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Mathew

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About Me

Diognoses celiac 2022. And yes it sucks balls.

  1. Did the mri show UBOs?
  2. Legend i shall try this. Usually my dopey dog shuffling round the bed, but ill try. Thanks pal. I love this forum. Such lovely helpful people x
  3. She was having the episodes at the time she was tested in Aug 2022. But i hear what ya saying. Would a brain MRI show this that ya talking about?
  4. I have celiacs desease, so did my dad. I had my daughters tested in aug 2022 and my oldest was positive and my yougest negative. Now my youngest is 11 and has been suffering from vacant episodes, dizziness, dream state. She has gluten in her diet. She has been tested for epilepsy and that was negative. She has had a heart tracer (waiting results) and an MRI...
  5. Yes thanks i think i have this. Its hard when u have celiacs desease ive have so much health anxiety 😫
  6. Thanks pal appreciate that. Docs dont know why im sweating at night all bloods were fine although my thyroid was slightly over active. I have more blood tests next week but i assume they will come back as fine as the ussually do.
  7. Ive was diognosed celiac disease 9 months ago. Ive had 5 or 6 bouts of CC exposure in that time. Each time it happens i get violent vomiting, sweat buckets, no real stomach pain just nausea and vomiting for 24 hours, im also feezing cold and cant get warm. Im then left confused, fatigued and ussually lose half a stone each time. My question is, in between...
  8. When i spoke with GI last he said this reaction is more common than reported. And when u get sick u arent doing any long term damage or short term damage. Try freezing some still lucazade to replace electrolites.
  9. Me mate. Vomitting and ive never felt colder. Im frozen to the core. I sweat absolute buckets. This is from CC in a gluten free house. I sweat every night whether ive been glutened or not.
  10. Are we talking about THC vapes. Im celic and get glutened about 3 times a year. Always from CC. I wondered about Cannabis Hypermesis Syndrome. Im fit and healthy but sweat like mad every night. No longer toking in case its adding to my symptoms.
  11. Yes back of the left knee pain and numb burning right thigh pretty much all the time. Seems to be made worse by walking. B12 was fine, vit D and calcium slightly low, im conviced it B1 deficiency as all my other blood work was fine. Im seeing GI tomorrow, but my GP has no idea.
  12. When i wake up my right thigh burns and tingles, then is numb for the rest of the day. Im on gluten-free diet and diagnosed celiac 10 months ago. Legs pretty much numb all the time now. My mucles in my legs aches alot on and off even on gluten-free diet. I was glutened 16 days ago and my legs are ruined still. Calfs ache so much.
  13. Yes i was glutened 17 days ago and still have headaches and really achey legs. Slight pain on and off in left side of abdomen too. Hope you find some peace
  14. My celiac score came back +200 basically maxed out the chart. No need for biopsy at that level. Hope u find peace mate.
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