trents

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trents last won the day on June 7 2017

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About trents

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  1. trents

    Undigested foods?

    I certainly would have your gallbladder checked out if you have not. Most people don't realize that gall stones are not the only problem you can have with your gall bladder. The gallbladder can also just quit producing bile (or sufficient quantities of it) which would, like stones blocking the duct, result in problems with digesting fats. But there wouldn't be the acute pain that you would experience with stones blocking the duct.
  2. So it looks like the study is in the formative stages of trial and there are no results to report yet. Am I missing something? Hard to get excited about this until we see some testing results. There have been a number of Celiac oral prophylactics tested over the past several years that seemed promising but turned out to not be the ticket we were looking for. Orally administered solutions seem to have too many variables to make them reliable. One of the issues is timing. You have to take them at the right time before incidental exposure to gluten so that the antidote mixes properly with the food in the gut. Another is dosage amount relative to the amount of gluten to be encountered. And how do you predict that? If? When? How much? A more promising approach IMO is subcutaneous injections because they are more systemic in nature and therefore likely to more consistent. It would be like allergy shots or insulin injections that can be self-administered. Last week I posted links to one such study in the late stages of testing that looks very promising. With any of these medication solutions however, there will be the question of cost and insurance coverage.
  3. Abolutely! All the issues you described have been tied to Celiac disease. Have you been diagnosed with Celiac disease yet? And if so, are you being conscientious in avoiding gluten? If you have not been diagnosed you need to have testing done. But make sure you have not gone off gluten until after the testing or the testing will not be accurate.
  4. trents

    Interesting Read

    "One of the reasons I push a Paleo, Keto, or Atkins diet at people recovering to hit as many birds as possible in one go." Agreed!
  5. trents

    Interesting Read

    Good read and very thought provoking. Something a lot of people who thought they were gluten intolerant but have been tested and found not to have the villi damage characteristic of celiac disease need to explore. But it needs to be emphasized this is only applicable to those experiencing digestive problems when consuming wheat, barley and rye who are not really celiacs. The article does make the distinction between celiac disease and gluten sensitivity but this one sentence concerns me: Those with a wheat allergy, celiac disease (about 1% of the population) and certain other autoimmune conditions get very sick if they eat it. Depending on how you interpret the comma in that sentence it could be misunderstood to communicate the celiac disease is a food allergy. My concern here is this finding will be misinterpreted by the media and the public who still confuse Celiac disease with food allergies and intolerances.
  6. Fact is, very few celiacs who are making an honest effort to eat gluten-free are actually managing to do so. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--110252/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=64072612&_hsenc=p2ANqtz-8b41qAYaG_kvewkOoyekrDyAqUp-xNoTzLpiiCxetmPwqLnB8IjXdv8_G6l4fpreixnRYubvYtYLTNWukh7MMtQyE_ww&_hsmi=64072612 This study's findings are in line with other studies I have seen lately dealing with the same issue. The result is that there is some improvement because we are getting less gluten but it doesn't just go away like we had hoped.
  7. You really do need to get tested. The earlier you catch it the less likely serious and permanent damage to your body will occur. One of the Celiac associated medical problems is osteopenia/osteoporosis because of poor mineral absorption.
  8. First, celiac disease itself is an immune disorder. Specifically, it is and "autoimmune" disorder. So it represents a dysfunction in your immune system to begin with. If you are talking about infectious diseases, the connection may have more to do with poor nutrient uptake due to damage to the small bowel mucosa (villi), which is where most nutrient absorption occurs. Being a new member may we also assume you are a recently diagnosed Celiac? How educated are you on where gluten is found in food and also about cross contamination issues? Many new Celiacs are still getting much more gluten than they realize because they just aren't yet very savvy about recognizing how and how often we get glutenned unless one is well-educated and extremely vigilant. Even trace amounts of gluten can prevent healing in the small bowel, though symptoms may seem to largely reside.
  9. Not everyone is in a situation to "cook like ma Inglalls". That in itself has to be socially limiting, even if you only take into consideration the time involved. I think what we're looking at here is those many times most of us don't have the total control we would like over what we eat as when we go to a restaurant or eat at someone else's home.
  10. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--110185/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=63728458&_hsenc=p2ANqtz-94UI2Bnq5AyVwicTvM9xl-okSsFjDZKboiy6yL3oVT1kKe0-kxMX9i7HwZUWgM66kodg0tM-Nymv9vFIDcEw_S_K0iyQ&_hsmi=63728458 Edit: Note, this is not a pill but a subcu injectable medication. It would be like giving yourself an allergy shot or insulin. So it would seem to avoid some of the problems that Celiac pill meds have presented such as timing and less than complete integration with the gluten in the ingested food. The injection would give a more systemic effect.
  11. I have a suggestion for you. Sit down and develop a list of more detailed, targeted questions you would like to have data on that would provide a framework for people's responses. I feel like your current questions are too vague and too general to be very helpful to people trying to provide input for your writing project or to you trying to distill and organize the material. I think you need to ask people to give specific ages and dates of when their celiac disease and the other autoimmune conditions were diagnosed. Ask them how much time expired between the first perceived onset of symptoms and the official dx of both celiac disease and other other disorders. Ask them how they were diagnosed. Ask them what symptoms led them to seek medical intervention. Have some way of distinguishing between official and unofficial diagnosis of celiac disease and the other associated autoimmune conditions they. If you visit celiac disease forums very long you will discover that people blame everything from hang nails to lumbago on celiac disease without any evidence of association. Ask questions about their diligence in avoiding gluten. You could also provide space for narrative in your questionnaire. Just some of my own thoughts here. Hope this is helpful.
  12. Whatever really works, doesn't have side effects that are worse than the disease it is addressing and is affordable is fine with me, Ennis.
  13. CL, I think you miss the point the referenced article was trying to make and that I was expressing agreement with. In fact, in your response you actually reinforce the point the article was making. The article was not (nor was I) saying that celiac disease cannot be successfully controlled by scrupulous avoidance of cross contamination. What it was saying is that it is virtually impossible to do so without becoming so consumed with the effort that quality of life suffers significantly. In my own words, to totally eliminate cross contamination one must become essentially OCD about gluten. Having said that, with the current state of medical knowledge and treatment about celiac disease, such hyper vigilance may be appropriate for those who suffer severe reactions from exposure to traces of gluten. But wouldn't it be better to have a safe medication available to make that unnecessary?
  14. This is truth: https://www.beyondceliac.org/community/newsletter/?utm_campaign=Newsletter&utm_source=hs_email&utm_medium=email&utm_content=63591229&_hsenc=p2ANqtz-8LamDIJvpuutXMJO2cvHeKlmhe9MWb8EOS02Ah24ZTk60vhYXJtVFQlXSshFz9beMtWnmnrjILUMQLlS9Z0NIydUdqsQ&_hsmi=63591229 We have been beating our heads against a wall for years. We not only need to be conscientious about avoiding gluten as best we can but we also need a medical agent that will take care of cross contamination. Totally avoiding gluten is a pipe dream.
  15. I was thinking refractory as well and it's turning out to not be so rare as was previously assumed. You might also look at a experimenting with a ketogenic diet which would essentially eliminate starches and most of the sugar in your diet. If you are suffering candida (yeast) overgrowth it likely would really help with that. But with no eggs in your diet going keto would be a challenge.