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Emilyeagleowl posted a topic in Celiac Disease Pre-Diagnosis, Testing & SymptomsHi guys. I'm new here and I don't know what else to do but I can't go on like this. I have a problem and I am wondering if anyone else has experienced this. In September I started to feel really sick and have a pain in the lower right side of my stomach. The Dr thought it was appendicitis and I was sent to A&E because the pain came on suddenly and escalated. It turned out not to be appendicitis, but they thought it was an ovarian cyst. It wasn't that either. I went to the DR recently because the pain is still there, I and I felt sick and like utter crap a lot of the time. I had a blood and stool test and it came back negative for several types of cancer and celiacs. However I have been keeping a food diary and the things that irritate my stomach most are bread, pasta, pastries which have gluten in them but other things don't make me feel sick at all. I read that you can still have celiacs and have a negative test result. Has anyone had this issue? I have noticed that I am tired all the time. I am usually tired in the winter and my mum bought me a sunlamp but its not helping; I also feel sick particularly after eating, my stomach hurts frequently lower right hand side and I have tummy troubles (mostly pooping too much) . The funny thing is that the doctor asked me had I noticed I had lost weight without trying. I said no because my flatmate and I don't have scales in our house; but my jeans are getting loser and I am eating a lot of chocolate and carbs like pasta. I also have naturally sort of olive toned skin and my flatmate says I go pale and look sick. What do you guys think? Should I go back to the Drs after Christmas? Some of my cousins have problems with gluten (and possibly my Dad and Granddad) so it's a possibility and I also tend to hurl after one pint of beer. It's really wrecking my life and can't carry on feeling this rubbish all the time. Thanks to any one who reads this. Emily
Hello, My name is Bryan and I'm 23 years old. I've never made an account on any website to talk about this, so this is my first because I have a lot to say and I have been avoiding this. I guess I'll start off giving some history of the issues that I have been having. When I was 18 I was getting pretty serious about lifting weights. I started off at about 160 lbs and got to about 180 when I was about 20. Once I hit 20 years old I injured my back pretty bad to where I was in bed for 3 months, and during the time I started to have some GI symptoms around this time. At the time I thought I was literally having heart attacks due to a serious pain in my chest. It would show up sometimes when I ate food, and especially when I drank caffeine (I never really cared for caffeine, but at this time a preworkout Jack3D got me hooked on it). However, I ended up going to Dr. and he ended up telling me I had GERD within 10 minutes, shortly after that he left the room and came back with Nexium (had to be prescribed at the time). I took Nexium for a while and it helped, but once I got off things were worse. I also couldn't take it anymore because I had a SERIOUS pain in the center of my lumbar spine that would only go away if I went #2. So, I tried the holistic path to get rid of this heartburn. Good news is that I beat heartburn, it's been years since I ever even had it. This event was from about 19 to 20 years of age (Just turning 20 it ended). On the flip side, right when I was turning 21 something else slowly started to happen. I first started off with symptoms of being EXTREMELY TIRED 30 minutes eating a lot of the time. When I was 21, I was working at a dollar store and the first time I noticed one of these episodes I was so tired that I couldn't stand up. So, I just sat on the floor. It felt like a tiredness that was almost induced from a drug, it was a different kind of tired. I worked at this dollar store about 2-3 times a week for 3 years, until I was 23. Me and my boss had subway for probably about 90% of our lunches through the course of these 3 years. Subway 2-3 times a week, every week (I eat NO other fast food, just how I was raised). After I noticed this tiredness I started to pay attention to my stool. It was yellow, inconsistent, and I was going anywhere from 2-5 times a day. Once I was aware of being being tired and not being able to go to the bathroom right, I started to get this shoulder tightness that started from under my right scapula at the rib cage. It crept up from my rib under my scapula, to the rhomboid, to my rear deltoid and scapula, and finally to my neck. This shoulder irritation got so bad I considered death thousands of times. Sometimes I was so happy thinking about death that I would literally smile about it, realizing that this would all one day end. Mentally at this point I have developed a serious anxiety. Everyday I woke up as if I had a grenade go off in my head, as if I was drinking ALL night. I would get a full 8 hours without waking up once just to wake up each morning to have a messed up head. Somewhere down the line I started to experience something very strange with my head. Many times before I ate my head would feel "jared". It's like my eyes wanted to roll back into my head and have a seizure, but what would I know, I never had one. Sometimes I thought I would fall on the ground. This would also happen when I would hear something loud or high pitch, a baby screaming, motorcycle going by, or if someone were to throw a beer bottle away in the garbage if it hit another bottle (making the glass hitting each other). I don't drink, smoke, or do any drugs. I have quit caffeine completely out of my life since the beginning of 2016. I forgot to mention, but caffeine and me no longer get along. It is as if I have a complete intolerance to it. I have had -Endoscopy -Colonoscopy -Blood tests for H-Pyl, Celiac, others I can't remember -Taken antibiotics for SIBO -Gallbladder scan -Liver scan -Pancreas is fine If I remember right -I will update more if I remember anything else. This all came up clear. I have had 2 different General Practitioners tell me that I have anxiety. For a long time I put off anxiety medication and have told them I'm not interested. Eventually I caved and got on zoloft, but I started to have bad side effects. Then they put me on Wellbutrin, currently on 300mg a day. Wellbutrin helps, but I feel it's not the answer. I still get tight shoulder issues, bathroom problems, and I forgot to mention that I have a throat clearing issue that's so consistent that it's simply ruining my life. I have tried gluten free 2 different times, both times I've lasted two weeks being 100% gluten-free. My symptoms are still there, but I don't THINK they are as severe. However I caved Sunday 11/6/2016 (ending my two week and two day streak), gluten-free Monday, and caved again yesterday (being Tuesday). Tuesday was the only day I noticed anything, I was super bloated/gassy/tight shoulder/bad head space. I was just unsure how to feel about it seeing as I only had symptoms on Tuesday when I caved and not Sunday. I'm sorry this is long and so jumbled, still have bad head space. Symptoms: Right shoulder tightness, bloating, gas, food cravings for sweets/chocolate (very noticeable while gluten-free), waking up tired, anxiety, symptoms 30 minutes after eating, will add more as I remember and experience them.
Hi there! I'm new to this forum but it's like a jackpot of great information and advice, so I decided to drop by and introduce myself (and hopefully elicit a bit of advice to my situation as well). Also warning, I'm sorry if the description of my skin rashes may be graphic to you, so I'd just like to let you know in advance. Or you can just read the TL;DR at the end (: To start, I have a history of eczema as well as allergies to fish and nuts and a lactose intolerance. However, this past summer, my skin (which had been 100% normal up 'till then) started freaking out. I had a tomato-red dark rash on my neck, which was dry beyond belief with skin peeling from it, and I began to get dandruff as a result of dry skin on my scalp, as well as on my face, neck and ears. The rash went away in a couple of weeks with the help of some steroid creams, but not the dryness. However, my eczema (which had been extremely mild) was getting worse and worse, but still manageable, until this past month. But this month it got really bad - the rash that was on my neck this summer came back, and the exact same rash developed on the inside of my elbow. Not only that, it itches like my eczema has never done before. It feels like fire ants are crawling under my skin, but when I scratch, it feels even more itchy and I scratch for what seems like longer. It spread from the inside of my elbow to my shoulders, and from my neck to my face. It also developed on the backs of both my knees. The rashes are exactly symmetrical - on the outside of my shoulder, moving to the inside of my elbow and goes to the outside of my forearm and elbow. The shapes, patterns of spreading (red dots?) are exactly the same. Even weirder, I'm itchy in places like my belly button, ears (?) stomach, and the bridge of my nose. Oddly, about a day or two after the itch, clusters of dots/ rashes appear and the skin is no longer itchy. I have no idea what is wrong and all doctors want to treat is the eczema, seemingly ignoring the fact that it's coming back. I'm suspecting celiac because my eczema was so much more different than this rash, as well as the fact that my skin on these rashes are so dry that I can see "wrinkles" form as a result of not enough essential fatty acids. This could perhaps be malabsorption; the skin is painfully tight and it hurts to extend my arm/ stretch my neck as a result of this. But there's another thing. My mom really wants me to listen to the dermatologists' prescriptions and try out a routine of topical steroid usage for 2 weeks, after which point the derm wants to switch me to a non-steroidal cream. I mentioned DH and celiac, and she agreed to set me up for a blood test ( TTG - IGA). Previously to this I had been trying out a gluten-free diet for a week, before I accidentally consumed chicken wings without checking the ingredients... So there was a huge flare-up and my mom really doesn't believe I have celiac becuase the diet hasn't been working (even though I've ate gluten on it...). So, can I just go with the steroid usage for two weeks then wait some time afterwards and get the blood test then? TL;DR: Really bad rash with tons of itching (feels like fire ants under my skin) with eerily symmetrical appearance of rashes on my arms. I just tried gluten free for a week, but upon resurgence of rashes my mom wants to follow derm's reccommendations of steroid routine for 2 weeks then non-steroid cream. Given the form for TTG - IGA blood test, should I just follow the steroid usage for 2 weeks and wait some time to get the blood test afterwards? Opinions welcome (: