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Hi everyone, This is my first post so bear with me. I have been lurking and reading many helpful posts but was hoping to share my current situation and ask for advice. Around 2 months ago I got what I thought was the flu. I had a fever, aches, diarrhoea and an odd fast heart rate with a bounding pulse. I also developed high blood pressure for the first time in my life and it was usually around 150/100 when high. Most of the symptoms cleared up in a couple days but the diarrhoea and heart complications remained. I have seen a cardiologist and they ran me through tests like ECG and 24 hrs halter. The diagnosis was that my heart was structurally normal and he thought my heart was reacting to the virus as I recovered. In the first month I lost about 10-15lbs and became pretty weak. My stomach would normally feel fine through the day but would cause a lot of bloating pain overnight. I eventually saw a GI doc and he ran a series of blood tests for me. My thyroid, liver and full blood counts were good but the celiac screen showed a positive value. Below were my results. anti-gliadin peptides iga 13, normal range 0-25 anti-gliadin peptides igg under 2, normal range 0-25 TTG IGA 3, normal range 0-20 TTG IGG 31, normal range 0-10 So it would appear my TTG IGG was the only positive which seems a bit unusual. The GI doc would like to do the biopsy but I have concerns about getting put to sleep when my heart is abnormal. I am hoping I can consider the elevated TTG IGG as a diagnosis and forego the biopsy if possible. I have 2 young kids and am 32 right now so I am hoping to look at Long term recovery. In terms of background I had GBS when I was 18 so I have a history with autoimmune. My Sister has autoimmune arthritis and my Mother has autoimmune psoriasis. My grandpas sister and my cousin have celiac disease. I started taking some vitamin supplements and feel better but the worst symptoms remaining are the heart complications, achey joints and poorly digested food. Thanks for your time.
Hello, I received my celiac test results today, and my doctor wasn't very helpful in explaining any of it. I have an appointment with a GI in a couple weeks, but was hoping to get some insight before then. My doctor said I was positive for celiac, which kind of surprised me because I have not had an endoscopy. As background, my daughter has celiac disease, confirmed with an endoscopy. I eat mostly gluten free at home, but have been trying to eat gluten in the weeks leading up to my test. I am not sure if I ate enough gluten, though. Some days I would eat a slice of regular bread, or maybe a handful of pretzels, or some crackers with gluten. If I was at a restaurant, I would order a regular meal with gluten (such as a hamburger with a bun), but I don't go out often. Here are my test results: tTG IgA <1.2 (negative <4) tTG IgG 23.8 (Positive >9) The comment after this one said, "tTG antibody, especially the IgA, is sensitive and specific for untreated Celiac Disease. The IgG assay is used mainly to detect celiac patients who are IgA deficient. Verified my repeat analysis." However, looking at my IgA level below, it doesn't seem as though I am IgA deficient, right? Gliadin Ab, IgA (DGP) 3.7 (negative <20) Gliadin Ab, IgG (DGP) 2.2 (negative <20) IgA 166 (range 71-397) Is it odd that my IgG levels were positive on one test and negative on the other? Should I eat lots more gluten before my next appointment?
TheBadOtter posted a topic in Celiac Disease Pre-Diagnosis, Testing & SymptomsBackground: I was having very few true GI issues, although I have always gone back and forth between constipation and loose stools (one or the other over 50% of the time). I went to the doc with depression, anxiety, fatigue, migraines, and really bad joint pain. She ran the gamut of blood tests on me and the Celiac panel came back today. She is recommending I go to a GI, but they can't see me for three weeks! I was hoping you guys could share some advice here, bc I am scouring the internet and not loving what I am finding... that I have to keep eating gluten to make myself sicker or the biopsy could be negative (I had just started a low carb diet >:[ ), that the biopsy could even have a false negative...And to make it worse, it's not my IgA levels that are high, it's my IgG. Here's my results: (reference range is <20 units for all of them- is that weird?) Glialdin IgG: 48 Glialdin IgA: 3 TTG IgA: 16 TTG IgG: 33 Is there anything else that causes IgG levels to be high? Searching the web is not finding much besides celiac... Any advice or help would be appreciated!