BelleDeJour

Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play...

Hello everyone Thanks, @trents, I posted it for that reason. I hope that it might help someone else in the future. Since dropping the evening multi-vitamin, I have had less itching in the evenings. Last night I started to itch a little so I got straight into the bath until it passed. I work up this morning with that amzing feeling of being fairly...

Hi again everyone Well, something was still making me itch and I found out what it was. My multi-vitamin contains iodine. Since I stopped taking that on Friday - no itching. I even ate out for both lunch and dinner on Saturday (both places had excellent gluten-free options). Had a glass of wine and it was great - no itching all weekend! Thank you...

Oh, thank you all so so much! I have found my people. ❤️ I am so sorry that we have all suffered with this torturous itching and resulting sore skin. Sue, I can relate to what you wrote about the dark thoughts, I have had them, too. It's very tough and painful. I have now had a 2 day straight run of only minor itching. I woke up this morning and...

Thank you, yes this has occurred to me. It's so tricky! Thyroid is regulated with Levothyroine. It has been a little Hypo since radiocative iodine treatment in my 20's for Graves (after a few years on Carbimozole). I think iodine is excacerbating my dermatitis herpetiformis as I have noticed sensitivity to cows milk and tuna when I had some recently.

TLDR: interested in people's experiences with Dapsone in the UK and are there alternatives for this insane itch? Hello me and my Dermatitis Herpetiformis are now here. Thank you for having me, I am a 54 year old female in the UK. I have a follow up dermatology appointment coming up and want to be prepared. Backgound: Insane itching...