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Found 8 results

  1. I'm new here, so I'm not sure if I'm even posting this in the right forum, but here goes. It's been about 3 months and I am at my wit's end. Forgive me for being dramatic, but I don't wanna suffer alone anymore. My gluten intolerance emerged when I hit puberty, but it was never serious: just bloating, constipation, fatigue. However, along the years, I noticed some strange symptoms come about. The weirdest being a "globus" sensation, as if something was caught in my throat. After attempting to cough it up to no avail, I decided to ignore it, assuming it was simply mucus. Once again, I continued to eat gluten, not realizing the damage it was causing. Then slowly over the course of a couple more years, I noticed that food would take awhile to go down. I didn't think much of it, just that I had to drink a lot more water than usual. Fast forward to the present time, and now I can hardly swallow my own saliva. I went to the doctor, who said I had nothing more than a mere chest cold. So I took the medicine, and only got worse. I don't know how it happened, but I stumbled upon a forum post, about a woman whose dysphagia was linked to celiac disease. It all makes sense now. After a month of starvation, my swallowing returned to (somewhat) normal, and as you can imagine, I stuffed every food imaginable down my throat: pizza, bread, ramen, my favorite foods basically. And now I'm back to step one, and I've never felt more miserable. I've avoided gluten like the plague ever since, yet I still cannot swallow. I really hope that someone out there can relate to the toll that this is taking on my mental health. I've never been suicidal, but it just seems like each day, a new symptom arises for no utter reason, and I think that being dead would be so much easier. As of now, I haven't eaten gluten in weeks, yet I have the sensation of a walnut stuck in my throat, and I am scared to death to eat a morsel of mashed potato. I've been waking up every morning choking on my saliva. No one is taking me seriously. My mom just tells me to eat less dairy and gluten. But my throat literally feels like it's the size of a straw. That's not all either. Don't even get me started on the brain fog, the random rashes, my bones aching for no reason, falling asleep while eating, the list goes on. I've managed to eat some soup now, although it takes me an hour to eat half a cup. This, along with the stress of college is beating me to a pulp right now. I hate to complain so much, but I really just want someone to tell me that they know what I'm going through, because no one in my life can relate to me right now, or even have any sympathy. Please, tell me I'm not alone.
  2. So I am sixteen, and for the past year or so I have been experiencing some very strange things with my body. (And yes I know i'm going through puberty and change is normal.) But the things I have been experiencing are not just the typical growing up things. I have had a consistent rash on my upper back, chest and thighs, (also having major breakouts on my back and minimal on my chest. I assumed it was just acne although it is itchy which I don't think is normal for just pimples...) And a few weeks ago i was kind of freaking out because when I went to the bathroom, I had almost like a fatty liquid with my stool! (Which lasted for a couple of weeks and still comes back every once in awhile). I always feel very bloated and constipated and I have the WORST pms. I ended up in the emergency room twice from passing out after standing up and feeling dizzy, I stopped growing around age 13 and am by far the shortest in my family. I didn't think that it was related until i was looking up symptoms, (I am 5'2, the rest of my family range from 5'6 to 5'11). I went on a juice cleanse several months ago and felt soooo much better and my skin cleared up, but that only lasted a couple of weeks and since going back to eating regular food containing gluten all of my old symptoms have come back. Should I get tested?
  3. Schleebee's Momma

    School Trips

    New to the forum, new to celiac momdom. Anyone out there have advice on sticking your celiac teen on a bus for a sixteen hour drive to Universal Studios for a chorus adjudication trip? I just don't see how this is going to be possible. They will stay four days then return home via another sixteen hour bus trip. Universal does not guarantee gluten-free meals and I can't exactly pack a week of food. And she can't exactly drive to a store while she is there. I'd hate to have her miss out on the experience. And I can't have her eat nothing but baked potatoes and grilled chicken salads all week. What is with that and restaurants offering only those items gluten-free btw?
  4. Hey everybody. Im new to this site, but have been diagnosed with celiac for about 2 & a half years. This fall i will be attending UCSB (class of 2019 wooo); I just received my acceptance this month. I was wondering if there are any celiacs who attend UCSB out there ? If so contact me I would like to know others like me. Im nervous for how my dining experience will be there. Also, any celiacs in SB area ? I would like to know of all the local glisten free friendly spots and good places to shop.
  5. I am a fourteen y/o girl and i am concerned that i might have a gluten sensitivity. My half sister on my dads side has severe celiac disease that she didn’t find until after having her second child. I don’t have any severely prominent symptoms but a lot of them are there. My symptoms include off and on headaches throughout the day ( I drink 64oz of water a day), bad gas after most meals, minor bloating, minor nausea after some meals, traveling joint pain without injury. Since i was really small i have had trouble with cavities, I have had quite a few fillings and when i was nine i had two teeth pulled because of the cavities even though i brush, floss, and use mouthwash every day like the dentist says. When I was twelve I woke up in the middle of the night with excruciating pain in my lower right abdomen, so bad i couldn’t move. My dad took me to the ER and the Doctor had a CT scan done and i had an emergency appendectomy that morning because they believed my appendix had ruptured. during the surgery the realized that it wasn't my appendix but an ovarian cyst that had ruptured. I was in the hospital again with the same type of pain six months later but it was brushed off as scar tissue, every month i have the same pain of lesser intensity. My periods have also never been regular, they span from five days to two weeks and are always heavy and can come as early or as late as a week before or after they are due. At times i am very irritable and I have mood swings very often and i don’t know why (I know as a teen that I have mood swings because of hormonal changes, but mine are more often and of a slightly greater intensity of my other friends). When I was twelve and I had my appendix out My parents were at the end of a second horrible divorce that was called off soon after my surgery. My mother has also has M.S for the past 35 years and has been diagnosed with breast cancer and Most likely has Bipolar disorder as well. She denies that she needs to take any sort of medication for her various illness therefore she makes life extremely difficult for my father who has congestive heart failure and myself with her daily outbursts. During Puberty I gained a great deal of weight. in elementary school i was never overweight i was tall and was always in a healthy weight zone i went from around 100 lb to 147 in a little less than two years with no actual cause, and it was never a concern. I also have has carpal tunnel. Thank you for taking the time to help me with this. -Nichole
  6. carmello1521

    In Search Of Help.

    Hey guys, I'm pretty new to this whole thing. I'm 15 years old and yesterday was the first day of my sophomore year or highschool. A week ago yesterday I had a stomach scope done. For the last 8 months I have been struggling with intense stomach problems. I had the hida scan, an ultra sound, blood tests for various types of ulcer related problems. However, they never tested me for a gluten allergy. When the surgeon had discovered my inflamed small intestine he decided to take a sample of my tissue. He told us there was a slight chance I had a gluten allergy, but it was very low. That is was probably caused by stress. Yesterday, I recieved a call confirming I had celiac disease, only half way through my first day of school. I truly believed that that wasn't going to be the problem, so it took me back quite a bit upon learning that it was. Now I'm struggling knowing that this is a life time problem. It's honestly depressing to know. I'm also struggling with finding gluten free foods. I live in a small town (no walmart) so it's been hard. I really could just use some advice and maybe some easy foods to eat without gluten? Please, I'm feeling really lost seemings as nobody I know has this problem... Thanks!
  7. I have not been eating much gluten lately, which wasn't on purpose..but I noticed positive changes and am now hipping to get tested for it...I KNOW it's celiac..I'm so positive..but I need the proof or my parents won't believe me. I've been eating so much bread, getting ready for my doctors appointment...but I'm just so scared that my test will be negative..or that he won't even listen to me when I tell him what I think I have!! What should I say to him, and what tests should I request?? This is very important to me..help!!
  8. So I am a 17 year old male and i have recently been lead to believe that i am dealing with gluten sensitivity/intolerance, or whatever its called. Now there are symptoms i have the suggest gluten sensitivity, but i am also missing many of the common symptoms. Symptoms I Have Fast metabolism- food seems to pass through me pretty fast Trouble gaining weight or muscle-​ this has been a frustrating one for me because despite my feverish eating and working out, I can't gain a pound on my skinny frame Weight going to stomach- I have practically no fat on the rest of my body but some on my stomach Sinus swelling/nasal congestion- especially at night, I have dealing with nasal congestion that causes sleeping issues for a couple of years now Post nasal drip- diagnosed with when i went to my doctor for my congestion. Said i have seasonal allergies, when they seem to be yearlong Under eye circles- probably related to the previous symptom, and is not affected by sleep. Definitely worse at some times, although i have not been able to correlate it exactly to when i eat gluten Poor circulation-cold hands and feet Acne- I am still a teen so it may be normal but despite my efforts to maintain it, it is still somewhat of a problem Brain Fog- I have been feeling mentally slower, worse memory, and less articulate than in the past Thinning of hair- my eyebrow hairs seem to fall out a lot as well as my eyelashes, which are pretty short Depression- I have mood sings where i get extremely depressed Anxiety- Some social anxiety and well as the physical symptoms of anxiety for no apparent reason Fatigue- Even with a good nights sleep, i feel tired throughout the day Diarrhea- Occasionally, although i usually blamed overeating Common symptoms that I am missing Stomach Pain- When i was a young child, I had constant stomach aches but rarely anymore Head aches Constapation So can I assume i have a gluten allergy with the symptoms I'm having when I a missing some major ones? Have you had similar symptoms go away after you quit gluten? How long will it take for these symptoms to go away after i quit gluten (so far 1 day)? Also, can I have a little bit every now and again as long as i avoid it overall? thnx