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bartfull

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bartfull last won the day on September 12 2016

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Profile Information

  • Gender
    Female
  • Interests
    Guitars, jazz and classical music, reading, drinking coffee with my friends, snuggling with my cat.
  • Location
    The beautiful Black Hills

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bartfull's Achievements

  1. Greetings, how is it going?

  2. Keep pursuing this. It's not normal and you need to get to the bottom of it ASAP. We kept goofing around with antibiotics (at my own insistence.) until it was too late. I'm not trying to scare you. It might very well be a bad infection, but mine turned out to be cancer.
  3. Hmm...my affairs in order. OK. Alan on Sunday, Bob on Monday, Steve on Tuesday...Oh, not those affairs. OK, now that I've softened things with a lame joke, the doctor really did say that. Turns out I have terminal cancer. Lymph. "Very advanced". They say they can't cure me but they might (MIGHT) be able to prolong my life. No thanks. There's a reason...
  4. Even if you can never be tested for celiac, it would be a good thing to know if you have an actual allergy for two reasons. One, so you can get an epi pen in case you get exposed by accident. And two, so it can go into your medical record. If it's written in your record and you end up going to the hospital for any reason, they'll be really careful that they...
  5. If any Kraft product has gluten, either as an ingredient or used in processing, it will say so on the label. Kraft even goes so far that if they process gluten ingredients on the same line or facility, they will tell you. Kraft is a VERY trustworthy company. They are the good guys. I wish all companies had their policy. As far as modified food starch...
  6. Karen, when I first came here there were some awesome people who helped me. I truly believe they saved my life, and I know they saved my sanity. I stuck around because I am still learning, and because I wanted to pass it forward. I hope you too stick around. It won't be long before you will be helping newbies and passing out hugs to folks who feel as...
  7. Odds are they DO. Celiac runs in families and it is recommended that all first degree relatives (parents, children and siblings) of celiacs be tested every two years. You can't control what friends and family do in their houses but you must insist that NO gluten ever be brought into your house. If MY sister had brought it into my house the way yours...
  8. Yep, this IS the right place. For those who are wondering what this is all about, Karen replied to me personally on my profile page. She couldn't find this thread again, but I gave her a link so she could benefit from everyone's advice. Her gluten response seems to be DH or something similar. I mentioned iodine and sent her to the DH section. In...
  9. Karen, you told me you get the rash when you get glutened. Has the rash been diagnosed as DH? If so, it could be that iodine is making it worse. People with DH can get flares off and on for two years or more, even if they don't get glutened, and a diet high in iodine can make it worse. Go on over to the DH section here and read as much as you can. You'll...
  10. Hi. I read the same thing and yet everytime i come in contact with gluten despite washing my hands, i first get the rash then the nausea, abdominal cramps and bloating.  The last couple of times this has happened has gotten me to thinking there's something else going on.  However, that said, the rash that i get is the same rash ive had for years before my diagnosis and appears only when Ive been exposed. Got any ideas?

    1. Show previous comments  4 more
    2. bartfull

      bartfull

      Yes, just go to that thread, scroll down to the reply box and then after you've posted, hit submit - just like you did for your first post.

      While you're there, give us a bit of info about yourself, such as if and how you were diagnosed. Was it through blood testing, endoscopy, or biopsy of the rash? Or perhaps you are like many of us who are self-diagnosed. (There's nothing wrong with that. A lot of doctors are clueless about celiac and many of us never got an official diagnosis.)

      You are NOT alone. We will help you, and we will also give you a shoulder to lean/cry on. (((((HUGS)))))

    3. Karen P

      Karen P

      I havent gone anywhere. Still trying to find the original post I replied to while switching from my |Tablet to my Notebook.  Also, I checked out the DH pics and compared those to what I get and it's indeed DH on my butt.  So not nice.

       

    4. bartfull

      bartfull

      Here you go: http://www.celiac.com/gluten-free/topic/91020-does-anyone-know-how-to-kill-or-inactivate-gluten/#comment-953610 

      Just click on the link and it'll take you there. Then scroll down to the reply box.

      They redid this site a week or so ago and it's harder to navigate now. What I do is click on the "all activity" button in the top left hand corner and it'll show any posts made anywhere on the site starting from the latest made. As you scroll down you will see older posts. A lot of the really old threads are no longer active and some of the info (especially about foods and brands that are gluten-free) are no longer valid because companies change their ingredients a lot over time. 

      But anyway, if you go to that "all activity" button you should be in good shape.

       

       

  11. You can't get glutened by merely touching gluten. The molecule is too large to pass through the skin. Think about it - if touching gluten could get us sick, we'd ALL be sick all the time simply from going to the grocery store or visiting friends. The solution is to be diligent about washing your hands EVERY SINGLE TIME you plan on popping something into...
  12. Um, could I make a suggestion? If your husband is the only one in your home who consumes gluten, why not segregate his dishes and YOU wash them by hand? That way the kids can continue using the dishwasher for the gluten-free dishes, and you will be assured there is no contmination.
  13. Paper plates are fine. Trust me. How long has he been gluten-free? It could just be that he hasn't healed yet. Or it could be that he IS somehow getting CC at daycare. Perhaps it's as simple as touching the gluteny hands of a playmate, then putting his hand in his mouth. Or he could be getting it from a gluteny toy. How about his meds? Supplements...
  14. You may very well have actual celiac. It is the endoscopy, not the colinscopy that is used for diagnosis. The doctor takes biopsies of the small intestine. And because the small intestine is so large and the damage is often spotty, he may have missed the part that was damaged. But even is what you have is gluten sensitivity, it makes sense that your symptoms...
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