Frequently Asked Questions About Celiac Disease

RMJ

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RMJ last won the day on December 29 2017

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About RMJ

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  1. RMJ
    After you’ve been on the gluten free diet for 6 to 12 months you could have the antibodies retested. If they go down that would mean your GI has the right idea!
  2. RMJ started following Antibody levels finally normal
  3. RMJ
    I was diagnosed and started a gluten free diet almost six (6) years ago. I had no obvious symptoms, but high positives on TTG IgA and IgG, EMA, and DGP IgA and IgG. Most came down to normal in about a year; the DGP IgA was lower but still high. Finally, after almost six years, DGP IgA is in the normal range for the first time! Just barely, 18 when normal is 0 to 19, but I'll take it! Last year it was 24. My diet for the last three years has been whole foods with a very few carefully chosen certified gluten free additions.
  4. RMJ
    It is so frustrating that so many in the medical field know so little about celiac disease! After you have been on the gluten free diet for 6 to 12 months perhaps your new GI can order the antibody tests again to see if the levels have gone down. Lower antibodies on a gluten free diet would point towards celiac disease.
  5. RMJ
    You don’t have to have positives on all the tests to have celiac. Those values would likely go up if you were eating more gluten. I don’t know if a capsule endoscopy can detect celiac or not. The magnification might not be high enough. A good question for the gastroenterologist.
  6. RMJ
    Here is one book by a medical professional. Dr. Crowe is the current president of the American Gastroenterological Association and my doctor. https://www.wiley.com/en-us/Celiac+Disease+For+Dummies-p-9780470160367 Here is another one, Dr. Fasano is another well-respected expert in celiac. https://www.amazon.com/Gluten-Freedom-Essential-Gluten-Free-Lifestyle/dp/1681620510
  7. RMJ
    My exact question to them was asking if it was grown on wheat or corn. Their answer was that it was “wheat based”.
  8. RMJ
    I contacted a manufacturer of xanthan gum (LorAnn) and was told theirs is wheat based. Other manufacturers may be different.
  9. RMJ

    Lab Tests

    RMJ replied to jess8bella's topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms

    You have one positive result, the TTg IgA. That is all it takes to have celiac. Hopefully you will be referred to a gastroenterologist for an endoscopy and biopsy to confirm - lab tests are occasionally wrong. Continue to eat gluten until all testing is complete.
  10. RMJ
    Purple fingernail beds and fatigue can have other causes besides anemia. You may want to get checked out by a doctor to see if you truly have anemia or if something else is going on.
  11. RMJ
    If you really want to be sure you’re eating plenty of gluten prior to testing, you can buy wheat gluten flour. It is mainly protein. I’m not sure how you would use it, however...
  12. RMJ
    Could you call the company and see if they use shared equipment? And if so, how they assure that it is clean enough before use for non-gluten free products? With the gluten-free certification I wouldn’t be concerned about a shared facility. I would want to know how they handle shared equipment, if any.
  13. RMJ
    What about wrapping something in a corn tortilla?
  14. RMJ

    Can bedding cause cc?

    RMJ replied to Beltane's topic in Celiac Disease - Coping With

    I doubt that it would be a problem unless dipped in flour. I’d just wash it once, which I’d do anyway for used sheets, and forget about it. Sanitization does not destroy gluten - it is a protein, not a microbe.
  15. RMJ
    I hope your biopsy will give you a definitive answer.
  16. RMJ

    Products (makeup?) to cover DH?

    RMJ replied to disgruntledceliac's topic in Dermatitis Herpetiformis

    My husband sometimes gets a red mark on his forehead. Not from DH, but I bought him some concealer and it hides it nicely.