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SLLRunner

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SLLRunner last won the day on October 29 2016

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  • Kathy951

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  1. SLLRunner
    Hi, Welcome. Have you taken your son to the doctor yet? If you believe gluten is his problem, then I suggest you talk with your doctor about getting him tested. Could he be behaving badly due to reasons other than diet?
  2. icon Rowan13 reacted to a post in a topic: Get your affairs in order
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  4. SLLRunner
    Alison sounded like she was a wonderful person. May she rest in peace.
  5. SLLRunner
    Welcome, @Chase80. As your doctor to refer you to a celiac saavy GI and start with the full blood testing for celiac. Do not go gluten free until all testing is complete, otherwise results will be invalid. I was diagnosed with GERD and Gastritis and medication has not helped a bit. In fact, it seemed to make it worse and I stopped taking it. Unfortunately...
  6. SLLRunner

    Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.

  7. SLLRunner

    Oh man, 3 weeks into the gluten challenge-my body is sore all over, my head is foggy, and the bathroom and I have become good friends. This may be TMI, but it's fair warning to those who need to be tested for celiac to not go gluten free just to try it out. 

  8. SLLRunner
    Lisa, hang in there. You can do this!
  9. SLLRunner
    Lisa, Thanks for sharing all that. It seems to be there is a whole lot of disbelief in from your PCP and some of your family regarding your celiac diagnosis, and a whole lot of you trying to convince them it is accurate. The bottom line is you have celiac and you do not need to justify it to anyone. It is what it is. Your health comes first. I...
  10. SLLRunner
    Hi Lisa, Didn't you have your medical records sent to your new PCP? If you received a celiac diagnosis from another doctor, she would be able to see that. I suggest sending your medical records to the new doctor if you have not already done so. That said, can you look for another PCP? I would personally be uncomfortable with one who questioned...
  11. SLLRunner

    Digestive problems continue with the gluten challenge, and they are getting worse. Doctor said 4 weeks of gluten for the blood tests, and other information says 8 weeks minimum, but I don't know if I can go much longer.  At least allergies to the 20 most common foods  are now ruled out. For me, that's a step forward. 

  12. SLLRunner
    Some people with celiac can't tolerate even gluten free oats. Is this the first time you've had such a reaction? What other ingredients were in the cookies? Could you have had an a reaction to something else in the cookies?? Is it possible there was an unintentional gluten cross-contamination?
  13. SLLRunner
    Welcome, Bunty! This conversation is pretty old, and the person you quoted has not been here since 2014 so she/might not see this to answer. I have not experienced this particular issue.
  14. SLLRunner

    Today is day 9 of the gluten challenge: I have enough gas to fly me from Cali to Ireland nonstop, but I'm way to tired to go. I itch (no rash), and I feel bloated as anything,

  15. SLLRunner started following GFinDC
  16. SLLRunner
    Maybe it's the oil or the seasoning.
  17. SLLRunner

    I had a telephone conference with my doctor yesterday about the continuing digestive problems, and I now have an appointment with her on Wednesday. I told her I have eliminated gluten from my diet and am starting to feel much better, so I'm pretty sure my problem is wheat and/or gluten. Hence, another appointment. Blood tests were never done prior to the endoscope because my heartburn was so severe that they wanted to do find out what was going on. The report says the GI did only one biopsy of my intestine, which is not enough to tell anything. 

    1. Show previous comments  1 more
    2. SLLRunner

      SLLRunner

      Thank you. I don't think they are celiac saavy. I may have to look outside the Kaiser system, and I know I have to start eating gluten again for 2 to 4 weeks prior to the testing. Mt PCP was confused as to why the GI doctor did not test for my digestive difficulties, considering I told him about my gluten concern and he read my chart which has plenty in it. I may have to look outside the Kaiser system for a GI doctor.

    3. cyclinglady

      cyclinglady

      See my private message.  

    4. SLLRunner

      SLLRunner

      Thank you!

       

  18. Kathy951 started following SLLRunner
  19. SLLRunner
    Bartfull, I am fairly new here, but I am at a loss for words. You are an incredibly brave person. I send love, light, and many hugs your way.
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