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Showing results for tags 'post diagnosis'.
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A couple years after being diagnosed with celiac disease, when I was in my early 20's, I lost the ability to digest peanuts & nuts (coconuts excluded). I never had a peanut or nut allergy growing up. One day in my early 20's after eating a bunch of peanuts I developed the worst burning stomach pain I've ever had. It lasted for several hours. Then I started burping up the taste/smell of sulphur. Followed by severe diarrhea and vomiting. I didn't associate it with the peanuts the first time it happened but over the course of the next few years, after reoccurrences of the same symptoms, always after eating peanuts or nuts, I made the connection. I have had it happen twice without eating peanuts or nuts, and during both of those occurrences I overate and fell asleep too soon after eating. Usually the vomiting starts after hours of stomach pain and sulphur burps and contains undigested food. Once, it was pasta I had eaten several days earlier that I threw up whole. For the most part I feel that I have the issue under control by not eating peanuts or nuts, and by not allowing my body to be horizontal for at least 1-2 hours after eating a meal. However, I live in constant fear of it happening again because it's so unpleasant that it's traumatizing. Strange fact: both my older and younger sister (who are also gluten free), developed the same intolerance around the same time. We all went gluten free around the same age too. None of us had ever had an intolerance to peanuts or nuts before going gluten free. There remains some confusion about it because it does not happen consistently. My little sister accidentally ate almonds recently and had no reaction. She can also eat peanut butter and nut milks. I am too afraid to try peanuts or any nuts these days, although I can recall not always reacting badly to them as well. My older sister's stomach has gotten so bad that she can't really digest anything other than meat and dairy anymore. Any fiber what so over and she is vomiting. Our guts seem like they are healing since going gluten free, yet all three of us feel our stomachs have been on the decline. I know lower stomach acid is a natural part of aging but we are 29, 31, and 34 years old. Has anyone else experienced this change in symptoms? Stomach issues are not my only problem but I'm trying to narrow it down for the sake of this topic being mostly about food intolerances that developed years after being diagnosed with celiacs and going gluten free. I'm 31 and I've been gluten free for 11 years. Please share your experience if you can relate, or any knowledge you might have.
- 12 replies
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- diagnosed celiac
- gastroparesis
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I was diagnosed with Celiac Disease 8+ months ago, overall have seen improvement in gut issues, however, I have continued to experience dizziness (feels as if I am on a boat upon movement) and severe fatigue each and every day. My symptoms are by far worse in the morning, as well as worse following physical activity. I have been passed around from specialist to specialist (multiple GI doctors, endocrinologist, cardiologist, neurologist, dietitian), and none have come up with an answer as to why I am still experiencing these symptoms. I am aware full intestinal recovery can take up to 2 years post-diagnosis, however, I was wondering if anyone else has experienced these symptoms and how long it took for them to finally feel better? As one can imagine, I'm drained from trying to function daily with these symptoms concurrently, as well as I'm becoming very discouraged despite staying positive to the best of my abilities. As far as diet goes, I am very strict with myself and have not had any type of gluten product in my household since time of diagnosis. I have had other food allergy testing performed, although all results come back insignificant for all other foods (eggs, corn, dairy, etc.). I am currently on a 6 week low FodMAP diet as prescribed by my dietitian, but have yet to see any positive results. The only other supplements I have recently began are riboflavin, feverfew, and magnesium, all prescribed by my neurologist for migraine prevention. I am open to any and all possible suggestions and encouragement! Thank you!
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Hey guys, quick background on me. I am a highly active, 30 year old male, and was diagnosed with Celiacs a little over two months ago, immediately went gluten free and many of my symptoms began to resolve within about a month (diarrhea, major weight loss, extreme fatigue, tiredness, brain fog, headaches, to name a few). I returned to working out like I have the majority of my life (primarily weight lifting with high volume 5-6x/week) and have remained extremely diligent in proper diet. However, at approximately the two month mark of being strictly gluten free, I’ve began feeling extremely sickly again without reason I can identify (extreme fatigue has returned, have come close to passing out multiple times, frequent nausea, whole body weakness, dizziness, tinnitus, headaches have returned). Aforementioned, I have remained gluten free, have even significantly limited dairy/lactose, but still feel horrible and on the brink of anxiety each day. Mornings are by far the worse time for me, as I am extremely nauseous, dizzy, and feel as though I will pass out with any activity. Furthermore, I know it has only been around 8 weeks since diagnosis, however, I have been unsuccessful in putting any weight back on despite going on a high calorie diet (3,500-4,000) each day. As a former athlete and still extremely active today, my body has been used to accepting high caloric days as normal. From a diet perspective, I have switched from whey protein to soy/pea proteins, take a recommended multivitamin daily, take an iron supplement daily, take a recommended prebiotic/probiotic/digestive enzyme supplement, eat plenty of lean meats, fruits and veggies, rice and beans, and refrain from eating any type of processed food. I had food sensitivity blood testing done and all food categories came back insignificant or negative for sensitivity (except tTg-IgA testing at time of diagnosis for gluten of course). My overall question is, why all of a sudden is my health beginning to deteriorate again after when I thought I was making good progress after going gluten free? Has anyone else experienced this by chance? Is there some type of “rebound effect” associated with going gluten free that anyone else may have experienced around the 2-3 month mark? I welcome any and all feedback, please! I am becoming extremely frustrated, worried, and anxious as this is a major life change for me. - Eric P.
- 12 replies
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Hey I was diagnosed celiac in November 2017 with ttg levels above 200 and started on a strict gluten free diet. After 6 months it came down to 100 and I got it checked 3 months back and it was down to 25 but I checked again this week and they were rocket high to 100. What could be the cause of this ? I don’t understand why my levels won’t go down I’m on the most strict gluten free diet I think anybody could be on. I don’t even eat chicken unless it says gluten free on it
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Hi, I was diagnosed with celiacs after extreme stomach pain, irregular bowel movements and diarrhea. The extreme stomach pain was the main reason I really needed to find out what this was, and finally I had a doctor let me know i probably had Celiacs after a blood test. An endoscopy came back positive for celiacs as well. The extreme burning in my stomach went away within a week, however the pain persisted. Whenever I ate, it became really bad, even though i was extremely careful and made everything from scratch. I even are only fruit for a whole week to make sure I wasn't screwing up. Now its been over a year, and I still have the stomach pain come back after eating almost anything other than juicy fruit like watermelon/melons/grapes. I got tested for H pylori a year ago, came back negative. Got tested for blood in stool: negative. Went to doctors, they say they have no clue what it is. I have tested with different things. If I eat very fatty food it hurts a lot more than other food. If I have alcohol, the pain turns into a very dull ache the next day after waking up, and it goes away the day after completely without fail. If I fast for a day, the pain does not exist. It used to hurt, but in the last few months not anymore. If I dont eat after 6, the pain is completely gone until I eat the next day, and it can be anything, even a no fat food. If I eat something at it starts hurting more, drinking a lot of water makes it usually go away almost completely. But that uncomfortable feeling is still there, just the major pain goes away. Im going crazy here trying to figure this out. Im 22 years old, I want to enjoy my life. It also seems to go away with exercise. Any help would be great, thank you!
- 1 reply
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- gastritis
- pancreitis
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(and 2 more)
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I have been suffering with various symptoms for about 9 months and have recently decided to try a gluten-free diet. My symptoms have been: constant bloating (i used to have quite a flat stomach but I now look about 5 months pregnant, morning, noon and night!), rapid weight gain with no change in diet and despite diet and exercise I cannot shift any of it (I went up from 123lbs to 142lbs in 9 months), stomach/digestive pain, night sweats, headaches and muscle aches (particularly in my right arm and shoulder), irritability, low testosterone (according to my GP) and acid reflux. I have been to the doctor and had various tests and I don't have PCOS or a thyroid problem. I have been gluten-free for 5 days now and this weird prickling sensation has started happening in patches on my skin. There is no rash or redness that I can see. The other day it was mainly on my lower back, but now it seems to be principally on my ankles/lower calf area and forearms. I know that there is something called peripheral neuropathy that is a symptom of being gluten intolerant, but it seems weird to get this after going gluten free?? I do think I am starting to feel better from going gluten free but part of me wonders whether it is my imagination because I am so desperate to find an answer to all my symptoms. Although last night was the first night in a long time where I didnt wake up clamy from nightsweats, which I guess is a positive.
- 1 reply
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- itchy
- post diagnosis
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(and 2 more)
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