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Found 22 results

  1. Celiac.com 08/07/2019 - Could childhood stress and trauma help drive the development of celiac disease in adulthood? New findings by a team of researchers at McMaster University show a strong correlation between childhood stress and trauma, and the presence of celiac disease in adults. In their opinion, the findings indicate a need for psycho-social assessments in clinical gastroenterology practice. Such assessments could help researchers to better understand the factors driving the development of celiac disease and lead to improved care of celiac patients. The data showed that substance abuse among family members during childhood, and neglectful parenting were significantly more common in people with celiac disease, compared to healthy controls. The analysis also showed a small, but significant, correlation between early-life events and the severity of constipation. The data showed no connection between early-life events and diarrhea, abdominal pain or extra-intestinal symptoms, say the researchers. Although preliminary, the data indicates that psychological treatment could benefit some people with celiac disease. Not every celiac disease patient has severe symptoms, but severe symptoms may be an indication that something else is going on, says Dr. Noejovich. University of Chicago celiac expert, Dr. Stefano Guandalini, says that early-life stressors likely interact with genetic factors, including "delivery by C-section, frequent viral infections in the first couple of years of life, use of antibiotics, a large amount of gluten in the first two years, and a diet rich in red meats, fats and refined sugars. It is not clear exactly how early life trauma might actually contribute to celiac disease development or severity, but, says Dr. Guandalini, "one may speculate that in this case, too, perturbances of the gut microbiota related to the stress may be at play. Further prospective studies are needed to confirm the findings, but Jason Tye-Din, MD, PhD, the head of the celiac research laboratory at the Walter and Eliza Hall Institute of Medical Research, in Parkville, Australia, called the findings intriguing. He says that psychological factors like "anxiety and depression are well reported in patients with established celiac disease, and there is good evidence to support a role for psychological counseling, although this tends to be underdone in real-world practice." He ads that, "If confirmed, this would set the scene for interesting future research to define the specific trigger and how the adverse [celiac disease] effects are mediated." Source: Canadian Digestive Diseases Week (abstract A149)
  2. Celiac.com 08/20/2018 - Following a gluten-free diet is critical for people with celiac disease. However, the factors that influence gluten-free diet success for people with celiac disease are not well understood on a population-wide scale. A team of researchers recently set out to assess the factors that influence gluten‐free diet adherence in patients with celiac disease. The research team included E. P. Halmos, M. Deng, S. R. Knowles, K. Sainsbury, B. Mullan, and J. A. Tye‐Din. The team asked celiac patients to complete an online survey that included the validated Celiac Dietary Adherence Test, along with questions on demographics, details of diagnosis and management and assessment of diet knowledge, quality of life and psychological distress. The team then reviewed the survey data for predictors of adherence and quality of life. There were a total of 7,393 survey responses, with 5,310 people completing the Celiac Dietary Adherence Test, and 3,230 of whom were following a gluten‐free diet. Multivariate regression showed that predictors of gluten-free dietary adherence included older age, being male, symptoms severity after gluten consumption, above average gluten-free food knowledge, and lower risk of psychological distress. People with celiac disease who followed a gluten-free diet also reported better quality of life. Respondents who reported having poor food knowledge were more likely to wrongly identify gluten‐free foods, though they could still recognize gluten‐containing foods. This indicates that poor overall food knowledge may lead people with celiac disease to over‐restrict their diet. Poor understanding of gluten‐free diet and stressful psychological well-being were the main modifiable risk factors for failure to follow a gluten‐free diet in patients with celiac disease. From these responses, the team concluded that access to a dietitian and mental health care professional, in cases of psychological stress, is likely necessary to improve gluten-free dietary observation, and thus to improve overall patient health and well-being. Read more at: Alimentary Pharmacology & Therapeuticsdoi.org/10.1111/apt.14791 The researchers in this study are variously affiliated with the Department of Gastroenterology, The Royal Melbourne Hospital in Parkville, Victoria, Australia, the Department of Gastroenterology, Central Clinical School, Monash University in Melbourne, Victoria, Australia, the Cartovera Pty. Ltd. in Adelaide, SA, Australia, the Department of Psychological Sciences, Faculty of Health, Arts and Design, Swinburne University of Technology in Hawthorn, Victoria, Australia, the Department of Mental Health, St Vincent's Hospital in Fitzroy, Victoria, Australia, the Department of Psychiatry, University of Melbourne in Parkville, Victoria, Australia, Institute of Health and Society, Faculty of Medical Sciences, Newcastle University in Newcastle Upon Tyne, UK, the Health Psychology & Behavioural Medicine Research Group, School of Psychology, Curtin University in Bentley, WA, Australia, the Immunology Division, The Walter and Eliza Hall Institute of Medical Research in Parkville, Victoria, Australia, and the Department of Medical Biology, University of Melbourne in Parkville, Victoria, Australia.
  3. Celiac.com 08/13/2018 - It’s not uncommon for people to have psychiatric reactions to stressful life events, and these reactions may trigger some immune dysfunction. Researchers don’t yet know whether such reactions increase overall risk of autoimmune disease. Are psychiatric reactions induced by trauma or other life stressors associated with subsequent risk of autoimmune disease? Are stress-related disorders significantly associated with risk of subsequent autoimmune disease? A team of researchers recently set out to determine whether there is an association between stress-related disorders and subsequent autoimmune disease. The research team included Huan Song, MD, PhD; Fang Fang, MD, PhD; Gunnar Tomasson, MD, PhD; Filip K. Arnberg, PhD; David Mataix-Cols, PhD; Lorena Fernández de la Cruz, PhD; Catarina Almqvist, MD, PhD; Katja Fall, MD, PhD; Unnur A. Valdimarsdóttir, PhD. They are variously affiliated with the Center of Public Health Sciences, Faculty of Medicine, University of Iceland, Reykjavík, Iceland; the Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; the Department of Epidemiology and Biostatistics, Faculty of Medicine, University of Iceland, Reykjavík, Iceland; the Department of Rheumatology, University Hospital, Reykjavík, Iceland; the Centre for Rheumatology Research, University Hospital, Reykjavík, Iceland; the National Centre for Disaster Psychiatry, Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden; the Stress Research Institute, Stockholm University, Stockholm, Sweden; the Centre for Psychiatry Research, Department of Clinical Neuroscience, Karolinska Institutet, Stockholm, Sweden; the Stockholm Health Care Services, Stockholm County Council, Stockholm, Sweden; the Astrid Lindgren Children’s Hospital, Karolinska University Hospital, Stockholm, Sweden; the Clinical Epidemiology and Biostatistics, School of Medical Sciences, Örebro University, Örebro, Sweden; the Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden; and the Department of Epidemiology, Harvard T.H. Chan School of Public Health, Boston, Massachusetts. The team conducted a Swedish register-based retrospective cohort study that included 106, 464 patients with stress-related disorders, 1,064 ,640 matched unexposed individuals, and 126 ,652 full siblings to determine whether a clinical diagnosis of stress-related disorders was significantly associated with an increased risk of autoimmune disease. The team identified stress-related disorder and autoimmune diseases using the National Patient Register. They used Cox model to estimate hazard ratios (HRs) with 95% CIs of 41 autoimmune diseases beyond 1 year after the diagnosis of stress-related disorders, controlling for multiple risk factors. The data showed that being diagnosed with a stress-related disorder, such as post-traumatic stress disorder, acute stress reaction, adjustment disorder, and other stress reactions, was significantly associated with an increased risk of autoimmune disease, compared with matched unexposed individuals. The team is calling for further studies to better understand the associations and the underlying factors. Source: JAMA. 2018;319(23):2388-2400. doi:10.1001/jama.2018.7028
  4. Celiac.com 02/19/2018 - It's very important that people with celiac disease maintain a gluten-free diet. Still, there has been some data to suggest that some people with celiac disease may be "hyper vigilant" in their approach to a gluten-free diet, and that such extreme vigilance can cause them stress and reduce their overall quality of life. Can a more relaxed approach improve quality of life for some people with the disease? A team of researchers recently set out to determine whether "extreme vigilance" to a strict gluten-free diet may increase symptoms such as anxiety and fatigue, and therefore, lower quality of life (QOL). The research team included Randi L. Wolf, Benjamin Lebwohl, Anne R. Lee, Patricia Zybert, Norelle R. Reilly, Jennifer Cadenhead, Chelsea Amengual, and Peter H. R. Green. They are variously affiliated with the Department of Health and Behavior Studies, Program in Nutrition, Teachers College Columbia University New York USA, the Department of Medicine, Celiac Disease Center Columbia University Medical Center, Harkness Pavilion New York, USA. The team assessed the influence of QOL with energy levels and adherence to, and knowledge about, a gluten-free diet. For their cross-sectional prospective study, the team looked at 80 teenagers and adults, all with biopsy-confirmed celiac disease, living in a major metropolitan area. They assessed QOL using celiac disease-specific metrics. The team based dietary vigilance on 24-hour recalls and an interview. They based knowledge on a food label quiz. They used open-ended questions to describe facilitators and barriers to following a gluten-free diet. Overall, extremely vigilant adults had greater knowledge, but significantly lower QOL scores than their more relaxed counterparts. Both teens and adults who reported lower energy levels had much lower overall QOL scores than those with higher energy levels. To maintain a strict gluten-free diet, hyper-vigilant celiacs were more likely to avoid eating out, to cook at home, and to use internet sites and apps. For hyper vigilant eaters, eating out was especially challenging. Being hyper-vigilant about maintaining a strict gluten-free diet can cause stress and adverse effects in both teens and adults with celiac disease. Doctors may want to look toward balancing advocacy of a gluten-free diet with promoting social and emotional well-being for celiac patients. In some cases, allowing a more relaxed approach may increase well-being and, thus, make dietary adherence easier. Obviously, people would need to tailor any relaxation in their gluten-free vigilance to make sure they weren't suffering preventable symptoms or doing themselves any harm. Source: Dig Dis Sci (2018)
  5. Whos Afraid of a B Vitamin You needn’t Bee? An FAQs on Niacin(amide) and how to take Niacinamide and why you would want too in the first place. The very definition of a Vitamin is a Vital (life giving) nutrient needed in a minimum amount without which we become sick. This is especially so for B Vitamins since the body does not have good way to store more than 3 months’ worth on average. STRESS makes us low! If you had Cancer and someone told you a Vitamin could help would you try to take it? Most people I dare say would – probably readily. While unfortunately this is not the case for Cancer but what if you had Beri Beri, or Anemia or (Pellagra misdiagnosed as Celiac Disease anyone) and the doctor’s didn’t know or recognize it in a clinical setting see and you were told a Vitamin could help you. Would you try a B-Vitamin? All these (Beri Beri, Anemia, Pellagra) are diseases (and others not mentioned here like Scurvy and Rickets etc) are disease’s that a Vitamin could/does help? And possibly Celiac Disease if you are in the majority of those Pellagra Patients who present as Celiac Disease or NCGS presenting as IBS or have Pellagra misdiagnosed. Your disease profile might differentially be called something else. It is a standard practice of medicine called: A Differential Diagnosis. You hear this a lot but don’t think about it probably when someone is giving a horrible diagnosis such as cancer we say “I am going to get a 2nd Opinion” on that right. Well you have asked for “A Differential Diagnosis” of the diagnosis of the disease you have been said to have. Often today Common Vitamin deficiencies are thought to be “cured” in the modern world by enriching our foods presenting/revealing as Celiac Disease and/or GERD/ Heartburn. When stressed you often lack enough of certain B Vitamins to function properly hence disease develops. If a Vitamin could be taken to reverse this disease (STRESS) why wouldn’t you want too or at least try? We don’t think of STRESS in these terms often but High Blood Pressure is often the first sign of a Folic Acid deficiency – the beginning of disease. That really is what UN-controlled stress /inflammation is in the body. It is disease or will become disease if left unchecked. What if there was a Vitamin that helped us regulate STRESS in the body. Well there is! It is called Niacin (Vitamin B-3) regulates our fight or flight responses. All of this requires massive amounts of energy when a shock/trauma affects our system. Our body functions break down. And disease develops’. This is what happens when someone develops GERD/IBS/NCGS/Celiac Disease (Pellagra in disguise I believe – a Niacin deficiency/dependency). The longer or more deficient (lower) you are in this cornerstone nutrient (Vitamin) the more of your body stop functioning. Yet few people are willing to believe (take) a Vitamin that might help their bodies function better? I ask again who’s afraid of a (water soluble) Bee Vitamin that is known to regulate stress in the body? Ok great? A B-Vitamin can help me. How do I take it and how much? Here is where I have been conservation and have recommended (anyone who has read my other posterboy posts) 500mgs of Niacinamide. This is for 2 reasons mainly. 1 The Niacinamide version does not flush the way higher doses of Niacin does. So it is inherently easier form to take without feeling you have “overdosed” (Flushed) on this Vitamin (Which is a misnomer) -- Flushing when understood properly is a healthy response to the Vitamin. Niacin is a natural vasodilator allowing more oxygen into our capillaries indicating a sufficient dose of the vitamin has been achieved to cause capillary relaxation. (This is most pronounced on an empty stomach) But since people mistakenly take this as an adverse reaction and why I emphasize the Niacinamide form it is the Non-Flushing Amide form of Niacin. 2 Since 500mg is the most commonly found size of Niacinamide I recommend(ed) it out of defense mainly. Smaller doses work as well indeed -- As a matter of fact smaller more frequent doses works 40 percent better than larger one time doses. And the reason I am writing this FAQs about Niacin. B-Vitamins by their nature are hard to store by the body so even in larger doses (500mg) as much as half the dose is essentially wasted by the body – excreted through the kidneys’ since the body has no long term way to store excess amounts of B-Vitamins. And why smaller more frequent doses help 2X to 3X times quicker because the Vitamins serum level’s are maintained for longer periods thus enhanced absorption. It is not the size above about 250mgs that is important but the frequency of the Vitamin. If Niacinamide was widely available in smaller doses 100mg I would of have recommended that instead. Niacin is available in100mg doses but can still mildly flush at that dose (especially on an empty stomach without food to compete for absorption) and again why by default I recommend the Niacinamide form. Medical doctor’s know this and use the smaller doses more frequently when treating Pellagra. See this link from the American Journal of Clinical Nutrition http://ajcn.nutrition.org/content/85/1/218.full See their “subjects” paragraphs on how smaller doses effectively treated the symptoms’ of Pellagra. Quoting “The patients were treated according to the standard local clinical protocol and received a 100-mg nicotinamide supplement and a B complex tablet 3 times daily for 17 d if an adult or a 50-mg nicotinamide supplement and a B complex tablet 3 times daily for 15 d if aged <15 y. In addition, all patients received a weekly food supplement—400 g of a fortified blended food (corn soy blend, oil, and sugar)—for 3 wk. Families of the pellagra patients were also eligible for a food ration from the World Food Programme, which was distributed monthly for 3 months.” **** Note: This is a much shorter time than I often (have) advocate(d) because I want to be absolutely 100 percent sure these symptom’s will never EVER come back (unless you have more STRESS more on that later). But as you can see much lower doses for a much shorter time than 4 to 6 months can works as well. I/posterboy say conservatively 3 months (see the time a rich niacin and protein rich food plan was provided) to avoid remission because that is the time your body can store most B-Vitamins. But the amount is not important it the FREQUENCY that is key! By being conservative (some might say aggressive) with how long I recommend to take it (Niacin(amide)) (and the amount see above about why I recommended this amount in the first place) people are reluctant to take Niacinamide at ALL. And this in turn leads to disbelief that taking a B-Vitamin can help people with GI problems. But we see in this study (above link) by the American Journal of Nutrition that even low doses in divided doses as quickly as (or as little as a month’s time) can dramatically help people with the trifecta of Pellagra symptom’s. Note: Read the whole article for yourself when you get a chance because it explains in detail how to have your doctor check your Niacin levels’ and why this can confirm your diagnosis (but taking the Vitamin can too! As confirmed by clinical remission in less than a month on/of divided 100mgs doses) But instead Pellagra 3 D’s are diagnosed as separate diseases today. See their discussion section (a great read for anyone doing nutritional/medical research) the discussion section is most always the “real story” and not the headlines (title) often. Whatever you are researching beeeeeeee! sure to get all the facts of the story not just the headlines by reading the discussion section. The American Journal of Nutrition (AJN) summarizes Quoting “The lack of knowledge about pellagra was slightly surprising given the endemic nature of the disease. However, it may be that the symptoms of severe niacin deficiency are so diverse that people do not understand them as a single disease and account for them separately using other terminology.” And I believe that is why Pellagra explains most of the symptom’s of a Celiac Disease patient experiences today because of the “Lack of Knowledge” about how Niacin treats digestive problems today! But you won’t know if you are not willing to try it and the reason for the Who’s Afraid of a B-Vitamin post or this FAQ blog post on Niaicin and the best way to take Niacin(amide) I hope this is helpful. By all means please check with your doctor before taking megadoses of any Vitamin even when you think it might help. But what could a relatively low dose of Niacinamide 250mg (if you can find it) or Niacin 100mg with food hurt when it used in much higher doses (500mg day to start titrated up to 3 grams a day in divided doses) to treat Cholesterol already by doctors. See this link by the mayoclinic that discusses dosing recommendations for Niacin(amide) http://www.mayoclinic.org/drugs-supplements/niacin--niacinamide/dosing/HRB-20059838 People regularly are prescribe/take Niacin for over a year with no side effect (see Mayo clinic link) and often for twice that time or longer. So I hardly think taking Niacinamide in divided dosages for 1 to 3 months is mega dosing but I understand why people think it is. I am not trying to diagnose of treat your condition(s) I am only trying to share/educate you on what helped me. For to Educate is to truly free! How can you know (learn) these things (about Pellagra) or how/why Celiac Disease could be being diagnosed as Pellagra today if you do not hear! And if it helps (your symptoms’) improve in as little as a month (in divided doses) up to 3 to 4 months (to be conservative) then you had Pellagra Co-Morbid and now at least your Pellagra is in remission and you can concentrate on just getting one disease better. But you say I don’t live in Angola (how does this affect me)???? I am glad you asked! Remember what I said about STRESS https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html Stress makes us low! Think car accident, surgery, pregnancy, divorce, medical emergency etc. and so it goes. Anything traumatic can lower our B-Vitamin levels and cause us STRESS! Some of us which will/do not recover from without eating nutrient rich Niacin foods or supplementing with Niacin(amide) as they did in the Pellagra outbreak discussed. And the doctors have forgotten the old phrase “STRESS KILLS” and surely war kills people but many (most) of those who die don’t die immediately from a gunshot or wound but stress of surviving has harmed them. But we forget before STRESS kills us it maims us first. So too does it (harm/ maim) us first us too the same way! In our doctor’s eyes they see the same thing. It is just stress you will live. But not recognizing this condition soon enough can lead to death in time. See this link that discusses why this is commonly misdiagnosed in most doctors’ office’s today. http://www.medscape.com/medline/abstract/19624986 Quoting from the Dermatology Online Journal "Pellagra is a nutritional disease caused by the deficiency of niacin. It presents with a photodistributed rash, gastrointestinal symptoms, and neuropsychiatric disturbances. In the Western world, this disease is mostly confined to alcoholics or the impoverished. However, this condition must be recognized in other clinical settings because it is easily treated and can be fatal if not identified." And this great summary of Pellagra and the 4 D’s which I think now are the 3 D’s of Celiac Disease. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ YOU will only know if you are not afraid of a B-Vitamin. You needn’t Bee! And by writing this (if) I put this dosage information all in one post maybe I won’t have to write it again and again in each thread I comment on. I repeat for(e) emphasize. For to Educate is to truly free! How can you know (learn) these things (about Pellagra) or how/why Celiac Disease could be being diagnosed as Pellagra today if you do not hear! Good luck on your continued journey. I could write many more pages on this topic because it has helped me soooooo! much but need to quit so as to not bore you too much and it is getting longer than I planned. (sorry about the formatting every time (I try to import a post it messes up my formatting) and thank you in advance for anyone who reads this. I truly hope it helps you the way it did me! Praise bee to God! 2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish those still suffering), by the comfort wherewith we ourselves are comforted of God.” **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  6. To be completely honest, after all the research I have done, I am not entirely sure that Celiac is just a sensitivity to Wheat. I mean, it is. But I am not convinced anymore that its the original cause. The root cause. My celiac didn't "start" until after I had a new CMV infection as an adult. CMV incorporates itself into every cell in your body. Muscles, and primarily the Gut. It creates ongoing, reactivating, low-grade inflammation wherever it resides. And just like most Herpes Viruses, it reactivates anytime you run yourself down. That being said, I can resolve 90% of my symptoms by going Gluten Free, but the fact that I have to be so careful with food all of a sudden, is very strange. Its like it happened on a dime, at the same time I was diagnosed with a new CMV infection. Also, why would stress be such an influential factor in the symptom occurrence? Well it is for me. Episodes of prolonged stress (usually due to a new symptom that causes intense health fears that create extreme anxiety in my stomach and mind for a week or more), will completely ruin me. Im usually fine during the stress, and fine for the most part when it finally lifts, but its the 2-4 weeks after the stressful event that I am in for a world of hurt. And the entire time, I wouldn't have had a crumb of gluten. I almost wonder if the CMV is simply reactivating due to a suppressed immune system (which stress is known to cause), and then it takes weeks for my body to handle it and re-suppress it. Honestly this seems very viral to me. A lot more "intelligent" and "multi-faceted" than just a simple wheat protein could possibly cause. Does stress cause "relapses" for you? Do you have any opinions on why?
  7. I was hoping that someone who's been dealing with celiac disease for longer than I have could weigh in on this. I was diagnosed about 6 months ago (early Feb.) and have been on the gluten-free diet ever since, though I know I made a lot of mistakes in the first few months. In the end of May and through most of June I was starting to feel like I was finally getting better. I was still having symptoms but they seemed to be subsiding and I was getting so hopeful. The last few weeks have been very stressful. While I'm fairy certain I haven't ingested any gluten, all of my symptoms seem to be back with a vengeance. Digestive problems regardless of what I'm eating (diarrhea, passing mucus, cramps, feeling like there are small creatures running around inside of my stomach all day long), anxiety, depression, aches and joint pain, fatigue, sinus problems... I feel like I did back in February. I should note that I dealt with anxiety for years before celiac disease, but after Celiac kicked into overdrive last year, my anxiety went from a minor but manageable nuisance to a panic-stricken, worrying stress ball from hell. I know anxiety can mess with my stomach but this is way over the top. I feel awful. Worse, after feeling like I was starting to make progress and heal, I'm now feeling really frustrated, discouraged and depressed. Today was my first day of student teaching (just observing right now, so it wasn't like I was front and center) and I just barely made it through today without breaking down in tears. Has anyone else experienced this? When life gets rough and stress levels go up, has anyone experienced a resurgence of their symptoms. I know that the damage from celiac disease can take years to heal and I've been okay dealing with symptoms up until now. But, for the last week or two, I feel like I'm back where I started and my hope is dwindling rapidly.
  8. Hey everybody, so I have a friend (female, 20 years old) who has NOT been diagnosed with celiac and does not think she is allergic to wheat but is having severe tummy issues. symptoms and factors: shooting stomach pain immediately after eating anything nausea and pain for almost 40 minutes after eating unintentional weight loss (30 pounds in 1 month) high stress environment on medicine from doctor (to coat her stomach throughout the day) long term, 8 months... Whenever she eats anything, for almost 8 months now, she experiences nauseating shooting pains that go through her stomach immediately whenever she eats anything. Her doctor put her on a medicine that coats her stomach throughout the day, so she takes it every morning before she eats, and it is the only way she is currenty able to eat. Since this began she unintentionally lost 30 pounds in a month and continues to loose weight. She is in college and taking many hard classes so stress could be a factor. She has not had a scope to look at her stomach to check for ulcers because she can't afford it right now. I got her to start trying kefir and see if that helps. Does anyone have any ideas or suggestions!? It would be super appreciated, any imput is really awesome! Thank you!!!!
  9. I remember at one point I remember searching on this site urticaria as a reaction to cold and seeing that a few celiac patients seemed to be experiencing this. I was just curious who deals with urticaria here and what seems to trigger it for you...cold? Heat? Stress? A certain food? Did it start for you before or after your celiac disease diagnosis? Just thought it would be interesting to see what others experience. ~Julie
  10. My Celiac Disease is causing really stressful family drama. This has been an issue since I was diagnosed, but has gotten worse lately. The problem is with my dad. He and my mom live in the same town as I do and I often eat there. Because I am so sensitive to gluten, my mom has tried to keep their house 100% gluten-free. But my dad keeps bringing in bread and then gets bread crumbs around the kitchen. He tries to be careful, but he slips up and uses the butter to butter the bread and therefore gets the butter contaminated. He has used this butter to fry eggs and many other things. So the butter gets in the dishes, the utensils and the sponges. Despite being on a strict gluten-free diet for nearly 5 years, my antibodies are still slightly elevated at this point. I don't even eat out in restaurants at all because of cross-contamination. I have to cook all my food myself. However, I'll eat at my parent's house sometimes and they will cook for me. I have trusted them to make safe meals for me (and they have read many books about Celiac Disease and are very familiar with cross-contamination). My mom doesn't want any gluten in the house, but my dad keeps bringing in bread. We have tried to talk to him about this problem but every time we bring it up, he gets very defensive and takes it personally. I have told him that I am afraid I can't eat any meals that they prepare because of possible cross-contamination. My mom spent nearly a week cleaning the entire kitchen but he keeps bringing in bread. She is extremely frustrated with him, as am I. It's very perplexing because my dad is a very kind and loving person. But I think he is behaving selfishly when it comes to this. He'd rather bring bread home and eat it and therefore put my health at risk. But he doesn't see it that way. He thinks my mom and I are overreacting. However, he is getting old and forgetful. He can be very absent minded at times and doesn't seem to remember the correct protocols for dealing with cross-contamination. Last year, I was a guest in someone's house and the kitchen was dirty and full of crumbs. I ended up getting exposure even though I prepared my own food and using my own dishes. I was having panic attacks and other symptoms for almost 2 weeks afterward. He saw what I went through. But I think he's in denial when he sets his kitchen up to be a similar risk. This has lead to a lot of tension between him and my mom. I have thought about giving him 2 choices: either he stops bringing in bread and I will eat their meals OR he continues to bring in bread and I will not eat any of their meals. I hate to think that my disease causes so much stress and drama in my family. Fortunately, they are a lot more understanding than a lot of families, but my dad has his pitfalls. This is really stressing me out and I think it's causing unnecessary drama. Any suggestions?
  11. It seem my anxiety attack has brought on adrenal fatigue and progesterone drops. I lost a bunch of weight, having menopausal symptoms and feeling the same adrenal fatigue as before. Hands are dumb, dropping stuff, tingling in hands and feet, muscle weakness. I've got two kids to take care of and this is just not convenient. I'm wondering...with my stress issues...I've been seeing a counselor yes, I'm told to stay away from the stuff that's causing these attacks and that would be my relatives at the moment. I'm wondering...would pot help me with my anxiety and my autoimmune disorder? Maybe help calm my over reactive body down so I can gain some weight and sleep better? So far nothing of a gluten free diet for the last 9 yeas isn't saving my carcass.
  12. Please help me out. Hello, I am a 17 year old boy in CA. I have recently been made aware that i 90% have celiac. And after research, it is almost certain that I have the disease. I am scheduled for an endoscopy within the next 2 months or so. I am fairly healthy with eating and exercise as I started this lifestyle over a year ago. I lift weights 6/7 days a week. And do some form of cardio 6/7 as well. I have become overly obsessed with exercise as I get anxiety and depression if I miss a workout. I have lost 60 pounds over the course of a year, (whether or not celiac helped.) Although over the past few months I have been feeling fatigued and brain foggy, I am tired, and the only relief is through vigorous exercise. I work so hard and see little to no results so far. And over the course of a few months I have been getting worse at my physical activity. I went from doing 30+ pull ups to struggling to do 10. People tell me to take more rest days, even a week of to repair my muscles, but whenever I do, I lose all muscle tone and feel terrible. I get severely depressed. I am a little underweight and want to get bigger. So I eat more and rest more to rebuild and repair my muscles. And when I do, I feel bloated, sick, and I only gain dead weight to my stomach and lose muscle. It's terrible. I want to start gluten free now because of the wonderful stories of getting stronger and feeling clearer but I need to wait for the endoscopy. I hear problems of people who needed to stop working out for their body to heal (the villi, neuro, and muscular systems), and they eventually lose their motivation to work out. The twisted part in me is that I want to sort of keep this terrible feeling so I stay motivated to work out. Because my motivation is everything. I am severely lost, and depressed. My goal in life was to join the military, yet celiac shuts the door on those who want to join the armed forces. So my question is.. What do you suppose will change for me after the gluten-free diet? Will I feel better? Will I get stronger? Will my performance be affected? Will the depression stop? What do I do if my endoscopy result come back negative? Thank you, this is a huge problem for me.
  13. I enjoyed this article from Mark's Daily Apple. It's good advice for those of us dealing with our health during a time of crisis: http://www.marksdailyapple.com/cultivating-health-during-crisis/#axzz2yDxYRwlB
  14. I feel hopeless and overwhelmed I’m a 29-year-old mom and newlywed undergoing testing for Celiac/NCGS, and I’m fairly certain that my dear husband is tired of hearing about it all the time…. So here I am. We’ve been together for three years, and I have to tell my husband that I swear that there was a time in my life where I was “normal.” I’m always achy, have crazy GI issues (not great for our sex life), my skin does insane things, and I alternate between raging irritability, anxiety, and depression. Basically, I’m not much fun to be around. We can’t eat out with friends. I don’t do fun things with my daughter. My life revolves around food and my stupid body. I just want to crawl in a hole and stay there. I started my gluten trial 11 months ago after realizing that the host of symptoms that I was experiencing weren’t normal and could potentially be diet-related. I mentioned the idea of cutting out gluten to some nurse (who, in hindsight, didn’t know jack!) and she told me to go ahead, “cut it out for four weeks and then reintroduce it and see what happens.” Then I could “‘call back’ and they’d enter a gluten allergy into my file.” Yes, she seriously said that. And in my naiveté I followed her advice—little did I know that any attempt at an actual diagnosis would be thwarted from there on out. Anyways, I was diagnosed with Salmonella after eating a bag of recalled lettuce in 2010. But other than that, I’ve always had an iron stomach. Nothing fazed me. But over the past four years my health has gradually deteriorated--and this has been so gradual a process that I can’t even pinpoint any onset, and I never even realized that what was happening to me wasn’t normal. [in case you’re curious, here’s a list of some of my symptoms: Neurological—anxiety (dx); depression (dx); irritability; brain fog; and memory problems. General—chronic rhinitis (dx); chronic sinus infections (dx); headaches; joint pain; weak dental enamel; fatigue; chronic dehydration; UTIs; dysmenorrhea (abnormal periods); night sweats; and water retention. GI—nausea; insatiable appetite; chronic diarrhea (dx); hemorrhoids (dx); painful gas; abdominal pain; and bloating. Skin—keratosis pilaris (dx); geographic tongue (dx); dark circles; adult onset cystic acne (dx); dry skin; eczema; and strange petechiae like rashes that look like I’m bleeding under my skin on my legs.] I do yoga. I’m a runner. I eat organic. I don’t eat processed food. I haven’t had fast food in over a decade (literally). I’m 5’6”, and depending on my water retention, range from either 112-120lbs. I’ve always considered myself a healthy individual. But over the past few years that notion has been destroyed. It finally took my husband, my daughter, and my family calling me out on my “antisocialness” to realize that something was wrong. I would seriously rather lie on my bed or sofa in my sweatpants than go anywhere, do anything, or see anyone. My stomach pain interfered with my quality of life that much! It was like there was a war going on inside. And my previously clear skin looked like a 16-year-olds! It was humiliating. I tried everything for that—clarisonic, topical antibiotics, prescription retinoids, creams, washes, masks, birth control—all to no avail. Over time, I guess I just assumed that multiple loose bowel movements a day was normal; that the stomach gurgling, gas, pain, and bloating were just unfortunate; and that the acne was just hormonal [P.S. That went away as soon as I cut out dairy. Quel surprise!] At that point I was desperate. I did a bunch of research online, and I decided I’d try cutting out gluten like the nurse suggested. And it helped! And when I cut out dairy a few months later it was like heaven on earth! All of my symptoms either went away or started to go away. And when I reintroduced either of them, all of my symptoms came back; so I knew something was up. I’ve since learned that I can’t tolerate dairy or gluten (all grains except for rice, and especially not corn). And it’s been do-able. Not fun, but do-able. [i used to consider myself a “foodie,” but not so much anymore]. The problem is, my husband and I are pushing 30 and we want to try to have another kid soon. Since I’m nervous about having such a restrictive diet, potential allergies, or a serious disease, as well as the impact that my health could have on a child, I talked to my PCP about it and she suggested that I see an allergist and a Gastroenterologist. So I did one more reintroduction test (wheat only) just to make sure, and lo and behold, my body freaked out! Except this time I got a crazy rash that I’d never had before (which four doctors haven’t been able to visually identify). That was in February. In March I did a second reintroduction test (again wheat only). The dumb rash came back. So I went to an allergist. She did a full food allergy blood panel on me and they all came back negative. She also did a Celiac panel on me and that came back negative too (though it’s no surprise since I had only eaten one serving of gluten/day for four days, and had been gluten-free for nine months prior). My PCP told me the blood work means nothing because of that. Anyways, a little over a week ago I got sick again, only this time, it was on accident. And the dumb rash came back, except it's spread more this time. My stomach is freaking out, I’ve had diarrhea for ten days, blood in my stool for three, and am passing undigested food. Basically anything I eat goes right through me. I’m starving, dehydrated, and look and feel like death. I saw my PCP and she said I need to go in for a colonoscopy and probably an endoscopy. I’m scared, frustrated, tired, and feel sort of crazy. I’m so tired of feeling like this! I don’t know what I’ll do when the GI tells me that I’m going to have to start eating gluten again! If I could hide I would. So this is where I’m at now. I truly appreciate those of you who took the time to read this! I just know I need to stop relying on my husband as my sole support because it’s not very healthy, and my family just doesn’t understand. Any words of advice, insight, or comfort would be much appreciated! Shannon Gluten-free since May 2013 DF since Sept 2013 Grain free (excl. rice) since Sept 2013 Allergy testing (negative) Mar 2014
  15. Celiac.com 01/13/2014 - Researchers have documented stress in patients with various immune-mediated diseases but little is known about stressful life events and the onset of celiac disease from a patient's perspective. Using the standardized interview of Paykel, a team of researchers set out to examine the relationship of stressful events in patients diagnosed with celiac disease, and to compare them with a control group of gastroesophageal reflux patients. The research team included C. Ciacci, M. Siniscalchi, C. Bucci, F. Zingone, I. Morra, and P. Iovino, of the Department of Medicine and Surgery at the University of Salerno in Italy. They found that 186 adults (67.2%) with celiac disease reported more frequent and more severe life events in the years prior to the diagnosis, compared with 96 control patients (37.5%, p < 0.001, mean Paykel score 11.5 vs. 13.4, p = 0.001, respectively). Overall, the time lapse between the event and the diagnosis was about the same for celiac patients (5.5 months) as it was for control patients for (5.7 months). A total of 20.3% of celiac women considered pregnancy a negative event , but no control women defined pregnancy as a negative event.. Repeat analyses subgroup of patients of both groups with diagnosis made within one year of onset of symptoms confirmed these findings. Data indicate that, before diagnosis, people with celiac disease faced stressful events that were more frequent, but less severe than in the control group suggesting that life events may impact the clinical appearance of celiac disease or accelerate its diagnosis. Source: Nutrients. 2013 Aug 28;5(9):3388-98. doi: 10.3390/nu5093388.
  16. Have any of you experienced hives that don't seem to be related to gluten? I've had environmental allergies all of my life- so I'm well versed in hives. For the past few months, they have been popping up in the same place (the sides of my face and/or neck- yesterday underneath my bottom lip) and I can't seem to find one singular reason. It is definitely not gluten as I have not been bloated at the times when this happens. I have also recently removed large amounts of corn and dairy when I realized they contributed to my bloating and digestive misery, but can handle small amounts. The hives have popped up when all I was drinking for hours was wine and then not appeared when I had wine (both times it was white). The same goes for other foods- they show up and then they don't. They have reared their ugly heads when I haven't eaten for hours. I'm guessing it is more connected to stress, but was interested in what the experience of others have been. Sometimes I don't feel particularly stressed when they appear, so I'm at a loss. Has anyone experiences stress hives???
  17. Short intro - after 25 years of constant sickness I was diagnosed celiac. Two years and 3 months later I have been gluten free and healthy and happier than I ever knew was possible. For the first time ever I am able to live a semi-normal life. In the beginning I learned the hard way about getting glutened by roommatees, restaurants and from makeup products. I'm fairly sensitive. we had to clean out our entire house and start over and I don't eat out ever under any circumstances. It is a boring existence but a healthy one. It has been a year and a half since I've been accidentally glutened and I have finally felt confidence that I will not have issues with that ever again because I am VIGILANT. About five days ago, out of nowhere I had stomach cramps and had to go to the bathroom a LOT. But I had been a little constipated and I thought that was probably just catching up to me. Then three days ago I was trying to take an hour off work for myself and all of a sudden I got dizzy, couldn't catch my breath and felt sick. I ate a gluten free sandwich and then almost immediately got diarrhea. This is devastating to me as I do everything to avoid getting the D. I have checked my list and my symptoms - I don't believe I am glutened unless I am not having a normal reaction. I have a very standard reaction every time and this hasn't been it. Well the whole thing upset me so much I spent the entire day crying and stressed out. My husband came home and he convinced me that my incredible amount of stress is causing the tummy ache. He says that he watched a change happen in me when he decided to switch jobs, which in turn made us rely financially more on the business I was just starting. I believed him but still have been worried about what I am eating and if I have developed some other sort of sensitivity (I already cannot have gluten, eggs, peanuts, almonds, sulfites, or salycilates). Anyway, I am making this too long. Yesterday my bowel movement wasn't normal but no D and I finally started eating meals again. Today I struggled all morning, bawling my eyes out about the stress of my business and the 90 hour weeks I am working. I decided that it was in fact stress and I needed to just cancel my entire day and spend it relaxing. I haven't had a day off of work in about 6 weeks. That would be enough to stress anyone I'm sure. So I cancelled my day and tried to just sit at home with a puzzle and occupy my mind. I think I did good although I did spend about three hours back and forth on emails setting up appointments :/ I ate a good dinner and now BAM the D again. It hurts, I"m cramping and miserable. And I'm so scared! I don't know what is wrong with me. Husband says its stress. That I'm not having any sort of regular gluten reaction, no other symptoms. I don't know that stress could make my stomach be jacked up for 3 days like this. Especially when I'm making a marked effort to try to take some time off. He says I didn't really take time off and I"m just sitting here stressed about not working. That is true but I'm not sure I can see that causing these awful stomach upsets. What do you think? I'm feeling pretty alone and upset about all of this. I can't afford to get a reputation for cancelling people when I'm just starting out my business. I should be HAPPY not stressed - I have as much work as I want and am making money and working more than full time for the first time since I was diagnosed. I never had the confidence to work, I always felt like I was in recovery. Now I am finally able to contribute and I"m falling apart and don't know why.
  18. Hello there, I'm new to this. I was seeking advice. I'm a 21 year old, who's struggled with coeliac’s for about four and a half years now. I've found mine is very sensitive, and it has caused me a lot of issue in the past. Anyway, the reason for me posting is that I work in ASDA just now, where I have done since before I had this. I'm just a shelf filling lackey, mainly to give me money whilst I'm still studying at college etc. Just recently, they've informed me that they are training everyone to be checkout trained so when the queues are extremely busy we have to come of our own departments to help the checkout operators "bust" the ques. It's called being a queue buster. However, I can't worm my way out of it this time round - after avoiding it for several years. My issue is nothing to do with it being an undesirable job, frankly I'd prefer it to some of my responsibilities (such as waste scanning, dealing with mouldy milk and off fresh meat etc.!), but rather it's to do with my rational insecurities and anxieties I've garnered due to my life with coeliac's. In the past, I've felt like despite religiously (and obsessively at times) following my gluten-free diet I still experience pretty severe symptoms; stomach cramps, sickness, etc. Thus making it very unpredictable and hard to manage. Additionally, I've felt like they have been particularly exuberated by the occurrence of high stress/anxiety. Now this is a vicious circle, because in this case I'm not only stressed about what I have to deal with when a queue buster call goes out, but I'm also stressed/anxious about the situation I could find myself...particularly should I be forced into this duty when I'm having a very bad "glutened" day. It's something I always worry about, for example when I had to sit all my high school exams etc. I'm so anxious and self-conscious over all of this (not to mention terrified) that I'm already making myself ill with worry over how to deal with this, hence me asking for advice from other ceoliacs - particularly what my rights are and any actions I could take to get out the situation. So far, I've genuinely really enjoyed my work time there - particularly as (unlike my school years) I had the freedom to deal with my illness when the occasion occurred without having teachers breathing down your neck making you explain yourself and what not. However, now I fear my work like too will be turned into those terrible times (bearing in mind I was in my last two years at school when I got diagnosed, so was difficult adjusting to the gluten free life etc). This morning, I got an emergency DR appointment at my local GP's. Due to it being an urgent appointment it was not my usual lifelong DR, but none the less I explained the situation briefly and he wrote me a letter to hand in to my work briefly explaining the situation (though I feel he could of stressed my individual circumstances more) I'm just uncertain of what to do now, and how to react should they try and force me into this. It's at the stage where I genuinely would rather quit. Any advice would be great, and I would be forever in debt to you. I've also done some additional research (as I think it's really important to keep up to speed with the fast progressing understanding of this) that helped me discover that stress can in fact induce you to have your symptoms, or to worsen them. Additionally, I discovered things such as new studies showing up to 90% of people will suffer symptoms despite being on a gluten-free diet Ergo, I think this backs up what I've experienced and explains why I may find it so troublesome and so unpredictable and such a bane on my life. Finally, yes - it is just coeliac disease I have. I've been back and forth to the dr's with my occurring issues, as well as going to my 6 monthly check ups at the hospital coeliac clinic and what not. I've also had additional endoscopy's verifying there is nothing else. http://celiacdisease.about.com/b/2012/11/08/study-gluten-ingestion-symptoms-frequent-despite-gluten-free-diet.htm
  19. Hi folks, Is it possible to have glutened symptoms from intense stress? My dad's funeral is tomorrow and, along with overseeing my parents' healthcare, financial affairs, care, house, blah blah blah I planned the funeral too. I know that stress exasperates Celiac but to the point of having symptoms? My mom's friends wanted a pizza a few nights ago and I complied (getting it for them but not eating it). That's the only thing I can relate to a possible glutening. Can anyone shed light on stress and Celiac?
  20. Hi, I'm new to this board and I just wanted some advice on a subject that has truly concerned me for a while, now. At the end of 2009, I weighed close to 300 pounds. Wow! It was bad, and I was only 20 years old, nearly 21. After I turned (21), I decided that was it. I was sick of being fat, unhappy and unhealthy. I lost about 45 pounds, and then I fell very ill as I had at various points in my life. After I got over that illness, I went back to the gym and dropped even more weight. I was closing in on the 200 pounds mark but I got even sicker. I battled hard until last year, when I discovered my wheat sensitivity. I was 22 at the time, and I'm 23 right now. After cutting out wheat, I lost nearly 15 pounds in 2 weeks, and I felt damn amazing. I felt great and I was so glad I could continue my journey to a healthy weight. I was wrong, though. TLDR; I was a big guy who lost a lot of weight between multiple cycles of extreme illness. This is my current predicament. I simply have no energy to work out, you know? I manage a food food establishment, and I work very hard. That never stopped me, though. I went to the gym and it brought me even more energy for work. But now, I don't eat a lot of carbs. Since I'm a manager, I don't get to leave the store to eat and I can count my (very unfilling) food options on one hand. Also, I don't get a lot of time to eat, and I work for long periods of time without food. Also, sadly, I don't make a whole lot of money. Gluten free food is expensive and I honestly can't afford to bring food to work every day when my grocery bill stacks up as it is. I know it's my diet. After only an hour of looking, I discovered Rabbit Starvation. Too much protein and not enough carbs or fat, and it sounds right on the nose. So there are my questions to any of you great people that might be able to help! 1) Could my issue be rabbit starvation, realistically? 2) Is it a common issue with any particular group of people? 3) What would or do, or have you done, to avoid it? 4) What steps would you recommend so that I can work out without feeling terrible and out or energy. Again, my budget is tight. I know you're all thinking "Get a better job!" but I actually like my job most of the time, and I plan to stay until I finish college in a few years. Any help would be great, you have my gratitude just for reading this! Jeremy
  21. Celiac.com 12/15/2010 - A small study in Swedish children has found no association between early childhood psychological stress and later development of celiac disease. Previous studies have shown links between psychological stress and a number immunological diseases, such as inflammatory bowel disease. A team of researchers sought to look more closely at the connection between psychological stress in families and biopsy-proven celiac disease in children. The team included Karl Mårild, Anneli Sepa Frostell, and Jonas F. Ludvigsson. Their measure of psychological stress included factors such as serious life events, parenting stress, and parental worries. Using a questionnaire data from the ABIS study (All Babies In southeast Sweden), the team collected data on 11,000 children at one-year, and on 8,800 at two-years old. They confirmed celiac disease though observing of villous atrophy in small intestinal biopsy, and confirmed the diagnosis through patient chart data. Their data showed that no association between future celiac disease and a serious life event in the family in the child's first 1 or 2.5 years after childbirth (Odds Ratio (OR) = 0.45; 95% Confidence Interval (CI) = 0.01–2.65; P = 0.72; and OR = 1.21; 95% CI = 0.43–3.05; P = 0.64, respectively). They also found no association between celiac disease and parenting stress at age 1 year and at 2.5 years (OR = 0.40; 95% CI = 0.01–2.38; P = 0.73 and OR = 0.74; 95% CI = 0.01–4.56; P = 1.00, respectively). No children exposed to parental worries at 2.5 years were diagnosed with celiac disease before end of follow-up, compared to 25 diagnosed out of 8082 children not exposed to parental worry (OR = 0.00; 95% CI = 0.00–2.34; P = 0.64). Nor was there any associations between the combined measures of stress and celiac disease. This particular study found no association between celiac disease in Swedish children and psychological stress early in life. However, a wider and more statistically robust study is needed to entirely rule out any possible associations between early psychological stresses in children and later development of celiac disease. Source: BMC Gastroenterology. 2010;10(106)
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