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Found 2 results

  1. My rheumatologist called me earlier to tell me that my blood work confirmed lupus and that I needed to start plaquenil immediately. (200mg twice a day) I was diagnosed with celiac's just over 5 months ago and have been 100% gluten free. Just sharing my update, I guess. If anyone has any advice feel free to share. Especially if you take plaquenil. Feeling lost too often lately! ~Julie
  2. I'm so confused right now. I had a rheumatologist appt yesterday. He told me he thinks I have lupus and told me to start taking plaquenil right away. He took 12 tubes of blood and results should be back in a week. He also said that lupus could cause villi atrophy. He saw my celiac blood work and confirmed biopsy in the file. Last week my celiac panel was redrawn and looks real good. He said that it shouldn't look that good yet. That my celiac numbers are coming down quite fast. (Like is he trying to imply lupus is causing that for me and not celiac's?!? My celiac numbers were all high in October. Everything.) I don't know what to think and am scared about this lupus diagnosis. He must feel pretty positive to tell me to start taking the medication now, right away, before the blood work comes back. Does anyone else here take plaquenil? Any advice? Side effects? Do you take it for Lupus or something else? How often do you go to the rheumatologist. Any insight into what life is like would be helpful. I'm basically just eating plain fruit, veggies and meat but do you eat anything specifically because of lupus? Also here are my old and new celiac numbers: From 10/21: Celiac Disease AB Profile Deamidated Gliadin 119 units High 0-19 Abs, IgA Deamidated Gliadin 61 units High 0-19 Abs, IgG t-Transglutaminase (tTG) 29 U/mL High 0-3 IgA t-Transglutaminase (tTG) 19 U/mL High 0-5 IgG Endomysial Antibody Positive IgA Immunoglobulin A, Qn, 205 mg/dL 91-414 11/14 biopsy confirmed celiac's. Then redraw last wk: Celiac Disease AB Profile Deamidated Gliadin 18 units 0-19 Abs, IgA Deamidated Gliadin 18 units 0-19 Abs, IgG t-Transglutaminase (tTG) <2 U/mL 0-3 IgA t-Transglutaminase (tTG) 5 U/mL 0-5 IgG Endomysial Antibody Negative IgA Immunoglobulin A, Qn, 168 mg/dL 91-414 Serum ------------- Doctor (rheumatologist yesterday) said my levels came down too fast. That with celiac's those numbers should still be worse. I feel lost! ~Julie
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