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cyclinglady

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Everything posted by cyclinglady

  1. Too bad your GP was not aware that all celiac testing requires you to be on a full gluten diet. Your GI seems to be misinformed as well. A gluten challenge requires a patient to go back on gluten for six to 12 weeks. It can take that...
  2. Nice to hear she is improving. Zonulin (as discovered by Dr. Fasano (PED GI/celiac expert at Massachusetts General/Harvard and team) is higher in Celiac patients. It plays a role in the gut acting as gatekeepers. Too many Zonulin...
  3. I am sorry that you have been struggling with your son’s health issues. While you are concerned about a celiac diagnosis and the possibility of having to put him on a gluten free diet, you might have discovered the root cause of all your s...
  4. I buy it. I do not use the packet though. Too sweet for me. Save the bone and scraps for soup.
  5. I pretty much do not drink as I have autoimmune gastritis now. 😥. However, distilled alcohol is gluten free, while brewed (beer) is not. As Rose stated, cross contamination could always occur especially if flavors are added. I used to...
  6. cyclinglady

    Getting a DX

    You can trial the gluten-free diet (it will not hurt you), or keep working to figure out a diagnosis. White blood cells in the gut can be attributed to many things besides celiac disease. https://www.cureceliacdisease.org/wp-content...
  7. Yep, Ennis gave you the standard length of time. If you can stand it, add an extra week for insurance. But that is not based on medical evidence, but my own personal opinion (though the range used to be 2 to 6 weeks). All celiacs are...
  8. cyclinglady

    Getting a DX

    You are a bit low on Immunoglobulin A (IgA), but this test is used as a control test to validate any IgA test used for celiac disease (e.g. TTG IgA). Your results indicate that you do not have celiac disease. But some celiacs are seronegative...
  9. Welcome! Please do not freak out. It is a lot to take in. First, you probably do have celiac disease. You tested positive on four celiac blood tests. The small intestine is vast. Like bigger than a tennis court. If you...
  10. I applaud you for doing a gluten challenge! It can be tough. I never experienced a challenge, but I have been glutened and it is awful. I would let your GP attempt the skin biopsy if he is willing. You can still pursue an intestinal...
  11. So true! I had a recent repeat endoscopy which revealed very healthy healed villi and my GI went in deep, my DGP IgA was persistently elevated even after a strict “Fasano” gluten-free diet. The blood tests are good, but not perfect.
  12. Fibroids? Me too! Happy to report that menopause solved them.
  13. cyclinglady

    Sick after decorating

    @healthysquirrel @Elliottohonedhome This was just published on celiac.com today, but this little girl was very ill. The gluten-free Diet was not helping. Turns out living where wheat is being farmed (Kansas) was the culprit...
  14. Did you talk to the GI about seronegative celiacs? That you had been gluten free at the time of testing? I encouraged you previously to remain gluten free until you could do a gluten challenge at the winter break or summer since you were...
  15. Two positives, even weak, are probably accurate and are not false positives. But who knows? My GI told me I had a weak positive (just a positive on the DGP IgA). Biopsies revealed some pretty severe damage though. I get it. Denial...
  16. cyclinglady

    Severe Fatigue Ruining Life

    Symptoms for many illnesses often overlap. So, it is impossible to guess what might be your issue. You can rule out celiac disease by getting tested. Ask your doctor. In the meantime, keep eating gluten or all the celiac disease tests...
  17. Whatever you do, keep consuming gluten daily! This is critical for the endoscopy which is being done to obtain intestinal biopsies. Make sure your GI takes four or more biopsies in the small intestine (more if he sees some inflammation...
  18. It seems like you are doing the right thing by getting intestinal biopsies. Make sure your GI takes the appropriate amount and from the right locations. Have that conversation with him or her in advance, even if it is an email. Start googling...
  19. cyclinglady

    When you decide to eat gluten anyway

    Sorry, but your doctor should have known that ALL celiac disease testing requires you to be on a daily diet of gluten. Learn more: http://www.cureceliacdisease.org/screening/ https://www.mayoclinic.org/diseases-conditions...
  20. cyclinglady

    Celiac and Neuropathy

    Please research gluten ataxia which is a very real condition, but not well known. If you suspect ataxia, then a very strict gluten free diet can help. Really strict. Do not eat out and avoid even processed gluten-free foods until you...
  21. cyclinglady

    Seizures and celiac

    No way you are hogging this post! We are bound to help someone else. I am sorry that I sounded so harsh. It was not my intent. I am glad that you are out of the hospital. I can imagine just how frustrated you are not knowing what...
  22. Consider posting your question in the forum section. You might get a better response. 😊
  23. cyclinglady

    Silent Celiac glutened

    While it is hard to remain gluten free, there are significant benefits for a celiac. I personally remain gluten free because I do not want to develop anymore autoimmune disorders or cancer. I went in for a routine colonoscopy (yep...
  24. cyclinglady

    December 2018

    Nice to have new sheets! Hey, consider joining a group of any kind. We do not celebrate birthdays anymore (adults), so I am not the person who can emphasize with you on that issue, but socializing is important. Consider a volunteer...
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