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Scott Adams

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  1. Scott Adams
    Scott Adams's post in Social rejection because of Celiac was marked as the answer   
    Celiac disease really does expose how much ignorance and bad assumptions people carry about food, weight, and chronic illness, and none of that is your fault. It is encouraging that you have found at least one truly understanding friend...
  2. Scott Adams
    Scott Adams's post in What would you do - neighbor brought gluten-free pizza from Papa Murphy's was marked as the answer   
    With the wide availability of frozen prepared gluten-free pizzas, for example DiGiorno's, it's probably best to avoid the risk of eating pizza in restaurants that also make regular pizza.
  3. Scott Adams
    Scott Adams's post in Great Value Veggies cannot be trusted. was marked as the answer   
    That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—e...
  4. Scott Adams
    Scott Adams's post in anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands was marked as the answer   
    Happy birthday—and that’s a very reasonable question to ask. Yes, secondary hyperparathyroidism can absolutely be driven by malabsorption, especially in people with celiac disease, where low vitamin D and impaired calcium absorption kee...
  5. Scott Adams
    Scott Adams's post in Have Tru Joy Sweets Choco Chews been discontinued?? was marked as the answer   
    Some of the Cocomels are gluten and dairy-free:
    https://cocomels.com/collections/shop-page
  6. Scott Adams
    Scott Adams's post in New issue was marked as the answer   
    Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade...
  7. Scott Adams
    Scott Adams's post in Blood Test for Celiac wheat type matters? was marked as the answer   
    The type of wheat does not matter for the test--all wheat contains gluten. You need to eat lots of wheat daily for 6-8 weeks before a blood test.
    This article might be helpful. It breaks down each type of test, and what a positive...
  8. Scott Adams
    Scott Adams's post in Am I nuts? was marked as the answer   
    Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation...
  9. Scott Adams
    Scott Adams's post in Challenges eating gluten before biopsy was marked as the answer   
    It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points...
  10. Scott Adams
    Scott Adams's post in Recovery from gluten challenge was marked as the answer   
    While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure...
  11. Scott Adams
    Scott Adams's post in Brain fog was marked as the answer   
    The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including ...
  12. Scott Adams
    Scott Adams's post in Gluten free nuts was marked as the answer   
    They are a sponsor here, and I did noticed a free shipping coupon: GFships
  13. Scott Adams
    Scott Adams's post in I think I am gluten intolerant was marked as the answer   
    Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a te...
  14. Scott Adams
    Scott Adams's post in Fighting for a name was marked as the answer   
    I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions a...
  15. Scott Adams
    Scott Adams's post in Gluten free beer ? was marked as the answer   
    Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
  16. Scott Adams
    Scott Adams's post in Help I’m cross contaminating myself, was marked as the answer   
    It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis her...
  17. Scott Adams
    Scott Adams's post in Celiac attack confusion and anxiety was marked as the answer   
    What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease...
  18. Scott Adams
    Scott Adams's post in Toothpaste question. was marked as the answer   
    There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered...
  19. Scott Adams
    Scott Adams's post in Taking Probiotics but Still Getting Sick After Gluten – Advice? was marked as the answer   
    Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, ...
  20. Scott Adams
    Scott Adams's post in COVID19 and getting glutened was marked as the answer   
    Your theory about a post-COVID hyper-reactive immune response is very plausible and aligns with what many in the community and some healthcare providers are observing. COVID-19 is known to cause significant dysregulation and inflammation...
  21. Scott Adams
    Scott Adams's post in Gluten Allergy was marked as the answer   
    Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are...
  22. Scott Adams
    Scott Adams's post in gluten-free stool softener needed for after surgery was marked as the answer   
    A typical CYA response--since they don't label it that way they don't test for gluten, thus can't guarantee it's gluten-free, even though no gluten ingredients are used in the product.
  23. Scott Adams
    Scott Adams's post in Is Caputo gluten free flour really free of gluten? was marked as the answer   
    We have a category of articles on this topic if you really want to dive into it:
    https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch...
  24. Scott Adams
    Scott Adams's post in Help with genetic testing was marked as the answer   
    The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1...
  25. Scott Adams
    Scott Adams's post in Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history was marked as the answer   
    I personally don't believe you have an obligation to disclose such a diagnosis with your doctor or insurance company, especially if a health insurance company can use this information against you for the rest of your life--and yes, it...
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