Date: Tue, 30 Jan 96 03:46:27 -0800
From: Charles Jarvis Jr.
Subject: Scotts Celiac Disease / Gluten Intolerance Help Page

Thanks for a great celiac homepage. Keep up the wonderful work. Its much appreciated.

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Date: Sat, 3 Feb 1996 23:22:54 -0600
Subject: Wonderful work

I hadnt read your info for months and I am so impressed with the wonderful job youre doing. Shortly before our support group meeting in March, Ill
post the info for you. Thanks again and keep up the good work!
- Lynn Samuel

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Date: Tue, 13 Feb 1996 13:22:53 -0500
Subject: Congratulations

All of us at IMMCO Diagnostics are very impressed with your web site. We have been perusing the site over the last month. It is very informative and thorough. Your efforts to disseminate this valuable information to celiac sufferers is commendable. Feel free to contact us if you require information, articles, or content for your page. We would be happy to help.

Sincerely,
Vijay Kumar
Kurt Neukom
Kevin Lawson

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Date: Thu, 15 Feb 1996 08:48:15 -0500
Subject: Celiac disease

I have just joined America-on-line and have accessed your Scotts Celiac Page. This is a letter of appreciation for all the work you have done to help
celiacs. I am very impressed with the extent of your Table of Contents and have just printed about half of everything there. Fascinating articles.
-J. Trevett

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Date: Mon, 26 Feb 1996 10:30:44 EST
From: MS. BRENDA DAVIS
Subject: Scotts Celiac Page

Please add me to your list for updates and changes at your celiac site. I have enjoyed your site very much. It was the first place I found when desperately looking for celiac information. I found it sometime last October and I can truly say that it changed my life after not having any information after being diagnosed celiac approximately about a year and a half ago. I appreciate your hard work on this.

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Date: Mon, 18 Mar 1996 15:53:49 +0000
From: Carol Young

I love your home page and it has helped me as well as my doctor better understand how to be wheat and gluten free. What you are doing here is
wonderful.

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Date: Sat, 6 Apr 1996 23:08:48 -0500
Subject: just wanted to thank you

Hi, my name is Michael and I wanted to thank you for you great home page. My grandmother is a Celiac patient and she is lost as to what to do. She heard about something called the internet and I told her I would look. I did look and their was no better place than yours. Your home page and the various links will make her day. She is 75, which is strange for Celiac patients but also it is harder for her to learn or even know where to look. Thanks to you she now does. This disease needs to be brought out in the open, it seems like many people have it yet, not many companies etc... cater to them. It is very hard to find these products but you have helped. Thanks again!

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Date: Sat, 20 Apr 96 06:03:56 -0700
From: Michael Esker
Subject: Celiac Home Page

What a great site! This is a great example of the real benefit of the Internet. I was born with celiac, although it was not diagnosed until I was about 3! I dont remember, but my parents say the first few years of my life was hell for them and me. I felt I grew out of it at about 18 so I went off my gluten free diet. Mainly so I could drink beer. I am 31 now, but due to not feeling as well as I think I could, and possible long-term consequences, I think I am getting back on the diet to see what happens. Part of this action stems from my young nephew who also might have the
disease. At least its being considered and tested for with diet these days! Your home page will be an invaluable resource as I, and my nephew, try
to get back to a better life. Thanks for your effort.

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Date: Tue, 23 Apr 1996 22:26:51 -0400
To: sadams@hooked.net
Subject: celiac information

Your page on the Internet is a Godsend to those few of us who need info & support for celiac disease. My adult daughter has just been diagnosed & Im searching for her benefit since she doesnt have access to a computer. Now I just have to figure out how to use the Internet & I cant think of a better reason to learn! Please add me to your mailing list for your newsletter which Ill forward to my daughter. Many thanks - keep up the good work.
- Judy Fitzpatrick

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Date: Wed, 05 Jun 96 08:41:29 -0700
From: Bertie Lynch

Scott: First, Id like to thank you for posting your Scotts Celiac page on the Internet. Wonderful info, and a lifesaver for our family, as my
husband was diagnosed with the disease last year, so once again, thanks.
-Regards, B. Lynch

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Date: Tue, 18 Jun 1996 09:31:24 -0400
Subject: Thanks for Information

Thanks very much for sharing your Celiac information with others who have gluten problems. I have been very frustrated trying to find out what my
problem is and now believe I may be gluten-sensitive. Your web page has been of great help to me in finding out if my symptoms are consistent
with gluten sensitivity/intolerance. I am truly grateful that people like you make the effort to help those of us out there who are mystified by these symptoms. Thanks again, and keep up the good work!!!
- Stefanie Crampton

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Date: Sun, 30 Jun 1996 01:15:46 -0400

Please add me to your email list. Secondly what a blessing you sight has been to me and three other people to date. I have battled what everyone told
me was IBS for the past three years and it was ruling and controlling my life. In the past three weeks with the information I found through your sight my life is so much better and I feel so much better. My sister and a friend are now experiencing the same effect since I share what I found with
them. Thank you!
-Jean

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Date: Sun, 07 Jul 96 14:26:25 -0700
From: Cherie Jameison
Subject: Mail list

Please add me to your e-mail list. I deeply appreciate your web page, as well as all gluten-intolerance material on the Net. Like any of us who have celiac disease, I have my own tragic history until I cut out gluten from my diet (in my 40s). My childhood was painful, due in large part to gluten intolerance. What wasted, tragic years. Anyhow, weve all been through our own, sad backgrounds. Im so grateful that now increasing information is coming out and is available. Scott, thank you so very much for the wonderful work you are doing to help others!
With warm regards,
- Cherie

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Date: 09 Jul 96 11:05:02 EDT
From: Karen Brody
Subject: Praise for your efforts

Hi. Ive needed to do some research on celiac sprue from the UK for a book Im writing for Sheldon Press called Coping with Coeliac Disease and your information on the internet has been very useful. Thanks from the bottom of my heart. The world needs more special people like you who care about peoples health!

Thanks again for your help,
- Karen

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From: Perron Lino
Date: Sat, 10 Aug 96 21:11:03 -700
Subject: mailing list

Thank you for your page and all the info. I will appreciate to be in your mailing list and learn about anything new about celiac sprue. My daughter is doing a lot better and she is growing ok on a gluten free diet. If for any reason you are traveling trough Italy come see us Be happy to meet you and thank you for he big help. Lino Perron Breuil Cervinia at the foot of the Matterhorn on the Italian side. Good place to climb and ski.

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From: Davis, Pamela
Subject: Celiac mailing list

Your web page is very informative. My mother was diagnosed with celiac a few years ago. She has a hard time finding information on the disease and has had to completely change the way she eats and cooks. This web site is a godsend to people like my mother. Please add her to your distribution list for any information that you e-mail out. Thank You.

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Date: Tue, 24 Sep 1996 09:20:13 -0700
From: Randina Bliss
Subject: well done

Kudos to you for bringing this extremely well written Web page on Sprue and the pertinent articles that are necessary to better deal with
diagnosis.

My brother was diagnosed with this disease this spring, following lengthy testing for whatever they could think of. He was very anemic,
losing weight and having odorous diarrhea. Now that he is following a gluten free diet the dark circles under his eyes have gone, his
hemoglobin is going up and has even managed to gain a few pounds. We have since learned from our older sister that my brother was
considered malnourished when he was younger, the age of younger is unknown. He was always thin and had a low energy level. It is a shame
the puzzles pieces took so long to be put together. His birthday is this Saturday (turning the big 50) and I wanted to make
him something home baked (if I could find the ingredients). When I did a search via Yahoo, it gave me only this one. I am extremely grateful
that it did as I have found this to be extremely helpful and will pass it on to my brother if he doesnt already have it.

Your web page is the nicest I have seen to date. I really like and appreciate the graphics, the colors and the layout of the entire contents. It gets a four star rating in by book and is already bookmarked for reference. Thank you for gathering this information and sharing it with all of us.

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Date: Thu, 26 Sep 96 10:24:20 UT
Subject: Thanks for this web page!

Scott- Your web page has been extremely helpful to me in understanding this disease & helping my daughter, who is away at college in the US diagnose her problems. I am living in Germany, and have been feeling very frustrated and helpless when she reported her symptoms to me, and we sent her to dr. after Dr. for different tests. This has helped us solve her mystery, and after a gluten-free diet for several months, she feels like herself again. Your list of stores enabled me to call & order gluten-free care packages.. She was having severe pasta withdrawal & I was able to come to the rescue! Through your list of organizations I was able to contact Diane Schafer (New Orleans) who has called her & been most helpful in giving her encouragement & recommending a local doctor & nutritionist. Again, Thanks!!! Please add me to your e-mailing list.
Gratefully, Ann Webb

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Date: Wed, 30 Oct 96 11:45:23 -0800
From: FDC Librarian Linda Petriuk
Organization: Food Development Centre, Portage la Prairie, Manitoba
Subject: Bless you!

Im a librarian at the Food Development Centre (were a special operating agency of the Manitoba provincial government in Canada) and a distressed
library patrons query about gluten-free foods has landed me on your website. I am astounded at how wonderful this page is! Really, the amount of work that has gone into your site is obviously great, and the information contained in it, some of which Ive passed on to my library patron, has helped a great deal. Particularly I had been looking for information about gluten-free foods for (fastidious) children with the intolerance, and it has been wonderful to see how much information there is. The library patron is very grateful that there is someone like yourself providing this sort of help to people in great distress with gluten intolerance,

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Date: Tue, 05 Nov 96 20:10:00 -0800
From: Connie Christiansen

With enormous gratitude for giving me the answers to long-sought questions. I am feeling so much better since following this program for two months. After years of searching, I have no more pain.

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Date: Wed, 20 Nov 1996 02:49:47 -0500

Thank you for putting together your home page. I have just discovered it, and it has opened up my celiac opportunities immensely. I have had celiac disease for 11 years, and have been so pleasantly surprised to find out that there are so many recourses now that were not available in 1985. Your page is one of my favorite places because of its listing of vendors, cookbooks, and recipes. Your information has led me to send for food catalogs,
cookbooks, and newsletters. All of these things are a godsend to someone who thought Id never eat bread, cookies, pastas, and cakes again. Thank you for impacting my life in such a positive fashion.
-Christine Zabel

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Date: Sat, 23 Nov 1996 11:40:49 -0800
From: Fullerton, Stephanie

Hi I just wanted to tell you that last spring my 11 year old son had to do a paper on a disease. He said he did not want to do something everyone knew about so I suggested Sprue because my mom had it all my life and I always was interested in it. At work I printed out your information and he loved reading it (much more than the medical books we got at the library!). He got an A on his report and the teachers comment was that it was very interesting! My mother passed away six years ago and I am so sorry she never got to see sprue on the internet!!
Thank you!!
Stephanie Fullerton
Seattle, WA

 

1997 Celiac.com Feedback

Date: Sun, 26 Jan 1997 00:05:09 -0700
From: Jane Warner
Subject: Thank you & add me to the list

Please add me to your e-mail list. Thank you. Wow! What else can I say after skimming your site? What a lot of thought and work went into these pages, and to good account, too. They are very well organized. I found a wealth of information that will help me get a good test for celiac disease. Thank you, thank you, thank you!

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Date: Wed, 29 Jan 1997 13:26:32 -0800
From: Sue Metz
Subject: THANK YOU!

I dont even know where to begin....I only wish Id had this information on celiac disease 10 years ago, it would have saved me SO MUCH suffering and frustration (not to mention $$!!). Please add me to your e-mail distribution for updates. Thanks again!

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Date: Sun, 9 Feb 1997 14:22:40 -0500 (EST)
Subject: Coeliac

I just wanted to drop you a short note to say how pleased we were to discover the information about coeliac disease on your
web-site.

My wife, Val, has very recently been diagnosed, but has probably been suffering from it for 30 years or more. At first, news like that is quite overwhelming and gives rise to a lot of confusion and seemingly thousands of questions. For us this was an especially difficult time as we had only just previously had confirmation that our younger son (14) was diabetic.

The information on Coeliac on your web site was the most helpful that we have yet come across - and that includes what we have received from our own health service professionals here in the UK - and gave us more confidence about reverting to some sort of normality, which we now think we are beginning to realize. Once again, thanks for your efforts - they are much appreciated.
- Roger Brenton.

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Date: Mon, 10 Feb 1997 00:44:03 -0600
From: John Gruber
Subject: Thanks

Just wish to thank you for your website which I hit in April last year. I am Gluten intolerant and have suffered for many years. Thanks to you I can now say that I am almost restored. The doctors had no idea. Thank you.

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Date: Wed, 12 Feb 1997 19:53:08 -0500 (EST)
Subject: To Scott Adams

Scott: Thanks so much for your original Celiac page! You literally saved my life. I had heard about Celiac disease on a TV program, but did not have the full picture of the disease until I hit your site in November of 1995. I had gone thru several doctors in an attempt to figure out what was wrong, including an endoscopy with a gastroenterologist. (My regular MD, who was completely stumped by this condition, asked me if I was claustrophobic!) I suffered with the symptoms of this disease for 2 long years, and within 2-3 days after dumping the wheat I was back to normal. After this ordeal was over, I began backtracking into family history, and quickly realized that my Grandmother had been plagued with this disease, and that my Father had the disease as well. He had been taking Dapsone from his dermatologist for 15 years for various rashes. I quickly put the pieces together and confronted his doctor with this new information. He appeared to be quite stunned by the findings. At any rate, my fathers stomach and skin problems, as well as my stomach problems were all cured your article. I had not experienced any of my Celiac symptoms until November, 1993, (at age 33), when the symptoms appeared after taking daily dosages of Nuprin for reoccurring headaches I was having. Has anyone else been affected by the Nuprin that also suffers from Celiac Disease? Also, have you noticed the irritating Imodium ads on TV lately? They appear to be directly targeted toward the celiac disease crowd. While the ads are portraying individuals in humorous moments, Im sure it affects Celiacs in a very negative way, and I wonder if there has been any contact by your group with the manufacturers of Imodium. Again, thanks for all your help. You started me on the road to recovery and I thank you for that.

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Date: Tue, 11 Mar 1997 19:21:01 -0500 (EST)

You cant believe the journey you have sent me on! As a very small child I was diagnosed with celiac disease. All my photos of me show a tiny 4 year old with an enormous abdomen. I guess I was lucky to be diagnosed so early. I ate tons of bananas (but that is another story).

Totally unrelated, at age 16 I developed a terrible skin disease which was finally brought under control in my late 20s with a medicine called Dapsone. I was told at age 16 that I had a disease caller Dermatitis Herpetiformis and it would last 15 years or so...wrong.

Many years later, at age 50-something I had a routine bone densitometry test because I began to see a small hump developing on my back. DX: SEVERE OSTEOPOROSIS! Now that was a shocker! I expected to hear early Osteo, but never SEVERE!

One year later, on the internet you, Mr. Scott Adams put it all together. I cant believe the connections! My mother has severe osteoporosis and
arthritis, my daughter has multiple sclerosis. I am still in shock! When I added my name to your e-mail list, I couldnt even tell you how you
had connected it all for me. Thank you! You made a real connection for me!

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Date: Wed, 2 Apr 1997 07:21:34 -0500
Subject: Celiac Website

The other day Cindy in NJ sent me an email in response to my query about dextrins and maltodextrins suggesting that I look at Scott Adams web site, Celiac Support Page. Its incredible and I cannot believe that I hadnt discovered it sooner. I highly recommend this to all of you as its clearly written and extensive. For instance, his Other WWW Sites that deal with celiac disease is 14 pages long when printed out!

That list of 4 pages is Safe & Forbidden Lists. From there you can go to Whats New?, FAQ, Broad Overview of celiac disease, Celiac in the 90s, History of celiac disease, Treatment for CE, Diseases Which Resemble celiac disease and Related Disorders, Research Data on celiac disease, etc. As I said the site is
extensive. If you have any questions, comments or additions for Scott Adams, you can
write him. This man has done us all a great service.
- Sarah Barnett

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Date: Tue, 08 Apr 1997 11:40:01 -0700
Subject: Your site

I have entered your web site a number of times. You are certainly doing a great service to celiacs and DHers. I imagine people get to your site
by searching key words and then it pops up. I talk to many new people who have done research on the Internet first and then find local contacts.
Also, you may or may not know that I am the new (since Oct. 1996) president of CSA/USA. Thanks. Again congratulations on all the good work. Keep it up! Janet Rinehart in Houston.

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Date: Sun, 13 Apr 1997 20:56:49 -0700
From: Richard Tanasi
Subject: SPRUE

THANK YOU VERY MUCH ! I HAVE JUST BEEN DIAGNOSED AND YOUR LETTER ON THE HOME PAGE DESCRIBES WHAT I WENT THROUGH TO THE TEE. ON -GOING FOR YEARS.I HAVE SURFED THE NET AND BY FAR THIS IS THE BEST.IT GIVES ME PLENTY OF INFORMATION AND DIRECTION. I HOPE MY NEW DIET WILL WORK ITS TWO FOLD BOTH GLUTEN FREE AND LACTOSE INTOLERANT. THINGS COULD BE WORSE. AGAIN THANK YOU FOR TAKING THE TIME AND IF I CAN BE OF ANY HELP,LET ME KNOW. RICK

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From: Kathleen Shipley
Date: Mon, 12 May 1997 21:30:02 -0500

Thank you so much for all the time and effort (not to mention money) that you have dedicated to your web site. It is wonderful! You will never know how much it has helped many, many people. My husband found it soon after I was diagnosed. The doctor had diagnosed me quickly, but his information was pretty worthless. Your web site explained everything and gave me hope. Please add me to the automatic update e-mail list. Thank you very much! Keep up the good work!
- Kathleen Shipley

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Date: Wed, 21 May 1997 22:04:22 -0400 (EDT)
Subject: Please add me to e-mail list

We are about to start the diagnostic blood tests for our daughter . The pieces of the puzzle may be coming together and we were wonder if there is any link to heredity, as my husbands sister was considered years ago to be lactose intolerant as an infant and has suffered years from unexplained migraine headaches. There is an * after the reference to headaches as a symptom. I could not find the footnote it refers to. Could you help me find more info on it. This page may be very helpful to not only our daughter who is 2 ½ years old and only weights 23 lbs. and is only 33 inches tall, but may also help her aunt lead a fuller life, free from headaches. Thank you so much for the time youve spent in this endeavor. I wonder if you fully realize how much it really means and the number of people you may reach. Thank you again!

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Date: Fri, 23 May 1997 22:03:58 -0400
From: Duane Kling
Subject: Just another fan letter !

I am so impressed with this site i cant even tell you. all the info i have found is so easy to understand and so helpful .i have told so many people about you in the past week . keep up the great job and i look forward to your news letter that i already signed up for. thank you, thank you, thank you !!!!!!!!!!!
Laure Kling

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Date: Wed, 11 Jun 1997 01:15:36 -0400 (EDT)

Hello Scott. First, I want to thank you for all the helpful info that you provide about celiac disease. You have no idea how many you have helped with your
outstanding site. I have a nephew (age 3) that almost died before diagnosed at 18 months. His Mom (my sister) was diagnosed 6 months ago even though over-weight and asymptomatic. I have been printing and mailing them tons of educational material for about a month now. I live in Texas and they live near Windsor, Ontario, Canada. My sister belongs to the Tri-County group near Detroit (Jim Lyles group) as well as a small group in
Canada. The group in Canada does not have anyone on the internet and they have none of the latest info. My sister would like to share some of the
articles Ive sent her with the group members and is currently trying to set up an education committee. One thing we feel very strongly about is that everyone must always be told to verify info and be responsible for their own decisions. Personally, my sis is zero tolerance,
very strictly gluten-free (by USA standards).

Your info on related disorders has been enlightening, to say the least. We have several family members that need testing. Our Mom was just tested by a very good (celiac informed) Dr. and found to only have IBS. Sounds fishy, I know, but he had a gazillion tests run. She is also diabetic(Type 2) and had colon cancer 10 yrs ago. She gets that awful test every year. Anyway, we have about half of those disorders that you list in our family members and, thanks to people like you, we know now that we must investigate further. We have been helped so much by the net info that we cant help but want to share with others who really seem in need. Thank you again. We value your opinions.
- Diane Wright

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Date: Fri, 13 Jun 1997 18:02:57 +1000
From: Bruce Gary

Hi Scott, just browsing for info on celiac disease. I got to say this is a really well designed site; uncluttered, logical, and to the point.
Congratulations, it says a lot about you.
Cheers,
Bruce Gray

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Date: Sun, 22 Jun 1997 16:27:41 -0700

Because of contact with your page, I went on a gluten- and lactose-free diet about a year ago and all my symptoms have disappeared.
Additionally, many other symptoms I didnt even recognize as symptoms any more because I had had them for so long disappeared.

Thank you for helping me make my life happy and meaningful after so many years of terrible suffering while doctors simply showed me the palms of
their hands and then acted insulted when I cured everything by going on a gluten- and lactose-free diet.

You are a very special guy and I owe my health, vigor and freedom from pain to you and Ill never forget that. You can count on that. If there is ever any way you feel I could repay you for all youve done for me, you have my address.
- Joe Clemens

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From: Ruth Campagna
Subject: Thank you
Date: Sat, 19 Jul 1997 14:37:09 -0400

Scott, thank you for all the work that you have done to make so much helpful information available to us. Just when youve been beaten down by
one more doctor who has no clue, it is so nice to be able to hand them a copy of one of your articles with a smile and a suggestion that perhaps
they might find this information useful....and you dont feel so alone.

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Date: Mon, 18 Aug 1997 18:14:06 -0400 (EDT)
Subject: overwhelmed

 

Dear Scott,
I have just finished four consecutive hours on your web site and have bookmarked as much information as I thought I needed to help educate my
doctor, myself, and my family.....even our accountant will get drawn into this when it comes to tax deductions! I want to tell you that I am more than impressed with the quality and the quantity of the work which you have presented......and I dont impress easily!! It is just absolutely unreal, and I want to thank you from the bottom of my heart. You will never know how grateful to you and your efforts I am!!
Thank you for being in my life.
Sincerely,
Carole Hagstrom

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Date: Sat, 15 Nov 1997 12:09:39 -0500
Subject: Thank You

Dear Scott, I am a new celiac, (This year.) I live in a rural area and do not have access to a lot of information on gluten intolerance. There is a support group for my area, but it is 147 miles round trip on 2 lane highways. I have joined the group but will not be able to attend much. Your site is a God-send for me and I would like you to know how grateful I am for your site.
Thank You; Sue Grupczynski

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Date: Sun, 16 Nov 1997 10:49:15 -0500 (EST)
Subject: congratulations!

I read your deserved excellent reviews--may I add mine. The best overall resource, and one I visit whenever you add new items
Thanks, congrats.
Chris

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Date: Mon, 17 Nov 1997 21:38:48 -0500 (EST)
Subject: celiac disease

Please add me to your mailing list. You have no idea what you have done for my husband. If not for your page, I honestly believe he would not be alive today. He has not been able to work for the past 5 years. We hasnt had the money for him to see a Doctor. I have a friend whos son had celiac disease, she said my husbands symptoms seemed the same as her sons. By the way her son was diagnosed while on a business trip in Canada. I got on my computer and found your page, he is following the diet and buys gluten free bread and all the other gluten free products we need. We now believe that all the people in my husbands family have celiac disease. That was a year ago. I have created several recipes and altered many more. Recently, the husband of another friend, who has been very sick for years without doctors finding the cause, took the information I got from your page to her husbands doctor. He finally referred him to a gastroenterologist and was found to have celiac disease. He was 66 year old man who was down to 120 pounds at 6 feet tall. Today he is healthy. I know my husband needs to see a doctor but right now there is just no way. I am trying.

Thank you for doing what you do. We are more grateful than you will ever know.
Sincerely,
D. Penningto

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Date: Thu, 4 Dec 1997 19:44:06 -0600
From: Dr. Noakes
Subject: Re: celiac list

I know that you are not expecting a reply to your email, but I wanted to say thanks very much for connecting me to your email list, and also that I
think your web page is the best out of all the Celiac pages Ive seen. Looking forward to communicating with you,
Kate
Department of Physiology and Pharmacology

 

1998 Celiac.com Feedback

Date: Sat, 17 Jan 1998 22:36:17 -0700
From: Alan Sheffield
Subject: Research/Thanks

Id just like to express my appreciation for your effort and concern in putting up this site. I dont know how many people its helped, but the
idea alone is wonderful. Im glad to see that there are still people in this world that are concerned with others welfare. Keep up the good work.

I originally found out about celiac disease through this site. My little sisters friend was suspected of having the disease. Her family had a
history of it, and her mother had asked me to find some information on it. I hurriedly read about it, and printed some information for her (she later found out that she didnt have the disease, and her reactions were unrelated).

Sometime later, I returned and read some more. My fanatical biology teacher has assigned us to write an extended essay on a biological function/problem/something. Ive looked around on your site, and several others, and am confident that I will be able to find the detailed
information I need (the class is taught at, no joke, a college level--a little heavy for a Freshman, but it will save me time later).

Thanks again, and good luck!
-Alan Sheffield

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Date: Tue, 03 Feb 1998 17:33:50 -0600
From: RM Molloy
Subject: Hello

Just a note to compliment you on your excellent site on Celiac Disease; Unless you object, we would like to allow our patients to link to your
site through our own site under a section on our webpage entitled Patient Support. We are a group of 6 Gastroenterologists in Milwaukee, Wisconsin (Milwaukee GI Specialists, S.C.). I will email you again when our site is up and running. Congratulations on your excellent website!
R. Michael Molloy, MD

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Date: Fri, 13 Feb 1998 13:43:39 +0600 (PAV)

 

We are doctors immunologists from Pavlodar Kazakhstan. We are involved in the problem of different diseases due to intestinal and skin disorders. We suspect that some of our patients have celiac disease. The matter is that we have no available serological tests for celiac disease. We would be very grateful to you if you provide us with email addresses of the institutions distributing laboratory kits for celiac disease. We like your web site very much. We think it is interesting and useful not only for celiac disease patients but for medical professionals either.
Thank you very much.
Doctors H. Junusov and M. Valivach

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From: Judy Parelman
Subject: Thanks
Date: Mon, 23 Feb 1998 22:08:51 -0600

Thanks for all of your hard and diligent that you do regarding this web site. I have found it to be an enormous help. In fact, I cant imagine how much more difficult it would have been to function with out all of the info I have learned from you.
Thanks!

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Date: Fri, 17 Apr 1998 00:02:02 +1200
Subject: You beautiful people

Wonderful, Marvelous, I believe that you should all be awarded first prizes. Keep up the good work great. Im not a coeliac but my brother is.
He was rescued from death by a coincidence. After being tested for coeliacs in 1988, the test came back negative. He went on to suffer very severe symptoms, with no apparent change needed to his diet. His bones started to break, he broke his back and was admitted for psychiatric treatment because everyone thought hed become a obsessively depressed person. Nobody tested for coeliacs again until 1991. At the end of the day, the first test from 1988 proved to have been misread by the laboratory or doctor or someone and the results then, if they had been interpreted correctly, would have saved my brother from severe health disorder, financial ruin and a marriage breakup. After all, who wants to live with a dying depressed bankrupt.!!!!

After the second test in 1991, it was discovered that my brother had coeliacs and his gluten free diet has brought him back from the dead. Hes alive again and trying to put his life together again. Its not easy. As his brother (and accountant) Ive been able to keep him afloat and out of the clutches of the IRS etc. But when things went bad, I wasnt there (I lived on the other side of the world at the time). In short, weve been able to pick up most of the pieces together since 1992 although I must admit, its still hard going at times.

I am absolutely shocked that coeliacs is not more widely known. Thats certainly not your fault as you people are doing excellent work by
keeping the celiac.com together. Keep it up. You have our support. Where do we send a donation !!!!!

Ill keep browsing through your site and looking for more info. Once again... great stuff. excellent.
Keep it up. Thanks a million bye now regards,
-Peter van Bussel

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Subject: Great Job
Date: Mon, 1 Jun 98 07:31:54 -0000
From: Connie Pearce

Scott, youre doing a great job. Your Celiac Web Site is extremely helpful to all of us. I just wish you had that magic cure you could pull out of the hat to help us all. But who knows, maybe when the medical professionals become better listeners and are better educated, there
might just be a cure. Thanks again,
Keep a Positive Thought,
Connie

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Date: Sat, 13 Jun 1998 12:59:21 EDT

Two years ago I was really sick, was going down the usual diagnostic pathway with a colonoscopy etc., having all the tests come back negative but still feeling very ill. I started with a search for IBS info and arrived at your site via that pathway. As soon as I started reading it, I realized that all
my symptoms exactly matched those described. With NO help from the doctors, but a lot of help from your site, I correctly diagnosed myself with celiac disease. I couldnt agree with what you said above more. The LISTSERV wouldnt have helped me then because I didnt know I had celiac disease. Keep up the good work Scott, you are doing more good probably than you know. Thanks so much for the help. You may have saved me months, maybe years of misery!
Best Regards,
Susan Wagener

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Date: Tue, 9 Jun 1998 17:18:54 EDT

I agree with you and two years ago when I was put a gluten free diet by my skin doctor for DH, your web site was the first one that my husband found for me and it was so exciting to print up all the interesting information you provided on my condition. I was so excited! I was not interested in learning how to access information on my own until last September when I was diagnosed with Celiac by intestinal biopsy and felt I needed to meet people like me. That is when I learned how to join the Listserve and have since then looked everything up by myself.

I still am thankful to you and your website and still enjoy the updates you send to me. I look up every update and many times will print them up for my files.
Thanks, Barb from NE Ohio

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Date: Tue, 9 Jun 1998 00:04:34 EDT

I dont have count of the number of times I have felt better knowing that there were sites such as yours which could help me in gathering more
information....and comfort...during the past year and a half. You are one of my heroes!
Carole Hagstrom

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From: Mary A. Halas, Ph.D.

This is an overdue thank you for your web site. I have used it so many times in the last three years and it is well-written and invaluable.
Mary Halas

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Date: Mon, 13 Jul 1998 14:16:02 -0600
From: Shani Byrd
Subject: Thanks

Im a registered dietitian who works at the Air Force Academy. Your site has been extremely helpful in instructing my clients on their
disorder and in helping them know how to treat it via diet. I think the information you provide is sound, accurate, and extremely useful and
practical I can only hope that dietitians all over the country find out about your site and use your valuable information. Thanks again!
Lt Shani Byrd, RD
USAFA Health and Wellness Center

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Date: Fri, 31 Jul 1998 08:35:05 EDT

God bless you for the time energy and expertise you put into your web site. It is the best on the Internet and I know you are helping thousands of people all over the world.
-Jane Trevett

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Date: Sat, 15 Aug 1998 05:03:51 -0700

It has been a while since visiting your celiac site... it is still the best on the net, thanks!
Thank you,
-Brett

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Date: Wed, 26 Aug 1998 12:23:06 EDT
Subject: Thank you for a new Life Scott

In ones life, there are few times when a person comes along who profoundly changes them. I ran across your web site around 5/26/97 and realized that I was a celiac. I was diagnosed as a baby, taken off grains, then put back on. I lifetime of intestinal problems (and no medical advice) has been hell. I have been fighting what i can only call grain addiction, but i am making headway.

I can never pay you back for the door you have opened for me, and i shall never forget you. Inspired by you, I have changed quite a few lives already and am working on more. My life long goal is to be in politics on the federal level. You can be sure I will be there, fighting the ignorance of this disease, which i no longer believe to be a disease, but I believe it is a fundamental diet change that all humans should consider.
Thank you O Great One...
Robert James Hoffman

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From: Cynthia Rudert, M.D., F.A.C.P.
Subject: Celiac Disease
Date: Wed, 16 Sep 1998 13:54:40 -0400

Congratulations on your wonderful Web site for Celiac Disease. It has been an incredible resource for my patients. I am a board certified gastroenterologist specializing in Celiac Disease in Atlanta. Presently I am following over 100 patients with gluten sensitive enteropathy. I am
also the president of the Gluten Sensitive Support Group of Atlanta and I lecture nationally. If I can help you or anyone with questions regarding
Celiac Disease, please let me know.
Fondly,
Cynthia S. Rudert, M.D., F.A.C.P.
President Gluten Sensitive Support Group of Atlanta
President and Founder of the Atlanta Womens Medical Alliance

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From: Zeca Martins
Subject: From Zeca Martins- Brazil
Date: Fri, 2 Oct 1998 01:41:09 -0300

I hope you remember me. A few days ago, I wrote about my son, Miguel. The information you sent me were absolutely GREAT. The e-mail os ACELBRA belongs to Almir, a guy that lives A FEW BLOCKS AWAY FROM ME. And thats not everything: he told me about the only place here in São Paulo were I could find gluten-free pasta, and his wife started a small bakery of gluten-free breads.

So, Miguel started to eat his own pasta and bread for the first time after the diagnosis, without pain or diarrhea. That was a great experience to see him eating pasta and thousands of bread slices. He didnt even look around. Well, we all felt something strange in our throats, you know... we almost started crying.

Now, I and Almir are trying to start something greater, helping ACELBRA to improve its efforts. I mean, we are planning a series of activities involving press releases, advertising (we are both publicists), the creation of a complete internet site (something as you have been doing, but in Portuguese) and so forth.

Thats all by now. And THANK YOU VERY MUCH again. God bless you and all those people who help each other.
Zeca Martins

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Date: Wed, 25 Nov 1998 20:47:11 EST
Subject: The Celiac page

Just a note to say that your page - the way it is structured, the simplicity of the excellent graphics and, above all, the wealth of useful information
that it contains has to make this the finest site I have ever encountered. My sincere congratulations.

I found it when I searched with just two words - gluten and neuropathy. I have been diagnosed with CIDP -Chronic Inflammatory Demyelinating Polyneurpathy - and after months of the Neurologists knocking down my immune system with all the guns they can find they still have not stopped the cells producing whatever antibody it is that is attacking the myelin sheath.

I have the idea that it is related to what I have ingested most of my life but that doesnt appear to wash with the experts. Hence my interest in your
site. Again - a fantastic job - it was certainly a help to me and I am going to go ahead with the serological tests. Doesnt seem like much to loose.
Best regards,
Ian Bruce

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Date: Sat, 05 Dec 1998 05:56:06 -0800
From: Richard E. Jeske
Subject: Thank You

Thank you for the excellent information on your site. I used the lists of safe and forbidden lists to get gluten free and my symptoms of
fatigue and exercise intolerance were gone in 24 hours. Over the last four years I have slowly lost ability to function to the point where I could no longer work and am on disability. During that time several doctors could not diagnose the problem and had a diagnosis of chronic fatigue syndrome. When a friend mentioned Celiac may be the problem, the symptoms on one of your pages matched mine.

I have had the best 4 days in recent years and plan to be back to work in 2 weeks. Staying gluten free is a small price to pay to having my
life back. Thanks Again,
Dick Jeske

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Date: Sat, 12 Dec 1998 20:56:17 EST
Subject: THANKS

Scott - many people do not realize you are a real person. Your service to celiacs is fantastic and during this holiday season, we all want thank you for the marvelous job you are doing.

Lets hope more doctors read your page and test more people. Many people are devoting all their spare time to GETTING MORE CELIACS DIAGNOSED and we are thankful for the help you are giving in this effort.

Thanks for a marvelous service. Keep with it!!
Jane Trevett

 

1999 Celiac.com Feedback

From: Macniven, Jennifer
Subject: Thank You!!

Thank you so much for taking the time and putting so much effort into the Celiac Support Page. I am finding it very informative and also reassuring.

 

Since changing diet, I have significantly improved. I have gained around 14lbs in weight, I am no longer so pale, my bowel functions are close to
normal and the depression has lifted. I do, however, still suffer from a mental confusion or sluggishness. Given that I was an above average scholar,
gaining a degree in French Language & Commercial French, I find it very frustrating now when I struggle for words. I also notice that my attention
span is not good. Despite this, I still hold down a very successful career and speak at large conferences both here in the UK and also in the US.

I thank you once again for your excellent web page. At one time, during my struggle to find out what was wrong with me, I thought I was going mad. I only wish I had been able to access the Web back then and visit your page.
My very best regards,
Jennifer Macniven

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Date: Mon, 10 May 1999 17:37:33 EDT

thank you for your responses, as a newly diagnosed coeliac i found a lot of conflicting advice. You have managed to make some things a lot clearer.
thank you, kind regards,
Sandra

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From: Pat Shechter
Date: Wed, 2 Jun 1999 12:41:10 -0400

First, I want to give a huge (and long overdue) THANK YOU for the Web Site!! It has been so very helpful to me as I learn to live gluten-free and as my body recovers from the years of damage gluten did to it prior to my diagnosis. Even before I was diagnosed (in late April 1998), my
gastroenterologist, strongly suspecting Celiac Disease, suggested that I begin to acquaint myself with the disease and the changes I would likely
need to make by looking at the resources available on the Web. Your site was one of the first I found, and I have returned to it often in the past
13-plus months. So many, many thanks.
Best regards,
Patricia Shechter

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From: L and J Morden
Date: Sat, 17 Jul 1999 15:02:14 -0400

Please forgive the familiarity but I feel I know you so well. Your web page is a very big part of our lives. Our oldest daughter, Emma was diagnosed as Celiac when she was only 8 mos. old. Thanks to the web page we have gotten many creative answers to some of lives many
challenges; including birthdays, sleepovers and the like. Thank You to you et al.
Lloyd Morden

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Date: Wed, 22 Sep 1999 15:29:24 EDT
Subject: Re: Utah Research Project

I want to thank you for your very informative web site. I have had 3 sisters diagnosed with Sprue since July. (Two of them were biopsy proven and the other was the overall clinical picture along with positive blood tests.) In your Miscellaneous Information Page, you had included information about several research projects that were recruiting families with two or more biopsy proven cases. With the second biopsy proven case coming back this week, we finally qualified. Now everyone in the family will be able to be tested. We have one sister who has been denied testing by the insurance company, and several other family members who do not have any insurance at all to help cover the costs.

I spoke with Jeff Black today, and our family is now being included in the project. Jeff was very interested in the fact that there are 3 out of 6 siblings diagnosed with this, and c=several other suspected cases. Again, thanks...without your website, some of us would never get tested
at all.
Blessings, Judy Harp

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Date: Sat, 9 Oct 1999 16:22:07 EDT
Subject: Harvard Family Health Guide

I edited and contributed to the Celiac information in the newly published Harvard Medical School Family Health Guide. The Editor in Chief, Tony
Komaroff, MD, asked me to recommend the single best Celiac site for their web pages and I recommended your site without reservation, since you have done such a marvelous job coordinating all the celiac information. Your site is highlighted on the FHG web site.
Thanks for all you have done,
Jane Spector Davis

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From: Zeca Martins
Subject: from Zeca Martins - Sao Paulo - Brazil
Date: Tue, 26 Oct 1999 12:05:32 -0200

Congratulations for the new look of the Celiac site! I do not remember if I had already told you, but my project to change the Brazilian law about foods (I want all the food packages to show also the inscription It does not contain gluten, as well as the government provides all diagnostic support) has been accepted by the Brazilian Federal Congress and it is under technical analysis. Your internet site gave all the important information I needed to develop the project. So, thank you very much!!!
Best regards,
Zeca Martins

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Date: Sat, 6 Nov 1999 17:32:04 -0800

You are one of the few sensible voices in the celiac community and I have always found everything you posted anywhere to be rational and unemotional, which is wonderful. I always get the feeling your efforts for the celiac community are pure and that you have no political agenda. That is EXTREMELY rare as Im sure you already know. You are a very special guy!
-Joe Clemens

 

2000 Celiac.com Feedback

From: Carol C.
Subject: Case Histories
Date: Mon, 3 Jan 2000 14:12:55 -0500

I am sending you a copy of a letter I am sending to my brothers doctor. My brothers story is sad as you will read from the letter. In fact, unknown to us, my entire family has suffered from celiac disease over many generations. Information from your web site has been copied and handed out, faxed, or emailed to many people, including doctors. . It has been our main source of insight and information.

It is always a good feeling to know that your life has touched many and helped many, and your life has indeed done that. Thank you from my family. As a family we have only discovered celiac disease in our midst in the last few months. Here is the letter. Bruce probably would have gone on to become progressively more ill were it not for the information on related disorders that you provide. We await his biopsy results with hope for his renewed health.

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Date: Mon, 3 Jan 2000 13:56:57 -0600
Subject: Website

I would just like to thank you and anyone else that is responsible for providing such an excellent website. I am a new sprue and also a RN.
I have been quite frustrated in the huge amount of conflicting and anecdotal information available to me. Your site seems to be balanced
and has more primary source material.

Thanks,
Sharon Ward

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Date: Sat, 11 Mar 2000 23:20:32 -0500
Subject: Please Add Me

The hour is late, however I have to tell you just how much your site helped me tonight. My 8 year old son was just diagnosed with Celiac Disease - never having heard of it, you can imagine what all was running through my head as they explained to me the whys and wherefores!!! We return to the docs on Tuesday, your site helped me link to some very valuable information, giving me of course, a very long list of questions.... and the knowledge, that I should be tested, as I was told I had any number of things, the latter being IBS, I am also have thyroid disease, Hypothyroid, which too has been difficult to manage. I am just overwhelmed with the information so carefully laid out here. Im sure there have been those that have said Thank You - let me be counted among them - truly, you gave me a place to start from, where I had nothing... *smiles* thank you!!!! thank you!!!! thank you!!!!

Please add me to your mailing list!
Christine Schettig

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Date: Mon, 15 May 2000 11:03:03 -0400

Dear Sir, Ive just received my first Celiac Support Page and want to tell you how very much it means to receive such current information.
Ill not continue to bother you with e-mails but must thank you very sincerely for what you are doing. Sincerely, Joyce Dozois

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Date: Mon, 9 Oct 2000 15:07:27 EDT
Subject: celiac websites

Bless you or whoever put out the safe & forbidden food list, recipes, info, products etc...thank you, thank you, THANK YOU!!!! I have been omitting foods for 4 years, some which I dont have to omit. A whole new world just opened up for me between buying a computer and finding you guys. All too often people complain, so heres a compliment to brighten your day!! thanks again!

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From: Scott Wilterdink
Subject: thanks!
Date: Sun, 5 Nov 2000 04:13:06 -0600

My name is also scott and Im writing to tell you how wonderful your web site is and will be for my friend Linda. She was recently diagnosed
with celiac sprue disease, and like you, it took many doctors and many years of pain before someone came about this diagnosis. When i talked with her tonight, she was feeling really depressed because she was worrying what shed be able to eat, how she could find gluten-free products, and how she could stop the pain from coming back. Then, we found your wonderful web page! Not only do you explain more about the disease and give first hand experience to dealing with the disease, but u have gone out of your way to list countless numbers of web sites that will be beneficial to Linda, and other celiac sufferers.

I just thought Id let you know that your hard work and effort has given Linda a much needed boost and change in attitude. They always say if i can just reach one person and help them, all the work is worth it. well my friend, your work was well worth it because you have helped put a smile back on Lindas face and hopefully it stays there for many years to come!

Thanks again!
Scott Wilterdink

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Date: Mon, 6 Nov 2000 21:31:24 -0600

I am the Linda that Scott Wilterdink wrote to you about a couple of days of ago. I was in really getting in a deep depression and wondering how I was going to continue my own existence! I mean in order to eat I had to find something I could eat. However, every thing I was finding was just telling what the disease was. NOT what I do about being able to find the proper foods to heal my pain and suffering. You have been a God send to me as well as my friend Scott. I cant thank you enough. You have gone to an enormous amount of work to build your web site and I for one, cant tell you what it has meant to me. I will go through it like a fine tooth comb.. I dont want to miss a word or meaning. I want to also go just as thoroughly through the other web sites. Again I thank you so much for some hope that I was being to think was hopeless. I was worried about 2 sons and one son has 3 children of his own. I couldnt imagine passing on a gene that could make my grandbabies or my own babies suffer as I have without having a way to help them. And thanks to you... I have that answer now. I could go on forever on my feelings of your help and I wouldnt come close to how much it means to me. You have done a great job and great justice to anyone with celiac. I will surely send anyone in our position straight to you. I wish there was something I could do to repay you the life you have given back to me. I had given up. I was depressed and now I see a light at the end of the tunnel and with a husband that loves the challenge to help me and so VERY supportive.. I am one of the luckiest women in the world. and you have been a big part of me feeling so good about me again for the first time in many years!! I know that Scott W. has thanked you but I wanted to do that personally myself. What you are doing is so wonderful. So God bless you....you have to be one of his guardian angels.. I think maybe you have this disease because He knew how useful you would be to all the rest of us that just sit around feeling sorry for ourselves instead of doing what you have done. But no more of that. I intend to learn everything about this that is I possibly can and look at life as a positive thing rather than one that is just pain and suffering every morning. Thanks to YOU. That isnt true anymore.. I wake up feeling little pain to none on some days. And that my, guardian angel... is due to your efforts and hard work! I thank God every minute for friends like you and Scott W. Without people like you in the world...well it just wouldnt be the wonderful place that people like you two make it!!!! Thank you so much again..
From a fellow celiac from depression to loving life without pain again!!!
Linda Koenig

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Date: 5 Dec 2000 19:06:58 -0800

Hello, My name is Anna and I take care of an geriatric patient and have had my first encounter with a gluten intolerant person. I have visited this site many times and have received countless amount of help. w/o this site, Im sure this patient would be dead or close to it. At the time I started research on gluten intolerance and what it was exactly...she had already lost 35 pounds and was steadily losing. I emailed this site and received via snail mail various articles, cook books, pamphlets. Need I say...they have become our bibles and w/o them, we would be totally lost. I have emailed this site many times and my questions have always been answered quickly. I was truly surprised of the amount of ppl who arent even aware of this disease/condition....even her own doctor and our dietitian was not even aware of things she could or couldnt have. But, needless to say, with the help of this site...I have enlightened them!! I would really appreciate being put on the email list of updates and various a
Sincerely,
Anna Gibson

 

2001 Celiac.com Feedback

Date: Tue, 2 Jan 2001 23:30:56 -0700

Your sight is the most informative and easy to navigate that I have encountered. In less than one hour I have found links, advice and basic
helps to questions that I have been unable to answer. My 10 year old son has hypogammaglobulin anemia, he was diagnosed with celiac sprue 3 years earlier. Since that time, we have felt he did not have CS...even though our son is doing well, he is not growing and often does not feel well. I will pursue CS again to make sure it was truly a mistake. Our 6 year old son will be going in for tests on January 5, 2001. I had not considered food to be the source of his asthma, respiratory or skin problems, but your sight has made me rethink what I am going to discuss with the Doctor. I am also in the process of testing. I had no idea Lupus, Sclerederma etc. were common. I have both. I have been trying to do a gluten free diet on my own and I actually feel better than I have for a long time.

I feel our families plate is full without adding to it, but your sight is the ray of sunshine I need to get us through and realize it isnt so bad. Thank you so very much.
Connie Worthen

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Subject: Thank you
Date: Tue, 16 Jan 2001 14:41:52 -0600

Just wanted to say thank you for your work and information re. gluten. It is great. Thank you.

R.J.Meyer, MD

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Date: Fri, 2 Mar 2001 10:20:24 -0500

First let me say that you are a life saver!!! I mean that literally -- YOU SAVE LIVES! The knowledge and information that Celiac.com has provided is amazing and very sincerely appreciated. Through the use of Celiac.com, I was able to determine that my husbands undiagnosable skin condition was DH and that he has celiac disease. I am sure youve heard the stories before, but in my husbands situation, the doctors we visited (Primary care physician, Dermatologist, G/I specialist) had no clue. But something in MY gut (no pun intended) knew that it was DH and celiac disease. After having to sell the GI specialist on celiac disease as a possibility, he agreed that my husband should have his blood antibodies checked to rule out celiac disease (and to shut me up). Sure enough, the test came back clearly positive. And we (me too) are now on our new adventure of a gluten-free diet for life.

Thank you from the bottom of my heart!
Michelle A. Straub

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Date: Tue, 1 May 2001 08:28:49 -0700 (PDT)
From: carol poe
Subject: just a word of thanks

Hello my name is Carol Poe, my husband has celiac, and I would just like to tell how much I really appreciate your site. We only just recently found out about celiac and your website has been a great help to us. I read your bio and it sounded just like my husband. We had wondered if we would ever find out what was wrong with him, but thank God we did. He felt completely alone and now he sees he is not. This has been going on for so long his own family (on mothers side) has called him lazy and treated him very cruelly. Now we finally know whats going on and he is a completely changed man. His dads side of the family is truly grateful also for we feel there are several people who have it on his dads side, even a brother who had diabetes and complained all the time about his stomach until he died just over two years ago. If he had celiac then I can only imagine what could have eventually happened to my husband, I owe you more than I could ever afford.

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Date: Thu, 3 May 2001 00:27:38 EDT

Scott, I appreciated your level-headed response. It is extremely disconcerting to read some of these allegations, particularly since I have a
21 year old celiac daughter who is just finishing a third year abroad program in England and who, after much thought, made the decision to follow the guidelines put forth in The (English)Coeliac Societys booklet of safe foods, which of course includes Codex wheat starch. She is completely asymptomatic, on the outside anyway, and thus does not know if/when she has ingested gluten, but is extremely diligent and was advised before going by someone whose daughter is extremely symptomatic that the daughter had no problem whatsoever when doing HER year abroad. Our daughter (like the other persons daughter) has found living and eating there much easier than here in the U.S. Ours is also a Type 1 Diabetic. Anyway, I have worried enough about her being there; to have the additional worry about the wheat starch has been unsettling. Thanks. Bev, outside Chicago.

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Date: Fri, 04 May 2001 21:27:53 -0700
From: Fred Tanner
Subject: re your website. celiac disease.

I am the 77yr old father of an adult daughter who has just been diagnosed with Celiac disease... my curiosity about her condition led me
immediately to your web site.... I just wish to compliment you on this effort... had no idea that so much information could be made available
by a single individual, and you are doing a very great thing for those of us to whom this condition is not only unknown but totally
baffling. Thanks. Fred G. Tanner.

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Date: Tue, 8 May 2001 20:22:36 EDT

Id like to send my thanks for your web site and the great service it provides. Keep up the good work there are a lot of us out here who depend on
all that you do.
Mike Dudley

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Subject: feed back
Date: Mon, 14 May 2001 21:55:19 +0100

Thank you for a very informative site, Ive found more answers in a few minutes than I have in one year from my sons consultant, thank you.
Justeen Higgins.

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From: LORRAINE NEDELL
Subject: reiders syndrome
Date: Thu, 17 May 2001 02:28:25 -0400

Your website has saved my friends life!! The doctors didnt have a clue why her weight had dropped to 67 lbs. I found your website, a blood test was done and it looks like she is on her way to recovery. After only one week on the diet her pain level has dropped significantly. Thank you.

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Date: Fri, 18 May 2001 12:45:01 +0000
From: Sarah Rudisill
Subject: THANK YOU!

Thank you so much for this site. You have saved my life! Literally! The doctors only tell you so much. There are other sites out there that are giving false information that if I relied on those sites I would be constantly sick. I visit this site every couple of days & have ordered from the shopping
mall! I thank you for your scientific postings. I thank you for your safe & forbidden lists. I thank you for letting me know that there are others
out there. I thank you for enabling me to be able to handle this. Ever since I found out I may have celiac sprue - all the test results are not back yet - I have researched & used this site as a guide. I feel like a while new person. So THANK YOU!
I wish there was something I could do for you.
All my gratitude,
Sarah

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From: Uerz, Lori
Date: Tue, 29 May 2001 09:01:51 -0400

Dear Scott: Just wanted to thank you from the bottom of my heart for producing this web page every month. When my son was first diagnosed I
spent weeks calling and writing manufacturers about the gluten content in their products. This website is like a life-line for me and I just can not
thank you enough for your time and effort on behalf of people with celiacs disease. My son will be turning 6 in a couple of weeks and has been very successful on the gluten-free diet for a little over a year now and while he has other special needs (Down Syndrome and irritable bowel syndrome), at least I can know that anything I need to know about celiacs I can find out here at your website.
May God bless you & THANK YOU!!!!!!!
Sincerely,
Lori Tatsapaugh Uerz

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Subject: web page
Date: Wed, 30 May 2001 09:10:35 +1000

I just want to thank you so much for your web page. I have just had to go gluten and dairy free after a long illness and was struggling to find information and someone to answer my most basic questions. Your web site has answered all my questions along with valuable information that I would not have known.

Thanks again
Kate Dani

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From: KellyMcdon@aol.com
Date: Wed, 1 Aug 2001 21:04:31 EDT
Subject: celiac in children

My son is 12 years old. He has had a bowel problem all of his life. The doctors just took a test and found out what he has. He is an ADD child also. I am so dissatisfied with how we were treated by so many pediatricians. They told me that my child was lazy and that he should be potty trained by now.

After so many missed diagnoses it is good to know that my child is indeed not lazy and has celiac disease. He has been through the ringer, being
treated for diarrhea, constipation. He has had several enemas and rectal exams that I have to lie when it is time to go to the doctor.

Thank you for this informative website. I look forward to receiving your newsletter for the first time.

 

2002 Celiac.com Feedback

Date: Mon, 21 Jan 2002 12:04:04 EDT
Subject: Thank You!

Thank you for your excellent website! One of my wonderful California cousins, Steve, found your website back in 1995 when I was newly diagnosed with celiac disease so thats how I learned about your www.Celiac.com! I just got hooked up on e-mail as of last Wednesday! Could a person get any slower than this!!! Its a MailStation thing without a PC. Thanks for all that youve done and continue to do for us fellow celiacs, Scott!! Ive been spreading the news about your website since 1995 here in the Fargo (ND)-Moorhead (MN) communities!
Sincerely,
Lynda Nelson

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A friend of mine has been suffering for about three years. Her story is almost identical to yours. Yesterday her doctor asked her how much bread she was eating, A lot, she likes sandwiches. The same doctor she has been going to for years in addition to the specialists he has referred her to. I think he has just discovered Celiac Disease. He never asked about bread before. In any case I got on the Web, started searching and found your page. I feel so confident that we have found the problem and that she will finally get some relief. If he doesnt run the proper tests we will find someone who will. Thanks for your Web Site, now we have some direction.
Have a good day.
Norm Brunette

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I hope all is well with you. I hope you are still running the site, I havent been here much over the last year. I have sent many people to the site though. Scott, I am running for County Commissioner in my district down here in South Florida. In my political life I will try to spread the information about this disease as best I can. My first step is to put it in my bio part of my campaign page. It is a start. I referenced your site as the leading authority on the web, and I hope that is okay. You changed my life, and where I am now is because of your efforts and the whole internet thing.

Thank you, and I hope this news item is of interest to you.
Bob Hoffman

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Subject: Request for Information
Date: Thu, 20 Jun 2002 8:3:4 -0400

You have a fabulous web site with a wealth of information. Thank you so much.

Louise Parish

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Hello My name is Trisha Lyons. I am a registered dietitian and have celiac disease. Your site was a lifesaver when I first was diagnosed! I have been referring people to it ever since. Thank you!

Thank you very much!

Sincerely,
Trisha Lyons, R.D., L.D.

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Dear Scott,
Thank you for your wonderful site. It saved my life and the lives of my 4 children. Could you please add asthma to the list of diseases caused by celiac disease?

I cannot thank you enough!

All the best,
Susan Carmack

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Thank you for your site.

I found out I was celiac because of your site, especially through Ronald Hoggans articles that I read four years ago.

It ended years (found out at 40) of suffering.

Thank you very much, you changed my life, actually you gave me a life.

Johanne Johnson

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Hi- I was hoping to relay a message to Scott here......
My 12 year old son was recently diagnosed with Celiac Disease. Hes had abdominal pain since he was 2 yrs old, (when I quit nursing him) Hes been worked up, had an appendectomy, lactose intolerance tests, his doctor was going in the direction of Chrons disease and Kyle was going to be scheduled for a lower GI scoping. Hes been surviving the acute stomach aches with Donnatal and Tagamet..
I am so thankful to finally have changed doctors, Kyle had a blood test and now we have answers and ways to make his stomach pain manageable, and I am grateful for this web site. Thank you.
Sharon Barnes, Kyles mom

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I too, have to tell you how really great your newsletter is. Its
obvious you put a great deal of time and energy and love into the
preparation of it. The most important thing my Doctor told me to do when
I was first diagnosed with Celiac disease, next to taking all gluten out
of my diet, was to learn, and learn and learn as much as I possibly could
about the disease. Your newsletter is so full of useful information, I
cant wait for the next issue to come out.

Thank you for a job, very well done.
Annette Leveque

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Scott, I want to say thank you for your newsletter. It has helped me so much. Im not sure I had Celiac Disease but the symptoms you described for yourself really fit me, from the pain in the right side to the off and on diarrhea. I did not have the weight loss associated with the other symptoms, but I had something and the research I did has enabled me to not have it any more. When I got rid of gluten I got rid of more than the digestive problem I was having.

For instance, I WAS diabetic for 4-5 years, and when I went on the gluten free diet, my blood glucose counts went down, down, down - now Im normal ! I WAS about 30# overweight, but began to lose weight and the 10# I lost has made a difference.

An interesting observation about the doctors and diabetes - neither of mine ever sought to find out what caused it. They simply treated the symptoms ! "Your mother had it?, your father had it? Now you have it."

I notice that our local grocery has put in a health food section and they carry a lot of gluten-free items. To me that means there are a lot of people who are discovering this health connection.

30-40 years ago I read (I think it was Adele Davisbook) that when the big bakeries started up here in the States, we all started using highly refined wheat products and that has led to a lot of health problems.

I appreciate all the work you have done to help others, and I just wanted to say, Hey, Im one of them.

Thank you again.

Rosemary Perkins

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Dear Celiac.com,

Thank you so much for investing so much time into your website. Having
recently been diagnosed with celiac disease, I found the information on
your website to be far more comprehensive and informative than any other
source that I have. The nutritionist I have been assigned to does not even
have information that is as current as yours.

Sincerely,
Melinda Mulcahy

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Scott,

Thank you so much for your reply! I wasnt sure Id get a detailed reply, never mind a personal note. I greatly appreciate it! Thank you for the information regarding the health and life insurances, it is a blessing in disguise, one I hadnt thought of. Looking at it that way, even if I dont get the disability $$ I will probably still have saved.

Thank you for your website. It is solely because of the information and ability to network on your website I was able to get on track so quickly and get back to health and back to life! Thank you......

Jennifer Puckett

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Good Morning Scott,
I was especially interested in the Malignancy in Celiac Disease article, as my mother was never diagnosed with Celica but died from what was then termed a rare form of cancer. Her mother and sister also died with the rare form of cancer. We are now understanding that the probability that she had Celiac and didnt know it, lead to her death.

The doctors at M. D. Anderson, Houston, Tx told us her primary cancer was in her stomach not in her ovaries as was suspected. The doctors wanted my siblings and myself tested then, however we felt we wanted to bring our mother home as she was given 2 months to live. After caring for her until her death I put off having myself tested for any digestive problems. Later, becoming very sick myself I was checked time after time by local specialist who kept telling me I was just experiencing depression systems. Finally a young doctor had blood drawn, sent to Mayos confirming what he thought I might have. CELIAC!! biopsies confirmed that I had Celiac. I have been gluten free since and feel better in most ways.

My daughter was diagnosed with stage 2 of Celiac this past spring. She suffers from severe headaches, has juvenile diabetes, and Thyroid disease. The doctor tells her she has the complete triangle now.

Again, thank you for your very informative newsletters. Keep up the good work.
Virginia Comaward

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Scott,

I want to Thank you for the wonderful and informative website. Its been a tremendous help to us after our 3 (now 4) year old daughter was diagnosed. We went through testing as you did, however, our daughter experienced seizures. Also, due to her immune system being so weak, she had pneumonia 2 times in 5 months. Then, she was diagnosed with asthma. I understand what its like to be frustrated with physicians who dont know what theyre trying to treat. We had a wonderful gastroenterologist that has helped out beyond expectations.

Thank you again for taking the time to have created this site.

Cathey Stone

 

2003 Celiac.com Feedback

Date: Mon, 06 Jan 2003 07:19:02 0000
Subject: Newsletter

Just wanted you to know that Ive just finished reading all three issues of the Scott Free
newsletter. It is excellent! It is very professional; interesting articles. The
newsletter seems to have started at a good time--I was just diagnosed with Celiac Disease
in October 2002, and have been emersing myself in information about it. Thank you and
keep up the good work!!

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Subject: thanks
Date: Thu, 23 Jan 2003 12:35:28 -0600

Thanks for the great website. I refer to it and recommend it all the time. Also I love your Scott Free newsletter. I have formed a local support group and used reference material from celiac.com all the time. You have helped many people.

Keep up the good work!
Lila Brendel

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Date: Fri, 7 Feb 2003 11:35:52 -0800 (PST)
Subject: Thank you

This is just a simple comment saying thank you for this website. I just turned 19 and have had stomach problems for 11 years now. Ive been to doctors before telling me that they thought it was nothing and so forth, and then I came upon this website and did a little "testing" as far as what I ate and what the results were. Sure enough I self-diagnosed myself and went on a Gluten-Free Diet after making another doctors appointment. It took nearly 2 months to finally get to the Doctor, but by then I had already determined I knew what was wrong with my body and had told him my situation and what I believed to be the problem. I had blood work done and they determined that I had celiac disease. I just want to thank you because you have no idea how much this boosts my emotions and my
self-esteem, b/c i will finally be able to gain weight, and most importantly be able to live a Healthy life. Thank you so much

-Patrick Dangolhick

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Date: Sat, 8 Mar 2003 15:35:00 EST
Subject: Re: 2002 Summer Newsletter

Scott,

Your website was my salvation when I was recently diagnosed with Celiac Disease. The doctor just told me to go on a gluten free diet and that was all the info I got. I ordered Shelly Longs book and the info I got from your site has given me the info I needed to start this whole new life style. Thank you for your website and the hard work (I know) you do to maintain and update it!

A Fan,
Pat Minnigh

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Subject: Scott-Free Newsletter
Date: Mon, 17 Mar 2003 09:10:50 -0500

I dont usually send testimonials, but your newsletter is an excellent
source of up-to-date information about Celiac Disease. I highly recommend
it to anyone with celiac disease.

Regards,
Mack Cawthon

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Subject: Re: newsletter
Date: Tue, 15 Apr 2003 15:48:48 -0600

Thanks Scott, I want to tell you how much I appreciate your site. I am a mental health therapist and am accustomed to reading the original articles in journals. In several cases, I read the original article and your review later. I found your reviews to be on track in conveying the essential information in a vocabulary that is accessible to the layperson. Your site is my first stop when I need to do some research on a celiac topic. The Scott-Free newsletter appears to be maintaining that high standard already. Thank you for making being the mom of a kid with celiac a little less stressful.
Kathleen Apodaca

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Date: Thu, 15 May 2003 21:29:09 EDT
Subject: I just want to say thank you!

I am 22 years old and I have been suffering with this disease for a number of years. My stomach would wake me up everyday with severe intestinal cramps and then I would commandeer the bathroom for about an hour (I am sure you know what I mean). Sometimes my intestines would wake me up in the middle of the night and I would be in the bathroom for hours. Just like you I have had a barrage of tests ranging from liver tests to being diagnosed with IBS. I did everything I could to restrict my diet (except eliminating gluten of course) but nothing seemed to help, until I began to eat less and less food because I was literally scared to eat. I gave up on doctors or ever possibly finding a cure. I began to rapidly lose weight, I scared my friends and family who automatically thought I was an anorexic (which is not the case fear of becoming fat and fear of food because it will make you ill are two different things). So anyway my mother found this page emailed it to me and I thought "I can give this diet a shot? Why not?", I am happy to report that I have not had the slightest bit of pain since starting this diet. I wake up in the morning and I could honestly cry because it is such a relief to not feel sick everyday with no apparent cause. I apologize for rambling but I want to thank you from the bottom of my heart because without you I might have died. So thank you again. You are a Godsend.

Feeling Healthy,

Trish

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Date: Wed, 25 Jun 2003 09:33:42 -0400
Subject: Re: Celiac.com

Dear Scott,
I must tell you that your site celiac.com saved my life. Its a long story, but I was just diagnosed with celiac at the age of 45 after a life time of stomach, bowel, joint and muscle problems. With the help of a nutritionist and your site, I was properly diagnosed and Im feeling better than I have ever felt in my life! Thank you for your continued hard work. We must continue to get the word out to friends, family and especially doctors, who seem to feel that celiac is not a major illness.
Take care and thanks a million.
Rita Gurkin

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Date: Sat, 12 Jul 2003 18:12:04 -0400
Subject: Thank you!!!!

Hi,
I just found your site. It is absolutely incredible. My 18 year old son is celiac and some(most) of the recipes are so fantastic I cant wait to make them. I am just as excited about them as he is. He is going off to university in Sept. and most of the recipes say they keep well. One less worry for me, to know he has food he can eat!
Thank you so very much for all the work you have put into your site. You are a God-send!
Myra Lewis

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Date: Tue, 5 Aug 2003 22:09:40 EDT
Subject: comments

I would like to congratulate you on your website, and newsletters.
The information is fantastic and very helpful.. Recently diagnosed with gluten intolerance (yeast and casein), I find your site one of the best for being informative.

thanks, Linda Rendely

 

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Subject: Thank you
Date: Tue, 30 Sep 2003 15:30:33 -0700

The website is fabulous, well-constructed, and very useful. Thank you so much!

Leigh Davisson

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Subject: RE: Scott-Free Newsletter - Technical Support
Date: Wed, 10 Dec 2003 08:56:39 -0500

Hi Scott,
Thanks for the info on the newsletter. Please accept my sincere thank you
for all the effort and work you put into producing the newsletter. I find
it to be a most valuable resource in managing my sons celiacs disease.

Best wishes for a safe and happy holiday season to you and your family.

Best wishes,
Lori Uerz

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Date: Sun, 14 Dec 2003 09:15:14 -0700
Subject: Re: Celiac.com

Scott, thanks SO much for your help. I dont know how much of a one-person effort your newsletter is, but kudos to you and those who might be helping you. My daughter was not physically well enough to work but was always looking for ways in which to help others. Her ideas were grand but her diseases (diabetes and glucogen storage disease) were too devastating and her life all too short. She would have been 28 on December 18. I applaud your efforts to pass along such vital information to those who are gluten intolerant.
Have a blessed holiday season!
Terri Curry

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Date: Sun, 21 Dec 2003 06:52:52 -0600
Celiac.com Update!Dear Mr. Adams,

I just had to send a note of thanks to you...I appreciate all the information you provide through celiac.com. Very informative and helpful!

Coming to learn about celiac disease/gluten intolerance in my family has answered many questions with health problems throughout the years. Having the information from your web site has been a primary source of information for us as we move from chronic sickness to new vitality. Thanks so much...you are a blessing.

Grace and peace to you.

Bonnie Hafeman

 

2004 Celiac.com Feedback

Subject: Celiac.com
Date: Thu, 22 Jan 2004 09:48:56 -0500

Hello,
I found out that I had celiac sprue 3 years ago. I just wanted to thank you all for such a great web site. Of all the places on the web for celiac I find yours the most informative. I learned things here that I havent found anywhere. I signed up for the free news letter and I will visit your site regularly. Thankyou for helping me understand more what is going on with myself. Lets get more doctors aware of this as I have had systoms of this disease sense since the age of 16 ( I am currently 33) I am very poor I wish that there were more enexpensive alternatives to replace the foods I now cant eat. Thanks to your site I realize that I need to save money to get tested for type 1 diabetes. Thankyou again for your informative site.
Christine Thomas

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Subject: Article in Feb. 04 Readers Digest
Date: Sun, 1 Feb 2004 10:39:17 -0800

Hi Scott-

Your work on Celiac.com is greatly appreciated! Im a long-time nurse (42 years) and the grandmother of 4-year-old Katie who was diagnosed shortly before her 3rd birthday by her mother (my daughter). Katies diagnosis has not been confirmed by an official lab test or procedure, but it is obvious by her symptoms. She has been on a strict gluten-free diet since we first became aware of her problem. Contrary to my wishes and advice, they chose to continue with the diet and have her tested when she is a bit older. I believe this is based on the fact that Katies dad is in a bit of denial, thinking she will outgrow it.

Keep up the great work!
Alice

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Date: Sun, 08 Feb 2004 11:31:37 -0500
Subject: Rice Beverages

Dear Mr. Adams:

I first want to express my sincere appreciation for your website. Because of the information it provided, I was able to diagnose the cause of my daughters asthma and skin rashes. In addition, I have cured my own, chronic bronchial and sinusoidal infections. THANK YOU!
Robert L Fireovid

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Date: Thu, 12 Feb 2004 17:50:00 EST
Subject: Celiac.com

Hello Scott, I want to tell you how absolutely fabulous your newsletter is. THANKYOU!

Yesterday, I received an e-mail about subscribing to the newsletter. I assumed that
because I am a subscriber, my subscription must be running out so I renewed for
another year. Please check to be sure the renewal that I did yesterday will extend my
current subscription. Thank you again for a fabulous newsletter.

Laurie Whitehill

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Date: Fri, 14 May 2004 07:53:44 -0500
Subject: Re: Celiac.com Update

Celiac.com Update Dear Scott,

It never ceases to amaze me...the information you provide lines up so well
with our experience with gluten intolerance and numerous issues related.

The article Are Commensal Bacteria with a taste for Gluten the Missing Link
in the Pathogenesis of Celiac Disease? by Roy S. Jamron is excellent. I
believe you have hit on the biggest breakthrough with celiac disease and
gluten sensitivity...that being the role of bacteria.

This bacteria issue is something Ive become well familiar with in our search
for answers for myself, our daughter and a friend. In my case, Klebsiella
pneumonia and Helicobacter Pylori were present, in our daughters case and my
friends case, no pathogenic bacteria was found. But, in each of our
situations, we were lacking adequate amounts of friendly bacteria
(Bifidobacteria and lactobacillus). I believe this is the missing link.
Perhaps not the presence of a pathogenic bacteria, but simply the lack of
healthy bacteria. Each of us had been prescribed numerous antibiotics in the
past as well.

Thanks so much for the work you do. Great Job!

Grace and peace to you,

Bonnie Hafeman

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Subject: Re: Free Food
Date: Wed, 1 Dec 2004 05:21:31 -0500

Scott,

In 1996/1997 I was dying. I was around 31 years old. I had gone bankrupt, could not hold jobs, and was close to destitute. I could only work two days a week and was living in a small one bedroom apt. I had accomplished nothing in my life that I wanted to, never had a girlfriend (sick all the time), and was starting to lose my eyesight from bleeding in the back of the eye. When I went to the toilet, and I did often, it was all water...and nothing was digested. My stomach grew out like the children in Africa who starve does.

I knew I would not last long. My goal was to get better so all I ate was healthy food. Lots of grains- wheat, rye, barley, etc- in soups and other ways...and I was failing. It was all I could do to work those two days to pay the bills as the rest of the time I spent in bed or near the bathroom.

I remembered my mother saying I was sick as a very young child (one or two?) and after many specialists they could find nothing wrong and I was dying. The Doc said try taking him off gluten for a few months and see. It worked, I did live. But I was never really healthy...and never near 100% in studies or attention.

As I lay there realizing I would be dying soon, I looked up gluten on AOL...and your site came up first. I saw the symptoms (a few of which were mine such as diarrhea, ADD, lethargy, and the like.) and I realized I was on to something.

The next eight years have seen vast improvements in some parts of my life. I am slowly getting at goals I have been yearning to do for decades (such as the website, originally a magazine). Unfortunately the test has been not bingeing and realizing the community is wrong. I am now in the midst of the 14th day free of ALL grains. Only fruits, vegetables, meat, and water have gone into me. I am feeling much better for the first time, though still run down. I cannot eat anything except basic food groups or I think I will never get away from the addiction, for addiction it is.

Although I am struggling now financially I am still healing and find I am able to work more than I was even 4 years ago..

If anyone needs to pay someone it is I paying you. As I said in a letter once, your site changed my life and I have spent many an hour talking to people to help change theirs too. All I can say is my political aspirations revolve around the truest sense of making the world better and helping all people. If I ever get to a state or federal level you will hopefully feel proud that you were part of it and any good that I can do while up there.

Thanks for everything.

Bob Hoffman

 

2005 Celiac.com Feedback

Sent: Sunday, January 23, 2005 9:01 PM
Subject: Celiac? Whats that??

I entered wheat gluten in Google, I was amazed by the information that I got from some of the web sites on celiac disease. Ive been X-rayed up, down and all around, all kinds of tests for everything you can think of during the last 25 yrs. Ive been diagnosed with Grovers disease, atopical dermatitis, my legs itched (excruciating) for over a year, my skin is easily bruised. Im borderline anemic. Huge amounts of gas (flatulence) and several more signs, symptoms, all related to celiac disease AND not one M.D. has brought up the possibility of celiac disease, let alone test for it! After going on a gluten free diet a few days ago,(and dairy free) Im feeling a lot better. No more gas attacks, no more belly pains etc. Thanks to CELIAC.COM Im getting my life back. Bob Thompson

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Date: Sun, 30 Jan 2005 18:34:25 EST
Subject: info request

Dear Scott,
I am a Registered Nurse. i work with the developmentally disabled. There have been quite a few of our patients with Down syndrome, that have been tested positive for Celiac disease.
I am putting together a presentation on celiac disease for our staff. I found your website to be very informative and easy to navigate. Please let me know if you have any further resources for me .
Thank you
Maureen Gavin RN,C CDDN

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Subject: RE: Request for permission to reproduce selected information on celiac.com
Date: Wed, 9 Feb 2005 15:52:48 -0500

I would also like to take this opportunity to thank you for your efforts in producing celiac.com web site. Seven years ago my symptoms became sever enough that I could no longer work on a regular basis and I started what turned out to be the long process of finding the root cause of my illness. I lost count of all the doctors I saw. I lived in pain from colitis and other side effects of celiac. Several doctors labeled me a "drug seeker" and discounted anything being wrong with me. At some point I decided that I needed to be proactive in my own diagnosis and started research. My wife first came across celiac disease and after eliminating some other candidate illness I insisted that I be retested for celiac which came back positive. Even then I found that I had to "educate" my own doctors about the illness and actually it took my own recovery after starting a gluten free diet for my doctors to accept that this was indeed the problem. Celiac.com was an invaluable resource during this period. Had I not had your site available, I do not know if we would have put all the pieces of the puzzle together and might still be searching. While not full recovered, I am making progress. I never dreamed how difficult it would be to eliminate gluten from my diet, nor how sensitive I would become to contamination. Most of my contact now comes from things like obscure additives in foods and health care products. The lists you have provided at celiac.com have become invaluable to me. Thank you and I hope that I can help make this information available to others that need it. I know that others in my family also suffer from some degree sensitivity to gluten and has suffered all there lives from the results. I am convinced that my mother died from complications caused my it. She died of cancer some years ago. While I will never be certain of this, I can take steps to prevent the same thing happening to me. My daughter also shows some signs of being gluten sensitive. Perhaps she will not have to go through what I have, and you have played a big part in this. I know how much effort you have put into making this web site and maintaining it. You have given much and I want you to know that this effort has not been for naught.

Thank you again,
Paul Montgomery

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Subject: Thank you
Date: Tue, 29 Mar 2005 13:45:36 -0500

Just wanted to say thank you for a great site. I am adapting to the gluten free diet. Your listings and several resources are perfect and clear. The site is easy to negotiate. I cant thank you enough.
Margaret Collins

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Date: Tue, 26 Apr 2005 07:07:24 -0700 (PDT)
Subject: Re: Celiac.com Update

Great issue, Scott! Thanks for all the hard work you do. I was diagnosed
almost 9 years ago and there wasnt nearly as much action as there is now. I
truly feel this diagnosis is a gift for long life and good health.
Norie Erickson

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Date: Thu, 5 May 2005 09:44:05 +0200
Subject: Re: celiac&depression

Dear Scott, as you might imagine, I was hit by the gluten free experience (why would I otherwise have sent you this abstract?). As many others, I stumbled into your site by chance, and, wow, there was not only the story of my own life, but the story of my whole family ... Ive been gluten-free 2 months, man this is the most exciting&interesting period of my life.

This gluten thing is HUGE, and its coming towards us like a tsunami ... can you imagine, when people collectively start to understand, the cause of ALL our cultures health problems ... IT WAS THE WHEAT STUPID !

Youre making revolution! Fantastic work! And thank you for saving not only my life, but the lives of my 2 children, my 8 brothers and sisters, and my 16 nieces and nephews! And several friends, colleagues & neighbors Ive approached cause I believe they might benefit from this diet ... Of course they are not all gluten-free yet, but they now have the facts (theyre kind of pondering them), and as soon as they start getting really crappy, they now have a life-saving option!

wishing you the best, Ines

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Date: Thu, 25 Aug 2005 20:09:36 EDT
Subject: Re: HELP!

Thanks Scott, I have always meant to sit down and write to you, I truly appreciate all the help and guidance you have given me via your web site. I was diagnosed 5 years ago with Celiac Disease after a lifetime of terrible health, starting off as a failure to thrive baby, my health history is one disaster after another, many of them quite serious, a few life threatening. I was seeing 5 specialists for 5 inflammatory conditions to different organs by the time I was 48 and going down fast, I had a constant temp of 100 +and was burning up with inflammation, my immune system was just shot. I was lucky enough to have a very smart husband who found mention of the disease in the Lancet, we had the tests done and it was the best thing that ever happened to me, the world is a new place and I am pretty well most of the time. After finding your site I could buckle down to the work of getting completely gluten free, I have achieved that and while everything is still not perfect its a vast improvement, I no longer have to take the rounds of drugs, antibiotics, anti-inflammatorily, anti-virals, prednisone and cortisone enemas have stopped. You have truly been an inspiration as well as a friend from afar. Best regards, Kirsten

 

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Date: Thu, 15 Sep 2005 13:56:56 -0700 (PDT)
Subject: Re: Celiac.com Update
From: Patricia Dillon
THANK YOU FROM THE BOTTOM OF MY HEART...I HAVE HAD CELIAC DISEASE FOR 25 YEARS AND NOW MY 2 SONS HAVE IT. I AM SURE ONE OF MY SONS EMAILED THIS WONDERFUL WEBSITE TO ME. I WILL BE TOTALLY INVOLVED WITH YOU AND ALL THE WONDERFUL IDEAS, REPORTS ON CELIAC AND THE RECIPES....THANKS AGAIN, WE ALL THANK YOU

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Date: Thu, 29 Sep 2005 13:52:43 EDT
Subject: Thanks

I simply wish to thank whoever has been responsible for providing this site.
I have recently come to believe that I am Celiac, and your site (through a friend), has provided me with alternatives that I didnt know existed. So, thank you very much.
Sincerely

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Date: Fri, 11 Nov 2005 11:53:31 -0800
Subject: CORN PROBLEM????????????

Dear Scott,
I dont spend much time on the internet because of many reasons. However, whenever I receive an update from you, I am always pleased and enjoy the information that you dispose. It is so nice to know that there is help when you need it, in regard to gluten intolerance.
Thank you so very much for your response.
Terry Dellasala

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Date: Wed, 7 Dec 2005 05:53:18 EST
Subject: Re: Message Board

Thanks so much. I wrote you for advice a while back Scott, regarding advice because I was so sick...not sure if you ever got it, just wanted you to know Im still having some problems but the Doc at the mayo clinic helped me greatly. If it were not for your board I would have never heard of him.
Thanks
Bridget

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Date: Thu, 8 Dec 2005 18:04:01 -0800
Subject: Forum Subscription New Topic Notification ( Gluten-Free Celiac Disease Forum at Celiac.com

Who started Celiac.com and is responsible for maintaining this wonderful website? I would just like to say thank you to whomever you are. You have provided a source of great knowledge and encouragement to all of those who have been fortunate enough to stubble upon you in our quest to find answers, support and encouragement. I could not survive a gluten-free life without you.

Thank you from the bottom of my heart. Your efforts, and those of all the members of the forum are forever appreciated.

Because of the advise of others here and reading there trials and tribulations, I, after 15 + years have finally gotten some answers. And more importantly, my son will not have to suffer the way I did because I now know that you have to question your doctors, ask them for certain tests and be vigilant in finding the answers and causes to the symptoms.

Laurie

 

2006 Celiac.com Feedback

Date: Thu, 09 Feb 2006 13:41:02 -0500
Subject: Great site!

Hi Scott,

As a newly diagnosed G.I. patient, I am in dire need of information. Your website is a gift. Thank you so much for creating it. I hope that Ill be able to eat in restaurants one day..... they seem to be few and far between in my neck of the woods. Take care and all the best to you.

Jeannine Ouellette

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Subject: RE: Celiac.coms Scott-Free Newsletter - Subscribe Today
Date: Wed, 21 Jun 2006 08:33:44 -0400

Hi Scott!

You are wonderful and so helpful in a time that can be so stressful! I have passed you on to so many who love you also. Keep up the good work and God bless you!

LoisAnne

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Date: Wed, 2 Aug 2006 15:15:12 -0700 (PDT)
Subject: Re: Site

BTW, already finding a wealth of information including the link to the EnteroLabs site.. already ordered the cheek swab test for my daughter. Much cheaper than the 325/test my husband and I paid to find out who had the gene (my 5 year old son was diagnosed in March 2006). Thank goodness for you and the Gluten Free Mall!!!

Regards,
Lori Swanson

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Date: Thu, 3 Aug 2006 01:37:00 EDT
Subject: Re: Enquiry from Gluten-Free Mall

Dear Scott:

You and your team have been so nice, understanding, and informative that I do not have enough word to express how much you all mean to me. The message board is a great help when I am really feeling down because I come up negative on all the tests, but put wheat in my diet and I am violently sick.

I appreciate you taking the time to respond to me.

Karen McCain Mish