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Found 48 results

  1. How long did it take you to get your blood test results? How were you notified of the results (letter, phone call etc.)?
  2. I had a celiac blood "screen" ordered through a GI consultant at a hospital last Friday (23rd November) and was wondering how long you recon it would take for the results to come back. As this was done through a consultant the results won't go straight back to my GP and I can't ring up. The hospital seems to mainly communicate through letters so I was wondering if they'd send a letter with the results it may take a bit longer to come back (I only just got a letter summarising the consultation I had before my test today). I'm just very anxious waiting for the results. (This was done on the NHS in the UK) Please does anyone remember how long it took for their blood results to come back? I'm really desperate.
  3. The following detailed explanation of serological tests for celiac disease was written by Tom Ryan, Technical Service Specialist, INOVA Diagnostics, Inc. There has been a lot of discussion about serological testing for celiac disease recently, specifically regarding tTG (tissue Transglutaminase) testing. I will try to answer some of the many questions that have appeared on this list about all of the tests. First, and this applies to any of the blood tests, you must currently be on a gluten containing diet for the tests to be accurate. Antibodies are produced by the immune system in response to substances that the body perceives as threatening. The immune response that your body produces is its response to being exposed to gluten in the diet and its subsequent effect on the intestinal mucosa. If there is no gluten in the diet, then there is no response that we can measure. A brief change in diet will not have a noticeable effect. If you have been gluten free for a week or so, it will not make any great difference. The response might be marginally less but the difference is insignificant because the body has not had time to respond to the change. Conversely, if you have been gluten free for a protracted period of time and decide to be tested, a brief challenge of a couple of weeks is not enough to elicit a response and get an accurate test. There are several steps that take place to generate an immune response and it takes time both for the positive reaction when gluten is present and to clear the antibodies when gluten is eliminated. There has been a great deal of discussion about how much and how long a challenge should be and there is no consensus. Talk with your Doctor. My personal feeling is that the minimum is 2 slices of bread per day for 6 weeks to get an accurate test but I would not try to second-guess the Doctor. There are basically four tests that can be performed to aid in diagnosing celiac disease. Notice that I say they will aid in diagnosing celiac disease. Immunology is fairly accurate but it is far from being an exact science. All of the lab tests, regardless of the type or source, are presented as aids to diagnosis. They should not be used alone as a basis for diagnosis but rather are intended to be considered in conjunction with the physical examination of the patient as well as the reported symptoms, etc. by a trained physician. There has been a great deal of confusion about what the tests are and I hope to alleviate some of the misunderstandings. There are many terms that we hear. tTG, IgA, IgG, ELISA, etc. What are all of these? Some contributors to the list make reference to the IgA or IgG test or to the ELISA test. These labels are incomplete for our purposes and could be referring to any number of different tests. We all have, within our bodies, a family of closely related although not identical proteins which are capable of acting as antibodies. These are collectively referred to as immunoglobulins. Five major types of immunoglobulins are normally present in the human adult. They are IgG, IgA, IgM, IgE and IgD. Each of these is a shorthand way of writing immunoglobulin gamma G (or A or M, etc.) and they each perform a different function in our systems. IgG is the principal immunoglobulin in human serum. It is important in providing immunity in a developing fetus because it will pass across the placental barrier. IgA is the principal immunoglobulin in secretions from respiratory and intestinal mucosa. IgE is a gamma globulin produced by cells lining the intestinal and respiratory tracts. It produces the antibodies associated with most hypersensitivity (allergic) responses. It is associated with asthma, hay fever, etc. IgM is a globulin formed in almost every immune response in the early part of the reaction. IgD is a rare protein present in normal sera in a tiny amount. These designations refer to the type of protein that is carrying the antibody in question. Both IgG and IgA subtypes of anti-gliadin antibody are produced, hence we refer to them as IgG gliadin or IgA gliadin. Collectively they are anti-gliadin antibodies. Anti-Gliadin Antibodies: Both IgA and IgG anti-gliadin antibodies (AGA) are detected in sera of patients with gluten sensitive enteropathy (celiac disease). IgG anti-gliadin antibodies are more sensitive but are less specific markers for disease compared with IgA class antibodies. IgA anti-gliadin antibodies are less sensitive but are more specific. In clinical trials, the IgA antibodies have a specificity of 97% but the sensitivity is only 71%. That means that, if a patient is IgA positive, there is a 97% probability that they have celiac disease. Conversely, if the patient is IgA negative, there is only a 71% probability that the patient is truly negative for celiac disease. Therefore, a positive result is a strong indication that the patient has the disease but a negative result does not necessarily mean that they don not have it. False positive results are rather uncommon but false negative results can occur. On the other hand, the IgG anti-gliadin antibodies are 91% specific and have an 87% sensitivity. This means that they will show positive results more readily but there is not as strong a correlation with celiac disease. It is less specific. Patients with other conditions but not afflicted with celiac disease will occasionally show positive results. IgG anti-gliadin antibodies are detectable in approximately 21% of patients with other gastrointestinal disorders. This test might yield false positive results but is less likely to yield false negative results. A sensitive testing protocol includes testing for both IgA and IgG anti-gliadin antibodies since a significant portion of celiac patients (approx. 2-5%) are IgA deficient. This combined IgA and IgG anti-gliadin antibody assay has an overall sensitivity of 95% with a specificity of 90%. The type of test used to detect the anti-gliadin antibodies is called an ELISA. This is an acronym and it stands for Enzyme Linked Immuno-Sorbent Assay. ELISA is not a test in itself. It is a method of testing and it is a relatively simple test to perform. It involves putting a measured amount of diluted patient serum into the wells of a specially constructed and prepared plate and incubating it for a period of time with various chemicals. The end result is a color change, the intensity of which is dependent upon the concentration of anti-gliadin antibody (or other protein being measured) in the patient serum. The ability of this colored solution to absorb light at a particular wavelength can be measured on a laboratory instrument and mathematically compared with solutions that contain a known amount of anti-gliadin antibody to arrive at a number for the amount of antibody present. The sample can then be classified as negative, (0-20 units); weak positive, (21-30 units); or moderate to strong positive if greater than 30 units. The purpose of testing for anti-gliadin antibodies includes, in addition to diagnosis of gluten sensitive enteropathy, monitoring for compliance to a gluten free diet. IgA gliadin antibodies increase rapidly in response to gluten in the diet and decrease rapidly when gluten is absent from the diet. The IgA anti-gliadin antibodies can totally disappear in 2-6 months on a gluten free diet, so they are useful as a diet control. By contrast, IgG anti-gliadin antibodies need a long time, sometimes more than a year, to become negative. The reverse is also true. That is, a patient with celiac disease who has been on a gluten free diet and tests negative for IgA anti-gliadin antibodies, will show a rapid increase in antibody production when challenged by gluten in the diet. Approximately 90% of challenged patients will yield a positive IgA anti-gliadin result within 14-35 days after being challenged. The IgG antibodies are somewhat slower. Endomysial Antibodies: IgA class anti-endomysial antibodies (AEA) are very specific, occurring only in celiac disease and DH. These antibodies are found in approximately 80% of patients with DH and in essentially 100% of patients with active celiac disease. IgA endomysial antibodies are more sensitive and specific than gliadin antibodies for diagnosis of celiac disease. Antibody titers (dilutions) are found to parallel morphological changes in the jejunum and can also be used to reflect compliance with gluten-free diets. Titers decrease or become negative in patients on gluten free diets and reappear upon gluten challenge. The test for anti-endomysial antibodies is more subjective and more complicated for the lab to perform than the anti-gliadin assays. It involves serially diluting some of the patients serum, that is, diluting it by ½ then ¼, 1/8, 1/16, etc. and putting these dilutions on a glass slide that has some sort of tissue affixed to it. The slide is then processed with various solutions and examined under a fluorescent microscope to determine if any of that serum binds to any of the proteins in the tissue. If so, then that patient is confirmed as having antibodies to that particular protein. This method of testing is called an IFA or sometimes IIFA. It stands for Indirect Immuno-Fluorescent Assay. The selection of which tissue slide to use is determined by what specific protein, hence which antibody, you are specifically looking for. Endomysial antibodies react with the endomysium, which is a sheath of reticular fibrils that surround each muscle fiber. Therefore, to detect endomysial antibodies, you would want to use a tissue substrate that contains a lot of muscle tissue. The substrate used most often for this assay is distal sections of the esophagus. These are very thinly sliced and fixed to the slide. They contain muscle fibers and not much else so there is a lot of endomysium available to react with the anti-endomysial antibodies. Reading this test involves viewing the reacted slides with a fluorescent microscope to make the determination. This requires a highly skilled and trained eye and, of necessity, is somewhat subjective. You are looking for a green fluorescence in the endomysium covering the muscle fibers. The test is reported as the titer or final dilution in which the fluorescence can still clearly be seen. As you can imagine, this is very subjective. There are no standardized values and it is up to the judgment of the particular technician what the endpoint titer is. Recently, (1998) the endomysial antigen targeted by the anti-endomysial antibodies was identified as the protein cross-linking enzyme known as tissue transglutaminase (tTG). This has enabled the production of an antigen specific ELISA assay incorporating tTG as a reliable and objective alternative to the traditional and subjective Immunofluorescence based assays. In clinical trials, the correlation with the endomysial IFA assay has been shown to be close to 100%. This is a test that has been very well received in the professional community. It is an ELISA, like the anti-gliadin antibody test and, as such, is not subject to interpretation like the IFA. That is the greatest advantage to this new test! With this or any ELISA, the response is measured on an instrument that calculates the amount of light of a particular wavelength that is absorbed by the solution and prints out a numerical result. There is no chance of human error skewing the results because there is no judgment call involved. The ELISA plate, regardless of what you are testing for, is processed with at least three control sera (sometimes as many as eight) in addition to the unknown sample being tested. There is a negative serum and at least two positive sera containing different levels of the antibody being tested. There are specific requirements for the absorption levels of these three controls. That is, each of them has a minimum or maximum (or both) number that must be seen by the instrument in order for it to be a valid test. If there is any variance from these expected numbers, it is an indication that something went wrong and the test results are discarded and the test repeated. There is therefore no way the technician could report inaccurate results, (assuming they diluted the sample correctly). Either the test was valid, and you can rely upon the accuracy of the result, or the test is invalid, and the entire result discarded. If any error was made during the processing of the ELISA plate, it would result in the control sera numbers being out of range and the entire test result would be thrown out. In summary, the tTG ELISA is measuring the same thing that the endomysial IFA is measuring but with a method that is more sensitive and specific and not subject to interpretation. IgA class Reticulin antibodies are found only in Celiac disease and dermatitis herpetiformis. These antibodies are found in approximately 60% of celiac disease patients and 25% of DH patients. This test is falling into disuse because of the limited utility and the availability of better tests. It is an IFA performed on a tissue substrate with all the attendant problems that go along with it. The development of all of these serum assays has tremendously simplified the diagnosis of celiac disease and improved the accuracy as well. The original criteria for diagnosis according to the European Society for Pediatric Gastroenterology and Nutrition, (ESPGAN), involved a year of arduous studies with: An initial positive gut biopsy; 6 months on a gluten free diet; A second, negative gut biopsy; A gluten challenge for 6 months and; A third, positive gut biopsy. The revised ESPGAN criteria call for positive results in two of the serological tests confirmed by a single positive biopsy. In practice, many gastroenterologists are utilizing the serologies in conjunction with a controlled diet and the clinical presentation to form a basis for diagnosis without the need for the invasive procedure. Through the auspices of the Celiac Disease Foundation and others, a professional symposium and workshop was organized earlier this year in Marina Del Rey, California with participants from Europe as well as the U.S. to establish standards for reporting test results. This should improve testing and diagnosis even more. At the conclusion of this conference a Celiac Disease Standardization Committee was formed to investigate and make recommendations on a standardized method of reporting results.
  4. This is my second thread within a few days, sorry it is long! My biopsy results came today, exactly 6 weeks after the endoscopy. They were "reported as normal." And I am honestly devastated. I've been crying all day. I needed those samples to come back positive, because I cannot - no, I will not - go on like this anymore. Some background: I had panic attacks in 2011 that eventually had me hospitalised with a heart rate of 170. After leaving the hospital I noticed I had constant indigestion and light headedness, symptoms that they assured me were due to the heart rate. When things calmed down, they said it was the beta blockers. After coming off the beta blockers, I started questioning my doctors why I had indigestion, acid reflux; why I was now light headed in the cinema, squinting and holding my head from the loud noise; why I was now sensitive to the sun, to light, to heat; and why I had symptoms of IBS. To cut a long story short, I've been getting treatment for IBS and especially the reflux since 2012, with absolutely no success. I've had every test and I now have a hiatal hernia and acid/bile in the esophagus constantly. I've also had muscle pain and severe weakness, and joint pain. After writing my doctor a letter last May, he suggested testing for celiac, as all my symptoms fit and my father had actually been found celiac positive in his last blood test, but my dad had no idea about that until very recently. I've had three blood tests - all negative. I've had a biopsy - negative. And I've been eating copious amount of bread and wheat for many months, and have never felt worse. The doctors tell me that the reflux will just stop on its own one day. I don't think that ever happens. I mentioned that my father had been diagnosed with M.E/Chronic fatigue syndrome in 2000, and that for a long time we've wondered if I might have inherited it. They didn't really say anything to that. I know it's not good to have celiac disease, but it has treatment, and it has hope. There are worse things to be diagnosed with, crohns, even M.E. There is no treatment for those. I don't want to have fundoplication surgery for the reflux and hernia, because it sounds awful and scary. The gastroenterologist didn't even think the surgery was necessary when I last spoke to her. But I really cannot go on with it, I refuse, so without a diagnosis of celiac, what's left for me to do? Just fundoplication. I was prepared to replace my food, was planning it. I've been researching for months. I even managed to delude myself into believing I have celiac. When my dad got a letter a couple of weeks ago about his last blood test being "strongly suggestive of coeliac disease," I hoped even harder. I thought it was a sign! I feel so foolish. Now I'll have to wait to see the gastroenterologist again to talk about... What? Fundoplication? She didn't even want to do it. She just shrugged and smiled and said I was a difficult patient. I'm going to see my dad's doctor this week, if I can, to talk about how likely it is that I might have celiac after all, regardless of my results, because of my dad's positive blood test, and to discuss the possibility I might have M.E/Chronic fatigue syndrome. In all honesty, I was prepared to look into M.E, until my dad's letter. Then I was even more certain my problem was gluten. Now they tell me, I have no problem with gluten. I feel SO ill right now, I can only describe it as "malaise." My head is light yet heavy, with pressure. My eyes are begging to close. My gut has been painful for over a week. I can feel acid reflux as always. My nails are cracked and peeling, as always. There is blood in my stools. My muscles are painful and so weak that I couldn't stretch out my arm while holding a mug without my arm feeling weak and wobbly. My legs were wobbling as I walked on Saturday. My gums feel as if there could be an ulcer. And I have acne, pale/yellow skin tone, and a headache is threatening. I just can't go on. Really thinking about giving up. I will try to go gluten free anyway, but my mum doesn't believe gluten is my problem and has been sceptical the whole time, so she is reluctant to learn about cross contamination in the kitchen. She just says it's not the problem and it's something else. I don't want to have NCGS because I don't think my doctors/gastroenterologists believe it exists. Thank you for any help :(.
  5. If anyone could clear this up for me it would be really helpful. My primary care doctor wasn’t able to get me in for months and my insurance isn’t very good so I found a lab online to do blood work. i only did the gluten allergy IGg blood test. I got my results online today and I don’t understand them fully. From what it says I’m ‘in range’ but my range is exactly what the range number is. Therefor is it higher than average just not high enough to be out of range? This is the results I have. In range <2.0 Reference range <2.0 mcg/mL so technically I’m not over the range but there’s nothing to reference, as in do most people that aren’t gluten sensitive have a 0? Because I feel awful most days with serious brain fog, anxiety and depression and massive headaches that never go away and stomach cramps and I can’t see what else could be causing this. I already had an ultrasound from my gynecologist and I don’t have anything visably wrong on the ultra sound causing the stomach cramping. Any insight would be helpful since I can’t get a doctor to fully interpret this. Thank you!!
  6. Hello all, I really need someone to help me understand my test results/symptoms, etc. I have been having diarrhea for 4+ months, have slowly been losing weight and have had really itchy legs. I have pain in my lower right side intestine and my intestine, as it has gotten worse, has felt pretty raw. I thought I had a tapeworm, went to a doctor and got a ton of tests. The only thing abnormal was my celiac panel. My results are below, if someone could give me more insight into what they mean, I would really appreciate it. TO carry on, I finally went off gluten about a week and a half ago. Immediately, I had stopped having bad diarrhea and for that to carry on for 6 days that was a big deal. So, I acknowledged that I probably am celiac and went to the store and redid my whole pantry. I have been eating all gluten free but as of this week, I'm gassy, having diarrhea really bad, having TONS of stomach pain and really discouraged. I don't have an appointment with a gastro doctor for another month...and I'm so worried. Can someone give me some insight?? Gliadin (Deamidated) Ab (IgG) 2 U <20 U Reference Ranges for Gliadin (Deamidated Peptide) Antibody (IgG): <20 units Antibody Not Detected > or = 20 units Antibody Detected Gliadin (Deamidated) Ab (IgA) 5 U <20 U Reference Ranges for Gliadin (Deamidated Peptide) Antibody (IgA): <20 units Antibody Not Detected > or = 20 units Antibody Detected Tissue Transglutaminase Ab, IgG 7 U/mL U/mL <6 No Antibody Detected > OR = 6 Antibody Detected Tissue Transglutaminase Ab, IgA <1 U/mL U/mL <4 No Antibody Detected > OR = 4 Antibody Detected Endomysial Screen NEGATIVE NEGATIVE Endomysial Antibody Titer TNP titer titer Test Not Performed. Screening test Negative or Not Detected. Titer not performed. Immunoglobulin A 230 mg/dL 81 - 463 mg/dL REPORT COMMENT: FASTING:NO
  7. Hi, im just wondering how long you all waited for your results for endoscopy biopsy? I rang the lab today and apparently they have already been sent to my gp! That seems really quick to me! Also what were your symptoms? i went gluten free about 10 years ago. Was having stomach issues. Did every test but the endoscopy (I chickened out). Fast forward stomach issues returned. So return for a bunch of tests. Got diagnosed with Hashimotos. So Doc recommended confirming celiac. Gluten challenged. Omg that really sucked! Crippling pain, tired all the time. Toilet drama, I looked pregnant, so much so that people actually asked! So bloated! Gong to Gp tomorrow...
  8. I am in Pittsburgh and have been to multiple doctors for stomach issues. I had an endoscopy that showed "villous atrophy indicative of celiac sprue". I had IgG and IgA testing- both came back negative. I had genetic testing and the doctor says it is also negative, but the results say I am positive for: DQB1*03 DQB1*06 DQA1*01 DQA1*03 I have googled and googled with no luck. I guess I have a few questions. Can everything be negative and I still have Celiac disease? Or what else could cause the damage to my intestines? Does anyone know enough about genetics to interpret these positives? I know I shouldn't be seeking medical advice on a forum, but my doctors have been useless. Any advice is appreciated. Should I keep up the hunt for a doctor or is this a true negative? Thanks!
  9. Hi everybody from Croatia! I need help with my test results. I have done some blood test, but not biopsy. I have Hashimoto, allergies, asthma, high blood pressure...I got 15 kilos when my thyroid starts to make problems. Also I had very low all vitamins (B12, D, A...) and poor ferritin and iron (not below the reference values). I had constipations etc. I am now in much better conditions, raised levels of vitamins, no constipation, more energy etc. I do my blood test before about 6 years whan I was eating gluten regular. Now I am gluten free for 2,5 years. What do you mean about my blood test? Do I really need to do biopsy to know exactly do I have celiac disease?? EMA (IIF) negative titer reference values < 1:20 tTg result 2 reference values <20 immunoglobulin A result 1,81 reference values 0,70 - 4,00 Genetics test in attachment. Thank you very much in advanced!
  10. Hello everyone, So, a little bit of background I suppose. I've been perusing this site for a long time now trying to find answers. I've been suffering from random extremely itching patches on my feet. Nausea in the morning (or throughout the day). Brain fog, forgetting things, muscle aches, joints constantly cracking and other intestinal issues. I also suffer from a mysterious short of breath symptom that comes and goes. It feels like I can't take a full breath in even though I'm getting enough oxygen. This has been tested and no one can figure out what is causing it. I recently got the celiac panel done to see if I do indeed have it. However, I'm worried that my doctor does not know much about the disease. I'm hoping that someone can help me with my test results. DEAMIDATED GLIADIN IGA 9.8 units 0.0 - 19.9 units SPECIMEN APPEARS SLIGHTLY LIPEMIC. Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 DEAMIDATED GLIADIN IGG 3.5 units 0.0 - 19.9 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 Gliadin IgA 11.3 units 0.0 - 19.9 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 Antigliadin IgG 159.9 units 0.0 - 19.9 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 TISSUE TRANSGLUT.IGA 7.6 units 0.0 - 19.9 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 TISSUE TRANSGLUT.IGG 1.9 units 0.0 - 19.9 units Negative 0 - 19 Weak Positive 20 - 30 Moderate to Strong Positive >30 IGA IMMUNOGLOBULIN 280 mg/dL 87 - 352 mg/dL So, as you can see, my IgG is sky high according to this test. Is this celiac? Or am I going to have to keep looking for an answer? Thank you so much for any help. I'm getting desperate after years of searching.
  11. I would like some help in understanding my results from the 23andme test. I am being told that I have 2 copies of a genetic variant that was tested. The variants were detected in the HLA-DQA1 gene. "We detected two copies of a variant linked to the HLA-DQ2.5 haplotype." Do do these results mean? In the HLA-DQ2.5 - HLA-DQa1 - rs2187668 - there are two TT. Is this bad? Is this what is mean by having homozygous hla dqa2.5? I am new to all of this and am just looking for some answers. I am concerned about being at risk for celiac disease. Thanks!
  12. Hello, I need some advice. I have had a positive blood test for celiac. My doctor referred me to a GI specialist but my appointment is not until May (I live in Canada, so it is covered by OHIP but the wait times are ridiculous). I started the process of getting tested because of a rash on my elbows, knees, and bum. I have attached pictures of my knees and elbows (excluded my bum). My blood test results are also included. I am very certain that I am celiac. My question is, with the blood work and rash, would you wait until May to have an endoscopy done to confirm diagnosis or go ahead and cut gluten from your diet to alleviate symptoms? My rash is so itchy, it keeps me up at night. I have an 8 month old son who also keeps me up at night. Before I realized Celiac was a possibility, I thought I had brain cancer because of the brain fog/dizziness/memory loss. Once I googled my rash and other symptoms, and had the blood work done, it all makes sense with celiac. What would you do??
  13. Hi, I'm newly diagnosed. Had endoscopy & colonoscopy first, then one week later GI's office called and told me to go have bloodwork done. About one week after the bloodwork GI's nurse called saying I have Celiacs and to go ahead and start a gluten-free diet. Didn't speak to the doctor, I follow up with him July 27th. Test Results: EMA Titer 1:20 Gliadin Deamidated AB - IgA 17 (<20 antibody NOT detected); IgG 68 H (>20 antibody detected) Tissue Transglutaminase AB - IgG 1 (<6 antibody NOT detected); IgA 28 H (>4 antibody detected) Total IgA 153 (Range 81-463) I've done some reading and *think* I understand these results, except for one thing... Does it tell me anything that my TIgG and Gliadin IgA are lower (not detecting antibodies)? I would have assumed both test IgAs would be low or both IgGs but not flip flopped. I didn't follow a gluten-free diet prior to bloodwork, however, I do follow a predominately whole food based diet, could that account for any of these numbers? I guess my real question is: can these numbers tell me anything other than, "you have Celiac Disease" ? My understanding is that these numbers cannot tell you anything about the severity, gluten sensitivity or level of damage... is that correct? I would like to extrapolate the most I can from this test. Is there anything else I might be able to surmise before I see my GI in a few weeks? Thanks so much, I've already learned a lot from poking around on these forums!
  14. Could someone please help interpret my husbands bloodwork the doctor says it suggests celiac. And the doc thinks he does have celiac deliseas. He also has the symptoms! I believe he has celiac, we have just been told wrong in the past that we are kind uneasy when it comes to doctors... He's been gluten free since having the test done. It's been 2 weeks and he's feeling some better! Thanks! Ttg iga- 1 -normal equal or more than 4 Ttg igg- 8 -normal less than 6 they said Immunoglobulin- 50 normal 80 greater or equal to 4 anti bodies * sorry I know it's kinda scattered I was jotting down quickly as the nurse was talking over the phone and I'm having trouble putting it together thank u!! *
  15. My daughter did blood test for antibodies anti-Transglutaminase (tTG) IgA and/or IgG (which is to determine whether it is Celiac or not) and the doctor never told us that she didn't have to eat anything before the test (she tends to fade). If she ate something with gluten before your blood test, is it possible that it comes out positive even if she's not or viceversa?
  16. I posted on here a few days ago asking for help understanding my test results since my doctor didn't know how to interpret them. However, no one has replied. PLEASE can someone help me understand these results? I think it is listing the ones I tested positive for, which includes the DQ2 gene carried by 90% of people with Celiac. HLA DRB1, DQB1 LOW RESOLUTION DRB1 DRB1*07 (DR7) DRB1 DRB1*11 (DR11) DQB1 DQB1*02 (DQ2) DQB1 DQB1*03 (DQ7) COMMENT SEE BELOW. Serologic equivalent is given in parentheses. When only a single antigen or allele is detected, it likely indicates homozygosity and is reported accordingly. However, additional testing would be required for confirmation. Low resolution HLA typings are routinely performed by PCR-rSSO or PCR-SSP methodologies. Thank you in advance for your help.
  17. I went in for my DQ2/DQ8 test and got the results today. However, the doctor didn't know how to interpret them and is going to call the lab to get an interpretation. In the meantime, does anyone on here know what this means? I think it is the list of the genes I tested positive for. Here is a copy of the lab report: HLA DRB1, DQB1 LOW RESOLUTION DRB1 DRB1*07 (DR7) DRB1 DRB1*11 (DR11) DQB1 DQB1*02 (DQ2) DQB1 DQB1*03 (DQ7) COMMENT SEE BELOW. Serologic equivalent is given in parentheses. When only a single antigen or allele is detected, it likely indicates homozygosity and is reported accordingly. However, additional testing would be required for confirmation. Low resolution HLA typings are routinely performed by PCR-rSSO or PCR-SSP methodologies. The version(s) of the IMGT HLA database used to interpret the HLA results is available upon request.
  18. Hello all, I'm a newby to this so hopefully I'm in the right section. I have just had my tests done for celiac and they came back negative. I'm now a dead end of what to do so I'm wondering if I should just go gluten free to see how I feel and if it makes me feel better or is there other tests I could do. So really it's just a few questions. 1. If I go gluten free will the effects be instant as in within a few days just so I'm aware? 2. Are there any further tests I should be doing or asking the doctor for? (I've requested he calls me back today before I get fobbed off again) 3. are there any good books I could get in the UK as a intro / beginners to gluten free I know we have websites and things but sometimes prefer to have a book to go from and carry round I know these questions probably get asked so many times so apologies if I should be in a diff section. Thanks in advance.
  19. Hello, hoping someone can help because at this point the doctors are not helping make me understand. My son has taken 5 Celiac Screen's over the past two years (he's now 12), in each and every one the "Transglutaminase_IgA" is normal range but the CELIAC SCREEN" is always positive (ranging from as high as 300 to as low as 50... the highest normal range is 24). Well the Dr's and the Gastro Dr don't have an explanation. They said without both being positive its not Celiac, so what is it and why is the screen so high? I will say he doesn't complain of symptoms but then again hardly eats (always been that way). Any ideas, suggestions would be great! Thanks!
  20. I know there are thousands of these topics out there, but I'm yet another confused and in pain patient seeking as much help and guidance as I can get from you kind folk. My storyline is this (and I'll bullet point for ease) - 2012 living abroad in Nicaragua for last 5 years- begin feeling stomach pain, gas, severe diarrhea. Foods like broccoli, spinach, coffee, are major irritants. - 2013 - Immigrate back to US - symptoms continue but increase in frequency - 2014 - crappy health insurance and can't get tested - 2015 April - Initial blood test = Celiac panel- my value 98 (std rng 0-19), TTG IGA- my value 74 (std rng 0-19), Gliadin Antibodies IGA - my value 9 (std rng 0-19) - 2015 Sept - Endoscopy - negative villi atrophy, Colonoscopy - without abnormality - 2015 Oct - Begin gluten free diet, 98% faithful. Diarrhea seems to lessen. Feeling of increased energy. - 2015 Nov - Additional blood work and parasite tests ; Cryptoporidium and Giardia Antigens : Negative, TTG Ab IgA = 26 (std range = <20), Gliadin Deamidated IgG Ab = 29 (std range = <20) - 2015 Nov-Dec - attempt eating a whole wheat italian coldcut wrap for lunch to test theory. Immediate pain in stomach, and symptoms for 3 weeks. So my questions are these: How important is the diagnosis? Do these sound like celiac elements or simply gluten sensitivity or neither? How can the TTG have been so high without villi atrophy? Is there something else I should test for or seek out?
  21. Hi everyone, I have been feeling pretty sick now for about 5 months. Finally my boyfriend made me go see a doctor, which I did. My first doctor did a full blood panel and tested me for h pylori - panel came back normal, negative for h pylori. She then referred me to a GI doctor who ordered a full celiac blood panel. Everything came back normal except for one test - he said the max was a 5, and I scored a 6. He didn't clarify which test it was, but from research I think it's the ttg-igg test? He then scheduled me for an endoscopy and colonoscopy. He found inflammation only in the stomach - nonerosive gastritis - and this was the only area he biopsied. I just got a call today from the doctor who said the biopsy results were normal, and told me to just take anti-acid pills for a few months then see how I feel. He never addressed what this meant? So do I have or not have celiac? If I don't, I have already taken anti-acid pills, I don't want to live on them forever... I'm having a hard time accepting that just anti acid pills will make me feel better .. They help with the bloating and sensitive stomach (literally can't put any pressure on my belly) but not the nausea, night fevers, and vomiting. Can someone pls help me make sense of my doctor's vague instructions/responses to my testing? Thank you!
  22. Celiac.com 11/11/2015 - If you ask me, it doesn't seem that far-fetched that some people who do not have celiac disease could still have adverse reactions to gluten. However, actually proving that scientifically continues to be challenging. Take the case of the research team that recently conducted a double-blind, placebo-controlled, cross-over, gluten-challenge trial of patients with suspected non-celiac gluten sensitivity. The team wanted to try to get an idea of the number of self-diagnosed patients with non-celiac gluten sensitivity. The team enrolled 53 women and 8 men referred to two Italian centers between October 2012 and November 2013 for suspected non-celiac gluten sensitivity. The subjects were randomly assigned to receive 4.375-g gluten or rice starch per day via gastro-soluble capsules for 1 week after a 1-week run-in period, and followed by a 1-week washout period and cross-over to the other group. The team chose rice starch as the placebo because it is "the most readily absorbable of the complex carbohydrates, and thus less fermentable, in the intestinal tract." They used a daily questionnaire to chart any changes in overall symptom scores, and conducted analysis with a per-protocol approach. A total of 59 patients completed the trial, while two withdrew due to "intolerable symptoms." Overall, one week of gluten consumption increased overall symptom severity compared with one week of placebo (P = .034), including abdominal bloating (P = .04), abdominal pain (P = .047), foggy mind (P = .019), depression (P = .02) and aphthous stomatitis (P = .025). Perplexingly, the team found that "most patients showed approximately equal degrees of overall symptoms with either gluten or placebo, although overall symptoms were worsened significantly by gluten in comparison with placebo." Got that? Significant numbers of the subjects reacted to the placebo. The short conclusion is that these results "do not represent crucial evidence in favor of the existence of this new syndrome." However, and it's a big however, the results aren't quite as clear as they might appear. In an accompanying editorial, Benjamin Lebwohl, MD, from the Celiac Disease Center at Columbia University, and Daniel A. Leffler, MD, MS, from Beth Israel Deaconess Medical Center write: The "overall positive result was driven by a minority of patients, whereas the rest had no (or at most a modest) worsening compared with placebo." They add that: "These findings can be a Rorschach test of sorts, in which the viewer draws interpretations that are based on his or her prior beliefs about NCGS. … It is therefore not surprising that this trial, like its predecessors, seems only to contribute to the uncertainty about NCGS." So, basically, there's no clear word on the existence or non-existence of non-celiac gluten sensitivity, or on the number of people who might suffer from it. Stay tuned for more studies, and more information as researchers attempt to sort it all out. Source: CGHJournal.org
  23. I got some tests back after my sister was diagnosed celiac (she was most recent but quite a few of my family members are celiac). I'm going to do biopsy but haven't had that done yet. Could you please explain what these tests are for, what my results mean, and what the normal range is for each? I want to know how close any of my results are to borderline and how likely it is I have celiac or not. gliadin Ab Iga - 98 units tissue transglutaminaise > 100 units gliadin abg (the doctor wrote this quickly for me and I don't see this acronym on other posts, could this be short for gliadin ab igg?) - 42 units. EDIT: If anyone else has used life labs and know the reference range for any of these tests I would appreciate the information!
  24. I have been battling with my symptoms for nearly 4 years. Gastric pain, cramps,rashes,nausea, and vomiting. You all know my pain. I had my gallbladder removed in 2013 and was diagnosed with fatty liver. I am only now 23 years old and I had my primary care completely shocked. I continued to live with symptoms that often sent me to seek emergency care. They continued to poke and prod me suggesting it was stress from college and being a mother.I simply decided that it wasn't worth the struggle I was going through as not a single doctor could solve my puzzles. Nearly 6 months ago my 4 year old son started displaying the symptoms that I had been trying to overcome for the past several years. It was then that I knew I needed some kind of diagnosis. I received a referral from an urgent care clinic, because my primary care physician wanted to continue treating me. I felt I needed to see a gastroenterologist, and he quickly scheduled me for an endoscopy. I got the result today, and luckily they DID NOT find cancer; however, they say it is difficult to exclude celiac. I just left from getting a celiac blood panels that they ordered. I don't know what is happening. Are they saying that it is likely that I have celiac disease?!
  25. Hello all! I was just told 2 days ago that I "may" have celiac's disease. Awesome. My doctor just now put these labs into my online folder and I won't be able to talk w/her til next week, but am DYING to know what they mean!! Can anyone help?? I'll be forever grateful! Total Salivary SIgA 11 Normal Endomysial Antibody IgA <2 Negative Gliadin Ab, SIgA (Saliva) >32 Positive What does all this mean?? Do I or don't I have to start shopping in the gluten-free sections? If it matters, I was diagnosed w/Graves Disease in 2011, had RAI therapy on my thyroid in 2013, went hypothyroid, and after trying many things, am currently on Armour to treat my now hypo-thyroid. I also have absolutely NONE of the celiac disease symptoms. Never have. I have always been able to eat anything I want and am really never sick. Thank you for any wisdom you can shed so I don't have to wonder all weekend. --AmyM