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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
7,178 topics in this forum
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My daughter is celiac, she had the Moderna vaccines dose and now, she has Chronic Pericarditis. She is almost twenty five year old. 1 2
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Recent Activity
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- Chrissyjo replied to Chrissyjo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6I think I’ve got it ?
Thanks all for your replies. I ended up having my gastrocopy last week. I did get a biopsy done for celiac. The man who did the test was sure I didn’t have it so we will see what the result is -
- Jodi Lee K posted a topic in Related Issues & Disorders0Celiac and Styes
Hi. I have known I have Celiac disease coming up on 2 years. I have never had problems with styes before my diagnosis. I can no longer wear makeup without waking up the next day with horrible painful swelling in part of my eye lid. (at least one) I’ve been to many doctor and specialist appointments over it and they just say to wash my face more. I’m loo... -
- Jake R. replied to Jake R.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Newly Diagnosed
I did some reading from the link you posted and will definitely use the information provided to my advantage! I feel very lucky with my current situation, as my family has been very supportive as well as my closer friend-group. I appreciate the welcome and the information!- 1
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- trents replied to MG1031's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease513 y/o new celiac dx and joint pain
By the way, B12 is necessary for the uptake of iron. B12 deficiency is extremely common in the celiac population and, of course, plugs right into the fact of anemia also being extremely common in the celiac population. Some people have a form of anemia known as pernicious anemia in which the anemia is caused by the death of the parietal cells in the stomach...- 1
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- trents replied to Jake R.'s topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Newly Diagnosed
Welcome to the forum, @Jake R.! First of all, kudus to the doc who ordered the test checking for celiac disease based on the family history of it. Many in the celiac population suffer for many years before getting a proper diagnosis and that despite have classic GI symptoms. I will embed an article that you might find helpful in polishing your efforts...
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Thanks all for your replies. I ended up having my gastrocopy last week. I did get a biopsy done for celiac. The man who did the test was sure I didn’t have it so we will see what the result is
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By Jodi Lee K · Posted
Hi. I have known I have Celiac disease coming up on 2 years. I have never had problems with styes before my diagnosis. I can no longer wear makeup without waking up the next day with horrible painful swelling in part of my eye lid. (at least one) I’ve been to many doctor and specialist appointments over it and they just say to wash my face more. I’m looking for safe makeup product recommendations? Has anyone had an experience similar? What other things should I watch out for? -
I did some reading from the link you posted and will definitely use the information provided to my advantage! I feel very lucky with my current situation, as my family has been very supportive as well as my closer friend-group. I appreciate the welcome and the information!
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By the way, B12 is necessary for the uptake of iron. B12 deficiency is extremely common in the celiac population and, of course, plugs right into the fact of anemia also being extremely common in the celiac population. Some people have a form of anemia known as pernicious anemia in which the anemia is caused by the death of the parietal cells in the stomach. The parietal cells are where "intrinsic factor" is produced, an enzyme necessary for the absorption of B12 which, in turn, is necessary for the absorption of iron from the diet.
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Welcome to the forum, @Jake R.! First of all, kudus to the doc who ordered the test checking for celiac disease based on the family history of it. Many in the celiac population suffer for many years before getting a proper diagnosis and that despite have classic GI symptoms. I will embed an article that you might find helpful in polishing your efforts to eat gluten free as there can be quite a learning curve involved. Some of this may be overkill unless you are a super sensitive celiac. Gluten is hidden in many food products where you would never expect it to be found and then there is the whole challenge of CC (Cross Contamination), particularly when dining out. But let me caution you about the falling of the "other shoe", so to speak, of finding out you have celiac disease. There is this great sense of relief at the front end of the experience in finally discovering what what wrong with you that was causing so much distress and discomfort. But then it begins to dawn on you that having celiac disease has a social cost to it. You can't just accept spontaneous invitations to go over to friends or family's homes for dinner or to go out to their favorite restaurants to eat with them. Some of them simply will not understand or believe that this is a real medical problem and that you must avoid all gluten in order to guard your health and be safe. You may begin to feel like a fifth wheel at social gatherings and it may cost you some friendships. I'll embed an article link on one person's commentary about this phenomenon. Just a heads up.
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