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Found 7 results

  1. Hello all, So, long story short, in 2011 I started getting really really sick, with no discernible cause. Violent vomiting daily, rapid weight gain (40 pounds in one month) unbelievable exhaustion, depression, social anxiety to the point of not being able to leave the house, hives, acne, rashes, brain fog, and my LEAST favorite, the all-over bruised body feeling you get when you have the flu (that horrible bone deep aching that makes it uncomfortable to move at all, and any clothing touching you hurts.) Oh, and monstrous swelling of my face and stomach. I wound up figuring out through elimination of certain things in my diet that what was doing it was gluten and dairy. So, over the years I've cut them out (at first, after I cut them out, I was still getting horrendously sick, just less often and it took me too long to realize CROSS CONTAMINATION WAS A THING) So fast forward to now, I'm able to function like a human again by being INCREDIBLY strict with my diet and making almost all of my food myself and NEVER taking any chances with anything that was "processed in the same facility with..." etc etc I've also recently started going back to school, which means I have to be EXTRA careful, or I won't be able to attend classes or study because my brain, and my body just don't function when I've been exposed. However, I've always been a do it yourself girl, so after having endoscopies and colonoscopies years ago, and having a doctor tell me I had "acid reflux" (way to diagnose the symptom, not the cause, ya jerk) and having no doctors know why I was getting so sick, and eventually figuring it out myself, I never was tested for Celiac's Disease. So obviously, I'm scarred for life, and terrified to death of gluten and I was wondering; does anyone know of some way that I could be tested for it WITHOUT exposing myself to it? Thank you so much in advance
  2. I have been a diagnosed Celiac for 6 years now. The moment I was diagnosed I have lead a strict gluten free life, I wasn't taking any chances and wanted to feel better. Over the past 6 years I have never intentionally eaten gluten, but there have been times that I have had cross contamination, especially eating out. Yesterday was quite an experience and I've learned from it and upon trying to research it I found nothing....I'm hoping I'm not the only one, although I wouldn't wish this on anyone. About a year ago I found a Chinese restaurant that had an owner who's claim to fame was she had found ways to make just about everything on the menu gluten free. Gluten free Chinese food? Yes please!! I ate there 4 times with no reaction....ahh, life is complete!....until yesterday. I ordered the gluten free potstickers and sweet and sour prawns. About 2 hours later I started feeling really nauseous. The first thing I thought was maybe I got cross contaminated. Then within the hour I told my friend that I needed to go to the emergency room. I had SEVERE middle back pain and upper stomach pain. I was dizzy, extremely nauseous and my lips were burning and tingling. By the time we pulled up to the emergency room I couldn't stop throwing up....it was bad. And the pain was so intense I was told I was whimpering. They got me in right away and started me on an iv and gave me toradol for the pain and zofran for the vomiting. The doctor wanted to do blood work and an ultrasound because he was concerned it was my gallbladder. Well, everything was fine and it was the gluten, although they couldn't test or confirm it. It is day 2 and my lips are still tingly and I still have quite a bit of pain and nausea. I'm extremely tired and weak. I was looking online for people that have had the same or similar reaction and found nothing....am I the only one? Some things I know have helped me and hopefully they can help others....if you've been cross contaminated or "glutenized" as I call it....chew a handful of vitamin c chewables, it helps. Drink LOTS of water. Stick to a bland diet and NO caffeine for a few days to let your stomach heal. Heating pads help and get lots of rest. And there is an amazing product called GI Response, you can buy it on Amazon. It's expensive but you will thank me later. I don't know how long it will take to feel back to "normal", but I have sworn off eating out....I'd swear off eating if I could. Being gluten free sucks. But that's what we've been dealt and so we must deal with it the best we can. I hope that I've helped at least one person.....and if you are unfortunate enough to have the same reaction to gluten as me....know that you aren't alone.
  3. Lori HC

    Anger?

    Hello everyone, I am new to join this forum, though I have been look at your posts since I was diagnosed in September (it's now end of October). Just wanted to introduce myself. My name is Lori. I'm 43, female, and have had stomach issues for my whole life. As a child, I was ALWAYS tired. My doctor couldn't figure out what was wrong with me and just told my mom to get me into sports to help tire me out at night. I missed a lot of school because I was sick quite a bit, but got good grades so no one seemed to be bothered by it. Over the past 2 years my symptoms were consistently getting worse. Just before I had my gallbladder removed (gall bladder attacks that were getting longer), I started vomiting on a regular basis. Didn't seem to matter if I had an empty or full stomach or if I felt okay. I would be vomiting at least 2 times a week and chewing on ginger tablets constantly. Diarrhea also got worse but I didn't think much of it because I had been diagnosed with IBS when I was 20 and the celiac biopsies came back negative. I was taking 2 to 4 Immodium gel pills every day just to get through work. My doctor did numerous tests to find out why I was so sick all the time but no positive results for anything. She decided to send me for another gastroscopy and colonoscopy since it had been over 20 years since my last one. There, the doctor found out that I have a sliding hiatus hernia, ulcers, and bile reflux. He also did some biopsies which came back "blunted villi" so he recommended that my doctor send me for celiac blood tests. Sure enough, they both came back positive. This after a psychiatrist told me I should be tested again - years ago when the depression medication didn't work and my inflammation levels were through the roof. Today I also found out I have osteopenia. I thought I had worked through the anger that I hadn't been diagnosed years ago (when it wasn't too late to prevent a lot of the issues I have now), but it has raised it's ugly head again. My question to all of you is, how did you get past the anger at all the missed/wrong diagnoses over the years? I would have gone back and insisted on the doctor doing something if I hadn't assumed I had IBS for over 20 years. Maybe I could have had children. Maybe I could have prevented the bone loss and hair loss. Also, did anyone find that their hair grew back? How long did it take? Happy to have found all of you! Lori Here are my symptoms/related illnesses: Depression (diagnosed at 19 with intermittent success with medication combinations) Chronic inflammation Joint pain Skin rashes Chronic fatigue B12 and Iron deficiency anemia for years - I have had to take strong supplements for over 20 years. Hair loss PCOS (but I still ovulate so I'm wondering if this is true) Insulin resistant/pre-diabetic Very overweight beginning in 20s with difficulty losing weight for years (except the time I eliminated ALL grains)
  4. I made this account to ask this question and i dont know if this is the right place but please help Someone I know was diagnosed about 1 year ago and she’s getting worse I think. Everything she eats she vomits whether it’s glutened or not. I’m really worried!! Always feeling pukey which she says is normal but this pukey!!? she cant even take pills please please PLEASE someone help!! edit: she’s taking b12, d3, and a few others that aren’t for main things just like side affects. - sa
  5. Hi, I'm new to all this. My 13 yo was just diagnosed w/celiac after endoscopy. How long will it be before he stops throwing up every time he eats? He is eating everything gluten-free but he still has stomach pain. He eats chicken then has dry-heaves. I'm just concerned and would like some idea. I've called the doctor and he says he should be feeling better. Any thoughts?
  6. Hi! I've been recently diagnosed with celiac disease around 2 months ago. My parents and I have been doing our best to fulfill the needs of a gluten-free kitchen, asking questions at restaurants etc. However, my symptom before I was diagnosed was constant vomiting of my food, I just wasn't able to digest. Still, even when I'm like pretty positive that I'm eating completely gluten free, I still throw up and don't digest some of my food. It's not forced vomiting, I'm not sure if it is because I'm eating to fast or what. My parents will think its "mental", however its not, and I don't know what its cause is. Anyone happen to know? Do you think its due to a sensitivity of something else?
  7. Hi My daughter was diagnosed in December with Coeliacs Disease. Prior to this,(June - October 2012) her symptoms were severe abdo pain, Bloody, mucoussy loose stools, 28 lb weight loss. Persistent vomiting. Initially they thought Crohn's disease, so put her on steroids, which did calm down all symptoms. She had CT Scan, which showed some thickening of proximal duodenum. Barium Meal didn't go passed her stomach, and she vomited it back up. Colonoscopy showed inflammation. All scopes since have been clear. All bloods good, except B12, she needed to have B12 jabs to get this to a normal level. Coeliac Diagnosis completely threw us. She went completely Gluten Free in December and has remained entirely Gluten Free. Her Blood results were negative for Coeliacs but her biopsies showed 'characteristics of Coeliac Disease'. Her symptoms have not eased at all in fact she has got much worse, but now is severely constipated. Since last October she has been hospitalised 10 times, the last time was last weekend, She needed to have colonoscopy preps to clear her out and strong pain relief. She has also started over the last couple of months to faint. She has gained back about 14lbs since May this year, the vomiting has calmed down, she was vomiting upto 12 times a day, now only 2-3 times. At one point she couldn't even tolerate fluids, which is why so many hospitalisations. It has been a very tough year. I was wondering if anyone else had had a similar experience and if they have any ideas as to what else may be going on? Her diagnosis now is Coeliac Disease and IBS. She has a new medication to help with the constipation - Prucalopride, she also takes Metoclopramide and Mebeverine three times daily with Tramadol and Oramorph for pain. Her pain is there all the time, left lower abdomen, but can be severe and I think disabling at times every day. I am sorry this is so long. Thank you for reading Niks