<?xml version="1.0"?>
<rss version="2.0"><channel><title><![CDATA[Latest Celiac Disease News & Research:: Journal of Gluten Sensitivity]]></title><link>https://www.celiac.com/celiac-disease/journal-of-gluten-sensitivity/journal-of-gluten-sensitivity-spring-2018-issue/?d=2</link><description><![CDATA[Latest Celiac Disease News & Research:: Journal of Gluten Sensitivity]]></description><language>en</language><item><title>How to Recognize the Main Symptoms of Celiac Disease</title><link>https://www.celiac.com/celiac-disease/how-to-recognize-the-main-symptoms-of-celiac-disease-r4453/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_05/abdomen-belly_PEXELS--Kat_Jayne.webp.123851343de3e5cf0a2b48d51447a0f7.webp" /></p>

<p>
	Celiac.com 05/17/2018 - Celiac disease is not one of the most deadly diseases out there, but it can put you through a lot of misery. Also known as coeliac, celiac disease is an inherited immune disorder. What happens is that your body’s immune system overreacts to gluten and damages the small intestine. People who suffer from the disease cannot digest gluten, a protein found in grain such as rye, barley, and wheat. 
</p>

<p>
	While it may not sound like a severe complication at first, coeliac can be unpleasant to deal with. What’s worse is it would lower your body’s capacity to absorb minerals and vitamins. Naturally, the condition would cause nutritional deficiencies. The key problem that diagnosing celiac is difficult and takes take longer than usual. Surprisingly, the condition has over 200 identified symptoms.
</p>

<p>
	More than three million people suffer from the coeliac disease in the United States alone. Even though diagnosis is complicated, there are symptoms that can help you identify the condition during the early stages to minimize the damage. 
</p>

<p>
	Here is how you can recognize the main symptoms of celiac disease:
</p>

<p>
	<strong>Diarrhea</strong><br>
	In various studies conducted over years, the most prominent symptom of celiac disease is chronic diarrhea.
</p>

<p>
	People suffering from the condition would experience loose watery stools that can last for up to four weeks after they stop taking gluten. Diarrhea can also be a symptom of food poisoning and other conditions, which is why it makes it difficult to diagnose coeliac. In certain cases, celiac disease can take up to four years to establish a sound diagnosis.
</p>

<p>
	<strong>Vomiting</strong><br>
	Another prominent symptom is vomiting.  
</p>

<p>
	When accompanied by diarrhea, vomiting can be a painful experience that would leave you exhausted. It also results in malnutrition and the patient experiences weight loss (not in a good way though). If you experience uncontrolled vomiting, report the matter to a physician to manage the condition.
</p>

<p>
	<strong>Bloating</strong><br>
	Since coeliac disease damages the small intestine, bloating is another common system. This is due to inflammation of the digestive tract. In a study with more than a 1,000 participants, almost 73% of the people reported bloating after ingesting gluten. 
</p>

<p>
	Bloating can be managed by eliminating gluten from the diet which is why a gluten-free diet is necessary for people suffering from celiac disease.
</p>

<p>
	<strong>Fatigue</strong><br>
	Constant feeling of tiredness and low energy levels is another common symptom associated with celiac disease. If you experience a lack of energy after in taking gluten, then you need to consult a physician to diagnose the condition. Now fatigue can also result from inefficient thyroid function, infections, and depression (a symptom of the coeliac disease). However, almost 51% of celiac patients suffer from fatigue in a study.
</p>

<p>
	<strong>Itchy Rash</strong><br>
	Now the chances of getting a rash after eating gluten are slim, but the symptom has been associated with celiac disease in the past. The condition can cause dermatitis herpetiformis, which causes a blistering skin rash that occurs around the buttocks, knees, and elbows. 
</p>

<p>
	A study found out that almost 17% of patients suffering from celiac disease might develop dermatitis herpetiformis due to lack of right treatment. Make sure you schedule an online appointment with your dermatologist or visit the nearest healthcare facility to prevent worsening of symptoms.
</p>

<p>
	Even with such common symptoms, diagnosing the condition is imperative for a quick recovery and to mitigate the long-term risks associated with celiac disease. 
</p>

<p>
	Sources:
</p>

<ul>
	<li>
		<a href="https://www.ncbi.nlm.nih.gov/pubmed/15051613" rel="external">ncbi.nlm.nih.gov</a> 
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease/celiac-disease-symptoms-r1090" rel="">Celiac.com</a>
	</li>
	<li>
		<a href="https://www.ncbi.nlm.nih.gov/pubmed/25639558" rel="external">ncbi.nlm.nih.gov</a> 
	</li>
	<li>
		<a href="https://www.mendfamily.com/telemedicine-in-dermatology-the-dos-donts-and-best-practices/" rel="external">mendfamily.com</a>
	</li>
</ul>
]]></description><guid isPermaLink="false">4453</guid><pubDate>Thu, 17 May 2018 15:38:02 +0000</pubDate></item><item><title>Did You Know:  Diabetes,  Gluten Ataxia,  Dermatitis Herpetiformis, and Infertility</title><link>https://www.celiac.com/celiac-disease/did-you-know-diabetes-gluten-ataxia-dermatitis-herpetiformis-and-infertility-r4441/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_05/pregnant_manakin_CC--kantegh.webp.6e55a881db92bc0089bce0b31803c191.webp" /></p>
<p>
	Celiac.com 05/03/2018 - Time to spring into action and take control of your celiac disease and <a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/dermatitis-herpetiformis-skin-condition-associated-with-celiac-disease/" rel="">dermatitis herpetiformis</a>! This means I have to "Scare you Silly" about not fully conforming to the gluten-free diet. Anemia, tiredness, and vitamin deficiency will continue to dog you if your gluten-free diet is non-compliant. You know those "just can't resist" items in your diet, the ones where the ingredient list does not actually say it is gluten-free, which may leave you open to cross-contamination that is common in the food industry?
</p>

<p>
	There is an estimated three million Americans with celiac disease, yet the vast majority still remain undiagnosed. The prevalence of celiac disease in Canada and the United States is growing, not diminishing! The high prevalence of celiac disease is also found in individuals with other disorders such as Type 1 diabetes, autoimmune thyroid disease and Down Syndrome. The prevalence of celiac disease in Type 1 diabetes around the world is 3 – 16%. According to Shelley Case, Author of Gluten-Free Diet: A Comprehensive Resource Guide: "Studies by Columbia University in New York and the Canadian Celiac Association revealed that adults suffer from the disease for an average of 10 - 12 years before being correctly diagnosed." The rare, but wise, physician who has diagnosed celiac disease correctly also sends the patient to be checked for diabetes and thyroid disease. 
</p>

<p>
	Do you know what Gluten Ataxia is? Ataxia is a symptom in many conditions that affect the nervous system. Ataxia causes clumsiness or loss  of balance and coordination that is not due to muscle weakness. Ataxia symptoms can be worrisome, and more so if you have been cheating on your celiac diet. Symptoms may vary but can include:
</p>

<ul>
	<li>
		Trouble using fingers, hands, arms and/or/legs
	</li>
	<li>
		Trouble speaking
	</li>
	<li>
		Trouble moving eyes
	</li>
	<li>
		Poor coordination and/or balance
	</li>
	<li>
		Tingling in extremities
	</li>
	<li>
		Gait problems
	</li>
	<li>
		Damage to the cerebellum (the part of the brain that controls coordination).
	</li>
</ul>

<p>
	Gluten ataxia is a rare immune-mediated disease in which the body's immune system attacks the nervous system as a reaction to the ingestion of gluten. It is a rare condition, but it can be related to celiac disease as well as non-celiac gluten sensitivity. Those with gluten ataxia often do not always have digestive issues or other symptoms. A strict gluten-free diet usually improves symptoms for those with gluten ataxia. Early diagnosis and treatment through the gluten-free diet can help stop progression and further cerebellum damage. 
</p>

<p>
	People who have dermatitis herpetiformis know only too well what that gluten-containing doughnut or tart can do to their bodies. The DH sores are so itchy, and well, just sore, that prior to my first diagnosis I thought I had head lice and self-treated myself it on three separate occasions! Though DH is a miserable disorder to have, and the sores appear in the same places time and time again leaving scars, it at least leads to a faster diagnosis once a dermatologist sees the itchy sores, which often appear in bunches on your scalp, upper arms, shoulders and shins.  While other people are watching television you are itching at sores in your head, picking off scabs, and in general feeling very miserable until the DH sores eventually heal. A biopsy of one of the lesions by that dermatologist can show dermatitis herpetiformis, but sometimes only after two or even three biopsies. The IgA deposits remain under the skin and that is why the DH sores keep coming back to the same place in your body. They are still there, and just come to the surface when you ingest gluten. 
</p>

<p>
	Some with DH have to remain on dapsone for the rest of their lives. I have been on dapsone for over 30 years, even though I attempted on several occasions to stop taking it. To me it is a wonder drug, but one that I have to be careful not to abuse, because dapsone can cause anemia, and something similar to anorexia because when you ingest it regularly you do not feel hungry, and thus lose weight. To heavy people this may seem like the perfect weight loss program. Believe me, it isn't. It can also cause Methemaglobinemia which, when ingesting will prevent your arteries from functioning as an oxygen carrier and can seriously affect your body so that oxygenated blood does not reach your starved blood cells. You either carry a SAT Machine to measure the oxygen levels in your blood, or go to the Emergency Department where they can check your saturation levels. If below 90 they will admit you, run a battery of tests, and you may be put into a side room somewhere to get an infusion of Methane Blue to flush out your blood system, and you may need to have a blood transfusion. If you are away on holidays this can be a very serious condition where you are unaware you have Methemaglobinemia, except for a feeling of being out of breath, and NEED to get to hospital as soon as possible so your SAT levels can be monitored. 
</p>

<p>
	Scaring you straight means not cheating day after day and then hoping a few dapsone will improve the condition. It won't—if you have passed the safe guideline of one pill daily. It is not simply a matter of taking dapsone in a 5 - 4- 3 - 2 - 1 as I was advised to do by an internist when I was first diagnosed with dermatitis herpetiformis. Ingestion over five days will no longer help you, and to my chagrin, can cause the condition to worsen. It is a serious condition; you can actually die from lack of oxygen in your blood!
</p>

<p>
	These few descriptions do not cover the fall out (of your hair) and the scarring of the sores on your legs and upper arms the Prednisone that they want to give you can cause a "roid rage" similar to what weight lifters have when they purposely ingest Prednisone to build up their muscles and become extremely irritable because of the Prednisone. ONE helpful clear lotion that I have to buy across the border in the U.S.A. is Scalpacin or Renewal, the latter being the generic name for Salicylic Acid (3%) which lessens the intense itching when applied directly to the sores (not to be ingested!). It says only 3% Salicylic Acid and I will confess that when I first "latched" onto this amazing "scalp itch and Dandruff relief liquid" I often applied twice daily to all the sores in my scalp and on my body.
</p>

<p>
	Did you know that approximately 3% of the general population in the U.S.A., according to Dr. Peter Green, have celiac disease? Once a patient develops one autoimmune condition the odds of developing another are greatly increased. Autoimmune disorders run in families, and different diseases may affect different parts of the body. A friend of our grandson was diagnosed as having celiac disease simply because she went to her doctor with complaints of a stomach ache. The doctor could have easily asked her if she had exams coming up, sent her for a blood test to rule out an appendicitis and left it at that, but he was a wise doctor who asked more questions and ordered the celiac blood tests. When that cameback positive he actually followed it up with a biopsy of the jejunum. She, as a teenager, was positive for celiac disease, but that doctor could have easily not ventured past the  stomach ache at that first visit and gone no further with his investigations. Fortunately, vigilance paid off this time. 
</p>

<p>
	He was thorough enough to refer her to a dietitian, but you know, she still cheats! I believe the reason she cheats is because she does not suffer from any of the symptoms of celiac disease right now, and does not have dermatitis herpetiformis. Amazing how vigilant you become with your diet when you break out in painful sores over 25% of your body, and experience diarrhea, stomach aches, nausea and vomiting!
</p>

<p>
	We never got into the other diseases she could possibly get from cheating on the gluten-free diet. Sjogren's Disease, Turner Syndrome, Type 1 diabetes, Williams Syndrome, Juvenile idiopathic arthritis, lactose intolerance, migraines, peripheral neuropathy, liver disease, are but a few of the disorders that can be connected to celiac disease. Have you ever looked up the symptomatology of these autoimmune diseases? Time you did!<br>
	 <br>
	Did you know that there is a Celiac Disease Center at Columbia University which is one of the leading authorities for unexplained infertility issues, and that the prevalence of celiac disease in women with unexplained fertility is higher than the general population? Celiac disease may also be asymptomatic, meaning you show no symptoms at all. This is one of the reasons why it may be difficult for some people and their doctors to connect the dots between celiac disease and unexplained fertility.  
</p>

<p>
	I worked with obstetrician/gynecologists for years and never found one that, when doing the laboratory testing, included a test for celiac disease, yet it is common knowledge now that a celiac disease screening should definitely be part of the work-up that is done for infertility issues. People of reproductive age spend an enormous amount of money, time and energy trying to become pregnant and carrying the baby to term. There are more women depressed because they cannot conceive or those that cannot bring a baby to term. Several studies over the past ten years have found a link between celiac disease, infertility and spontaneous abortion. It is not known yet whether the nutritional issues (malabsorption) that occurs with untreated celiac disease is the cause of the reproductive issues, or if the immune system may be to blame.
</p>

<p>
	Many doctors define infertility as the inability to get pregnant after one year of unprotected sex. In women, fertility difficulties often result from a problem with ovulation, while in men, infertility usually occurs because the man does not produce enough sperm or produces abnormal sperm. Note that undiagnosed or untreated celiac disease can lead to a host of seemingly unrelated problems, including osteoporosis, depression, and anemia. Medical researchers “along with some observant obstetrician/gynecologists are realizing that undiagnosed celiac disease may also be a cause of otherwise unexplained infertility in both men and women."  A study undertaken in England, which has one of the world's largest celiac populations, indicates that fertility often returns after you start the gluten-free diet. 
</p>

<p>
	There are many causes for infertility, but up to 30 percent of couples who are infertile will be told that no specific reason for their infertility can be found. When this happens a diagnosis of unexplained infertility is given. In recent years, awareness of celiac disease has increased. You may not be able to quote "Celiac Disease is a chronic autoimmune disorder", but it is a good sentence to spread around to those who ask you, "Do you follow the gluten-free diet because it is trendy or you want to lose weight"? As awareness for celiac disease has increased, some researchers have started looking at a possible like between celiac disease and unexplained infertility.<br>
	Some of the known causes are:
</p>

<ul>
	<li>
		Low sperm count, - sperm with mobility or motility issues
	</li>
	<li>
		Enlarged veins in the scrotum called varicocele.
	</li>
	<li>
		Klinefelter syndrome, a genetic disorder. 
	</li>
</ul>

<p>
	Although Klinefelter syndrome carries with it the risk testicular cancer, autoimmune diseases have been associated with this disorder, which is a chromosomal disorder. KS might increase the risk of some autoimmune diseases. It has been suggested that some autoimmune diseases may be more common in people with Klinefelter syndrome than in others, but the evidence so far is sparse. A research paper out of Oxford, England entitled "Associations between Klinefelter's Syndrome and Autoimmune Diseases” came to the conclusion that those with Klinefelter syndrome have increased risk of some autoimmune diseases. 
</p>

<p>
	If you have the test for celiac disease, at least the blood test, and if your partner has the ultrasound done for it you can go into the obstetricians office with a list of questions, including family history, research you have undertaken yourself.  I have seen so much heartache while nursing, watching a couple lose their baby prior to delivery, and those than cannot conceive but cannot afford invitro- fertilization. The damage that undiagnosed or untreated celiac disease can result in ongoing gastrointestinal symptoms such as vomiting, chronic diarrhea, stomach pain, and cramps. A number of these symptoms may also affect the reproductive system of women, for example:
</p>

<ul>
	<li>
		Delayed onset of menstruation
	</li>
	<li>
		Irregular periods
	</li>
	<li>
		No periods at all, known as amenorrhea
	</li>
	<li>
		Chronic pelvic pain
	</li>
</ul>

<p>
	And yes, endometriosis (where part or parts of the uterine lining attaches itself to the uterus and begins to grow) needs to be mentioned here. Many women who have this painful disease have been told that their only way of ridding themselves of this very painful disorder is to get a total hysterectomy. This is not always the case. There are now medications to help rid the uterus of endometriosis. Many obstetricians will perform a laparoscopy to determine the extent of the endometriosis, endeavour to lyse the adhesions from the wall of the uterus. Often this is all that is needed to ensure an introduction from the egg to the sperm and conception takes place. Other, more difficult cases can be referred to an infertility specialist, but be prepared for large costs. Many infertility specialists will tell you that if you can obtain a pregnancy while still struggling with endometriosis it often alleviates the problem. 
</p>

<p>
	Did you know that men with celiac disease may have gonadal dysfunction, which could complicate fertility issues? (That was a big learning surprise for me!) This ultrasound test can be ordered by your family physician, a gonadal ultrasound to rule out a cystocele. Finding out that your husband has a cystocele is not Earth shattering—it involves a small corrective surgery. 
</p>

<p>
	Did you know that Semen issues (specifically sperm morphology) found in men with celiac disease improved after following a gluten-free diet? Few studies have been conducted on celiac disease and male infertility. There is also a lack of scientific information and research studies on the potential link between non-celiac gluten sensitivity (NCGS), also commonly referred to as "gluten intolerance" and infertility. While research needs to be done, those with non-celiac gluten sensitivity are thought to possibly be at an increased risk of reproductive issues. However, the connection between NCGS and infertility is not yet known or proven.  <span ipsnoautolink="true">One case review</span> did suggest that a strict gluten-free diet may improve fertility for those with NCGS. 
</p>

<p>
	According to Healthline experts do not fully understand the effects of celiac disease on the reproductive system. The effects may be caused by malabsorption of nutrients, the impact it has on the immune system, or another currently unexplained reason. Some studies have noticed a link in untreated celiac disease in the mother and recurrent miscarriage, pre-term birth, and low birth weight.  In a meta analysis that looked at studies on infertility and celiac disease, researchers noted that women with infertility were over three times more likely to have celiac disease than the control group. You have to admit that is a large number, and what upsets me is the fact that numerous obstetrician/gynecologists do not automatically send this part of the women's population for celiac disease screening. 
</p>

<p>
	Yet women with unexplained infertility, were six times more likely to have celiac disease than women in the control group. Despite these studies, not all experts in the field are convinced about the connection. They state that more research is needed. BUT wouldn't you want to know that there is strong evidence that infertility and celiac disease are connected, and at least make your own decision with regards to getting tested? The tests undertaken by people with infertility are difficult to endure, are not only embarrassing but invasive. If celiac disease or gluten sensitivity runs in your family, or you suspect you have celiac disease, make a list of your symptoms. You'll want to discuss your concerns with your doctor and ask to be screened for celiac disease. A Reproductive Endocrinologist is who you would be referred to here in Canada, but you may have another title in the United States.
</p>

<p>
	If you are vigilante about eliminating gluten from your diet, you will stop the damage celiac disease is doing to your body. This may include lessening or eliminating the impact it may be having on your reproductive system.<br>
	 <br>
	<strong>Sources:</strong>
</p>

<ul>
	<li>
		Celiac Disease A Hidden Epidemic,  Dr. Peter H.R. Green
	</li>
	<li>
		American College of Obstetricians and Gynecologists (ACOG) Resource Center: <a href="http://www.acog.org/" rel="external nofollow">http://www.acog.org</a>
	</li>
	<li>
		American Society for Reproductive Medicine: <a href="http://www.asrm.org" rel="external nofollow">http://www.asrm.org</a> 
	</li>
	<li>
		Healthline
	</li>
</ul>
]]></description><guid isPermaLink="false">4441</guid><pubDate>Thu, 03 May 2018 15:30:00 +0000</pubDate></item><item><title>Do you Have Your Gluten Free Emergency Food Bag Ready to Grab and Go?</title><link>https://www.celiac.com/celiac-disease/do-you-have-your-gluten-free-emergency-food-bag-ready-to-grab-and-go-r4427/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_04/Flood-pic-gf-bag-final.webp.f94f5c7401bae56d4c3f85a0d6994616.webp" /></p>
<p>
	Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
</p>

<p>
	I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
</p>

<p>
	That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
</p>

<p>
	When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
</p>

<p>
	After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
</p>

<p>
	Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
</p>

<p>
	Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
</p>

<p>
	That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.<br>
	  <br>
	In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
</p>
]]></description><guid isPermaLink="false">4427</guid><pubDate>Tue, 24 Apr 2018 15:33:00 +0000</pubDate></item><item><title>Cannabis and Gluten</title><link>https://www.celiac.com/celiac-disease/cannabis-and-gluten-r4418/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_04/cannabis_energy_drink_CC-Mike_Mozart.webp.caa0085e4785e59e899237a84555854f.webp" /></p>

<p>
	Celiac.com 04/13/2018 - Is cannabis gluten-free? That is a frequent question I receive now that over 50%  of the United States has approved medical cannabis and some states have also included recreational cannabis. Let's begin be describing cannabis as an oral medicine that has been used since the Chinese treatise on pharmacology described Emperor Shen Nung in 2737 BCE using it. 
</p>

<p>
	In 1850 cannabis was listed in the U.S. Pharmacopoeia as a cure for many ailments. By the early 1900's Squibb Company, Eli Lilly and Park-Davis were manufacturing drugs produced from marijuana for use as antispasmodics, sedatives, and analgesics (pain medication).
</p>

<p>
	Today, hemp seed and hemp oil products are widely available. They provide CBD or cannabidiol - the non-psychoactive cannabinoid from various Cannabis sativa strains grown for high CBD levels. In order to be legal in the U.S. these products must contain less than 0.3% THC, the psychoactive cannabinoid in cannabis. CBD products can be consumed as capsules, tinctures, "gummy" chewables, lollipops, and numerous edibles like brownies, chocolates, and granola bars.
</p>

<p>
	The nutritive value of cannabis is presently described as that of hemp seed since no scientific analysis of Cannabis sativa has been done. Hemp is one of the world's most nutritious foods with high quality protein and essential fatty acids found in its seeds. Hemp contains all eight essential amino acids and can be sprouted for use in salads and shakes.
</p>

<p>
	Celiacs with protein allergies to eggs and soy need to be cautious when adding hemp and CBD products to their diet regimes. The major proteins in hemp are albumen and edestin. Hemp is a nut so those celiacs with nut sensitivities need to consider that. Others may be limiting their lectin intake and need to limit CBD products until processing evaluations can indicate levels resulting in the products.
</p>

<p>
	CBD oils contain linoleic and linolenic fatty acids which are important in reducing inflammation. They can be used in salad dressings, mashed potatoes and substituted for olive oil in recipes. Since these essential fatty acids must be obtained in the diet, using hemp or cannabis CBD products can enhance health.
</p>

<p>
	Cannabis products- particularly CBD- have been overlooked by individuals needing symptom relief from neurological (Parkinson's, ALS, Multiple Sclerosis, migraine), immune (cancer), and gastrointestinal disorders (Crohn's disease, IBS). When choosing cannabidiol-CBD products be sure to check that they have been tested for pesticides, heavy metals, and microbiological contaminants. 
</p>

<p>
	Today, more hemp is sold to pet owners as bird seed than used by humans. But as more individuals learn of the botanical benefits of cannabis, they should consider adding it to their diet and supplement regime. My book, Cannabis-A Clinician's Guide (CRC Press 2018) reviews the science and clinical uses of cannabis along with how to use it in recipes.  
</p>
]]></description><guid isPermaLink="false">4418</guid><pubDate>Fri, 13 Apr 2018 20:19:00 +0000</pubDate></item><item><title>Sony Pictures Pokes Fun at Anaphylactic Shock</title><link>https://www.celiac.com/celiac-disease/sony-pictures-pokes-fun-at-anaphylactic-shock-r4406/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_04/peter_rabbit_CC--Riversdale_Estate.webp.28f2ead14b8953e5e62e48cfb922a651.webp" /></p>

<p>
	Celiac.com 04/06/2018 - For many individuals, the movie Peter Rabbit is a longtime, favorite children’s story. Unfortunately, the 2018 version that has been recently created by Sony Pictures has taken this story and changed it into something extremely controversial for the food allergy community. 
</p>

<p>
	As an overview, the movie pokes fun of individuals with food allergies, particularly <a href="https://www.facebook.com/hashtag/anaphylaxisshock?source=feed_text" rel="external">anaphylactic shock</a>, which is a life-threatening allergic reaction. Basically, the rabbits discover that the male human is highly allergic to blackberries and they plot to use it against him. In addition, the rabbits make it a point of saying, they hope they don’t receive any letters about the topic of food allergies and give a wink towards the screen. 
</p>

<p>
	Now if that was not bad enough, the movie provides children with false information. They show that once an EpiPen is administered the individual will be completely well, get right back up and resume normal activities with no problems at all. However, that is completely, 100 percent inaccurate information. You’ll still have to get to the hospital immediately for further treatment, so you can breathe, control severe hives, etc. 
</p>

<p>
	A lot of people feel that this is definitely, without a shadow of a doubt, food allergy bullying because of the insensitivity the film is presenting. Simply just turn on your computers, and browse through social media, specifically Twitter and YouTube. You will even find the trending hashtag <a href="https://www.facebook.com/hashtag/boycottpeterrabbit?source=feed_text" rel="external">#BoycottPeterRabbit</a> all over the internet. 
</p>

<p>
	However, even with all this negative feedback from parents and food allergy charities, Sony Pictures did not pull this specific scene from their movie. They did decide to make an official public apology, but that was all. There was no donation made to any organization to help benefit food allergy awareness, advocacy, education or research. 
</p>
]]></description><guid isPermaLink="false">4406</guid><pubDate>Fri, 06 Apr 2018 15:35:00 +0000</pubDate></item><item><title>Fifteen Symptoms that can Make Celiac Disease Hard to Diagnose</title><link>https://www.celiac.com/celiac-disease/fifteen-symptoms-that-can-make-celiac-disease-hard-to-diagnose-r4387/</link><description><![CDATA[
<p><img src="https://www.celiac.com/uploads/monthly_2018_03/psoriasis_CC--Mysi_Ann.webp.bfc1b81c0de65e03c09bbabe15cf436e.webp" /></p>
<p>
	Celiac.com 03/21/2018 - Many people with celiac disease suffer from non-gastrointestinal symptoms. Here are 15 non-gastrointestinal symptoms that can make celiac disease difficult to diagnose. If the general public knows anything about celiac disease, it is likely that eating wheat can cause stomach problems in people with the condition. And that’s often true, classical celiac symptoms include abdominal bloating and pain, chronic diarrhea and/or constipation, and vomiting. 
</p>

<p>
	Young children are more likely to show classic signs of celiac disease, including growth problems (failure to thrive, chronic diarrhea/constipation, recurring abdominal bloating and pain, fatigue, and irritability.
</p>

<p>
	Older children and adults tend to have symptoms that are not entirely gastrointestinal in nature. 
</p>

<p>
	So, depending on age, and other factors, celiac disease affects different people differently. In fact, there are more than 200 signs and symptoms of celiac disease. Some patients have several, some just a few. <a href="https://www.celiac.com/celiac-disease/gastrointestinal-and-non-gastrointestinal-symptoms-vary-in-patients-with-celiac-disease-r2669/" rel="">Many report non-gastrointestinal symptoms</a>. And many people with celiac disease never show any symptoms at all. 
</p>

<p>
	Yet, both people with vague symptoms and those with no symptoms still face a higher risk of developing complications associated with celiac disease, as well as for celiac-associated conditions.
</p>

<p>
	Recent research has demonstrated that only a third of adult patients diagnosed with celiac disease experience diarrhea. Weight loss is also not a common sign. In fact, far more patients diagnosed these days are over weight.
</p>

<p>
	We’ve covered the most common physical complaints of people with celiac disease, but here is a list of fifteen common non-gastrointestinal symptoms that can make celiac disease hard to diagnose:
</p>

<p>
	1) ANEMIA—The most common non-gastrointestinal problem faced by people with celiac disease is anemia. About one in three celiacs (34%) suffer from anemia.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/anemia-and-celiac-disease/" rel="">Anemia and Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/forums/topic/104028-is-celiac-disease-worse-in-people-with-anemia-celiaccom/?do=findComment&amp;comment=887262" rel="">Is Celiac Disease Worse In People With Anemia?</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-and-iron-deficiency-linked-in-caucasians-but-not-non-caucasians-r2782/" rel="">Celiac Disease and Iron Deficiency Linked in Caucasians, But Not Non-Caucasians</a>
	</li>
</ul>

<p>
	2) BLOATING—20% of celiacs complained of bloating prior to diagnosis.
</p>

<p>
	3) DERMATITIS HERPETIFORMIS, PSORIASIS &amp; other skin conditions—Many people with celiac disease suffer from dermatitis herpetiformis, psoriasis, or other skin conditions.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/dermatitis-herpetiformis-skin-condition-associated-with-celiac-disease/" rel="">Dermatitis Herpetiformis: Skin Condition Associated with Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/skin-problems-and-celiac-disease/" rel="">Skin Problems and Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/five-common-skin-conditions-associated-with-celiac-disease-r1609/" rel="">Five Common Skin Conditions Associated With Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/psoriasis-and-celiac-disease/" rel="">Psoriasis and Celiac Disease</a>
	</li>
</ul>

<p>
	4) ATAXIA, NERVE DISEASE, NEUROPATHY—Many people with celiac disease suffer from ataxia, nerve disease, or neuropathy, especially peripheral neuropathy.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/" rel="">Peripheral Neuropathy</a>
	</li>
</ul>

<p>
	5) CRYPTOGENIC HYPERTRANSAMINASEMIA—nearly one-third (29%) of people with celiac disease, have what is called cryptogenic <a href="https://www.medicalnewstoday.com/articles/321975" rel="external">hypertransaminasemia</a>, also known as celiac hepatitis.
</p>

<p>
	6) THYROID DISEASE—Thyroid disorders are common in people with celiac disease.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/thyroid-pancreatic-disorders-and-celiac-disease/" rel="">Thyroid &amp; Pancreatic Disorders and Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/should-patients-with-autoimmune-thyroid-disease-be-screened-for-celiac-disease-r4012/" rel="">Should Patients with Autoimmune Thyroid Disease Be Screened for Celiac Disease? </a>
	</li>
</ul>

<p>
	7) JOINT PAIN—Joint pain is a common complaint of many people with celiac disease, possibly due to associated inflammation.
</p>

<p>
	8) DENTAL ENAMEL DEFECTS—Researchers have recently linked dental enamel defects with celiac disease. In the future, dentists may play an important role in helping to diagnose celiac disease, especially in patients with non-classical or vague symptoms, by noting dental enamel defects common in people with celiac disease.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/dental-enamel-defects-indicate-adult-celiac-disease-r2802/" rel="">Dental Enamel Defects Indicate Adult Celiac Disease</a>
	</li>
	<li>
		<a href="https://www.celiac.com/celiac-disease/distinct-tooth-enamel-defects-can-help-reveal-celiac-disease-r4003/" rel="">Distinct Tooth Enamel Defects Can Help Reveal Celiac Disease</a>
	</li>
</ul>

<p>
	9) UNEXPLAINED INFERTILITY, RECURRENT MISCARRIAGE—Women who suffer from <a href="https://www.celiac.com/celiac-disease/higher-celiac-disease-rates-in-women-with-infertility-r3306/" rel="">unexplained infertility</a> an/or recurrent miscarriage have a much higher risk of celiac disease. 
</p>

<p>
	10) OSTEOPENIA/OSTEOPOROSIS—A full 52% of patients with celiac disease suffer from osteopenia/osteoporosis.  Osteoporosis is a more serious bone density problem. Many people with celiac disease suffer from low bone density. 
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/osteoporosis-osteomalacia-bone-density-and-celiac-disease/" rel="">Osteoporosis, Osteomalacia, Bone Density and Celiac Disease</a>
	</li>
</ul>

<p>
	11) PSORIASIS—Many people with celiac disease also have <a href="https://onlinelibrary.wiley.com/doi/10.1111/j.1365-2230.2010.03980.x/full" rel="external">psoriasis</a>. It’s also true that many people with psoriasis claim to find that a gluten-free diet can help their symptoms to improve.
</p>

<p>
	12) PSYCHIATRIC DISORDERS—Many people with celiac disease suffer from psychiatric disorders such as anxiety and depression. In some cases, especially in those without classic symptoms, these psychiatric disorders can be among the few symptoms, and can make celiac disease difficult to diagnose.
</p>

<p>
	13) CANKER SORES (Aphthous Stomatitis)—People with celiac disease have much higher rates of <a href="https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/skin-problems-and-celiac-disease/" rel="">canker sores</a>. In fact, nearly 20% of people with symptomatic celiac disease had canker sores as one of their symptoms. In many cases, these canker sores are recurrent, and can be one of the few or only signs of celiac disease.
</p>

<p>
	14) FATIGUE—Many people with celiac disease report recurrent fatigue as one of their symptoms. Sometimes, fatigue can be one of the few or only symptoms, making celiac disease difficult to diagnose.
</p>

<p>
	15) WEIGHT GAIN—Classic celiac disease patients commonly suffered weight loss or low body weight. That has changed. These days, it is much more common for people with celiac disease to be overweight.
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/celiac-disease/screening-versus-symptoms-does-detection-method-affect-body-mass-for-celiacs-on-a-gluten-free-diet-r2487/" rel="">Screening Versus Symptoms: Does Detection Method Affect Body Mass For Celiacs on a Gluten-Free Diet? </a>
	</li>
	<li>
		<a href="https://www.celiac.com/forums/topic/120772-how-can-i-be-overweight-with-celiac/?do=findComment&amp;comment=988440" rel="">How can I be overweight with Celiac ?</a>
	</li>
</ul>

<p>
	<br>
	Sources:
</p>

<ul>
	<li>
		<a href="https://www.celiac.com/" rel="">Celiac.com</a>
	</li>
	<li>
		<a href="https://www.cureceliacdisease.org/symptoms/" rel="external">Cureceliacdisease.org</a>
	</li>
</ul>
]]></description><guid isPermaLink="false">4387</guid><pubDate>Wed, 21 Mar 2018 15:33:00 +0000</pubDate></item></channel></rss>
