Aretaeus Cappadocia
-
Posts
137 -
Joined
-
Last visited
-
Days Won
6
Recent Profile Visitors
Aretaeus Cappadocia's Achievements
About Me
Dx'd with celiac early in 2025. I got tested because my adult child was suffering symptoms and was dx'd late in 2024.
I was surprised when I started "feeling better" 5 days after starting gluten-free diet. By late 2025, I lost over 30 pounds and I'm enjoying health improvements in several things that I had previously chalked up to getting older (vitamin levels, blood glucose, thyroid, etc). My IgA levels went from 140 down to 1, where "normal" range is under 14.9.
Like many celiacs, I struggle to maintain a healthy and safe diet - gluten free, nutritionally balanced, high fiber, low salt, etc. I've embraced cooking gluten-free foods from scratch. I keep a spreadsheet to track my ingredients and a google drive to track my recipes (>250). I rarely eat in restaurants, and then only dedicated gluten free ones. I don't eat oats any more.
My food sources: Azure Standard, Costco, Vitacost, Penzey's, Rani, iShopIndian, iherb, Weee!, Safeway, farmers markets
My linked IG account currently is for following people who wrote a gluten-free recipe that I tried and liked. Eventually I will add photos of food along with recipes.
-
Here is a recipe I highly recommend. Wonderful flavors and very satisfying. As written, chicken fits in a 12 inch sauté pan. I've tried doubling this recipe - I had to cook chicken in two batches, setting one batch on a plate while finishing second batch. Once preliminary cooking was finished, the same 12" pan was able to fit combined batches for rest ... -
New diagnosis
Aretaeus Cappadocia replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The good news is that there are lots of good and tasty meals available. On this site there is a section dedicated to recipes and cooking tips: https://www.celiac.com/forums/forum/27-gluten-free-recipes-cooking-tips/. I've posted a few here. There is also a section on "Recipes" if you hover over "Articles" in the top left part of the page here. Using... -
Aretaeus Cappadocia reacted to a post in a topic:
Frustrated with Providers
-
Test interpretations
Aretaeus Cappadocia replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're welcome! After posting earlier today, I saw another post here (can't find it again, of course) suggesting that omeprazole also acts as an anti-inflammatory/immunosuppressant. You said you were treated for h. pylori - if you are currently taking a PPI you might want to ask your Dr if it could interfere with getting a clear biopsy result (an anti-inflammatory... -
Aretaeus Cappadocia reacted to a post in a topic:
Iron loss and potential celiac.
-
Test interpretations
Aretaeus Cappadocia replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This may or may not apply to you, but it you cut back on gluten prior to the first endoscopy, there is a good chance that your intestinal inflammation calmed down a bit and they didn't see it. The medical standard is to have a "gluten challenge" prior to endoscopy. Other possibilities: Did the first Dr actually do a biopsy? Apparently, sometimes... -
I'm willing to bet a sound medical-economic case could be made for population wide celiac antibody screening once or twice in a lifetime, maybe something like as part of the starting school physical and maybe at age 30. These are just guesses as to when - a series of pilot studies could validate the idea and zero in on the optimal schedule. The test itself...
-
Aretaeus Cappadocia reacted to a comment:
Scientists Make Major Advance in Autoimmune Disease Therapy
-
Actually, human agriculture only started 10-12,000 years ago, while the Neanderthals were gone by 30,000 years ago (and greatly diminished long before then).
-
In addition to the other advice offered, perhaps you could identify some good recipes for gluten-free treats that you could make at home with your child, and maybe make a little fuss over how good gluten-free treats are. I regularly make gluten-free banana bread with different recipes that use buckwheat, garbanzo bean, etc flours, gluten-free ginger snaps...
-
Celiac Disease Linked to Neanderthal Ancestry
Aretaeus Cappadocia commented on Jefferson Adams's article in Origins of Celiac Disease
From the original post: "Some indicate negative effects, with putative links to various diseases as measured by genome-wide association studies (Sankararaman et al. 2014. Simonti et al. 2016)." ---> The links in the original post lead to a different article. I think these might be the correct links: "The landscape of Neandertal ancestry in present... -
The main use for leukapheresis is to mitigate (not cure) certain blood disorders, particulary certain types of blood cancer. It's kind of like "thinning the herd" when your body makes too many white blood cells. Doesn't fix the underlying problem, but it buys some time. The car-T people utilize the same technology to collect enough T cells (a type of...
-
@Lotte18, here is one article from this year: It's my understanding that they use leukapheresis, where blood is removed via tubing, the T-cells are collected, and the blood returned via tubing, all in a closed, continuous process.
-
Scott Adams reacted to a comment:
Why Life with Celiac Disease Hasn't Improved in 10 Years, According to New Study
-
RMJ reacted to a comment:
Why Life with Celiac Disease Hasn't Improved in 10 Years, According to New Study
-
I read this post and thought about the availability of gluten free food in my life. My first thought was that, no, I'm not having trouble finding gluten free food, maybe things are getting better. Then I thought about it again and realized that with food I've gone "off the grid". About 98% of the food I eat is food I make myself from primary ingredients....
- 4 comments
-
- 2
-
-
-
- autoimmune disease
- celiac disease
- (and 7 more)
-
Aretaeus Cappadocia reacted to a post in a topic:
Edy's and Dreyer's ice cream
-
Scott Adams reacted to a post in a topic:
Edy's and Dreyer's ice cream
-
Scott Adams reacted to a comment:
This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms
-
Scott Adams reacted to a comment:
This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms
-
This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms
Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
Here is what google has to say: "A person hosts approximately 10–100 trillion commensal microbial cells, which outnumber human cells by at least a factor of 10. These microbes—bacteria, fungi, and viruses—encode roughly 100-fold more unique genes than the human genome, acting as an "essential organ" concentrated primarily in the gastrointestinal tract." (th...- 8 comments
-
- 1
-
-
- blood pressure medication
- celiac disease
- (and 7 more)
-
This Common Blood Pressure Drug Can Mimic Celiac Disease Symptoms
Aretaeus Cappadocia commented on Scott Adams's article in Additional Concerns
If you search for "olmesartan-induced sprue-like enteropathy", you get a lot of hits. If you make the same search with Amlodipine, you get nothing. Same search with lisinopril, you get a maybe. If it's real (jury seems to be out) it's very rare. This phenomenon will NOT give you increased levels of celiac IgA and won't respond to gluten-free...- 8 comments
-
- 1
-
-
- blood pressure medication
- celiac disease
- (and 7 more)
-
Scott Adams reacted to a comment:
How Ethanol Transforms Gluten-Free Dough: New Insights into Corn Protein Science
-
Russ H reacted to a post in a topic:
Celiac flare years after diagnosis
-
Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I...
-
There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor...