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GottaSki last won the day on September 26 2014

GottaSki had the most liked content!

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460 Excellent

About GottaSki

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    "The past is the past...I've got places to be."

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  • Interests
    Skiing, Biking, Hiking, Walking, Kayaking, Reading, Baking, Cooking, Sewing along with researching every flipping medical publication to figure out my ridiculously complicated health puzzle...think I may be getting close to putting the last piece on the table ;)
  • Location
    San Diego

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  1. Yes. The damage to the small intestine mucosa can be caused by too many mast cells or celiac disease or both. Not around here much lately, popped in to quote an old post. You should ask your doctors for complete antibody testing...
  2. So sorry Gem! Just saw this...don't log on much any more. I do know folks with primary hives and other allergic type symptoms without any IgE allergies. If these present in someone with celiac, NCGS or other gastro symptoms, I would...
  3. Hi Maby! It was a very long road after celiac diagnosis, but we have learned conclusively that we have too many mast cells in the mucosal lining of the small intestine which is responsible for non-responsive celiac disease and many...
  4. Not sure I used the quote feature correctly. perhaps I wasn't clear...I believe the endoscopy is an essential component of diagnosing mast cell disease. It can be very difficult to find a Gasterenterologist that has accurate and up...
  5. Hi DarkAngel....increasing anaphylactic events to many triggers, both known and unknown is very scary. I am not around here much anymore...but email alerts are still going to me regarding other food intolerances. I wanted to add to...
  6. Karen lit the super silly signal....I'm thankful she did. So very sorry to read this news. You sound at peace which shows what a remarkable person you are....you will be missed by those you've helped as well as those whom have...
  7. tTG-IgA (Tissue Transglutaminase) tTG-IgG DGP-IgA (Deamidated Gliadin Peptide) DGP-IgG EMA-IgA (Edomysial antibodies) Most folks are back in normal range after a year....if completely gluten free. Folks that remain positive either...
  8. The celiac antibody tests are IgA and IgG based. With deficient total serum IgA, the IgA based celiac antibody tests are not valid and make the IgG tests that much more important. Another important item you mention was deficient Vitamin...
  9. GottaSki

    Just Want To Share This Small Victory!

    Hi De Ho... Saw your post...fantastic...and I must add... I have had virtually NO cold or flu bugs since I was diagnosed with celiac disease five and a half years ago. I have had many autoimmune flares that can feel worse than the worst...
  10. Well said Mommida! Emily...we understand this very well. The changes in the US post 9/11 have been hard to tolerate. Yearning for a safer time never ends dispite becoming used to enhanced security protocols. We love Canada in this...
  11. Hey Guys... Just wanted to let you know my heart goes out to all my Candian friends this evening. Was very sad to hear your news today With hugs, Lisa
  12. Yes, positive is positive. Especially the positve EMA. Perhaps you caught this early or her limited consumption of gluten has effected the results. Two things: Make sure she is ingesting at least one slice of glutenous bread each day...
  13. Inflammation is not uncommon. Congratulations on healthy villi! Were alll of her celiac antibodies tested? negative? Any nutrient deficiencies at diagnosis corrected?
  14. With high celiac antibody numbers an endoscopy is not necessary for diagnosis. I hope you are able to add foods back soon...I understand your dietary constraints well.
  15. I admit that I haven't read this entire thread...but will tell you this. I am one of those that has not improved with strict gluten-free along with all attempts to make other adjustments. If I had not had that initial endo, along with...