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Showing results for tags 'stomach pain'.
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Hello! I’m sorry in advance for the long post! Over the past few months I’ve been having a lot of issues with my stomach and have recently been referred to a Gastroenterologist. I’ve had stomach pain and issues since I was a baby. I had bad constipation (still do) and couldn’t tolerate most formula as a baby. When I was around 8 I started experiencing a lot of lower abdominal cramping (just below the belly button) and ended up missing a fair amount of school because of this. It would start about 2 hours after eating breakfast and I’d have lower abdominal cramps and feel nauseous . After a visit to my family doctor it was brushed off as separation anxiety.. or as the doctor put it “I was just a kid who wanted to stay home from school”. This stomach pain persisted all through my elementary and high school years. In fact I still experience it to this day and I’m now 24. Along with this my doctor believes I have a form of disautonomia called POTS (Postural Orthostatic Tachycardia Syndrome). I frequently feel unwell and exhausted. I also experience Raynaud’s phenomena especially during the winter months or when I’m sick. I also can not tolerate heat for the life of me.. although I’m not entirely convinced my symptoms are from POTS. The last few years I’ve also started experiencing frequent chronic sinus infections up to 5 a year most of which I require antibiotics for… Up until two years ago I have never had allergies or sinus problems. Back to my stomach issues… The last year I have been experiencing lots of stomach bloating and discomfort especially at night.. this has led to a few nights of 3am vomiting.. my doctor tested me for H. Pylori which was negative as well as full work ups to test my kidneys, liver, pancreas, gallbladder.. all of which were normal. At this time he also started me on Rabeprazole 20mg twice daily which is a Proton pump inhibitor (PPI) … as he believes it could be GERD. The PPI has not helped at all and I have since been moved down to once daily which I wait for a referral to a Gastroenterologist for an endoscopy as well as an abdominal ultrasound to verify I have no gallstones.. The pain I feel in my abdomen feels very heavy right around my bellybutton and frequently is accompanied by nausea and occasionally I also experience sharp stabbing like pain left of my belly button. I began tracking my symptoms, what I’m eating and bowel habits on an app called “My IBS” which track’s symptoms and flags foods that could be potential triggers.. all of my flagged potential triggers seem to be gluten related foods like pasta and breads. I asked to be tested for Celiac as I have an uncle with it. My doctor only sent for TtG IGA.. no other tests. My results came back negative at “<0.5 U/ml” the reference range being “ <12 U/Ml”. I am aware that total IGA should of been ordered as well but my doctor is confident we have ruled out celiac so I guess I will have to wait for the Gastroenterologist for more testing.. The other red flag for me is I have a rash that shows on both my knees and recently I have developed a similar rash behind both of my ears, on my neck and into my scalp.. there is dozens of small red and skin coloured lesions that sort of? resemble pimples but have a “head” and don’t pop (yes, i know don’t pop your pimples!) they are also itchy and sore.. I have tried washing and scrubbing them with antibacterial soap and body wash to no avail as well as ensuring I rinse my neck thoroughly after a shower, keeping my neck dry, frequently changing pillowcases and even keeping my hair off my neck as much as possible … it doesn’t have any effect on it. In your experience does this sound like I could be experiencing celiac? I’ve debated going gluten free to see if my symptoms persist or begin to clear up.. any suggestions or help is appreciated!
- 4 replies
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- bloated tummy
- dermatitisherpetiformis
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A couple years after being diagnosed with celiac disease, when I was in my early 20's, I lost the ability to digest peanuts & nuts (coconuts excluded). I never had a peanut or nut allergy growing up. One day in my early 20's after eating a bunch of peanuts I developed the worst burning stomach pain I've ever had. It lasted for several hours. Then I started burping up the taste/smell of sulphur. Followed by severe diarrhea and vomiting. I didn't associate it with the peanuts the first time it happened but over the course of the next few years, after reoccurrences of the same symptoms, always after eating peanuts or nuts, I made the connection. I have had it happen twice without eating peanuts or nuts, and during both of those occurrences I overate and fell asleep too soon after eating. Usually the vomiting starts after hours of stomach pain and sulphur burps and contains undigested food. Once, it was pasta I had eaten several days earlier that I threw up whole. For the most part I feel that I have the issue under control by not eating peanuts or nuts, and by not allowing my body to be horizontal for at least 1-2 hours after eating a meal. However, I live in constant fear of it happening again because it's so unpleasant that it's traumatizing. Strange fact: both my older and younger sister (who are also gluten free), developed the same intolerance around the same time. We all went gluten free around the same age too. None of us had ever had an intolerance to peanuts or nuts before going gluten free. There remains some confusion about it because it does not happen consistently. My little sister accidentally ate almonds recently and had no reaction. She can also eat peanut butter and nut milks. I am too afraid to try peanuts or any nuts these days, although I can recall not always reacting badly to them as well. My older sister's stomach has gotten so bad that she can't really digest anything other than meat and dairy anymore. Any fiber what so over and she is vomiting. Our guts seem like they are healing since going gluten free, yet all three of us feel our stomachs have been on the decline. I know lower stomach acid is a natural part of aging but we are 29, 31, and 34 years old. Has anyone else experienced this change in symptoms? Stomach issues are not my only problem but I'm trying to narrow it down for the sake of this topic being mostly about food intolerances that developed years after being diagnosed with celiacs and going gluten free. I'm 31 and I've been gluten free for 11 years. Please share your experience if you can relate, or any knowledge you might have.
- 12 replies
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- diagnosed celiac
- gastroparesis
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Hello, My 11 year old son recently had bloodwork done as he has had stomach aches and bathroom issues ever since having COVID in December. His celiac panel all came back ok with the exception of the last test. I should know more about this as my 8 year old daughter was diagnosed with celiac when she was 4 but her bloodwork looked completely different. Are there other things that can cause an elevated IgG? He has PANDAS and recently got lyme disease as well. Thanks so much for your help!!! PANEL: Celiac Ab tTG DGP TIgA Immunoglobulin A, Qn, Serum - In range Deamidated Gliadin Abs, IgA - In range Deamidated Gliadin Abs, IgG - In range t-Transglutaminase (tTG) IgA - Negative <2 t-Transglutaminase (tTG) IgG - 11 (HIGH)
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I keep getting yeast infections and thrush from kissing and foreplay. I think it’s because I am allergic to gluten. I am so sensitive to it I can smell it in people’s breath. I don’t know if it’s because of my gluten allergy but it’s becoming an issue. Any else experience this?
- 1 reply
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- canker sores
- itchy
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I'm 43 and I bought a box if cinnamon chex cereal. Gluten free although I didn't notice that at all. I don't know if that makes a difference or not. Anyways I ate a bowl. Very small bowl and about I don't know a hour later my stomach started to hurt. The kind of hurt that you need to go to the bathroom but can't and it's a constant repeating thing for hours till it finally comes out. I felt relief and another 30 mins go by and I had diarrhea. Which lasted about a little over a hour. Has any one had this happen? Am I allergic to cinnamon? Is it the cereal. I thought gluten free is supposed to be good for you. I always read people ask questions online is the product gluten free. I have also had the same thing occur when I eat cream of rice and add cinnamon. Anyone have any ideas to why this occurs? It's one of the worst experiences ever. I literally rocked back and forth and side to side side holding my stomach hoping it would come out and broke my toilet seat.
- 11 replies
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- bowel movement
- cramps
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I’m the parent of a nearly 15 year old daughter. 5 years ago we finally found something that made a difference in her pain. A natural doctor did a blood test showing her to be severely gluten intolerant. Regretfully, we did not know to test her for celiac before removing gluten from her diet. Without that diagnosis, many doctors have made us feel gluten intolerance isn’t that serious. Very long story. Anyway, after 5 years of strict gluten avoidance, we were on vacation and let our guard down. Served what we thought was rice, she ate a portion. It ended up being ORZO. Pasta that looks like rice. That night she was dizzy, faint, even developed a fever. She slept most of the next day not eating much at all thinking she was coming down with a cold. Then, severe stomach pain and headache. Then, she threw up everything she ate for a few days. Ready to take her to the ER, we realized it was gluten! Picked up some digestive enzymes, anti-nausea medications, ginger, peppermint, tea, you name it. Today was the first day she could eat proper in a week. Still having some discomfort. Joint pain starting now too. My main question is: Is this typical for just gluten intolerance or does it sound more like celiac? She has been severely vitamin d deficient taking as much as 10,000 iu a day in liquid D and never bringing her levels to normal and menstral cycle never regular although she started at 10. Goes for months without and then when it does come, crazy heavy lasting weeks. Doctor still wasn’t horribly concerned. Just exhausted trying to be our own doctor. Insurance constantly changing making us look for new doctors. I wish I was rich. So expensive and frustrating having to try to get enough bedside time with each new doctor to reexplain her whole journey. Any information appreciated. She was doing much better by strictly avoiding gluten all these years but this last episode has me researching again to do what I can. Again, what do you think? My gut says “Celiac” but I guess we might not ever know for sure.
- 8 replies
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- accidentally glutened
- celiac
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Hi, I was diagnosed with celiacs after extreme stomach pain, irregular bowel movements and diarrhea. The extreme stomach pain was the main reason I really needed to find out what this was, and finally I had a doctor let me know i probably had Celiacs after a blood test. An endoscopy came back positive for celiacs as well. The extreme burning in my stomach went away within a week, however the pain persisted. Whenever I ate, it became really bad, even though i was extremely careful and made everything from scratch. I even are only fruit for a whole week to make sure I wasn't screwing up. Now its been over a year, and I still have the stomach pain come back after eating almost anything other than juicy fruit like watermelon/melons/grapes. I got tested for H pylori a year ago, came back negative. Got tested for blood in stool: negative. Went to doctors, they say they have no clue what it is. I have tested with different things. If I eat very fatty food it hurts a lot more than other food. If I have alcohol, the pain turns into a very dull ache the next day after waking up, and it goes away the day after completely without fail. If I fast for a day, the pain does not exist. It used to hurt, but in the last few months not anymore. If I dont eat after 6, the pain is completely gone until I eat the next day, and it can be anything, even a no fat food. If I eat something at it starts hurting more, drinking a lot of water makes it usually go away almost completely. But that uncomfortable feeling is still there, just the major pain goes away. Im going crazy here trying to figure this out. Im 22 years old, I want to enjoy my life. It also seems to go away with exercise. Any help would be great, thank you!
- 1 reply
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- gastritis
- pancreitis
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Severe Burning Stomach pain
Erick posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone. I am new here. I don't know where else to turn. My 10 year old daughter has been having severe stomach/abdominal pain for the last 3 weeks. First she was diagnose with a UTI at an ER after her pediatrician said she had a sinus infection (seriously?). She was on antibiotics for that but she continue to have severe pain by her belly button down toward her right side of her stomach, where she could not even walk to the restroom. We took her back to the ER and they thought it was her appendix but the MRI could not see the appendix. She did not have any other symptoms of an appendicitis so the ER released her. Again she went to the ER for a third time due to pain and they said she was constipated. Gave her an enema and she felt better. The next day, the pain was back. Its a burning pain that feels like something is pushing through her stomach trying to come out, is how she explains it. I did take her to a GI specialist which we are seeing again later today. All the blood lab results are normal. Except dairy, wheat and egg. They have an 0/1 next to it. What does that mean? Is she allergic to everything? She is schedule to have an endoscope on Friday. I hate that she is going through this. My wife and I are lost and devastated about all of this. Any help or suggestions will help. Thank you for reading my post. -
Hi, I'm new on here and wonder if anyone can help with what to ask gastroenterologist at my daughter's next appointment. My daughter is 6 year old, she has always been slim (around 2nd to 9th percentile) but has now dropped to around.0.4 percentile for age. She has been complaining of abdominal pains, nausea and bloating on and off for almost 2 years. She was originally tested by blood test (negative) 2 years ago and referred to ent for large tonsils and probable sleep apnoea. She had sleep studies and they decided symptoms were not bad enough to remove tonsils. She was having a lot of tonsillitis but not for past 2 years. She is eating more in the past 18 months than she has for many years and we are encouraging her to eat as much as possible, full fat milk, supper, lots of snacks, peanut butter, ice cream etc. She still fails to gain wait and has daily stomach pains, she is now complaining of dizziness for 6 weeks and no doctor can give us a cause. She was anemic 2 years ago but resolved with iron. She saw a gastroenterologist 2 months ago who did further bloods which came back negative. I should say at this point my father, uncle and cousin have coeliac. The gastroenterologist has sent her back to ent for possible removal of tonsils. We do have a review appointment with gastroenterologist in 2 weeks. The paediatrician who monitors her weight wants to push for an endoscopy, should I push for this ( obviously don't want to put her through this unless I have to), should I try her on gluten free diet, what questions should I be asking the consultant? Anyone have this experience with a child? Many thanks to anyone who can help
- 4 replies
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- blood test negative
- failure to thrive
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Hi All, I’m new to this whole world of celiac and wondered if you could give me your opinions please?! I have been having on off stomach pains for about the last 5 months. They started to happen once every couple of weeks, then once a week and now literally every other day, sometimes every day. It’s quite a crippling pain that literally bends me over double and nothing gives me any relief. It usually happens within about an hour of eating, but not every time I eat. Along with this I have been constipated for a while and in the last 2-3 weeks on off had a feeling of a big lump in my throat when I try to swallow (I actually thought I was getting tonsillitis until it kept happening and then just goes away!). My stomach is bloated every night also. I am always quite tired, but just put this down to the fact that I find it quite hard to switch off at night and actually get to bed, so don’t get that much sleep, but always feel shattered in the mornings. Anyway, initially they it was thought I had a stomach ulcer (I only told them about the stomach pains as I didn’t think any of the other symptoms were even really symptoms I guess!). They gave me antacid medication, which did nothing. Saw a different doc and told her my other symptoms too and she said it sounds like I could be celiac. This was never even on my radar, so I was really surprised! Everyone I know who’s had it always has diarreah and has lost weight. I’ve not done either and I would have thought my stomach would hurt every time I ate gluten, not just some of the time? Has anyone had intermittent stomach pain and ended up being celiac? I’m waiting on my blood tests, which should be back at the end of the week. TIA x
- 2 replies
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- bloating
- constipated
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I am so confused and don't know which way to turn now. This is rather lengthy, but please bear with me to get to my dilemma. Several years ago when I was having flares of stomach pain, my doctor originally thought maybe it was diverticulitis but no test was run at that time. I didn't think the symptoms matched up to that and took myself off gluten for awhile. All of my symptoms seemed to improve (I had other symptoms) but without a diagnosis, I wasn't sure. So I asked the doctor about doing a blood test for Celiac. I was told to go back on gluten for the test but I was only back on it for a week or two when he did the test. Of course it came back negative. He had wanted me to have a screening colonoscopy anyway, so I asked him to do an endoscopy and biopsy at the same time. He did, but I found out afterwards that he only took one specimen and checked for H. pylori, not Celiac. The colonoscopy did show a couple of diverticula. So I took myself back off gluten but cheated from time to time. Then I would hurt, so I finally stayed off gluten. I got better over time and even have stopped having migraines. I changed doctors and my new doctor offered to test me, but I didn't want to go back on it for the test. We did do the gene test, which was positive. She made the diagnosis of Celiac based on that along with my symptoms and improvement by removing gluten. Here's why I'm confused. I recently thought I would like to do the challenge to get a definite diagnosis. I ate real bread and other things for 3 days in a row with no reaction. But then I got to thinking that maybe it was just because I had healed and I was afraid of causing new damage. So I stopped the challenge. Now a couple of weeks later, I've had the same stomach pain I used to get but haven't knowingly had any gluten. So could my problem really have been diverticulitis all along rather than Celiac? Should I go ahead and do the gluten challenge to be sure? I don't currently have insurance but I could probably pay for a blood test, just not an endoscopy.
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I hope I’m posting in the correct place... I’m looking for answers for my 84 year old grandmother who was diagnosed with celiac disease about 8 years ago. Her health was beyond poor when she was finally diagnosed, and though much better, she still continues to struggle in many ways. One of the most troublesome symptoms she experiences is SEVERE pain in her lower right abdomen, through to her back. And this is not a woman who likes to admit she’s in pain, or has a low tolerance for such. If she says it’s bad, it is. Today it was so bad she actually went to the ER. Something she avoids at all costs. But I know she’s frightened they’re missing something serious as this is not her first time with such pain. In fact, she has had this off and on for years now, though it has become more severe/frequent. I just kept thinking this is related to her celiacs disease, as I know for a fact she is not strict about her diet. She had an ultrasound today. Nothing. She’s had multiple scans, etc over the years. Nothing. Typically they tell her she has a bladder infection and put her on antibiotics. But she does not have a bladder infection every time the attack’s occur. She also had her gallbladder removed long ago. I hate watching her suffer with no answers. I’ve sat in the ER with her in the middle of the night while she’s moaning in pain. Could this possibly all be from her celiac disease? Does anyone else get severe pain through to their back? I’d so love to be able to tell her that it could all be the result of her not being strict about avoiding gluten. That there is a relatively easy solution..
- 3 replies
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- back pain
- severe pain
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