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Hey guys, my older sister has recently moved in with my mom and I she eats gluten all the time. But I have also labeled everything and talked to her about cross contamination and everything but she still uses everything and I still get sick because she refuses to understand how sick. Any ways to get her to understand, I was diagnosed in February and living by myself but I came home after a injury. Any ways to get my boyfriends mom to understand. Thank you, this website is awesome
Hello! I am the mom to five kids. The oldest son and daughter were diagnosed with celiac at the same time at age 9 and 7, though they both had been suffering for years (my son worse). The two younger ones were tested, then 6 and 4 and neither test positive and neither have symptoms. Both kids are great without gluten at the moment, and the other two kids don't have all that much gluten but are exposed to it readily and are also fine. There is no family incidence of it, but my husband and I must have the genetic component in there somewhere. We also have a baby, now 15 months old (12 months-ish adjusted) with food allergies, which none of the other children have. She was dx'd with a peanut allergy at 9 months and a dairy allergy at 12 months. She was failure to thrive pretty much since birth, but officially around 8 months. She was a preemie born at 27 weeks after IUGR, so she was frankly destined to be small. Seems to be doing very well with her diet at the moment and is finally gaining weight again, but we are told that she will likely have more allergies crop up when she is tested again at 18 months. Thus far her main symptoms for her allergies have been skin rash/exzema and general grumpiness/colic, as well as some concerning enlarged lymph nodes. Around 5 months while she was exclusively breast fed, I started an elimination diet due to the rash, but it didn't help. As her rashes got worse and the lymph nodes got more enlarged, allergy testing was suggested and we got the ball rolling with the peanut dx and dropped the breast milk entirely... to a milk based formula, which led to the dairy dx. Never had her tested for celiac, as we were told it wouldn't be until age 2 or 3 at least where she would be able to be diagnosed. We introduced gluten to her diet at 9 months/6ish months adjusted because I know that in order to be diagnosed she has to have had gluten in her. She has yet to have what I think are the more classic celiac symptoms -- various tommy troubles. Even on gluten, her rash is essentially gone except for some dry skin and she is no longer spotty and scratchy. But because of the food issues already, and the familial incidence, we want to get her tested as soon as it would be realiable. Should we wait for symptoms or should we test sooner rather than later? With no symptoms, even if she will develop Celiac, will she be able to be tested for it now? Maybe wait until 18 months with the rest of her allergy tests? Thoughts, celiac parents?
Celiac.com 01/14/2009 - For decades now, doctors have known that people with celiac disease face a significantly greater risk of developing non-Hodgkin's lymphoma (NHL), though that risk has steadily declined over the last 40 years. Recently though, a team of doctors at the National Cancer Institute in Bethesda, Md., led by Ying Gao, M.D., has discovered that siblings of celiac patients also face an increased risk of developing NHL. Results of the study appeared in the January issue of Gastroenterology. The research team conducted a study using 37,869 patients with NHL, 8,323 with Hodgkin's lymphoma, and 13,842 with chronic lymphocytic leukemia who were diagnosed between 1965 and 2004. The study included 236,408 matched controls and 613,961 first-degree relatives. The results indicated that people with celiac disease developed NHL at rates that were 5.35 times higher than non-celiacs, but that they faced no increased risk for developing Hodgkin’s lymphoma or chronic lymphocytic leukemia. In some good news, the doctors found that the NHL risk level for people whose celiac disease was diagnosed between 1995 and 2004 dropped to just 3.86 times greater than for non-celiacs. This is a significant improvement over the 13.2 times greater risk of NHL faced by people diagnosed with celiac disease between 1975 and 1984. However, the study also showed that siblings of celiac disease patients developed NHL at rates that were more than double those of the general population (2.03). Clearly, as diagnosis and treatment of celiac disease has improved, the risk levels for NHL have decreased. The study underscores the need for greater vigilance on the part of both doctors and patients regarding NHL, and for greater understanding of the mechanisms that influence the development of NHL in both celiacs and non-celiacs. As diagnosis and treatment and monitoring of celiac disease improves, and as understanding of NHL increases, it is likely that NHL risk levels for celiac patients will drop even further. Until then, celiac patients are encouraged to stay informed, stay vigilant, and to consult with a physician to keep on top of any developments that may influence risk levels for NHL. Journal of Gastroenterology, January 2009; pp 91-98.
Troncone R, Greco L, Mayer M, Mazzarella G, et. al. Gastroenterology, 1996; 111: 318-324 The final paragraph says: In conclusion, our data show that approximately half of the siblings of patients with celiac disease show signs of sensitization to gluten as they mount an inflammatory local response to rectal gluten challenge. The genetic background and the clinical meaning of such gluten sensitivity need to be established. Further studies, particularly at the jejunal level, are necessary before deciding if any action is to be taken in this subset of first-degree relatives.