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Found 5 results

  1. Hi, I was diagnosed with celiacs after extreme stomach pain, irregular bowel movements and diarrhea. The extreme stomach pain was the main reason I really needed to find out what this was, and finally I had a doctor let me know i probably had Celiacs after a blood test. An endoscopy came back positive for celiacs as well. The extreme burning in my stomach went away within a week, however the pain persisted. Whenever I ate, it became really bad, even though i was extremely careful and made everything from scratch. I even are only fruit for a whole week to make sure I wasn't screwing up. Now its been over a year, and I still have the stomach pain come back after eating almost anything other than juicy fruit like watermelon/melons/grapes. I got tested for H pylori a year ago, came back negative. Got tested for blood in stool: negative. Went to doctors, they say they have no clue what it is. I have tested with different things. If I eat very fatty food it hurts a lot more than other food. If I have alcohol, the pain turns into a very dull ache the next day after waking up, and it goes away the day after completely without fail. If I fast for a day, the pain does not exist. It used to hurt, but in the last few months not anymore. If I dont eat after 6, the pain is completely gone until I eat the next day, and it can be anything, even a no fat food. If I eat something at it starts hurting more, drinking a lot of water makes it usually go away almost completely. But that uncomfortable feeling is still there, just the major pain goes away. Im going crazy here trying to figure this out. Im 22 years old, I want to enjoy my life. It also seems to go away with exercise. Any help would be great, thank you!
  2. I have been suffering with various symptoms for about 9 months and have recently decided to try a gluten-free diet. My symptoms have been: constant bloating (i used to have quite a flat stomach but I now look about 5 months pregnant, morning, noon and night!), rapid weight gain with no change in diet and despite diet and exercise I cannot shift any of it (I went up from 123lbs to 142lbs in 9 months), stomach/digestive pain, night sweats, headaches and muscle aches (particularly in my right arm and shoulder), irritability, low testosterone (according to my GP) and acid reflux. I have been to the doctor and had various tests and I don't have PCOS or a thyroid problem. I have been gluten-free for 5 days now and this weird prickling sensation has started happening in patches on my skin. There is no rash or redness that I can see. The other day it was mainly on my lower back, but now it seems to be principally on my ankles/lower calf area and forearms. I know that there is something called peripheral neuropathy that is a symptom of being gluten intolerant, but it seems weird to get this after going gluten free?? I do think I am starting to feel better from going gluten free but part of me wonders whether it is my imagination because I am so desperate to find an answer to all my symptoms. Although last night was the first night in a long time where I didnt wake up clamy from nightsweats, which I guess is a positive.
  3. Hello, I need to see a doctor who specializes in Celiac post-diagnosis care. Someone who knows what to test for in terms of deficiencies and other food allergies. Gastroenterologists tend to be more focused on diagnosing Celiac and then prescribing a gluten free diet as the after diagnosis treatment, which isn't enough in my case. My doctor isn't comfortable following up on my chipped teeth and broken bone, muscles strains, etc., as signs of deficiencies. It would be nice if I could see an MD who specializes in Celiac. Does anyone in Colorado, particularly in the Boulder-Denver area, know of a doctor who is familiar with the complexities that can arise post diagnosis on a gluten free diet? Thank you everyone.
  4. Hello Celiac.com, this is my first post, this is basically my story, i have been having chronic diarhea, fatigue, and just plain depression for about 5 months. I know i wasnt getting better by any means, so, my first visit to the doctor which was a bout a month into my illness, he told me it was a virus that was tearing away at my stomach lining, so i was like okay what do we do about it, he replied with chicken broth and bread, no fibre, basically plain food, so i went on that for a week and if anything my symtoms got worse, i also went to emergency a couple of times for pain in my abdomen and the doctor their ordered a stool sample, when i got the results back everything came back normal. I was so frustrated, then my doctor then said i could have some coloneitits (or however you spell it) and need to go to a gastrointerologist, so me and my mother booked an appointment and waited, while my symptoms got worse we returned to the doctor only to find out that my regular doctor has returned from his trip, i was so frustrated with the doctors i didnt care, when i went into see my doctor he felt my intestines and ordered a bunch of tests. He seemed disgusted by the amount of tests that werent there already. When my tests returned he said everything is normal but i have bacteria in my urine, (i am a boy, and no its not an STI lol), so i was sorta relieved by this news and also frustrated that i didnt get diagnosed 3 months earlier, (my urine was noticabely different but i didnt really say anything to anyone), so i was put on these antibiotics and on my way, while the antibiotics only gave me nausea, and nothing else, also my urine seemed unchanged i returned to the hospital saying how my urine is unchanged, he then went over my blood work and said i have celiacs disease. I was blown away at the fact that he couldnt tell me this the first trip, but was also madly relieved that i finally have a diagnoses. So going into the present day, where i have been gluten free for about a week and a half..... i honestly feel no difference.... im constantly depressed, my diarhea seems to not go away, and the general discomfort in my abdomen doesnt seem to change.... I am a grade 11 student, who has had to miss so much because of this illness, and seems to not be gettign better, i couldnt play football, my favourite sport because of it, and i just wanna get back to my normal, funny, awesome life i have... i honestly just want answers, i am hoping to get a biopsy done to confirm celiacs, or find anything else going on down there, another note, my throat has become to hurt to swallow, my brain is cloudy all the time, and i still feel depressed, i came on here to beg for some hope, that will get me out of my slump, just someone please give me answers as to why i am not getting any better at all......
  5. Hey everyone, I have a question that I have been wanting to ask other people with this disease. After you stopped eating gluten, what kind of changes did you experience in your body. Apart from the obvious improvement of the gut in general. Personally I have lost quite a bit of weight in fat for my size, even though I eat more than I used to, and I am pretty skinny to start with. However, when I go to the gym, the results come much faster than before, and i My average heart rate has dropped quite substantially. My skin, especially in my face is much clearer and I don't get zits and things like that at all anymore. But best of all, the stomach cramps and diarrhea are gone! There are tons of other things that have changed, but these are just a few. What have you experienced personally? Since symptoms and recovery seems to be very individual, it would be fun to compare.
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