Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


cyclinglady

Moderators
  • Content Count

    9,167
  • Joined

  • Days Won

    386

cyclinglady last won the day on July 6

cyclinglady had the most liked content!

About cyclinglady

  • Rank
    Star Contributor

Profile Information

  • Gender
    Female
  • Interests
    DGP IgA positive only, Marsh Stage IIIB
  • Location
    CA

Recent Profile Visitors

32,613 profile views
  1. “I Be Stumped.” I think too many doctors use an IBS diagnosis as a catch all. They should look for the root cause, like Scott said.
  2. Yes, you can develop ataxia if your celiac disease is untreated. It is also possible that active celiac disease will cause additional autoimmune disorders. I developed my third autoimmune after a gluten exposure. Not fun. And we will not even talk about cancer. I am sure your doctor let you...
  3. What foods does he like to eat? Five year olds can be picky. Encourage plenty of fresh veggies and fruit. Does he have a lactose intolerance? If not, dairy is a good choice. Is the rest of the family gluten free? Consuming gluten in front of your celiac child can be hard. For example...
  4. I am sorry that you are unwell. I would suspect that your celiac disease was activated two months ago or even earlier causing your lactose intolerance. When was the last time you have celiac antibodies checked? Have you had a repeat endoscopy? Symptoms for celiac disease can...
  5. The IgA by itself, is not a celiac disease test. It measures Immunoglobulin A. When testing for celiac disease, the lab/doctors use this test as a control test. For example, one of the celiac disease tests is the TTG IgA. If you do not make IgA (but you do and are in mid-range) then this TTG...
  6. Welcome. Sure, get tested. I am the first one in my family to be diagnosed with celiac disease. Make sure you are consuming or have been consuming gluten daily for 6 to 12 weeks or the tests will be invalid. Here are the tests: https://celiac.org/about-celiac-disease/screening...
  7. You would think an ER would run a standard glucose test, but you never know. The perplexing thing is that the OP had a hole in his/her gut on a scan. I think that is why the endoscopy was ordered. Hopefully, they also checked for celiac disease. You have been here a long time. Ever...
  8. Whatever you can tolerate, but a minimum of one slice of bread per day or equivalent. Make sure you get a complete celiac panel (TTG, EMA and DGP and make sure you are not IgA deficient.
  9. The TTG is the standard common screening test for celiac disease. It is good, but does not catch all celiacs. If still on a daily diet of gluten, you could ask for the EMA and DGP tests (IGA and IgG versions). But I would suggest waitIng for the endoscopy results. Again, a hole in the small intestine...
  10. No chance in weight. But my husband had been gluten free twelve years before my diagnosis, so I already knew the diet. It was a huge advantage. I also recognized many of my intolerances and allergies long before my diagnosis. How much fat with that meal? I live on butter. 😆 ...
  11. Sorry, I can not help you with meds for indigestion or reflux. But I can offer a few suggestions that work for my gastritis. Consider 12 hour fasts. Not eating anything after dinner helps so much. It gives your GI tract a rest. Sleep on a wedge pillow or elevated helps too. No spicy foods until...
  12. Under one of the types of hypersensitivity, is mast cell issues. Research Mast Cell Activation Syndrome. It can be life-threatening or mild. It is relatively new, so many doctors are not aware of it. My allergist suspects I have MCAS, but since it is mild, we decided not to pursue a formal diagnosis...
  13. I am guessing that the 250 result means that the lab can or does not measure anything higher. It could be 720 or 1000! I get that result myself. I say it is “off the charts”. Like Scott says, do not alter your diet. Keep consuming gluten until your GI tells you otherwise (not your GP/...
  14. Hey, I remember that I did take some enzymes for lactose, several years ago after a gluten exposure. If I recall, it worked. I used Country Life which is certified and vetted by old members.
  15. When researchers came up with 20 ppm standard in the US, the study it was based on was about 60 people. Tiny. But at least it was a start. if you have healed and have a tiny gluten exposure through cross contamination, you might not know it. Some celiacs are asymptomatic. I think...