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GFinDC last won the day on June 22

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About GFinDC

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Thanks for the great list Ennis!
  2. Right, the doctor is wrong. The antibodies are not present if the person is not eating gluten on a continual basis. That's why the University of Chicago celiac center recommends 2 weeks of eating gluten before the endoscopy and 12 weeks of eating gluten before the blood antibodies tests. They call this period of time a "gluten challenge".
  3. Maybe I can send some of our cats there on permanent vacation...
  4. Hi, Eat meats, veggies, buts and eggs. Skip all the processed foods and also dairy and oats for a few months at least. It can take 18 months to a couple years to heal from celiac damage. The simpler your diet is at the beginning the easier it is to identify troublesome foods. It is also good to cut way down or eliminate sugar, and carbs for a few months.
  5. GFinDC

    Help, I am so confused...

    Hi, Keep going on the gluten-free diet. It can take 18 months or more to heal, sometimes several years. Try reading the "Newbie 101" thread in the "Coping with Celiac" section. It has some getting started on the gluten-free diet advice. The best way to start the gluten-free diet IMHO is to stick with non-processed foods. Things like meats, veggies, nuts, eggs. Skip the dairy and oats for a few months. Avoid sugar and carbs. It sounds like your keto diet should be doing these things already. That's good! You also need to watch out for / avoid gluten cross contamination. Even a small crumb can cause an immune reaction. Another thing to do is have your vitamin and mineral levels checked. You may be low on some nutrients that your body needs to heal. People with celiac are often low on B vitamins and vitamin D. Sometimes iron and selenium too. I am assuming you don't want to do the endoscopy and get a full diagnosis. If you are planning to do the endoscopy you should be on gluten for a couple weeks ahead of time.
  6. Hi, yes, you can have an allergy and a food intolerance. Allergies are IgE immune reactions, food intolerances are IgA or IgG immune reactions. You can get tested for allergies with a skin prick test. They test for celiac disease with a blood test first, and then an endoscopy later. The celiac blood tests are: DGP IgA DGP IgG EMA IgA Ttg IgA Total serum IgA Each of these antibody tests have a range of possible values that varies by the lab. You need the ranges to interpret the test results. The 2nd test is the endoscopy where they take 4 to 6 small biopsy samples of the small intestine lining. Then they check the biopsies with a microscope for damage characteristic of celiac disease. There is also the DH (dermatitis herpetiformis) test. DH is a skin rash that only people with celiac disease get. They test for it by taking a small skin biopsy from next to a lesion. DH tends to appear in a symmetrical pattern on both elbows, butt cheeks, knees etc. DH can be very itchy also.
  7. Hi, I think you have a good GI doctor! The endoscope can only reach about 5 feet into the body, so the doctor can't see much of the 22 feet long small intestine. So a negative biopsy from the first couple feet doesn't mean whole lot IMHO. Response to the gluten-free diet, either improvement or deterioration of symptoms means that gluten is having an affect on the body. Otherwise there would be no change.
  8. Pepto Bismol can also be helpful to soothe the gut. And thanks ennis_tx for joining in!
  9. Hi Mavis, A doctor might say you don't have celiac disease because you didn't get the endoscopy and therefore don't have proof of villi damage. But a little common sense would say that if you are having digestive symptoms like yours, and your symptoms changed when you went gluten-free, then there has to be some connection there. Also, being skinny is a classic symptom of celiac disease. Did you have a check of your vitamins and minerals done? Celiac damage impairs our ability to absorb nutrients so we may become low on them. Having one antibody test positive is enough to have celiac disease. Why your antibody levels vary is a good question. But our bodies are not machines and as organic things they are not made to stay constantly at war with themselves. So I wouldn't make too much of a change like that.
  10. Hi Bree, You need to avoid wheat, rye, and barley, including malt. It is best to avoid oats and dairy for a few months at the start of the gluten-free diet. Personally I would avoid soy also. The best thing though is to just stop eating processed foods for a few months at least. And don't eat in restaurants and also cook your own meals. A simpler diet is best for healing. Plus if you are getting sick from a food ingredient it is simple to figure out. Eating processed foods (like gluten-free pizza) etc you could take in 100 more ingredients in a day. That means you have to figure out which of those 100 ingredients is making you sick. Not an easy task. So I suggest you simplify your diet and learn the easy/fast way. Eating out at restaurants will slow your healing/learning down. It is better to take some food with you if you are going out. Nuts, fruit, hard boiled eggs are easy to carry around.
  11. Please don't waste your money on Enterolab. They have never submitted any proof for peer review verification. They are glad to take your cash though. I am not familiar with the MC diet. But many celiacs avoid additional foods beyond just gluten. I don't eat dairy, soy, nightshades, carrots, celery, oats. Probably a few I am forgetting. Many others here avoid other foods too. There is still plenty to eat though. Meats and veggies, nuts, eggs etc. There is almond milk and coconut milk in the stores. What is helpful on starting the gluten-free diet is to avoid all processed foods and stick with whole foods. Do all your own cooking and don't eat at restaurants for 6 months. In celiac, even a small crumb can kick off the immune system reaction. So we have to avoid cross-contamination of foods. So no shared condiments jars like mayo, peanut butter, etc. There is a very short list of ingredients on whole foods. Simplifying your diet is a good thing. The fewer foods you eat the easier it is to identify a problem food. Sometimes an elimination diet is helpful to find problem foods. We have a member ennis-tx who has ulcerative colitis. Ennis eats a keto/paleo/gluten-free/df diet. Maybe his experience would be helpful to you. He also has lots of recipes because he is a chef. I'll try and point him to this thread.
  12. Oh, I hate to say it but you are totally hosed! You have celiac disease! Or most likely do have it. The endoscopy to prove gut damage is the final test. But don't worry. The fix / treatment for celiac disease is one of the best medicines around. You eat a healthier gluten-free diet with less processed food than most people eat. More meats, veggies, nuts, eggs, etc. Your body will thank you for eating better. Eating real food instead of junk food is an improvement for most people. Wait until all the testing for celiac disease is completed before going gluten-free. The antibodies start to decline when we stop eating gluten and the tests aren't accurate then. There is a "Newbie 101" thread in the coping With Celiac" forum section. It has some good basic info.
  13. GFinDC

    Eating gluten with celiac?

    Hi, The anemia was most likely caused by celiac disease damage to your gut lining (villi). The damage caused by celiac disease affects absorption of nutrients including vitamins and minerals. So your body will begin to decline as it won't be able to properly function without adequate amounts of many vitamins and minerals. Also your immune system will begin working overtime to produce antibodies to gluten on a continual basis. That's a bad thing as a ramped up immune response may develop reactions to other foods you eat. I can't eat dairy, nightshades, soy, carrots, celery, and other foods. All these other food intolerances most likely developed because my gut was irritated and inflamed from eating gluten for years and not knowing I had celiac disease. The forum software used to have a signature footer that showed up under posts. Many members listed their additional food intolerances in the signature footer. There are a lot of celiacs who had additional food intolerances develop. Since your immune system is going to go crazy trying to "fix" the problem, you can expect your other AI condition symptoms to get worse. That is not good. Just because it is hard to do doesn't mean you shouldn't do it. Eating gluten-free does get easier over time if you stick with it. You can get used to eating different foods and even like them. There is plenty of naturally gluten-free food out there. It does take some adjustment and maybe a little adventurous spirit to eat and live gluten-free. But the payoff is great in health and wellness. If you ate gluten-free for 3 years you can eat gluten-free for 5 years. And 10 years etc. You know you can do it because you already did it.
  14. The gluten challenge is 12 weeks of eating gluten for the blood antibodies tests and 2 weeks for the endosocpy. There is also the test for DH (dermatitis herpetiformis) which is a skin biopsy. DH causes a rash on the body, often in a symmetrical pattern. The IgA antibodies are deposited in the skin and cause the rash. They test for DH by taking a small skin sample from next to a lesion, not on a lesion. Going to a dermatologist who is familiar with celiac disease/ DH could be an option. Check around your area to see if you can find a dermatologist that other people with celiac disease and DH have seen. Sometimes hospitals have celiac support groups and you might find some doctor recommendations from them. Celiac disease is not easy to diagnose but if you aren't eating gluten it is pretty much impossible to diagnose. That may change in a few years as there were new tests being talked about that may be able to do diagnosis without a gluten challenge. But they aren't available yet.
  15. GFinDC

    Gluten withdrawal

    People have reported many different symptoms of gluten withdrawal over the years. They seem to vary a lot between people. If you have celiac disease and stop eating gluten your body goes through a big change. Your immune system starts to relax and ramp down the production of antibodies. Which means it has more energy to spend on doing things like repairing body tissues. Also your gut biome starts to change drastically. As the villi regrow the surface area of the small intestine grows larger. That increased surface area provides real estate for bacteria to inhabit. So you can get symptoms from that. Also your absorption of nutrients should start to improve. So your body can get the vitamins and minerals it needs to heal and use calories. 18 months is a good time frame to think about recovery, but it can take longer.