GottaSki

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration

maybe one good hour per day for ~17 months

8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods

only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE

3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.

11/15/12 - Improving once again - Almonds back - Eggs gone

12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...

...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.

10/25/13 - MCAD - symptoms plus positive Prostaglandin/N-Methylhistamine - trialing combos of H1, H2 and Mast Cell Stabilizers

9/20/15 - Mastocytic Endocolitis (too many mast cells in the mucosal lining of the small intestine)

If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!




Volunteer Celiac.com Board Moderator - Retired April 14, 2014