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RMJ

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RMJ last won the day on February 16

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About RMJ

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  1. RMJ started following Celiac but my body still losing muscle or tissue? Why?!, Repeat EGD, 5 months after Dx? and celiac disease of my daughter and my wife. Small bowell cancer
  2. RMJ
    One way to look at it, would the results of the endoscopy change your treatment? Unlikely. If there was no damage seen - great! If there was damage seen, it is only 5 months and your antibodies are not yet normal, so there could quite reasonably still be some damage. You already are on a gluten...
  3. RMJ
    Part II, April 1: ”Ironically, Pritchett was feeling well enough to ask his wife to go through the drive-through at McDonald’s and get him a couple of breakfast sandwiches and a Coke, then head to the hospital.”
  4. RMJ
    Oops, that should be endomysial antigen.
  5. RMJ
    EMA stands for endomysial antibodies. To run the EMA test, microscope slides have a thin slice of tissue put on them that includes a type of tissue called endomysium. Dilutions of the blood sample are added. If the person has celiac disease, their antibodies bind to the endomysium. Several other...
  6. RMJ
    The EMA and TTG IgA test look at the same IgA antibody, but the test is run quite differently. Both take blood samples, but the EMA test is read by having someone look under a microscope. I’ll see if I can find an explanation - I know the difference but being able to explain it is different than k...
  7. RMJ
    The EMA usually looks for the Transglutaminase IgA antibody, which in your daughter’s case isn’t applicable due to her IgA deficit. With the antibody levels going down and symptoms resolving on the diet, I think you can be pretty sure she has celiac disease without need for a gluten challenge and...
  8. RMJ
    I am so sorry to hear about your wife. I am glad you thought to have your daughter tested. Here is some official European guidance on diagnosing children. http://www.espghan.org/fileadmin/user_upload/guidelines_pdf/Guidelines_2404/European_Society_for_Pediatric_Gastroenterology_.28.pdf ...
  9. RMJ
    Celiac disease, by damaging the intestines, can certainly keep you from absorbing nutrients and calories. It can take time to heal and absorb properly. Did you have a biopsy that showed the amount of intestinal damage, or just a blood test? Aside from gluten, do you have annoying symptoms...
  10. RMJ started following One Celiac Man's Harrowing Covid-19 Survival Story
  11. RMJ
    Why is someone with celiac having breakfast sandwiches at McDonalds (Part II April 1).
  12. RMJ started following Interpreting Blood Test Results...Taken 2 Weeks gluten-free, Trusted Brands of Gluten-Free Oats, Hello, my 3yo son has igg antitransglutaminaz elevated 19...what does it mean..he doesn't have celiac digestive manifestations..k noticed that when he eat gluten products next day he has atopic dermatitis and keratosis pilar like lesions and and 3 others
  13. RMJ
    After several years gluten and oat free and antibodies in the normal ranges I asked my gastroenterologist if I could eat oats. She had me eat them for 6 months and then retested my antibody levels. No effect! I can eat oats! I use Gluten Free Harvest oats.
  14. RMJ
    Not all people with celiac disease have digestive issues. I don’t, but celiac was confirmed by biopsy. Why was he tested? Why did someone suspect celiac?
  15. RMJ
    Were you eating much gluten prior to the test? If you weren’t that could make the values go down.
  16. RMJ
    23andMe genetic testing said I had a 17X normal likelihood of having celiac disease. I didn’t pay much attention because I didn’t have typical symptoms. I still told my doctor, and since she couldn’t find a reason for my migraines she made the connection that I might have it. All blood tests high ...
  17. RMJ
    I’m not sure why you’re limiting your calories on the meat and fruit? You can increase those. When I need to gain weight, fat is my friend! The page you linked lists olive oil, that can go on vegetables.
  18. RMJ
    I can answer one question. Each manufacturer uses their own units, thus their own ranges. You unfortunately can’t compare results between labs.