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  1. Celiac.com 10/16/2018 - Apparently, local St. Louis radio station Z1077 hosts a show called “Dirty Little Secret.” Recently, a woman caller to the show drew ire from listeners after she claimed that she worked at a local bakery, and that she routinely lied to customers about the gluten-free status of baked goods. The woman said she often told customers that there was no gluten in baked goods that were not gluten-free, according to local tv station KTVI. Apparently the woman thought this was funny. However, for people who cannot eat gluten because they have celiac disease, telling people that food is gluten-free when it is not is about as funny as telling a diabetic that food is sugar-free when it is not. Now, of course, eating gluten is not as immediately dangerous for most celiacs as sugar is for diabetics, but the basic analogy holds. That’s because many people with celiac disease suffer horrible symptoms when they accidentally eat gluten, including extreme intestinal pain, bloating, diarrhea, and other problems. Some people experience more extreme reactions that leave them in emergency rooms. As part of a story on the “joke” segment, KTVI interviewed celiac sufferer Dana Smith, who found the punchline to be less than funny. “It’s absolutely dangerous, somebody could get very sick,” said Smith. KTVI also interviewed at least one doctor, Dr. Reuben Aymerich of SSM St. Clare Hospital, who pointed out that, while celiac disease is “not like diabetes where you can reduce the amount of sugar intake and make up for it later, it’s thought you need to be 100 percent compliant if you can.” For her part, Smith sought to use the incident as a teaching moment. She alerted the folks at Z1077 and tried to point out how serious being gluten-free is for many people. Mary Michaels, owner of Gluten Free at Last Bakery in Maryville, Illinois, says it’s time people became more respectful. “I wouldn’t make fun of you if you had diabetes or a heart condition it’s kind of like that,” Michals said. We will likely never know if the radio station caller was telling the truth, or just putting listeners on. The Z1077 morning team did post a follow-up comment, which stated that they take celiac disease seriously, and that they did not intend to offend anyone. One host said his mom has celiac disease. It’s good to see a positive response from the radio station. Their prank was short-sighted, and the caller deserved to be called out on her poor behavior. Hopefully, they have learned their lesson and will avoid such foolishness in the future. Let us know your thoughts below.
  2. I heard the ad for today's "Fresh Air with Terry Gross" in NPR this morning and they are having people from America's Test Kitchen on to talk about the best gluten-free recipes. In my area it will be on at six PM. It looks from the comments that it has already aired in some areas and that they talked about the "fad" of gluten-free. But maybe there will be some good tips on cooking. I didn't read the whole article here yet, but they did say King Arthur was the best flour they have found so far (and that's the one I use ) http://www.npr.org/2014/03/20/291873792/test-kitchen-have-your-gluten-free-cake-and-love-eating-it-too
  3. Celiac.com 12/17/2012 - On Friday, December 7th, 2012, KQED public radio hosted an hour-long program on celiac disease and gluten-sensitivity called: Going Gluten-free. The program was part of the regular KQED program, Forum, and was hosted by veteran KQED personality Dave Iverson. KQED has the largest listener audience of any public radio station in the nation, so this presents a welcome opportunity to spread awareness of celiac disease, gluten-intolerance, and gluten-free issues to a wide audience. KQED's tagline for the show was: If you're gluten-free, going to the grocery store used to mean spending hours reading labels to avoid anything with wheat, barley or other grains. But with the rising number of people with celiac disease and gluten intolerance, more stores and restaurants are offering gluten-free foods. We'll discuss the rise of gluten-free diets. The guests for the one-hour program were: Dr. Neilsen Fernandez-Becker, associate director of the Celiac Management Clinic at the Stanford School of Medicine Jefferson Adams, writer at Celiac.com Melinda Dennis, dietician and nutrition coordinator with the Celiac Center at Beth Israel Deaconess Medical Center, sufferer from celiac disease, and co-author of "Real Life with Celiac Disease: Troubleshooting and Thriving Gluten-Free" Sadie Scheffer, owner and founder of BreadSRSLY.com, which delivers gluten-free breads around San Francisco. You can listen to an archive of the broadcast at KQED.com.
  4. Celiac.com 05/17/2010 - Scott Adams and Ron Hoggan went on live radio last Saturday on the Love By Intuition Show with host Deborah Beauvais (Dreamvisions 7 Radio Network) in support of Celiac Disease Awareness Month. The show is broadcast live from Boston, MA on 1510 AM Revolution Boston, a progressive 50,000-watt station reaching 5 states locally, and on Energy Talk Radio in San Francisco, and it reaches over 1,000,000 listeners. The show will be re-broadcast several times and will hopefully reach many more listeners. The podcast is attached and can be downloaded or listened to from our server. Dreamvisions 7 Radio Network is holistic healing radio network with an eclectic group of radio hosts all with the common goal to help humankind by offering different modalities or programs combined with tools to bring awareness, joy and love to their listeners. Their vision is to continue to syndicate the Network of shows by having additional affiliates both terrestrial and Internet.
  5. Gut Reaction is a one-hour radio documentary with The Gluten-Free Mall as a major underwriter, produced by Richard Paul for Public Radio with additional funding from the Celiac Sprue Association. Several stations across the USA have already aired it, and some got such a great listener response that they intend to air it again. You can help us spread the word about celiac disease in your community in a very simple way—we urge you to contact the program director of your local Public Radio station to request that they air Gut Reaction in your community. To locate the local director of your Public Radio station please click here: https://sgms.cpb.org/Public/PubPhoneBook.asp and use the info at the bottom of this article to fill in the form, which looks like this: SEARCH CRITERIA: First Name: Can be found in the list at the bottom of this article. Last Name: Can be found in the list at the bottom of this article. City: You can leave it blank if you dont know. State: (2 Character Postal Code): Can be found in the list at the bottom of this article. Entity Name: 4 digit radio call tag - Can be found in the list at the bottom of this article. Entity Type: Radio Station (select this). Once you have the contact information for the director of your Public Radio station, follow this advice from Richard Paul, the shows producer: Its best if you reach the program director directly and not leave a message on the listener-comment line and not send an email to the listener-comment email box. When you contact the program director, tell him or her that you want the station to play the show Gut Reaction. Dont have folks say You have to do this. Just, We want you to know that theres a community here that thinks this is important. It is vitally important to emphasize that Celiac Disease effects 1-in-133 Americans, though only 1-in-4,700 are ever diagnosed. And immediately after saying that, remind them of public radios public service mission. Tell them that it would be an enormous public service to notify the undiagnosed Celiacs in their listening audience. This point should be made strongly. Tell them that there will be a satellite feed of the show on January 7th and that the show is available right now via PRX (the Public Radio Exchange). Tell them that if theyre not a member of PRX, they can get the show at this web site – www.rlpaulproductions.com/interviews Tell them that she show is newscast compatible and that is has breaks at 20 and 40 (they will know what that means and they will consider it important). But EMPHASIZE the public service value of getting the word out to undiagnosed Celiacs. That will be the real drive-it-home point. If they ask how you found out about the show, mention how wired-together we Celiacs are -- how we share information with each other by email and so forth because doctors still know so little about the disease. You might suggest that because there is a large Celiac Community in their area, theres the chance that you could work together with the station on other get-the-word-out projects. Maybe if they have a daily talk show, people could come on and talk about celiac disease. Something like that. Anyway, I hope you can get folks together to get the word out. Thanks, Richard Paul rlpaulproductions, LLC List of Public Radio Program Directors by State (Search for their contact info here: https://sgms.cpb.org/Public/PubPhoneBook.asp). Find your station below: STATE: AL WBHM Michael Krall WJAB Ellen Washington WLRH Cheryl Carlson WLJS Josh Hilton WHIL JoAnn Breland WVAS Erica Fox WTSU Fred Azbell WUAL Roger Duvall STATE: AK KNBA Loren Dixon KSKA Bede Trantina KBRW Isaac Tuckfield KYUK Ron Daugherty KDLG Jeremy Cate KUAC Scott Diseth KZPA Irene Klatt KIYU Tim Bodony KHNS Byrne Power KBBI Sonya Oyler KTOO Jeff Brown KRBD Maria Dudzak KMXT Mike Wall KOTZ Jonathan Green KSKO Dusty Parker KFSK Suzanne Fuqua KCAW Valerie Lapinski KIAL Michael Edenfield KCHU Lisa West STATE: AZ KNAU KJZZ Scott Williams KUAT Lyle Kesterson KXCI Roger Greer KNNB Sylvia Browning KAWC Mark Reynolds STATE: AR KUAF Kyle Kellams KASU Marty Scarborough KUAR Ron Breeding STATE: CA KCHO Joe Oleksiewicz KVPR James Meyers KMUD Michael Jacinto KKJZ Sean Heitkemper KPFK Armando Gudino KUSC Eric Deweese KVMR Steve Baker KCSN Martin Perlich KAZU John McNally KPCC Craig Curtis KZYX Mary Aigner KXPR Carl Watanabe KVCR Steve Ward KPBS John Decker KALW Nicole Sawaya KQED Jo Anne Wallace KCBX Guy Rathbun KUSP Bonnie Jean Primbsch KCRW Ruth Seymour KBBF Francisco Carbajal KRCB Robin Pressman STATE: CO KRZA Deb Nichols KAJX Brent Gardner-Smith KGNU KDNK Luke KRCC Mario Valdes KBUT Shawna Claiborne KUVO Carlos Lando KUNC Kirk Mowers KSUT Steven Rauworth KVNF Jeff Reynolds KOTO Steve Kennedy STATE: CT WSHU Tom Kuser WNPR STATE: DC WAMU Mark McDonald WETA Ingrid Lakey STATE: FL WQCS Jim Holmes WGCU Haley Mitchell WUFT William Beckett WJCT Rick Johnson WFIT Todd Kennedy WDNA Michael Valentine WLRN Theodore Eldredge WMFE Mike Crane WUCF Kayonne Riley WKGC Wallace Crawford WUWF Joe Vicenza WFSU Caroline Austin WMNF Randy Wynne WUSF Robert Peterson WXEL Joanna Marie STATE: GA WUGA Robb Holmes WABE Lois Reitzes WCLK Bill Clark WRFG Evon Dooley WSVH Eric Nauert Stjohn Flynn network PD STATE: HI KHPR STATE: ID KBSU Jim East KRFA Mary Hawkins STATE: IL WSIU Jeff Williams WEFT Mick Woolf WBEZ Ron Jones WNIU Bill Drake WSIE Tom Dehner WIUM WCBU Nathan Irwin WQUB Mick Freeman WVIK Lowell Dorman WUIS Sinta Seiber-Lane WILL Jay Pearce STATE: IN WFIU Christina Kuzmych WVPE Lee Burdorf WNIN Daniel Moore WBNI Bruce Haines WFYI Richard Miles WBST Steven Turpin WVUB Michael Woods STATE: IA WOI Dave Becker KUNI Wayne Jarvis KCCK Bob Stewart KIWR Sophia John KSUI Joan Kirkman KWIT Gretchen Gondek KBBG Beverly Douglas STATE: KS KHCC Ken Baker KANU Darrell Brogdon KKSU Larry Jackson KRPS Tim Metcalf KMUW Mark McCain STATE: KY WKYU Peter Bryant WNKU Grady Kirkpatrick WUKY Stacy Yelton WFPK Stacy Owen WFPL Terry Rensel WMKY Charles Compton WKMS Mark Welch WEKU John Gregory WMMT Cheryl Marshall STATE: LA WBRH Larry Davis WRKF Shirley Sands KSLU Todd Delaney KRVS James Hebert KEDM Mark Simmons WWNO Fred Kasten WWOZ Dwayne Breashears KDAQ Adam Giblin STATE: ME WERU Joe Mann WMPG Jim WMEA Charles Beck STATE: MD WBJC Jonathan Palevsky WYPR Andy Bienstock WSCL Pamela Andrews STATE: MA WFCR Bob Paquette WBUR Peter Lydotes WGBH Steve Charbonneau WUMB Brian Quinn WCAI STATE: MI WGVU Rick Bierling WUOM Jon Hoban WDET Judy Adams WKAR Curt Gilleo WMUK Klayton Woodworth WNMU Nicole Walton WBLV Steve Albert WEMU Clark Smith STATE: MN KSJR Chris McNamara KUMD John Ziegler KAXE Mark Tarner KFAI Dan Richmond KUOM Mark LaCroix WCAL Michael Rathke MPR Eric Nycklemoe STATE: MS WUSM Elliott Crawford WMPN Bob Holland STATE: MO KRCU Jason Brown KBIA John Bailey KOPN David Owens KJLU Dan Turner KCUR Bill Anderson KKFI John Jessup KXCV Patty Holley KUMR John Francis KSMU Mike Smith KDHX Beverly Hacker KWMU Mike Schrand KCMW Jon Hart STATE: MT KEMC Marvin Granger KUFM Michael Marsolek STATE: NE KUCV Nancy Finken KZUM Craig Lowe KIOS Robert Coate KVNO Mike Hagstrom STATE: NV KNPR Flo Rogers KUNR Bobbie Lazzarone STATE: NH WEVO Michael Arnold STATE: NJ WBJB Rick Robinson WBGO Thurston Briscoe STATE: NM KANW Judy Valdez KUNM Marcos Martinez KCIE Romaine Wood KRWG Colin Gromatzky KABR Ruby Herrera KENW Shannon Hearn KTDB Bernie Bustos KSHI Duane Chimoni STATE: NY WAMC David Galletly WSKG Kate Cook WFUV Chuck Singleton WBFO David Benders WNED Al Wallack Peter Goldsmith WSLU Jacqueline Sauter WEOS Liz Kenney WJFF Christine Ahern WBAI Bernard White WNYC Michael Ellcessor WRVO John Hurlbutt WXXI Peter Iglinski WMHT Marianne Potter WAER Ron Ockert WCNY Don Dolloff STATE: NC WCQS Barbara Sayer WUNC George Boosey WFAE Paul Stribling WDAV Frank Dominguez WNCU B.H. Hudson WFSS Janet Wright WSHA Rashad Muhaimin WZRU Brian Lewis WNCW Kim Clark WHQR Susan Dankel WFDD Jay Banks STATE: ND KEYA Jarle Kvale KCND Bill Thomas KMHA Clarence Sun STATE: OH WOUB Rusty Smith Bryan Gibson WGUC Robin Gehl WVXU George Zahn WCPN David Kanzeg WCBE Mike Randolph Dan Mushalko WOSU Susan Lyons-Johnson WKSU Vincent Duffy WMUB John Hingsbergen WGTE Barbara Heslope WCSU Dr. John Logan WYSO Tim Tattan WYSU David Luscher STATE: OK KCCU Mike Leal KGOU Jim John KOSU Ted Riley STATE: OR KSJK Eric Teel KMUN Elizabeth Grant KOAC Lynn Clendenin Michele - asst. KLCC Don Hein KRVM Raymond Scully KMHD Greg Gomez KBOO Chris Merrick KBPS Donna Ross KOPB Lynn Clendenin STATE: PA WDIY Neil Hever WQLN Tom Tysz WITF Craig Cohen WLCH Maria Delvalle WHYY Christine Dempsey WRTI Jack Moore WXPN Bruce Warren WQED Ted Sohier WYEP Rosemary Welsch WPSU Kristine Allen STATE: SC WLTR John Gasque WSSB Jimmy White STATE: SD KILI KUSD Matt Weesner STATE: TN WUTC Mark Colbert WETS Dan Hirschi WUOT Daniel Berry WKNO Dan Campbell WYPL Chris Carwile WMOT Greg Lee Hunt WPLN Henry Fennell STATE: TX KUT Hawk Mendenhall KVLU Byron Balentine KAMU Rod Zent KETR Vicki Holloway KEDT Stewart Jacoby KERA Abby Goldstein KTEP Dennis Woo KMBH Chris Maley KTSU Aaron Cohen KUHF Robert Stevenson KTPB Manny Almanza KNCT Dan Hull KOHM Clinton Barrick KOCV Daphne Dowdy KPVU Charles Porter KPAC Nathan Cone STATE: UT KUSU Lee Austin KZMU Christine Williams KPCW Jan Govednik KBYU Walter Rudolph KRCL Ryan Tronier STATE: VT WVPR Jody Evans STATE: VA WTJU Charles Taylor WMRA Matt Bingay WHRV Dwight Davis WCVE Wayne Farrar STATE: WA KBCS Kristen Walsh KWSU Mary Hawkins KUOW Jeff Hansen KPBX Verne Windham KPLU Joey Cohn STATE: WV WVPN James Muhammad WVMR Shaun Harvey STATE: WI WLSU Eugene Purcell WPR Joy Cardin WUWM Bruce Winter WOJB Nicki Kellar WXPR Walter Gander STATE: WY KUWR Roger Adams PD/station manager
  6. Celiac.com 03/30/2005 - The original one-stop shop on the Internet for wheat and gluten-free foods has underwritten a new Public Radio program on celiac disease called Gut Reaction. The one-hour program was produced by Richard L. Paul of rlpaulproductions, LLC, many Public Radio stations across the USA have already aired it, including WAMU in Washington, DC, WILL-FM in Champaign/Urbana, IL, WBE in Chicago, IL, WCPN-FM in Cleveland, OH, seventeen stations on the Minnesota Public Radio Network, and it is scheduled to air on many more stations in the future--including next weekend on WFUV in New York City. Several stations who aired it got such an overwhelmingly positive listener response that they have decided to air it multiple times. The touching documentary details the difficult real-life stories of several individuals who, after suffering for many years with severe, unexplained health problems, were finally diagnosed with celiac disease. Unfortunately their stories are not unique, and resemble many of those who have been affected by the disease. According to Scott Adams, Founder of The Gluten-Free Mall® and Celiac.com: We underwrote Gut Reaction with the aim of getting the word out about celiac disease to millions of people across the USA, including to those who are unaware that they have it--a full 1-in-133 Americans have celiac disease, but only 1-in-4,700 are ever diagnosed--which is not an acceptable ratio. Hopefully this program will have a positive impact on those who hear it, and will ultimately lead to the diagnosis and treatment of many people. It is also our hope that the program will lead to a better understanding of the disease among those who dont have it, so that it will be easier for those with it to maintain its only acceptable medical treatment--a 100% gluten-free diet for life. Mr. Adams emphasizes that: We believe that Public Radio is the perfect vehicle to deliver this important message about celiac disease to people across the USA, because its function is public service and education via quality, educational programming--and Gut Reaction is just that. He continues: You can help us to get Gut Reaction aired in your community by going to Celiac.com and following the steps listed there to contact the programming director at your local Public Radio station. He explained that Public Radio programming is decided on a station by station basis, and each stations program director decides which shows get aired on their station--so each person who contacts them can have a huge influence on which programs get chosen. About The Gluten-Free Mall®, Your Special Diet Superstore®: Since 1998 The Gluten-Free Mall® has provided online shopping for wheat and gluten-free foods for those on special diets due to celiac disease, wheat allergy or other health reasons, via their Internet site: www.glutenfreemall.com.