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Found 4 results

  1. Sorry, I think I posted this in the wrong place a minute ago... I think I'm in the right forum now. Hey everyone, New here. Always been a bread eater. About a year ago, I started developing terrible joint pain. Had to stop going to the gym (had been body building for 5+ years). I thought maybe giving my body a break would be the fix, but then I started getting terrible twitching that began in my quads and spread to all four limbs, stomach, face, inner ear (didn't know that was possible lol). Started freaking out thinking I had ALS and doctor google was helping. Anyway, then one day I woke up with terrible pain and weakness in my left arm. Went to spinal specialist and he said I had peripheral neuropathy (he noted weakness in arm). I was put on a heavy does of gabapentin (1800 mg per day) which helped with pain but did not resolve anything (and it made my work productivity go way down for 6 mo). anyway long story short, got two EMGs, saw too many doctors and was sent home the doctors saying I'm totally fine... 😕 They even sent me for a neck MRI... nothing... Finally, found some obscure case study of some guy who was celiac and had twitching/peripheral neuropathy. So I thought, "I'll try the diet thing." After a month gluten free, my arm pain completely resolved and my twitching reduced slightly. My full strength is almost completely back in my left arm and my joint pain has been reduced substantially. Back in the gym too So 3 questions: 1. Anyone else gets twitching/fasciculations related to celiac? 2. Any recommend resources for adult onset celiac disease? 3. This is probably a dumb question, but does this whole thing sound like celiac at all? I've been freaking out for year about all these symptoms and kinda just want to know what's going on and if anyone else has a similar story. Anyway, sorry for the long post! Thanks in advance for your input! Edit: Maybe worth mentioning. I'm 24. Also, Get terrible gut reactions literally every time I eat out. No problems if I watch diet at home and make sure there's no gluten in my meal. Also, slightly elevated liver enzymes.
  2. Hey everyone, New here. Always been a bread eater. About a year ago, I started developing terrible joint pain. Had to stop going to the gym (had been body building for 5+ years). I thought maybe giving my body a break would be the fix, but then I started getting terrible twitching that began in my quads and spread to all four limbs, stomach, face, inner ear (didn't know that was possible lol). Started freaking out thinking I had ALS and doctor google was helping. Anyway, then one day I woke up with terrible pain and weakness in my left arm. Went to spinal specialist and he said I had peripheral neuropathy (he noted weakness in arm). I was put on a heavy does of gabapentin (1800 mil per day) which helped with pain but did not resolve anything (and it made my work productivity go way down for 6 mo). anyway long story short, got two EMGs, saw too many doctors and was sent home the doctors saying I'm totally fine... 😕 They even sent me for a neck MRI... nothing... Finally, found some obscure case study of some guy who was celiac and had twitching/peripheral neuropathy. So I thought, "I'll try the diet thing." After a month gluten free, my arm pain completely resolved and my twitching reduced slightly. My full strength is almost completely back in my left arm and my joint pain has been reduced substantially. Back in the gym too So 3 questions: 1. Anyone else gets twitching/fasciculations related to celiac? 2. Any recommend resources for adult onset celiac disease? 3. This is probably a dumb question, but does this whole thing sound like celiac at all? I've been freaking out for year about all these symptoms and kinda just want to know what's going on and if anyone else has a similar story. Anyway, sorry for the long post! Thanks in advance for your input!
  3. Hey Everyone! I’m pretty stressed and anxious about my healing and praying those of you more experienced might be able to help. A quick back story, I had my 2nd baby the end of Feb and became horribly ill at 6 weeks postpartum. Started with terrible abdominal pain every time I ate and slowly turned into numbness & tingling on the left side of my body. Also had all the typical GI symptoms, brain fog, exhaustion etc. After dozens of doctors appointments and being hospitalized I was finally diagnosed with Celiac on 6/4 by blood test and symptoms. Around the same time I started having scary allergic reactions to all the foods I was eating daily without issues. Some caused instant stomach pain, others made my face numb and throat swell, some made my neuropathy worse. The tests my GI ran showed food sensitivities to Soy, corn, wheat, shellfish, peanuts, treenuts, sesame & eggs however the allergy tests ran by my allergist showed zero food allergies (except celiac). I am 100% gluten free including my whole house, I don’t eat out and am following a strict AIP diet to try and heal my leaky gut per my Functional docs recommendation. I also don’t take any medication or vitamins as I was reacting to everything. I started to see some improvements the first few weeks of my diet however the past 2 weeks I’ve been having horrible allergy like symptoms to almost everything. I had one sip of gluten-free green tea for the first time and my face felt like it was on fire, I had this intense pressure in my face and it went tingly numb for hours. This has been happening daily. I feel like I can’t even think or see straight, I have occasional ringing in my ears, my GI symptoms are slowly regressing and my neuropathy has gotten worse again. I’m living off organic grass fed meat, poultry, steamed veggies (minus nightshades) and minimal fruit. I also get weekly B vitamin shots and biweekly multivitamin bags. I’m wondering if this could be a histamine issue? I have been eating tons of avocados, lemons and limes, maybe I just built up too many histamines or don’t have the enzymes to break them down properly? Anyone else have experience like this? I feel like I’m losing my mind and literally have almost no food I can eat. Plus I’m nursing so I’m starving all the time. Feeling so discouraged and scared of food :( Thanks for reading if you made it this far!
  4. I was diagnosed with Celiac disease seven months ago. Since then I've been gluten-free, and militantly so-- I haven't eaten anything that I haven't prepared myself in my own kitchen. I think it drives my family a little nuts. But anyway, after five months on the diet I was still having abdominal cramps off and on, so my gastrointerologist suggested a low fodmaps diet and prescribed Pamelor. When I got home I looked up Pamelor and realized that he was probably treating me for peripheral neuropathy. I decided not to take the Pamelor and try the low fodmaps diet first. I think that seems to be helping with the abdominal cramps, but I have another problem. I've been having a recurring infection in my epididymis for years and no urologist has been able to figure out why. So then I looked up autonomic neuropathy and found that this can cause recurring infections. Do any of you have any thoughts on this? Could Celiac bring on autonomic neuropathy and indirectly cause me to keep getting epididymitis? Am I onto something here or not?
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