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Russ H

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Russ H last won the day on April 10

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  1. icon Scott Adams reacted to a post in a topic: New diagnosis
  2. icon Russ H reacted to a post in a topic: Test interpretations
  3. Russ H
    There are some really good recipes here: Gluten Free Alchemist The woman that runs it is UK based, and has a daughter with coeliac disease. I think she might be a food scientist as she is extremely knowledgeable about the properties of different starches and flours etc. Coeliac UK have a lot of UK relevant information regarding coeliac disease...
  4. Russ H started following Severe severe mouth pain , New diagnosis , Celiac flare years after diagnosis and 7 others
  5. Russ H
    Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
  6. icon Russ H reacted to a post in a topic: Celiac flare years after diagnosis
  7. icon Russ H reacted to a post in a topic: Celiac flare years after diagnosis
  8. Russ H
    Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.
  9. Russ H
    HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If...
  10. Russ H
    The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  11. icon Russ H reacted to a comment: Emergency Aid Launched to Deliver Gluten-Free Food to People with Celiac Disease in Gaza
  12. icon Russ H reacted to an article: Emergency Aid Launched to Deliver Gluten-Free Food to People with Celiac Disease in Gaza
  13. icon Russ H reacted to a post in a topic: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease
  14. Russ H
    Interesting. I found a publication on this for Scotland. 8% of ware potatoes received treatment for sprout suppression. The most common treatments were ethylene gas 4% (harmless) and spearmint oil fog 3% (harmless). 1% was with 1,4-dimethylnaphthalene, a plant growth regulator that occurs naturally in potato tubers. Also approved is orange oil. The fungicide...
  15. icon Russ H reacted to a comment: Why Iron Deficiency Is So Common in Celiac Disease—Even After Going Gluten-Free (+Video)
  16. icon Russ H reacted to an article: Why Iron Deficiency Is So Common in Celiac Disease—Even After Going Gluten-Free (+Video)
  17. icon knitty kitty reacted to a post in a topic: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease
  18. icon Russ H reacted to a post in a topic: Knee cartilage damage from glutenning??
  19. Russ H
    Barrett's oesophagus is caused by chronic damage to the lining of the oesophagus from acid reflux. Acid reflux is common in people with coeliac disease (studies showing up to 30% suffer from it at diagnosis). Is there a link between GERD and celiac disease?
  20. Russ H
    Joint and tendon disorders are common with active coeliac disease, even if subclinical. Arthralgia and arthritis can occur directly due to coeliac disease without the involvement of rheumatoid arthritis. This can manifest at a single location or multiple locations around the body. The aetiology of coeliac disease involves the production of antibodies...
  21. Russ H
    People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
  22. Russ H
    Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
  23. Russ H
    This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the...
  24. Russ H
    I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease...
  25. Russ H
    What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility...
  26. Russ H
    Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough. Case Report: A case of cough, lymphocytic bronchoalveolitis...
  27. Russ H
    Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
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