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Celiac.com 12/24/2024 - In Nova Scotia, Canada, parents of children with food allergies and dietary restrictions are raising concerns over a new provincial school lunch program. For families like Ashley Hickey’s and Gunter Holthoff’s, whose children have celiac disease, the lack of gluten-free options underscores the need for greater inclusivity in public school meal services. This article explores the unique challenges of accommodating students with celiac disease, the limitations of current school food programs, and possible steps forward. The Importance of Gluten-Free Accommodations for Celiac Disease Celiac disease is an autoimmune condition that affects about one in every 100 to 200 people in North America. Triggered by gluten—a protein found in wheat, barley, and rye—the condition causes symptoms ranging from severe abdominal pain and nausea to chronic fatigue and malabsorption of nutrients. For children with celiac disease, dietary restrictions are not optional but essential, making access to gluten-free meals at school a priority for parents like Hickey and Holthoff. When Hickey’s seven-year-old son learned about the new school lunch program at Spring Street Academy in Amherst, he was excited. However, his enthusiasm quickly turned to disappointment when he discovered that many meals, like macaroni and cheese with whole wheat pasta, were off-limits due to his gluten intolerance. “It was heartbreaking to tell him he couldn’t have it,” Hickey shared, reflecting the emotional impact that limited meal choices can have on young children. Limitations and Concerns in Nova Scotia’s Lunch Program The newly introduced provincial lunch program, designed to provide balanced meals to students in 28 Nova Scotian schools, unfortunately lacks gluten-free accommodations. The program’s website lists potential allergens, yet it also carries a disclaimer that ingredient substitutions may occur without notice and that meals cannot be guaranteed to be allergen-free due to the risk of cross-contamination. This limitation poses a significant issue for parents, as even a small amount of gluten can trigger symptoms in children with celiac disease. Hickey notes that while some meals, such as butter chicken and Lebanese rice, appear gluten-free according to ingredient lists, she remains concerned about unexpected ingredient changes or cross-contamination in shared preparation areas. Holthoff’s daughter has faced similar disappointment, feeling isolated when watching friends enjoy warm school meals while she is limited to homemade gluten-free options. Comparisons with Other Provincial Programs In Prince Edward Island, a similar lunch initiative has been in place for four years, offering gluten-free options. However, even with such accommodations, the program advises parents that cross-contamination cannot be completely prevented due to third-party preparation. Katelyn MacLean, executive director of the P.E.I. School Food Program, highlighted the complexities of ensuring allergen-free meals on a large scale, especially when food is not prepared directly at schools. She cited factors such as cross-contamination risk, product availability, and costs as significant challenges to a fully inclusive meal program. Advocating for Accurate Ingredient Information and Preventive Measures For Jennifer Gerdts, executive director of Food Allergy Canada, access to accurate ingredient information is crucial for parents making meal decisions for children with food restrictions. Gerdts believes that better communication of ingredient lists and a commitment to maintaining ingredient consistency are essential first steps. Such transparency allows parents to assess each meal in advance and avoid unexpected reactions that may come from last-minute substitutions. To further reduce cross-contamination, Gerdts advocates for food providers to use online resources and training programs tailored to staff in food service. Programs like these help educate staff on best practices, minimizing the risk of gluten contamination in shared kitchen spaces. Moving Forward: Building Inclusive Meal Programs Parents like Hickey and Holthoff express that while they will continue to pack meals from home, they hope for broader changes in school meal programs to accommodate all dietary needs. Advocates suggest that dedicated gluten-free options could help prevent isolation for children with celiac disease and that additional funding might alleviate the financial strain often associated with sourcing gluten-free ingredients. As food allergies and intolerances become more common, public meal programs have a unique opportunity to build inclusivity through thoughtful planning, adequate training, and transparent ingredient listings. At its core, the call for inclusivity in school lunch programs reflects a growing awareness of the importance of food equality for all students. By adapting meal services to accommodate dietary needs, schools can ensure that every child has the chance to participate fully in shared mealtime experiences, fostering both nutritional health and social well-being. Read more at: cbc.ca

Celiac.com 11/19/2024 - Raising a child with celiac disease can feel overwhelming, but with the right information and careful planning, your child can lead a healthy and happy life. This autoimmune disorder, triggered by gluten, requires lifelong dietary changes, but navigating social situations, school, and family events can be managed with some preparation. Here’s what parents need to know to help their child thrive while living gluten-free. Understanding Celiac Disease and Gluten-Free Living Celiac disease is an autoimmune disorder that affects how the body responds to gluten, a protein found in wheat, barley, and rye. When a person with celiac disease consumes gluten, their immune system attacks the lining of the small intestine, leading to nutrient malabsorption and various symptoms like bloating, diarrhea, fatigue, and more. For children, this can also impact their growth and development. The only treatment for celiac disease is a strict gluten-free diet. Parents should familiarize themselves with gluten-containing foods and how to spot hidden sources of gluten in packaged goods. Gluten can be found in sauces, soups, and snacks that may not immediately appear as wheat-based products. Learning to read food labels and understand gluten-free certifications is crucial in preventing accidental exposure. Packing School Lunches School lunch is one of the first challenges for parents of children with celiac disease. Many school cafeterias may not have gluten-free options, and cross-contamination with gluten-containing foods is always a concern. To avoid this, packing safe, gluten-free lunches is the best solution. Focus on meals that are nutritious, simple to prepare, and easy to eat. Some gluten-free lunch ideas include: Rice or quinoa salads with vegetables and a gluten-free dressing. Gluten-free sandwiches using certified gluten-free bread. Fruits, vegetables, and gluten-free snack bars. Gluten-free pasta with sauce in a thermos. It's important to communicate with your child's school about their dietary needs. Many schools will allow children with celiac disease to eat in a designated area to reduce the risk of cross-contamination or provide refrigeration and microwave access for packed lunches. Handling Birthday Parties and Social Events Social events can be a minefield for gluten exposure. Birthday parties, family gatherings, and sleepovers often feature pizza, cake, and snacks that are not gluten-free. To ensure your child is included and safe, it's essential to plan ahead. One way to prepare is by reaching out to the host before the event to explain your child's dietary restrictions. Ask what food will be served and offer to bring gluten-free alternatives. For example, you could send a gluten-free cupcake if the party will have cake or provide gluten-free snacks like chips and crackers that your child can eat without feeling left out. Another option is to make gluten-free versions of popular party foods at home, such as gluten-free pizza or baked goods. Your child can enjoy their favorite treats while still adhering to their dietary needs. The key is making sure they don’t feel different from their peers, so involving them in the process of choosing or making their food can be empowering. Navigating Social Situations and Friendships As your child grows older, they’ll need to learn how to manage their celiac disease independently. This includes explaining their condition to friends and adults in a way that helps them understand why gluten-free food is essential. Practice with your child on how to communicate their needs politely but firmly in different settings, whether it's at a friend's house, during class parties, or at restaurants. Encouraging your child to take an active role in managing their diet will help build confidence and independence. Let them help with meal planning, grocery shopping, and even cooking. This not only teaches them valuable life skills but also gives them a sense of control over their health. It’s also helpful to connect with other families dealing with celiac disease. This could be through local support groups or online communities where your child can meet peers with similar experiences. Seeing that they are not alone can reduce feelings of isolation and anxiety. Staying Safe While Eating Out Eating out with celiac disease can be challenging, but it doesn’t have to be impossible. More restaurants are offering gluten-free options, but you’ll still need to exercise caution. Cross-contamination is the biggest risk in restaurant kitchens where gluten is present. Before heading to a restaurant, research places that offer a dedicated gluten-free menu or are known for safe food handling practices. Many chain restaurants have detailed allergen information available online, making it easier to plan ahead. When you arrive at the restaurant, inform the server and chef about your child’s condition and emphasize the importance of avoiding cross-contamination. Teach your child to ask specific questions, such as how food is prepared, whether gluten-free items are cooked in the same oil as gluten-containing foods, and if separate utensils are used. This will help them understand the importance of taking extra steps to avoid gluten. Emotional Support and Empowerment Living with celiac disease can feel restrictive, especially for children who just want to enjoy the same foods as their friends. It's important to provide emotional support and help them see the positives of gluten-free living. Praise them for their ability to manage their diet and make good choices. Remind them that following their diet keeps them healthy and strong. You can also emphasize how many gluten-free options are available today compared to the past. From gluten-free bread and snacks to entire restaurant menus dedicated to gluten-free dining, they have more choices than ever. Involving your child in finding new gluten-free products or cooking new recipes at home can make the diet feel less like a limitation and more like an adventure. Raising a Healthy and Happy Child with Celiac Disease Raising a child with celiac disease requires education, planning, and advocacy, but it is entirely manageable. By creating a supportive environment, helping them navigate social situations, and empowering them to take charge of their health, you can ensure that your child thrives. Remember, while gluten-free living may require extra effort, it’s the key to keeping your child healthy, happy, and free from the symptoms of celiac disease. Watch the video version of this article:

Celiac.com 11/11/2023 - In a recent poll conducted by Celiac.com, participants were tested on their knowledge of gluten-free accommodations in various settings, shedding light on the prevailing misconceptions surrounding celiac disease and U.S. regulations. The results revealed a surprising divergence of opinions, indicating a need for clarity on the legal obligations of public schools, elderly care facilities, and airlines when it comes to providing gluten-free options. While some respondents demonstrated a solid understanding of the existing regulations, a significant number seemed to be navigating a web of misinformation. In this article, we delve into the poll findings, dissecting the nuances of U.S. laws to offer a comprehensive guide on what individuals with celiac disease can truly expect in terms of gluten-free provisions. From classrooms to care facilities to the friendly skies, we aim to dispel the myths and provide an accurate portrayal of the rights and responsibilities involved in accommodating gluten-free needs. Survey Snapshot: Unveiling Perceptions and Realities of Gluten-Free Accommodations In a recent poll conducted by Celiac.com, participants were quizzed on their understanding of gluten-free accommodations within various sectors in the United States. The results revealed intriguing disparities between public perception and actual regulations. Below are the poll questions, and results, and the correct response is bolded. Public schools must provide gluten-free meals to kids with celiac disease. True: 55% False: 45% Elderly care facilities must provide gluten-free meals to residents with celiac disease. True: 68% False: 32% Airlines must provide gluten-free snacks or meals to customers with celiac disease. True: 36% False: 64% These numbers not only shed light on the prevailing beliefs but also underscore the need for greater awareness regarding the rights and expectations of individuals with celiac disease. A Deep Dive into the Poll and the Americans with Disabilities Act (ADA) Under the ADA, are public schools required to provide gluten-free meals to students with celiac disease? The Americans with Disabilities Act (ADA) does not specifically require public schools to provide gluten-free meals to students with celiac disease. However, under the ADA, public schools are required to provide reasonable accommodations to ensure that students with disabilities have equal access to educational programs and activities. This could include dietary accommodations for students with celiac disease. In practice, some public schools choose to offer gluten-free meal options to accommodate students with celiac disease. The decision to provide gluten-free meals may depend on factors such as the number of students with dietary needs, available resources, and the school's commitment to ensuring equal access for all students. If you have a child with celiac disease who requires a gluten-free diet, it's advisable to work with the school to discuss your child's specific dietary needs and explore potential accommodations. This may involve collaborating with the school's food service provider and providing documentation from a healthcare professional to support the request for gluten-free meals. It's important to note that Section 504 of the Rehabilitation Act of 1973, which applies to schools that receive federal funding, may also require schools to provide dietary accommodations for students with disabilities, including those with celiac disease. It's recommended to work closely with your child's school and healthcare professionals to ensure that their dietary needs are met. Under the ADA are public or private elderly care facilities required to provide gluten-free meals to residents with celiac disease? Under the Americans with Disabilities Act (ADA), public and private elderly care facilities are generally required to provide reasonable accommodations to meet the dietary needs of residents or patients with celiac disease. The ADA prohibits discrimination on the basis of disability, and celiac disease is considered a disability under the ADA. In the context of elderly care facilities, this means that if a resident or patient has celiac disease and requires a gluten-free diet for their health, the facility should make reasonable accommodations to provide gluten-free meals or ensure that the resident's dietary needs are met. This may include offering gluten-free menu options, ensuring proper food preparation to prevent cross-contamination, and working with healthcare professionals to address specific dietary needs. It's important for individuals with celiac disease or their family members to communicate their dietary needs with the staff at the elderly care facility, provide any necessary documentation or medical information, and collaborate with the facility to develop a dietary plan that meets their needs while complying with the ADA. Facilities should be willing to work with residents and patients to ensure their health and well-being, and the ADA requires them to make reasonable accommodations to achieve this goal. However, the specific accommodations and processes may vary depending on the facility and the individual's needs. Under the ADA are commercial required to provide gluten-free meals to passengers with celiac disease? Under the Americans with Disabilities Act (ADA), commercial airlines are not explicitly required to provide gluten-free meals to passengers with celiac disease. The ADA primarily focuses on non-discrimination and equal access for individuals with disabilities in various aspects of public life, including transportation. While airlines must ensure equal access to air travel, dietary requirements, such as gluten-free meals, fall under a different set of regulations and practices. However, many commercial airlines do offer special dietary accommodations, including gluten-free meals, as part of their in-flight services. Passengers with dietary restrictions, including those with celiac disease, can typically request special meals when making their reservations or by contacting the airline's customer service. Airlines often offer options like gluten-free, vegetarian, vegan, or other special dietary meals to accommodate passenger preferences and requirements. It's important for passengers with celiac disease to notify the airline about their dietary needs well in advance of their flight to ensure that the airline can make the necessary arrangements. Keep in mind that the availability and quality of gluten-free meals may vary among airlines, so it's a good idea to inquire about specific accommodations when booking your flight. Passengers with dietary restrictions should check with the airline they plan to travel with to understand their specific policies and options for special meals. Final Analysis: Navigating Dietary Needs Under the ADA The poll results underscore widespread misconceptions regarding gluten-free accommodations under the Americans with Disabilities Act (ADA). While a significant portion incorrectly believed public schools, elderly care facilities, and airlines were obliged to provide gluten-free options, the reality is more nuanced. Public Schools: Public schools, although not explicitly mandated by the ADA, may choose to provide gluten-free meals as a reasonable accommodation. Successful advocacy for such accommodations involves collaborative efforts between parents, schools, and healthcare professionals. Elderly Care Facilities: In the realm of elderly care, the ADA necessitates reasonable accommodations for residents with celiac disease. Clear communication, documentation, and collaboration between residents and facility staff are pivotal in ensuring compliance with ADA standards. Commercial Airlines: Contrary to popular belief, commercial airlines aren't explicitly required by the ADA to furnish gluten-free meals. However, proactive communication with airlines can often result in suitable accommodations, emphasizing the importance of early notification and thorough understanding of each airline's policies. Empowering Individuals: This analysis reveals the need for improved awareness and understanding of ADA provisions related to dietary accommodations. Individuals with celiac disease and their advocates play a crucial role in fostering effective communication and collaboration to ensure their needs are met. While the ADA provides a framework for reasonable accommodations, it's essential to recognize the distinctions in how it applies to different settings. Navigating the landscape of gluten-free requirements involves proactive engagement, effective communication, and a collaborative approach between individuals, institutions, and healthcare professionals. As awareness grows, it is hoped that misconceptions will dissipate, fostering an environment where individuals with celiac disease can confidently assert their rights and enjoy equal access to various facets of public life. Source: Americans with Disabilities Act Title II Regulation

Celiac.com 07/20/2017 - It is common for school teachers in the United States not to know what student has celiac disease, or allergies of any sort. Most schools don't have formal systems so that the principal, school nurse, teacher, or cafeteria workers know when a child has celiac disease or food allergies. An informal game of roulette is played, where everyone assumes that everything is fine – that is, until a child has a heath reaction. In Montreal, Canada, the Lester B Pearson School Board has taken a different approach to dealing with food allergies and conditions such as celiac disease that their students might have. They regard these health conditions to be so important that how to handle them is present in their official Policy on Safe and Caring Schools. To summarize what they do, at the beginning of each school year parents are sent a form requesting them to inform the principal, homeroom teacher, and other relevant school personnel about health conditions and allergies. This includes children who have celiac disease and gluten issues. If a child changes schools, or if a student in an existing school gets a new health diagnosis or has newly identified health needs, this information should be made known to school personnel. A photograph of the student is taken and put on a card with the health condition so that others in charge may know that a particular child has gluten issues. In the cafeteria, workers have the photos of the children posted in the kitchen where they can see them so that they can know that brown-haired Lucinda in fifth-grade has celiac disease and should be served only foods that are safe for her. Children may not know what foods have gluten in them and which do not, so they may not always be the best informants for identifying which foods being served are safe for them and which are not. Given that additives may vary according who is doing the cooking or what ingredients are used, a food like macaroni and cheese may be made with wheat pasta, making it unsafe, or corn, rice or quinoa pasta, rendering it acceptable. Both may look identical to the naked eye, but they aren't so it is a food service worker's obligation to know whether Lucinda can have the dish or not. Likewise, teachers may be given the photograph and health card so that they remember when Billy brings in cupcakes for his birthday celebration, that there are gluten-free ones available (hopefully!) in the cafeteria freezer that can be pulled out and given to Lucinda so she is not left out. The photograph technique is especially helpful when there are new cafeteria workers or substitute teachers or other personnel who may not know a child's food allergy situation like someone who interacts with the child every day might. The Lester B Pearson schools' Food and Nutrition Policy is based in Canada's Food Guide and Policy on Health Eating and Active Living. All schools in Canada are to adhere to the same set of standards. This means that a celiac child living in Vancouver should be just as safe eating at school as one in Ottawa or one in Halifax. Having national standards that are uniformly enforced helps to make all children safe. Making sure that children's food consumption is safe for all of them, especially in public institutions like schools, is part of their human rights according to the Convention on the Rights of the Child. It is the responsibility of adults who are in local parent organizations to be in charge of the oversight and safety of all children and to think through food risk and safety policies.