Aretaeus Cappadocia
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Aretaeus Cappadocia's Achievements
About Me
Dx'd with celiac early in 2025. I got tested because my adult child was suffering symptoms and was dx'd late in 2024.
I was surprised when I started "feeling better" 5 days after starting gluten-free diet. By late 2025, I lost over 30 pounds and I'm enjoying health improvements in several things that I had previously chalked up to getting older (vitamin levels, blood glucose, thyroid, etc). My IgA levels went from 140 down to 1, where "normal" range is under 14.9.
Like many celiacs, I struggle to maintain a healthy and safe diet - gluten free, nutritionally balanced, high fiber, low salt, etc. I've embraced cooking gluten-free foods from scratch. I keep a spreadsheet to track my ingredients and a google drive to track my recipes (>250). I rarely eat in restaurants, and then only dedicated gluten free ones. I don't eat oats any more.
My food sources: Azure Standard, Costco, Vitacost, Penzey's, Rani, iShopIndian, iherb, Weee!, Safeway, farmers markets
My linked IG account currently is for following people who wrote a gluten-free recipe that I tried and liked. Eventually I will add photos of food along with recipes.
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sc'Que? reacted to a comment:
Study Looks at Iron Levels and Celiac Disease Development
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Aretaeus Cappadocia reacted to a post in a topic:
trehalose intolerance
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Aretaeus Cappadocia reacted to an article:
Can Celiac Disease Disappear After Allogeneic Bone Marrow Transplant?
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Interesting article and food for thought (no pun). I read the original article and I thought there were some weaknesses in their approach that they did not acknowledge. First, while the UK biobank is a wonderful resource and I'm happy to see this kind of study using it, I don't understand how people were selected to participate in the biobank (it...- 14 comments
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- celiac disease
- deficiency
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Aretaeus Cappadocia reacted to a post in a topic:
Newly Diagnosed Marsh 3b Level
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Hi, I just wanted to comment on this aspect. If I understood correctly, your tTg-IgA went from >250 to 218 in about 7 weeks (Jan 21 to ~Mar 13) with known inadvertent gluten ingestions during that time. To my knowledge, clinicians usually wait until 3-6 months of true gluten free diet (no shade) before retesting for celiac IgA levels. I don't want to discount...
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Scott Adams reacted to a post in a topic:
iron digestibility
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small comment to add: If iron rich diet and oral supplements are not sufficient to bring iron into the normal range, consider asking your Dr about iron infusions. My celiac (adult) child had chronic, moderately severe anemia even with healthy diet and extensive use of supplements. A series of (5 if I remember correctly) infusions remediated the problem.
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- anemia
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.... and right after posting my comment, I saw this relevant post. Below the primary article are a few other articles on related topics.
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I'm not certain if I understood your post precisely. The iron infusion I mentioned before probably would not be useful if your "iron, ferritin and binding all in mid range". With normal iron, ferritin and ferritin binding but low red blood cell count, it seems like it is worthwhile reviewing/supplementing your B vitamins like @knitty kitty is suggesting....
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Aretaeus Cappadocia reacted to a post in a topic:
iron digestibility
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"Fourteen months after treatment with engineered immune cells, the recipient has no symptoms and doesn’t need to take medication." Woman had 3 autoimmune diseases that attacked different types of blood cells: autoimmune haemolytic anaemia, immune thrombocytopenia, and antiphospholipid syndrome. Her situation was desperate and likely would have been l...
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Child was an adult so they scheduled. Was seeing a lot of docs at that time. Could have been general practitioner or a specialist. However I went along for the infusions. It was really easy. Outpatient infusion unit at the local Kaiser medical center. Make an appointment, walk in, comfy chairs, juice boxes - they really put some effort in to reduce the stress...
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The Best Gluten-Free Chili Con Carne (Rich, Hearty & Easy to Make)
Aretaeus Cappadocia commented on Scott Adams's article in American & British
Interesting recipe. I'm gonna give this a try next time I buy ground beef. -
Aretaeus Cappadocia reacted to an article:
The Best Gluten-Free Chili Con Carne (Rich, Hearty & Easy to Make)
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Congratulations on your progress! Blood iron was a serious issue for my celiac child around the time they were diagnosed. Supplements were not sufficient and a series of (I think 5) infusions were prescribed. It worked as a "catch up" and blood iron has been normal since then (with supplements). Might be what you need to get a reset.
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Aretaeus Cappadocia reacted to a post in a topic:
iron digestibility
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Scott Adams reacted to a post in a topic:
Gluten free nuts
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interesting idea, but awfully expensive. best price I found was around $4 per ounce at 4 ounces, or for a larger size, $41 for a pound.
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Gluten free nuts
Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
From time to time I've noticed that a product at Costco will be "discontinued" and some months later it reappears. Another place you didn't mention is AzureStandard.com. I've purchased a lot of products from them for my gluten-free diet, including several kinds of nuts. Sometimes they are very clear that a product is gluten-free or gluten-containing... -
I don't know if it is common but you are not alone. I don't know the definitive story, but it appears that Barrett's is more common in celiacs than in the general population: "We found intestinal metaplasia in the distal esophagus of 16 of 60 (26.6%) celiacs ..., in comparison with a control-group prevalence of 10.9%..." https://pubmed.ncbi...
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I have a brother who I told that I was diagnosed with celiac, that I've gotten (unexpected to me) health benefits after going gluten free, and that he should get tested because he has an elevated risk and arguably some symptoms. Last we talked, he decided he didn't want to get tested because he saw the gluten-free diet as impossibly limiting. In other words...
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Scott Adams reacted to a post in a topic:
Kirkland Quinoa allergen information
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GardeningForHealth reacted to a post in a topic:
10 years later, my celiac is progressing
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OK, I should be doing something else rn but I couldn't resist doing some fast research. The gateway test would almost certainly be the patch test where they stick a patch on your back for 48 hr to see if you get a rash. "Diagnosis of SNAS begins with a thorough clinical history documenting ACD.12 A positive nickel patch test is nearly always part...
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I don't know - I haven't read very far yet. When I get there I'll try to remember to post.