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Lotte18

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Lotte18 last won the day on March 17

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  1. icon Aretaeus Cappadocia reacted to a comment: Scientists Make Major Advance in Autoimmune Disease Therapy
  2. Lotte18
    "The car-T people utilize the same technology to collect enough T cells..." That's a lota cells! I had no idea they needed that much volume to collect from. Yikes. Thanks for the info!
  3. Lotte18
    So I just looked up leukapheresis. The Cleveland Clinic site states that this does not cure blood disorders. It's used to remove and then replace white blood cells that have reproduced uncontrollably, ie cancer. But maybe that information is not up to date? Anyway, it looks daunting.
  4. Lotte18 started following Why Some People Develop Celiac Disease Instead of Type One Diabetes? and Scientists Make Major Advance in Autoimmune Disease Therapy
  5. Lotte18
    Hi Jefferson, Can you explain what the process for extracting and reintroducing the Car-T cells is? Do they get the cells from bone marrow? Or is this more like a blood transfusion? If this study took place in 2022, what has happened since? Would love an update. Many thanks.
  6. icon knitty kitty reacted to a comment: Why Some People Develop Celiac Disease Instead of Type One Diabetes?
  7. Lotte18
    This article is fascinating. Thanks so much for sharing it.
  8. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  9. Lotte18
    I'll be tuning in to the webinar to find out. Maybe celiac isn't on their menu. Doesn't mean it can't get on the menu. You can't get rarer than ALS and they had NO gov money going for research. But then a Washington heavy weight was stricken with it. He fought to get funding. I believe the money he got came from some bill that funded the Pentagon...
  10. icon Aretaeus Cappadocia reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  11. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  12. Lotte18
    😂
  13. icon Lotte18 reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  14. Lotte18
    Forgot to forward this...just incase you're interested in joining this group... March RDLA Webinar Thursday, March 26 | 2:00pm - 3:00pm ET Click Here to Register Join us for a RDLA Webinar this month. Attendees will hear updates from recent rare disease advocacy activities during and following Rare Disease Week and an overview of appropriations...
  15. icon Aretaeus Cappadocia reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  16. Lotte18
    I hope this gives you guys a good laugh. My kitchen is so small I don't even have room for the ingredients you've just listed, let alone the baking tools you need to use. Your bread sounds delicious but, this is a city full of mice, etc. We don't leave food out overnight. Not ever. I live with what's in the freezer case at Whole Foods. Sadly, it...
  17. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  18. Lotte18
    Scott, as usual has the latest! And unlike me, he can spell it!!!!!
  19. icon Scott Adams reacted to a post in a topic: Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm
  20. Lotte18
    The short answer is yes. It does take more time and energy. While I know some celiacs who are happy to down Skittles and Cheeze Its, there are plenty of us who are eating our fruits and veggies. But we still need some form of bread. It's basic. I'm happy for you that you're not "super sensitive." Count your lucky stars!
  21. Lotte18
    Hi Aretaeus, Sorry to hear you didn't get into any of the trials. But I assume if they can turn people away they're getting enough candidates. And that's good news I suppose. I thought about several of those as well, but I just balk at the idea of placebos. It's one thing not to get the drug, in let's say, a cancer trial. But for us to not get the drug...
  22. Lotte18
    That's great. Now I'm curious as to which trials you're thinking about being in. And I'm doubly hopeful your child will have a celiac free future!!
  23. Lotte18
    I'm sorry Trents but I just don't have the time or the energy to make everything from scratch. Nor does my NYC apartment have enough space to do so anyway. I rely heavily on prepackaged bread. And when they have a batch problem, I get glutened. I've even been glutened by gluten-free bread from the Farmer's Market. And that's a $20 farm-to-table loaf...
  24. icon Aretaeus Cappadocia reacted to a post in a topic: Prospective CRISPR research
  25. Lotte18
    I just wouldn't use the term remission. Some people might think that after a gluten free, symptom free, 2 years, they get their pre-celiac life back and return to eating gluten. Just a thought.
  26. Lotte18
    I'm afraid that's what the problem is. So sorry you got glutened. I'm afraid that until we get a viable treatment, we will be subject to countless gluten potholes! No need to apologize. The gluten free diet is impossible.
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