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bartfull

Get your affairs in order

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Hmm...my affairs in order. OK. Alan on Sunday, Bob on Monday, Steve on Tuesday...Oh, not those affairs. :lol:

OK, now that I've softened things with a lame joke, the doctor really did say that. Turns out I have terminal cancer. Lymph. "Very advanced". They say they can't cure me but they might (MIGHT) be able to prolong my life.

No thanks. There's a reason they tear a bandage off fast instead of going slowly. Fast might hurt but only for a second. Slowly hurts for a long time. And as far as I'm concerned they wouldn't just be prolonging my life but they'd be prolonging my suffering. I'm just going to let things follow their course. I've got pain meds, I've got a ton of loving friends who will do anything they can to help me. I'll get Hospice in later when the time comes. It's all good.

Jarrett is going to take over the shop for me and even though it's just ego, it's nice to know the thing I started will carry on after I'm gone. Bonnie is my best friend who brought me and Patches together and she has promised she'll find him yet another good home.

And I'm happier and more at peace than I've been in a long time. No more wondering. And when I leave here I'll be going home to God. What could be better?

There really are much worse things than a diagnosis of terminal cancer. There was a guy who used to come by on his motorized chair and talk to me sometimes. His fingers were so twisted with arthritis he couldn't get in or out of bed, he couldn't dress himself, cook, or even blow his nose without help or extreme pain. And he went on like that for YEARS. Nope, what I've got is so much easier.

Anyway, you know how sometimes people disappear from an internet forum and you wonder what ever happened to them? Well I didn't want you to wonder about me. And I want to thank everybody here for the good advice and the many friendships I've developed. I may chime in again if I think I can be of help to someone, but for the most part I'm going to lay low. You don't need a blow-by-blow account of my progress and I won't burden you with it.

So yeah, thanks and great big (((((HUGS))))) to you all. :)


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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((((((((((((((((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))))))))))))))

You will be missed. You have been a great help to many. Sorry you got such news.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Oh!  Barty!  I am so sorry!  I will miss you.  I loved to think of you in your store.  You always sounded so happy there.  I had hoped to stop in some time. 

 

thank you for letting us know

Edited by kareng

 

 

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Karen lit the super silly signal....I'm thankful she did.

So very sorry to read this news.

You sound at peace which shows what a remarkable person you are....you will be missed by those you've helped as well as those whom have shared time with you... in the real world or through our keyboards.

Many hugs for all your days left on this rock...and when it's time to go, please send one up to Shroomie for me : )

Ad Astra Dear Bartie.

 

 


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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I'm so very sad to hear this.  You will be greatly missed.  You've been a wonderful source of comfort and inspiration to many...myself included.  Thank you for everything you've done for us all.  I'm crying typing this....so hard to hear.  I do hope you continue to chime in...your wisdom is invaluable. 

Love and (((((((((((hugs)))))))))))


January 2014-Celiac

August 2014- Hashimoto's

"You never know how strong you are, until being strong is your only choice."

Bob Marley

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o, barty, what can i say :((((((((  i am so sad :((((((((((  won't you at least try treatment :(((((  my daughter's boyfriend was dx/d  w/lymphoma stage 4 and that was 5 years ago and he is fine.......  :/  they are doing magical things with meds/treatments lots of new stuff ???


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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Dear Barty,

Dear Barty, dear Barty, dear Barty, dear Barty. I love you. I will remember you. Whenever I think of you, I think of you in your store, happy, with lovely music filling the air, or at home with Patches in your lap and you feeding him from a spoon. I will always think of you these ways.

You will go to your reward from your beloved Black Hills and you will go home and you will be with your dearest husband again.

Godspeed friend!


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Hi Bartfull,  just popped over to say I wish you peace.  I remember you as such a positive presence on this board.  


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Bartfull, I have always admired your attitude and even more so now.  I hope you are surrounded by family, great friends and enjoy every day to your fullest.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I am sorry to hear that Bartfull.  But there is definitely a better place to be than here.  I said a prayer for you in Jesus name.  I hope you enjoy your time remaining here.  It's been great having you around the forum helping us out.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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I cannot imagine this forum without our bartfull.   :( You are such an integral part and always dispensed the very best advice. I always admired your attitude regarding the challenges that were thrown at you and am so grateful for all the great posts you made. Your acceptance and peace are amazing and to be admired. God Bless you and know how loved you are here. You are one special soul.

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Bartfull,

I agree with and fully endorse your choices in how you plan to navigate the end of your life.  Smart woman.  That said, I will really miss your words and energy on this site.  Even though I've only been here for a short time, your news made me cry.

I hope I have as much notice as you when my death comes.  I want to avoid (as much as possible) the medical system when it's my time to die.  I worked in a hospital and saw many people who were not as fortunate.

I wish you peace, independence, and freedom from pain while you navigate the end of what has obviously been a wonderful life.  You have won the most wonderful gift--the love of so many people.

I send my love to you also.

Beverly

 

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Dear A.

You've always been one of my favorite people on here. I admire your courage, humor, and great faith. I have always pictured you enjoying your guitar shop, your kitty, and your home because you always told me how much they gave you pleasure. You've been an inspiration to me and to so many others on here during the last few years and you've helped more people than you may ever realize. That's your gift.

It doesn't surprise me that you're facing this final challenge with the same grace that you've handled everything else thrown in your path. My first response last night when Karen told me your news was "well F you, celiac, quit  taking our peeps!" (because you know I shoot from the hip) but as I read your words this morning one more time, I can see that you've already decided to handle this last challenge with the same "Barty attitude" that I admire so much. 

You're a true warrior princess and I agree with Gemini: You are one special soul and I am so glad our paths crossed. 

xoxo

G. 


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Bartful, 

Like Scarett O'Hara, I decided to "Think about it tomorrow." in the hopes that I could write a response that would best describe my feelings and thoughts. Well, a few days have passed and it is not getting any easier!  

I respect your decision regarding your healthcare and  I am so sorry that this is happening to you.  You will be missed here as you offered such common-sense advice.  

It is funny, but on the day you posted, my newly-retired neighbor approached me about OLLI which is a group of learners at our local university.  He plays guitar in a garage rock band but wanted to learn classical guitar.  I offered to take him to campus to enroll in our classical guitar class.  Ron and I talked about our love of music and that you are never to old to learn!   I play my flute in an Orchestra and concert band with the members who are as old as 92 (yep, Deseree sits on her walker to maintain the beat on her bass drum!).   But I digresss......what I am trying to say is that you will live on in our memories and hearts each time we pick up our instruments, pet our furry friends or read another label to make sure it does not contain gluten (I will always recall your ice cream experience).  

Love and hugs!  


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Our dearest Bartful - Alison - went to her heavenly rest on May 21, 2016. She was 61.

She was so much more than statistics. She was kind, generous, loving, giving and understanding. She gave everything of herself and never asked for anything for herself. 

Rest in peace dear Alison.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Thank you for letting us know this sad news.  She was always ready to lend a kind ear and comfort to those here that needed it. She has been and will continue to be missed.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thank you so much for letting us know.  ((((((Hugs))))))

Alison has been on my mind a lot lately.  It's amazing how much you can miss someone you've never met...but she was an exceptional person who had a positive impact on everyone.  She was kind and wise...I'll always miss her presence.

I am thankful that she is no longer in pain and that she is now with her beloved husband and parents.


January 2014-Celiac

August 2014- Hashimoto's

"You never know how strong you are, until being strong is your only choice."

Bob Marley

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