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GFinDC last won the day on July 19

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About GFinDC

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    A little farting never hurt anybody... :-).

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    Painting drawing art!
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    Amesville, Ohio USA

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  1. Hi Jenna, There are other people on the forum who had their gall bladders removed. Sometimes for no good reason. But doctors don't always diagnose celiac disease quickly and so they try treating other things instead. If you suspect you have celiac disease it is best to get tested while you are eating gluten. Otherwise the tests don't work. The gluten challenge period is 12 weeks for the blood antibodies testing and 2 weeks for the endoscopy. It is often much more painful to get tested later on because you have to do the gluten challenge. But if the diagnosis doesn't matter to you then just stay gluten-free. It is best to start by eating whole foods and avoiding processed foods and dairy. Eating meats, veggies, eggs, nuts and fruit is good. There are tips in the Newbie 101 thread too.
  2. Hi, Welcome to the forum! Celiac testing is crappy, to be blunt. They just don't have perfect tests for it right now. Even the best tests, DGP IgA and DPG IgG have an error possibilty. Plus all bodies are not equal and can have varying levels of antibodies and damage. There is a small percentage of celiacs that don't produce IgA antibodies at all. So the IgA tests are useless for them. The endoscopy is not perfect either. The small intestine is about 22 feet long and they can only reach a few feet of the beginning part. So what if the damage is right around the corner they can't reach? The upchucking is probably caused by gastroparesis. Inability of the stomach to pass food on to the gut for digestion. Gastroparesis is a symptom in celiac disease. Actually, there are several hundred symptoms possible with celiac disease. Since it can affect any part of the body and does when malabsorption occurs. Not eating gluten should not make a change to a non-celiac person's body. So her improving after going gluten-free means she probably has celiac disease or NCGS (non-celiac gluten sensitivity). I had gastroparesis last week from eating something and upchucked my food. I used to have it regularly before going gluten-free. Some things that might help her are peppermint Altoids and Pepto Bismol.
  3. GFinDC

    Refractory 1

    Welcome to the forum moomoo! There was forum member years ago with the user name of GlutenWrangler. He doesn't visit much anymore but you could search for his content and maybe get something from his postings. Here's one of his threads.
  4. Hi, and welcome to the forum FN! I can also breathe much better after going gluten-free. Celiac disease is an auto-immune condition. My own opinion is that having your immune system cranked up to high volume in one area can lead to spill-over to immune reactions in other areas. For instance, I had pretty bad allergies before going gluten-free. After being gluten-free awhile, my allergies stopped being such a problem. Instead of buying allergy meds every week I went to only buying allergy meds a few times a year. The other thing is inflammation. Celiac damage can cause irritation and inflammation in the gut. The inflammation process though can affect the whole body. So that might have affected your breathing. It's great that you are experiencing improvements after a short time. Your body being in a constant war with itself (AI condition) takes a lot of resources (energy). So you may begin to feel more energetic also. I don't know if you were tested for celiac disease? If not, you might want to do that right away if you ever want to know for sure. It is much easier to be tested now than later. The test results depend on the immune reaction being active. I also was hungry after going gluten-free. But I didn't stay that way long. You may find that you start losing weight being gluten-free. In some people, the body starts storing fat as a reaction to being short on nutrients due to mal-absorbtion. Once those vitamin and mineral deficiencies are corrected with a healed gut, the body can go out of anti-starvation mode. A good way to start the gluten-free diet is to eat only food you make yourself at home. Eat meats, veggies, eggs, nuts, and fruit. No dairy as it is often a problem for a few months. I suggest you stick to whole foods and no processed foods. Lots of protein can be helpful.
  5. Right, and so is bloating from excessive gas produced by poorly digested foods.
  6. I get blood like that when I eat dairy. Or did anyway. There is something called casein sensitive enteropathy that can cause irritation in the gut from eating dairy. A simple test is to eliminate all dairy for a couple weeks and see if it goes away. If not you should see a doctor.
  7. I found the Aldi wraps in my local store. The regular ones are pretty good. But now they have spinach wraps too. The spinach wraps are larger than the regular kind and also thinner. They fold real well. I usually warm them up but it probably isn't necessary. In my store they are kept out on a shelf and warm, not frozen. I had to ask a worker where they were because they weren't anywhere in a cooler or freezer like I expected. But they are certainly worth a trip to Aldi for me.
  8. GFinDC

    So stressed😩😕

    I suggest you post a thread in the DH ( dermatitis herpetiformis) section of the forum. You are more likely to get responses there.
  9. I don't know your overall health situation, so I can't say if it is worth the risk. That is a decision for you to make. The gluten challenge is 12 weeks of eating gluten for the blood tests and 2 weeks for the endoscopy. Your doc should have tested you before starting the gluten-free diet. He/she isn't following proper diagnostic procedure for celiac disease. The gluten-free diet is the life-long treatment for celiac disease. Some people find it easier to stuck with the gluten-free diet if they are officially diagnosed. For others it doesn't matter.
  10. Yes. It can take up to 18 months to heal the gut or more. Your body will slowly stop making gliaden antibodies over the next months. But it may take several months. The immune system is very sensitive and alert for problems. So even a tiny crumb of gluten will set off the a new reaction or prolong an existing one for weeks. You have to be aware of cross contamination too. That includes things like a jar of peanut butter that was used before going gluten-free. It will probably have residual gluten in it. A stick butter is the same problem. Kissing a gluten eater before they brush their teeth, same issue. It is safer to start the gluten-free diet by eating whole foods you cook yourself at home. Eating things like meats, nuts, eggs, fruit and veggies, but no dairy. It can also help to cut out sugar and carby foods like bananas or white potatoes. The first 6 months are often a learning period and adjustment. It gets easier after that IMHO. Did your doctor test you for celiac disease? He should have run a complete celiac disease test panel before you went gluten-free. He also should have set up an endoscopy to check for gut damage.
  11. Welcome John! We are glad you joined us! :)
  12. There reasons other than gluten not to take Advil. This thread has some links to info on kidney damage and ibuprofen. It is always a good idea to check on possible side affects, even with commonly used medicines.
  13. Screw your Dr. in this particular case IMHO. Take the Pepto, and take some aspirin or some wine if it helps. Also, lots of water, and soothing, easy to digest foods. Peppermint Altoids or peppermint tea can help with stomach gas and pain.
  14. Right, the gluten challenge is 12 weeks for the blood tests, 2 weeks for the endoscopy. So you didn't eat gluten long enough for the antibodies to build up in your bloodstream. The blood tests were invalid and can't be relied on. I don't have NCGS myself, but the symptoms can be similar to celiac disease. The difference is there is on damage to the gut in NCGS. There is also a gene test they can do for celiac disease. The gene test doesn't prove you have celiac disease, just that you can develop it. So it kind of puts you in the pool of possibles. There aren't any tests for NCGS because they don't have any clear idea what causes it. One theory is that it is caused by a reaction to FODMAPS in foods. My own guess is that you have celiac disease though, based on your symptoms. I am not a doctor though.
  15. Hi, It's not unusual for symptoms to vary a lot for the first 6 months. What I would do if my symptoms suddenly worsened is to re-examine everything I'd eaten for last several days. It's easy to get contaminated by something with gluten. Some companies are better at excluding gluten than others. One thing to watch out for is eating too much of the same foods every day. That can sometimes lead to developing reactions to that food. Also, I suggest you do drop soy from your diet. Soy is not really good for us and it is put in all kinds of foods. Soy is a top 8 food allergen in the USA. It is helpful to eliminate all sugar and carbs from the diet also if you are experiencing gas and bloating. The better way to eat is to stick with whole foods you cook yourself at home.