My daughter is celiac, she had the Moderna vaccines dose and now, she has Chronic Pericarditis. She is almost twenty five year old.

[Kurzemiete]

I am sorry guys for a lack of more cohesive or less emotional post. I just can't. It's a very devastating prognosis and she has a cardiologist. She is almost 25 years old, in the prime of her life.

She never had any heart problems prior to the vaccine. It started shortly after the second dose. As an FYI, my elderly (80+ years) dad also has side effects from Pfizer, first dose, he had intermittent low blood pressure which led to the  intermittent dizziness. Today, he want for his second jab. I pray he will be OK. 

I am very much lost, petrified, and angry with regards to what his happening with my daughter. There is NO Place to find support. Those places don't seem to exist, as everywhere I look online it always negates and even ignores  the BAD and SERIOUS side effects of vaccines.

I understand I am fully cognizant that they are rare, that is excellent new, for the majority of people! I an of course glad for them.

But for people like MY FAMILY, we are not in this group. We are the ones who got the short end of the stick, with ZERO support, ZERO advice, ZERO road map. What do I do, what does she do???

 I have multiple diagnoses, from Celiac, C-PTSD, Epstein Barr, restless leg, Sleep problems, Rheumatoid arthritis. I can't take milk or soy. I am as of very recently on a very strict eating regiment, as my rheumatoid arthritis in my hands have been giving me a hard time and the joints are looking not great. I am fifty years.

Suicidal ideation has been a problem for me since I was 16, and for the first time in a very long time cutting out those BAD foods, I actually felt better. Mental calm is new to me.  This really was encouraging. I have to get better for myself and my child. 

She is on OTC pain meds, also the standard Colchicine, which her GI does not tolerate well. She can only take 1/4 - 1/2 pill, or as she told me ' I spent all day on the toilet'.

If there are any of you here who can help me to help her, I am very grateful. Thank you for your time.

[desirun]

7 hours ago, Kurzemiete said:

I am sorry guys for a lack of more cohesive or less emotional post. I just can't. It's a very devastating prognosis and she has a cardiologist. She is almost 25 years old, in the prime of her life.

She never had any heart problems prior to the vaccine. It started shortly after the second dose. As an FYI, my elderly (80+ years) dad also has side effects from Pfizer, first dose, he had intermittent low blood pressure which led to the  intermittent dizziness. Today, he want for his second jab. I pray he will be OK. 

I am very much lost, petrified, and angry with regards to what his happening with my daughter. There is NO Place to find support. Those places don't seem to exist, as everywhere I look online it always negates and even ignores  the BAD and SERIOUS side effects of vaccines.

I understand I am fully cognizant that they are rare, that is excellent new, for the majority of people! I an of course glad for them.

But for people like MY FAMILY, we are not in this group. We are the ones who got the short end of the stick, with ZERO support, ZERO advice, ZERO road map. What do I do, what does she do???

 I have multiple diagnoses, from Celiac, C-PTSD, Epstein Barr, restless leg, Sleep problems, Rheumatoid arthritis. I can't take milk or soy. I am as of very recently on a very strict eating regiment, as my rheumatoid arthritis in my hands have been giving me a hard time and the joints are looking not great. I am fifty years.

Suicidal ideation has been a problem for me since I was 16, and for the first time in a very long time cutting out those BAD foods, I actually felt better. Mental calm is new to me.  This really was encouraging. I have to get better for myself and my child. 

She is on OTC pain meds, also the standard Colchicine, which her GI does not tolerate well. She can only take 1/4 - 1/2 pill, or as she told me ' I spent all day on the toilet'.

If there are any of you here who can help me to help her, I am very grateful. Thank you for your time.

I’m so sorry. I also have not heard of any such cases in the community, with family members, or coworkers who have received Moderna.  Has anyone contacted Moderna? Has this been reported as a vaccine related injury? 

I would start contacting large university hospitals in your area to see if any are treating similar cases. If that leads to a dead end I would try Mayo Clinic.

[Kurzemiete]

Thank you for your reply.

I asked my family in Israel and there are many of them , no one has a reaction.

We are located in Canada though. 

 

Contacted  Moderna? What for? I can't imagine them caring. 

Maybe at some later point she may want to complain. Now she is living with chronic pain. I have fibromyalgia but her pain it is another level. 

[RMJ]

I am so sorry to hear that your daughter is suffering with one of the rare but real side effects of the mRNA vaccines.  The information I’ve seen online indicates that most recover from this pericarditis.  I hope that there is still a chance of recovery for your daughter.

[Kate M]

I know I just did the unthinkable by searching Colchicine on webmd, but the sides effects are diarrhea, nausea, cramping & abdominal pain. It also says if in Canada, you should report the side effects to 866-234-2345. 
Is there another anti-inflammatory she can take? 
Does Colchicine contain any gluten? Is it possible? 
As an example, Advil Liqui-Gels are a no go for me, as they contain (or used to contain - not sure if they’ve changed ingredients?) gluten and trigger a Celiac purge of my system...

Hope all of you can find some peace & healthy healing. 

[Kurzemiete]

8 minutes ago, RMJ said:

I am so sorry to hear that your daughter is suffering with one of the rare but real side effects of the mRNA vaccines.  The information I’ve seen online indicates that most recover from this pericarditis.  I hope that there is still a chance of recovery for your daughter.

According to her cardiologist, it's chronic now.

I really want to find the best one in the city. I left a message for one of the three rated best cardiologists in my big city. 

I have to hope and pray.

 Thank you for your letter. 

[Kurzemiete]

28 minutes ago, Kate M said:

I know I just did the unthinkable by searching Colchicine on webmd, but the sides effects are diarrhea, nausea, cramping & abdominal pain. It also says if in Canada, you should report the side effects to 866-234-2345. 
Is there another anti-inflammatory she can take? 
Does Colchicine contain any gluten? Is it possible? 
As an example, Advil Liqui-Gels are a no go for me, as they contain (or used to contain - not sure if they’ve changed ingredients?) gluten and trigger a Celiac purge of my system...

Hope all of you can find some peace & healthy healing. 

As for as she has been told, the other stuff is steroids. 

I have not researched if it has or not, any gluten.  I will go a search now as to the ingredients. 

Thank you for your letter.

[Kurzemiete]

9 minutes ago, Kurzemiete said:

Colchicine

According to google : 

This medication does not contain alcohol, gluten, paraben, lactose, sulfite, or tartrazine.

[Scott Adams]

How long ago did she get her second dose? It sounds like it was recently, and if so how could her cardiologist make the determination that your daughter’s case is “chronic,” rather than transient, which is true of most cases that are vaccine related? This is what I’d ask her cardiologist.

[Kurzemiete]

18 hours ago, Scott Adams said:

How long ago did she get her second dose? It sounds like it was recently, and if so how could her cardiologist make the determination that your daughter’s case is “chronic,” rather than transient, which is true of most cases that are vaccine related? This is what I’d ask her cardiologist.

Thank you very much.

I just literally now, texted her, and asked her this Q. 

 

[Kurzemiete]

19 hours ago, Kurzemiete said:

According to her cardiologist, it's chronic now.

I really want to find the best one in the city. I left a message for one of the three rated best cardiologists in my big city. 

I have to hope and pray.

 Thank you for your letter. 

 

20 hours ago, RMJ said:

I am so sorry to hear that your daughter is suffering with one of the rare but real side effects of the mRNA vaccines.  The information I’ve seen online indicates that most recover from this pericarditis.  I hope that there is still a chance of recovery for your daughter.

Can you please grant me access to what you are reading? Where are these sites?

I am in Canada. I can't find anything relating to vaccine side effects and pericarditis. It's maddening and frustrating.( Reddit, it's a place I'd rather not go to for information of this nature. )

Thank you very much.

[RMJ]

https://res.mdpi.com/d_attachment/children/children-08-00607/article_deploy/children-08-00607-v2.pdf

https://www.cdc.gov/coronavirus/2019-ncov/vaccines/safety/myocarditis.html

https://www.who.int/news/item/09-07-2021-gacvs-guidance-myocarditis-pericarditis-covid-19-mrna-vaccines

https://www.bmj.com/content/373/bmj.n1635

 

[Scott Adams]

Most cases of this go away on their own, and it is treatable. From the CDC site above:
"Patients can usually return to their normal daily activities after their symptoms improve. They should speak with their doctor about return to exercise or sports."

[RMJ]

Here is another link.  The article is mainly a risk-benefit analysis of the vaccine vs COVID which isn’t applicable to you since your daughter unfortunately has already experienced a major vaccine side effect.  But in the beginning there is a good description of what’s been seen of myocarditis, and some links to additional articles/studies.

https://sciencebasedmedicine.org/covid-19-and-balancing-the-risks-the-vaccine-or-the-virus/

[Rejoycin]

On 7/30/2021 at 2:46 AM, Kurzemiete said:

 

Can you please grant me access to what you are reading? Where are these sites?

I am in Canada. I can't find anything relating to vaccine side effects and pericarditis. It's maddening and frustrating.( Reddit, it's a place I'd rather not go to for information of this nature. )

Thank you very much.

Hello,

i am very very sorry to hear about your daughter. I almost opted out of this publication due to very weighted one-sided opinions that came across as aggressive and all-knowing rather than supportive. I have a daughter who is turning 22 this weekend and she has opted out of the vaccine going into her senior year of college. She is ready to also walk away from the university if she does not find the support in her decision. She is not anti-vac, has received all vaccines in the past but not this experimental drug.

[Misleading information about vaccines was removed by moderator]

What references are you specifically looking for, I will try to help  

I am not sure if your belief includes faith in prayer but this I _can_ do! I believe in a Heavenly Father who hears our prayers and responds.  I believe He can also take a chronic diagnose and resolve it to a healing. This post is ending with a prayer for total restoration of your daughter’s health. God knows her name and all her inward parts. I will continue to pray and watch for a confirmation her condition diagnose changes. Peace to you mom and may God’s comfort surround you. Love in Christ, Denise

Just one Reference:

https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.html

People Who Have:
Weakened immune systems

...Information about the safety of COVID-19 vaccines for people who have weakened immune systems in this group is not yet available

If you have a condition or are taking medications that weaken your immune system, you may NOT be fully protected even if you are fully vaccinated. Talk to your healthcare provider. Even after vaccination, you may need to continue taking all precautions.

Autoimmune conditions

People with autoimmune conditions may receive a COVID-19 vaccine. However, they should be aware that no data are currently available on the safety of COVID-19 vaccines for people with autoimmune conditions.  (This is on the same page that warns to take the vaccine—just a little disclaimer )

https://www.cdc.gov/coronavirus/2019-ncov/vaccines/fully-vaccinated.html

People who have a condition or are taking medications that weaken the immune system, should continue to take all precautions recommended for unvaccinated people until advised otherwise by their healthcare provider

 

[plumbago]

Celiac is not a condition for which people take immune-suppressing medications. This borders on misinformation, and though I approved your comment, I truly hesitated, as a moderator. (Not that I represent this cite in any official way, I should add.)

Further, even people who are taking immunosuppressants should get the vaccine and have been recommended to do so, including by the CDC.

[Scott Adams]

The CDC recommends that people with most auto immune diseases should get the vaccine, including those with celiac disease and diabetes. The reason for this recommendation is because they are in a group that could have a much worse outcome if they get it then those without auto immune diseases.

[AlwaysLearning]

My understanding of the side effect of pericarditis from the vaccines is that it is going to be temporary, not a life-long ailment, so I would have hope for improvement. And it is probably better than having heart damage after contracting covid, so I would not second-guess your decisions to get vaccinated.

But it sounds as if you are dealing with a lot already and one more thing isn't helping. I hope you both can get your bodies to calm down and that you can find some healthy outlets as you deal with the physical setbacks. Can you still go for walks?

Anyway, probably the best thing I can offer is a big virtual hug! Squeeeeeeeeeeze. 
 

[Rejoycin]

Dear Concerned Mom,

I was not happy with my previous reply and I  believe I was still reeling from how I felt after others lectured me on their opinions when I reached out for my daughter. Regardless of that now, I need to concur with Always Learning and encourage you to keep calm and help your daughter to do the same. Stress and worry aggravates the symptoms and does not promote healing. 
Yes, I have concerns about the job and the lack of information and knowledge of the outcome when given to young people with compromised immune systems. But your past that and although I do not have knowledge about your daughter’s condition, I do believe in a God that does. I will keep praying for your daughter. If you can share her name or initials it will help me to have a name association. May the same power the could create a human from dust touch your daughter a return her to wellness. 
Rejoy

 

[Kurzemiete]

7 hours ago, AlwaysLearning said:

My understanding of the side effect of pericarditis from the vaccines is that it is going to be temporary, not a life-long ailment, so I would have hope for improvement. And it is probably better than having heart damage after contracting covid, so I would not second-guess your decisions to get vaccinated.

But it sounds as if you are dealing with a lot already and one more thing isn't helping. I hope you both can get your bodies to calm down and that you can find some healthy outlets as you deal with the physical setbacks. Can you still go for walks?

Anyway, probably the best thing I can offer is a big virtual hug! Squeeeeeeeeeeze. 
 

I Hope and pray that what you say is correct that it is temporary and transient. That would make many things great!

Yeah. I can. Thank you so much for your kind letter! That means so much!

My fav thing to do is cycle! My 'secret' moniker can be "cyclelady2"...😆😂  I have had to change how I eat drastically very recently. I need to dump out a lot of one of my fav foods, potatoes! Yeah. Good ole nightshade will also hit the trash. So no gluten, sugar, milk, soy, nightshade. Not too much left. It's hard to live on a very strict income when you are sick and you need more variety of foods. Like, I have this book, by Sarah Ballantyne, Ph.D and her book is called The Palo Approach.  I never knew there are SO MANY kind of meat proteins, wow! I can't afford most of them. (Beans and legumes are high in Glycemic Index and they have other issues, I do my best to not eat them, it exacerbates my nervous system  and my fibro). I find her book, is very scientific for me and I don't have the patience to read it page to page to page. I just don't CARE to do that. I would appreciate,  a Coles' version, you know

I am not sure if I will ever be OK again, I am pretty sure I have rheumatoid arthritis, it looks like it and feels like it. But honestly I can't deal with more stuff on my plate, I won't get the blood work immediately. I would like to get it soon, because I believe in being proactive and that means, I need to ACT. 

Hugs, L.

[GFinDC]

Hi K,

I am nightshade free also.  Nightshade foods include potatoes, tomatoes, peppers and eggplant.  They all contain various kinds of alkaloids that can cause joint pain in some people.

My joint pain went away after a month or so nightshade and soy free.  Hopefully that will happen for you also.  But if not, being nightshade free might reduce the joint inflammation some.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/myocarditis

The link describes myocarditis, and suggests meds to treat blood pressure and possible edema.

[Kurzemiete]

On 8/2/2021 at 7:52 AM, GFinDC said:

Hi K,

I am nightshade free also.  Nightshade foods include potatoes, tomatoes, peppers and eggplant.  They all contain various kinds of alkaloids that can cause joint pain in some people.

My joint pain went away after a month or so nightshade and soy free.  Hopefully that will happen for you also.  But if not, being nightshade free might reduce the joint inflammation some.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/myocarditis

The link describes myocarditis, and suggests meds to treat blood pressure and possible edema.

Thank you very much for your caring.  My daughter has been diagnosed with pericarditis not myocarditis. But there is probably information also in that site for pericarditis too.

I really appreciate this site and the amazing people who are here to help. It has been a lifesaver when you guys helped me to DX myself and my daughter as celiac sensitive/gluten allergies, which down the road turned out,   that we are actually celiac.

L.

[Beverage]

I don't know if it works on pericarditis, but the B3 flushing niacin protocol by Dmitry Kats, an epidemiologist, has helped me in preventing sickness and overall reducing inflammation, another significant step in reducing my asthma. I also gave some flushing niacin and niacinamide to my 30-something neighbor who got break through covid, and was going down hill fast, and she recovered in 24 hours.  I had stumbled on his studies in researching B vits, as I had a lot of those deficiencies, and found this stuff on niacin and inflammation. Perhaps it will help. His id is @nia3in on twitter (sorry, not a big twitter fan, but that's the easiest way to track him down).

[Beverage]

Also, I have seen a lot of people on Reddit talking about the side effects from the vaccine in younger people. 

In Canada, you can report vaccine side effects:

https://www.canada.ca/en/public-health/services/immunization/reporting-adverse-events-following-immunization/form.html

 

[Kurzemiete]

10 hours ago, Beverage said:

I don't know if it works on pericarditis, but the B3 flushing niacin protocol by Dmitry Kats, an epidemiologist, has helped me in preventing sickness and overall reducing inflammation, another significant step in reducing my asthma. I also gave some flushing niacin and niacinamide to my 30-something neighbor who got break through covid, and was going down hill fast, and she recovered in 24 hours.  I had stumbled on his studies in researching B vits, as I had a lot of those deficiencies, and found this stuff on niacin and inflammation. Perhaps it will help. His id is @nia3in on twitter (sorry, not a big twitter fan, but that's the easiest way to track him down).

It's just confusing to me I hate twitter, its brevity. I like to READ things from A -Z in long form, not 'negative Coles' version', which to me, is twitter. 

I am hesitant to try anything which can exacerbate symptoms in me and he doesn't even have a website , does he? 

How do you know him , personally if that's not a secret or through twitter? Where are his credentials.

I am sorry, if I seem cynical, it is because I am very weary and cynical of doctors and 'medicine' and wrong 'medicine': It has hurt me and my family.