Screening Versus Symptoms: Does Detection Method Affect Body Mass for Celiacs on a Gluten-free Diet?

I was diagnosed 21 years ago and am still overweight. (obese). I would love to see just what the diet consisted of exactly, because nothing I have tried has helped me to lose weight - I have gained more, if anything. If anyone is doing research please contact me, my daughter, my sister, and nephew.

We would love to have more information and help others with this disease.

I was diagnosed 21 years ago and am still overweight. (obese). I would love to see just what the diet consisted of exactly, because nothing I have tried has helped me to lose weight - I have gained more, if anything. If anyone is doing research please contact me, my daughter, my sister, and nephew.

We would love to have more information and help others with this disease.

That is pretty much what I've seen in the community. Some people with celiac ... don't lose weight when they lose the gluten. When food absorption is better, celiac people eat less, but don't lose weight.

I kind of think the research by Dr. Richard Johnson is on the right track. Some combination of too much fructose, and too much iron, is triggering the weight gain. Wheat might trigger too much iron absorption also. But the American diet, in particular, is really high in fructose (not just HFCS, but also sucrose and OJ) and iron (not just meat, but also iron-enriched foods).

In terms of the article though, about "detection methods" ... my first thought was about waist circumference. Anyone with "bloating" can gain a few inches just from gas, and THAT I think, is a big flaw in the waist-measurement statistics.

I'm thrilled to see that doctors are recognizing celiac disease in overweight people more often. Ten years ago, when I was diagnosed, several doctors had a difficult time believing that I was biopsy diagnosed because I was (and am) overweight.

I was diagnosed 21 years ago and am still overweight. (obese). I would love to see just what the diet consisted of exactly, because nothing I have tried has helped me to lose weight - I have gained more, if anything. If anyone is doing research please contact me, my daughter, my sister, and nephew.

We would love to have more information and help others with this disease.

Kelly, I don't know if my answer will be yours but I have finally been able to lose weight for the first time in 30 years. I was diagnosed with celiac disease nearly 10 years ago. I was overweight then and it's gone up slowly since then until this year. I've been watching my blood glucose levels and a friend recommended a book called The Diabetes Solution by Dr. Bernstein. I don't follow his instructions exactly but I am restricting my carbs to fewer than 100 grams daily and losing weight. I've been eating 1600 calories a day for a while but weight loss didn't begin until I restricted carbs to fewer than 100.

One other thing that makes a difference for me that I haven't heard mentioned much for weight loss is sleep. In the past, I've always gone on about 6 hours of sleep or less. Now, if I get less than 8 hours of sleep per night, after a couple of days the weight loss stops. I have been on different diets many times and they didn't work. The carb restriction and sleep is working and I've lost 30 pounds. That's the first time I've been able to make the scale go the other direction in 30 years.

I have to mention a food logging program called DietPower is helping me keep track of the food but I find it's wildly optimistic on how many calories I burn in any activity so I ignore the "calories earned by activity" section. Hope this helps.

I was diagnosed 21 years ago and am still overweight. (obese). I would love to see just what the diet consisted of exactly, because nothing I have tried has helped me to lose weight - I have gained more, if anything. If anyone is doing research please contact me, my daughter, my sister, and nephew.

We would love to have more information and help others with this disease.

I feel you! We (my mom and I, both celiacs) have the same experience. It seems impossible to lose weight, we just gain. That said, having tried every diet, my mom finally seems to have found a holistic doctor who is helping her. He put her on a grain-free, dairy-free, sugar-free diet. I put my family of 5 on it and everyone has lost weight (me the least, sigh). Nonetheless, it's working for us 5 and my mom. My mom was diagnosed with candida in her intestine; you might want to look it up.

I was diagnosed 21 years ago and am still overweight. (obese). I would love to see just what the diet consisted of exactly, because nothing I have tried has helped me to lose weight - I have gained more, if anything. If anyone is doing research please contact me, my daughter, my sister, and nephew.

We would love to have more information and help others with this disease.

H! For the first time in 10 years, I've had good success quickly dropping the pounds with very low carb, gluten-free fresh foods - nothing processed. Low carb is key!! Keep lowering the daily amount of carbs until you have the rate of weight loss you want - it varies for everyone. Look up primal blueprint's website and get on their email list - they have great free advice/emailed tips and recipes. They is very filling and easy recipes - you won't be hungry at all. My sister had similar success and we're now working on other family members!