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Scott Adams's post in Am I nuts? was marked as the answer
Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation... -
Scott Adams's post in Challenges eating gluten before biopsy was marked as the answer
It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points... -
Scott Adams's post in Recovery from gluten challenge was marked as the answer
While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure... -
Scott Adams's post in Gluten free nuts was marked as the answer
They are a sponsor here, and I did noticed a free shipping coupon: GFships
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Scott Adams's post in I think I am gluten intolerant was marked as the answer
Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a te... -
Scott Adams's post in Fighting for a name was marked as the answer
I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions a... -
Scott Adams's post in Gluten free beer ? was marked as the answer
Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm).
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Scott Adams's post in Help I’m cross contaminating myself, was marked as the answer
It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis her... -
Scott Adams's post in Celiac attack confusion and anxiety was marked as the answer
What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease... -
Scott Adams's post in Toothpaste question. was marked as the answer
There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered... -
Scott Adams's post in Taking Probiotics but Still Getting Sick After Gluten – Advice? was marked as the answer
Based on what you've described, it is absolutely crucial that you pursue further medical exams for Celiac Disease and related conditions with a gastroenterologist. Your symptoms—especially the worsening fatigue, loss of muscle mass, ... -
Scott Adams's post in COVID19 and getting glutened was marked as the answer
Your theory about a post-COVID hyper-reactive immune response is very plausible and aligns with what many in the community and some healthcare providers are observing. COVID-19 is known to cause significant dysregulation and inflammation... -
Scott Adams's post in Gluten Allergy was marked as the answer
Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are... -
Scott Adams's post in gluten-free stool softener needed for after surgery was marked as the answer
A typical CYA response--since they don't label it that way they don't test for gluten, thus can't guarantee it's gluten-free, even though no gluten ingredients are used in the product.
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Scott Adams's post in Is Caputo gluten free flour really free of gluten? was marked as the answer
We have a category of articles on this topic if you really want to dive into it:
https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch... -
Scott Adams's post in Help with genetic testing was marked as the answer
The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1... -
Scott Adams's post in Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history was marked as the answer
I personally don't believe you have an obligation to disclose such a diagnosis with your doctor or insurance company, especially if a health insurance company can use this information against you for the rest of your life--and yes, it... -
Scott Adams's post in Question about biopsy was marked as the answer
Your experience highlights a common frustration in celiac disease diagnosis—discrepancies between lab results, biopsy findings, and clinical symptoms. The "localized mild nodular mucosa" noted in your duodenal bulb could indeed be significant, ... -
Scott Adams's post in Kirkland Quinoa allergen information was marked as the answer
If possible find quinoa with a gluten-free label--when grown in Peru or Ecuador it is far less likely to have wheat contamination. Canada increasingly is producing more quinoa, and when grown there it the likelihood of wheat contamination... -
Scott Adams's post in symptomatic ? was marked as the answer
Living or working in environments where gluten exposure is a constant risk can be incredibly challenging, especially when neurological symptoms are involved. For those with celiac disease or severe gluten-related disorders, airborne ... -
Scott Adams's post in New to gluten-free was marked as the answer
Welcome to the gluten-free lifestyle! It’s great to hear that eliminating gluten has already helped with your fibromyalgia symptoms—that’s a huge win in just three weeks. Mistakes happen (especially when traveling!), so don’t be too ... -
Scott Adams's post in Doctors and Celiac.com was marked as the answer
Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. ... -
Scott Adams's post in How to work through food paranoia was marked as the answer
The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping.
It's very important to learn to read labels and understand sources of hidden gluten, and to know some general... -
Scott Adams's post in How to interpret my genetic test results was marked as the answer
Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two allel...