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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. mamaof7
    trents
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  2. bold-95
    Wheatwacked
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  5. Marie70
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  6. JuggaloDad
    Wheatwacked
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  8. RShisler
    RMJ
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  12. ElizabethKing1
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  14. Noahs Dad
    Paula McVicker
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  15. KaysMomma
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    Scott Adams
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    Scott Adams
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  18. AlyO
    trents
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    Guest
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  20. Exchange Students
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  21. RachelParker
    Scott Adams
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  22. Aaron2018
    DebJ14
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  23. tannilisa
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  24. Steve P
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  26. mamaduck
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  27. Rhyanna C
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  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's article in Research Projects, Fundraising, Epidemiology, Etc.
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    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Gluten free nuts

    3. - Wheatwacked replied to Maureen armey's topic in Related Issues & Disorders
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      Barrett’s

    4. - ElleH replied to ElleH's topic in Related Issues & Disorders
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    • Aretaeus Cappadocia
      From time to time I've noticed that a product at Costco will be "discontinued" and some months later it reappears. Another place you didn't mention is AzureStandard.com. I've purchased a lot of products from them for my gluten-free diet, including several kinds of nuts. Sometimes they are very clear that a product is gluten-free or gluten-containing but a lot of times they use a confusing language about "packaged in a Facility that meets the Food Safety Modernization Act (FSMA) standards which includes an approved allergen control program". Many of their products are kosher and/or organic. I looked up Brazil nuts just now. They are organic, kosher, FSMA-compliant, and $16.58 /pound for their smallest size of 2 pounds. https://www.azurestandard.com/shop/product/food/nuts/brazil/brazil-nuts-raw-organic/19196?package=NU020 A good/bad aspect of my celiac is that I don't seem to have acute symptoms - great because I'm not suffering, but also bad because I have no immediate feedback mechanism if I get glutened. Fwiw though, I just had a followup IgA blood test and I am at 1% of where I was a year ago when I started. So globally speaking I am being successful at avoiding gluten.
    • Wheatwacked
      A diet equal in omega 6 and three fatty acids will lower inflammation and give your gut a chance to heal.   Omega-3 and Omega-6 Content of Commonly Eaten Foods I eventually found that commercial cow protein like the skim milk used in M&M Peanuts would cause me heartburn, while I can drink all the grassfed cow milk as l like.  Omega 6:3 ratio of commercial milk is 5.6:1.   Milk from grassfed cows is 1:1.  Increasing my Thiamine mononitrate (B1) to 500 mg a day and vitamin B6 to 100 helped my digestive system become regular.  Maybe the first time that I remember.  Commercial dairies feed wheat to dairy cows, though it is rarely the only grain used.  Grass fed dairy was not tested.  Only Ireland and New Zealand commercial dairies are pasture and grass fed countrywide.      
    • ElleH
      Russ H: Thank you for the information. I think I’m going to consult with my rheumatologist to see if there is anything I can do if/when I experience gluten contamination again to prevent further joint damage.
    • cristiana
      Welcome to the forum, Maureen. I suffer from reflux and Barretts is often at the back of my mind as I also suffer from a very itchy throat from time to time.  My last endoscopy showed no inflammation but next time I see my consultant I might ask for another scope, its been a while since the last one. Anyway, I just wanted to say that in my case sleeping on a wedge pillow has been very helpful , and I also find my symptoms improve if I can leave 3 hours after a meal  and have a large spoon of Gaviscon Advance just before I retire to bed. My gastroenterologist says it creates a film or raft over the stomach contents, preventing them from coming back up the throat.  Works for me. I've known a few people with Barretts and one friend with it, who started to get horrendous reflux during a pregnancy, says she takes her PPIs as prescribed, but always chews a couple of Gaviscon tablets just before she goes to bed.  She is now in her late 70s and doing really well - so I think a tip worth considering. Another friend with Barretts (who passed away in his eighties from something quite unrelated) suffered all his life from a lot of odd health complaints.  A few years ago his daughter was diagnosed with coeliac disease and of course we area now all thinking he was probably an undiagnosed coeliac, too, which might well have contributed to his reflux. It is really good that they have picked up on the issue as I understand a lot of patients with Barretts are completely asymptomatic.  Hopefully keeping to a gluten free diet will help your reflux to improve (I find glutening brings on reflux and gastritis-type symptoms) and therefore help to alleviate any irritation/inflammation in your esophagus. Cristiana  
    • lmemsm
      It is very difficult to find gluten free nuts and I appreciate your mentioning it so we can try to share ideas.  I was using Kirkland Brazil nuts until late last year and they did say gluten free on the package.  Unfortunately, they are no longer available at Costco.  I've since been trying to buy the Elan Brazil nuts as they state they are gluten free.  I do sometimes buy from nuts.com.  They list some of their selections as gluten free.  Emerald brand also lists gluten free on many of their nut products.  I recently picked up some nuts in a Kosher store when they stated Kosher for Passover on the package.  It's not the same as a gluten free certification but many (not all) Kosher for Passover products are gluten free.  I'd love to find some other options for safe nuts.
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