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Awol cast iron stomach

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Awol cast iron stomach last won the day on June 15 2022

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    Midwest, USA

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About Me

NCGS, 2 week gluten challenge/scopes (6 days eating the poison)-2016

Orthostatic Intolerance- 2020

Nickel Allergy (determined new glasses contact dermatitis) 2022  This likely has been with me longer than known.

 

  1. Excellent thread topic. In the area I live there is only one food bank to my knowledge that has gluten free packaged foods. So in regular circumstances support agencies have limited gluten-free stock. For myself I would not be able to utilize likely many of the potential products they would have. I have additional intolerances, Corn is still an issue for...
  2. Hello. I was misdiagnosed for decades as IBS. As trents said many of us may not fit the "typical" profile, and were missed. My cousin is a gold standard celiac, and they took too long to diagnose her as well. I definitely had signs before official diagnosis, but it was often times dismissed, and/or minimized. Having the genetic component with...
  3. Oh Ms. Emily this quote is straight from my history too. "...being told my symptoms were just stress and IBS related.." It does get better both Scott and Trent have given excellent advice. I had 13 intolerances after diagnosis . I now have it down to gluten, and corn. I only recently got milk back. I still use nut milk, but do enjoy cheese or ice...
  4. I am sorry to read, your daughter still has issues despite her removing gluten from the home. Most of us also have to do a whole foods diet to avoid cross contamination from processed foods on shared manufacturing lines. Many of us avoid eating out to avoid cross contamination at restaurants. Lastly, we also have to take care to avoid gluten cross contamination...
  5. I modified my diet for years in addition to gluten, as I had multiple food intolerances post gluten challenge. I still watch my histamine levels particularly during allergy season, as I have environmental allergies as well that can increase my histamine load. As others mentioned I also maintain nutrition/supplementation as well. Lastly, I regularly have...
  6. "I don’t eat food from airplanes. It’s not worth the risk and so few people are aware of celiac disease and truly understand. " Agreed I have gotten sick on a flight, and then had flight attendants banging on the bathroom door because I went to the bathroom too much. It was an unpleasant flight experience.
  7. Their general faq info states regarding the Cetaphil product line "Although the ingredients in our Cetaphil skincare range are not recognized gluten sources; we do not test for trace amounts of gluten that may be present in the ingredients or as a result of the manufacturing process. Additionally, ingredient suppliers may change. If you are a celiac...
  8. Welcome to the forum Britt. I am glad you have a Dr. looking into this for you further. Trents gave you excellent information. I just wanted to chime in as I was long misdiagnosed IBS by symptoms only. I am diagnosed NCGS with additional food intolerances. I have a cousin who is Celiac. I was unable to complete my 2 week gluten challenge when I had my scopes...
  9. Not sure if this will be helpful. I am labeled NCGS. I was to complete a 2 week gluten challenge for both scopes. I failed. I made it 6 days of my 2 weeks.I also competed Ig E testing before, and food challenge/elimination diet after scopes. I developed additional intolerances during that time period. It took me 2 years and 4 months to feel normal again with...
  10. Is the Dr willing to put NCGS in the medical chart based on all the medical history and past tests? Are you willing, and able to be strict with just that label? Will your Dr's and medical providers honor that label? Will they help maintain your health and support it? It does sound like in my opinion you know that you should avoid gluten. If you are committed...
  11. "Last year, I gained 20 pounds in about two months. " Hello & welcome. I read wheatwacked and trents gave you excellent advice already. I just wanted to let you know I am NCGS, and experienced edema/bloating distension that had me appear to have gained weight during my undiagnosed time. So I am glad to read you are on your path to potential...
  12. I use my symptoms to guide me. Even though, I have been gluten-free for awhile my system can get riled up. Recently, I got some new prescription glasses, a Nickel allergy has arrived (likely had it longer, but I couldn't figure it out, and off Dr's radar. Despite it being contact dermatitis episode, it ramped up my innate immune system. So even now 3 weeks...
  13. I am labeled NCGS. I had high amounts of eosinophils and lymphocytes. I had inflammation starting at my esophagus, my stomach was horrible to the naked eye, then they got to the intestines. They initially were concerned I might have Barrett's esophagus although I don't match the particular profile. The pathology results revealed it was not Barrett...
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