my face broke out from the drop in hormones. So, in the beginning I used to eat gluten free oats all the time for breakfast, but haven't in probably 6+ months. Tuesday I ate them for the first time (around 8am), and woke up the next day with an awful headache (the type I used to get from gluten). Wednesday morning was the first day of my first period off of BC. My period was EXTREMELY heavy, and around 11:30am I started to feel kind of weak, faint, shaky, etc. I did not feel well. My cramps were really bad and I was losing what felt like a LOT of blood compared to how my period used to be when I was on BC. The rest of that day I was miserable, and chocked it up to an extra heavy first "natural" period off of BC. However, Here I am 6 days later, still bleeding(!) and feeling light headed/brain foggy.The headaches aren't as bad, and I think are getting better. But every time I eat even a TINY bit, or drink water, I start feeling light headed again which makes me think this is more Celiac related and less menstrual or low-iron symptoms. Could it have been the oats? Is this just a side effect of a super heavy period in a sensitive body? I feel confused! Has anyone else experienced this? Has anyone else gone off BC and had a celiac-ish reaction? Any help is appreciated, please let me know what you think. THANK YOU! -Leanne
  9. Celiac.com 08/02/2011 - The U.S. Food and Drug Administration today reopened the comment period for its 2007 proposal on labeling foods as “gluten-free.” The agency is also making available a safety assessment of exposure to gluten for people with celiac disease (celiac disease) and invites comment on these additional data. One of the criteria proposed is that foods bearing the claim cannot contain 20 parts per million (ppm) or more gluten. The agency based the proposal, in part, on the available methods for gluten detection. The validated methods could not reliably detect the amount of gluten in a food when the level was less than 20 ppm. The threshold of less than 20 ppm also is similar to “gluten-free” labeling standards used by many other countries. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley. Celiac disease damages the small intestine and interferes with absorption of nutrients from food. About 1 percent of the United States population is estimated to have the disease. “Before finalizing our gluten-free definition, we want up-to-date input from affected consumers, the food industry, and others to help assure that the label strikes the right balance,” said Michael Taylor, deputy commissioner for foods. “We must take into account the need to protect individuals with celiac disease from adverse health consequences while ensuring that food manufacturers can meet the needs of consumers by producing a wide variety of gluten-free foods.” The proposed rule conforms to the standard set by the Codex Alimentarius Commission in 2008, which requires that foods labeled as “gluten-free” not contain more than 20 ppm gluten. This standard has been adopted in regulations by the 27 countries composing the Commission of European Communities. The FDA encourages members of the food industry, state and local governments, consumers, and other interested parties to offer comments and suggestions about gluten-free labeling in docket number FDA-2005-N-0404 at www.regulations.gov. The docket will officially open for comments after noon on Aug 3, 2011 and will remain open for 60 days. To submit your comments electronically to the docket go to www.regulations.gov 1. Choose “Submit a Comment” from the top task bar 2. Enter the docket number FDA-2005-N-0404 in the “Keyword” space 3. Select “Search” To submit your comments to the docket by mail, use the following address: The Division of Dockets Management HFA-305 Food and Drug Administration 5630 Fishers Lane, Room 1061 Rockville, MD 20852 Include docket number FDA-2005-N-0404 on each page of your written comments. For more information Federal Register Notice (scroll to FDA--temporary link will update when document publishes on Aug. 3): http://www.ofr.gov/inspection.aspx?AspxAutoDetectCookieSupport=1 Gluten-Free Portal (scroll to Gluten-Free): http://www.fda.gov/Food/LabelingNutrition/FoodLabelingGuidanceRegulatoryInformation/Topic-SpecificLabelingInformation/default.htm#gluten FDA’s Proposed Rule on the Gluten-Free Labeling of Foods: http://www.fda.gov/Food/LabelingNutrition/FoodAllergensLabeling/GuidanceComplianceRegulatoryInformation/ucm077926.htm Questions and Answers on the Gluten-Free Labeling Proposed Rule: http://www.fda.gov/Food/LabelingNutrition/FoodLabelingGuidanceRegulatoryInformation/Topic-SpecificLabelingInformation/ucm265309.htm Consumer Update on the Gluten-Free Labeling Proposed Rule: http://www.fda.gov/ForConsumers/ConsumerUpdates/ucm265212.htm Source: http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm265838.htm
  10. Howdy - Does anyone else (gals, of course) have this? I *think* when I get exposed to gluten, then my period starts within a day, or my bleeding gets much heavier and my period is prolonged. Am I imagining things? I was diagnosed gluten intolerant in 7/07. Have been eating gluten-free since then. I'm caseinand lactose intolerant, have been on and off dairy since '92. Six weeks ago I got much stricter about sticking with DF. I'm pretty good about gluten-free- never cheat - but have not been careful with cross contamination. I've had these crazy long periods (14 days? 21 days? a month?) for 9 months. Three months ago I switched oral contraceptives - less spotting, but my last three periods have lasted 10 days. Could it be that I've become far more gluten intolerant in the past year? Help!
  11. Hi everyone, I was diagnosed as being 'gluten sensitive' (whatever that means) about 5 months ago when a doctor finally realized my 'malabsorption' of magnesium and other vitamins was causing my life long (23 years) migraine disorder. After months of taking a 3x the regular dose of vitamins just to stay alive - a doc finally made the gluten connection. Now I can stop spending all my money on vitamins! Anyways, I started a strict gluten-free diet almost a month ago, and after an initial 2 week period in which I felt INCREDIBLE - I feel like I'm hitting some serious detox symptoms. I missed a period completely (has never happened before, and it's back now - not pregnant), I broke out in RIDICULOUS acne on my face, back and chest (I've always had mild acne.. but it now worse than it has EVER been) and I've been ridiculously hungry and cranky. I ate more in two weeks than I ever had in my LIFE. I feel like the symptoms are starting to let up a bit now - but they hit their real peek about 1.5 months into being gluten free. My period is back, and most of the acne is starting to scab over.. but man I wanted to hide underground things got so bad.. So, this is plea in hopes that my experience isn't totally abnormal - perhaps there is some light at the end of this tunnel?? is this going to get better ? Any advice or experience would be appreciated. THANK YOU ALL SO MUCH. Reading this forum has been a lifesaver for me overall. **also, since going gluten-free and being able to slightly lower the vitamin dose - I am still migraine free! So that is one good thing. (and by migraine disorder, I mean it was so bad I was considered disabled until this year.. A MIRACLE)
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