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A little history about my sweet 8-year-old daughter. She's in a medical study (unrelated to celiac, though they do test for celiac as part of the study). She's been testing positive since she was about three, via blood test. In 2009 we had her scoped at Children's Hospital here in Seattle. The biopsy came back negative and, besides a few tummy aches and some occasional constipation, has been asymptomatic. We continued on with gluten. This summer she ended up in the ER writhing around with abdominal pain. I was worried it was her appendix, which was why I took her in. They took an x-ray and said she was extremely constipated. We were given zofran and miralax and sent on our way. Fast forward to three weeks ago when she got a gnarly stomach flu. The rest of the family has recovered but she can't seem to. She's still almost constantly queasy, has a stomach ache, and is constipated if we don't keep her on a regimen of prunes and a metamucil type fiber (generic). She has also developed a goiter (which I just read can be secondary to celiac), and her doctor said she looks anemic, so she's now taking Flintstones vitamins with iron. I would've preferred something more natural but couldn't find it in time. She has an appointment next Friday with a pediatric GI doc and will be retested for celiac (though she's had at least 8 to 10 positives through this study she's in). My questions are: she stopped eating all gluten that we know of five days ago. Shouldn't she be showing at least a little improvement with symptoms by now? If she eats no gluten between now and next Friday will the test still be accurate? Thanks for any help or input! I'm so scared and don't know how to help her feel better besides what we're doing. (Oh, and out of desperation I started giving her OTC Zantac tonight to see if it helps her sore throat/acid reflux, another ongoing symptom). So overwhelmed and sad!!! ~Angie (and Claire)
Hi there, I have been searching these forums for days and thought I would just post to hopefully get some help. Our son went gluten free about 9 months ago due to chronic diarrhea. After about two months we had normal stool diapers for the first time in his life. He is starting preschool now and basically its getting harder for us to justify keeping him on this diet without knowing for sure, so we decided to do the scope. He is scheduled for middle of December which will be 6 weeks back on gluten. So here is our dilemma. We started the gluten slowly per the doctor and its not been bad, he did have one night of full body hives and rash, which is not normal for him, and if anything his stool is actually MORE formed. His eczema is bad, but we just moved and the prior owners had a cat which he is allergic to, so I don't know what is causing what. Oh and he has had a bad cold for three weeks which just today turned into a sinus infection, not sure if that is related either. We did do genetic testing before going gluten free and he has one of the genes and also a sensitivity gene..HELP?? What were your kids reactions on the challenge? Does it take a while? Should we scope?
Sorry I am new here and not sure if this has already been posted... I just got a call from my pediatrician and she said my 3 year old son's blood work came back and all the markers were positive for Celiac. She said the next step is to get a scope and biopsy done to confirm. She also suggested the whole family get tested for it. So my questions are....if all the markers are positive is the scope necessary, doesn't that tell us he has it? Can all the markers be positive and the scope come back negative? Thanks for any info you all may have!