• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

notme!

Moderators
  • Content count

    2,238
  • Joined

  • Last visited

  • Days Won

    31

notme! last won the day on February 19

notme! had the most liked content!

Community Reputation

294 Excellent

About notme!

  • Rank
    Advanced Community Member

Profile Information

  • Gender
    Female
  1. try rotating your diet every 3 days. if you have trouble with histamines/allergies, (on top of celiac) it might help to not overload certain histamines. i couldn't figure out why i would eat something and be fine one day, eat the exact same thing the next day and my body went: nope. so, it works for me and i was able to add in many foods i had eliminated.
  2. i had 'withdrawal' symptoms when i first started strictly gluten free. i drank lots of water, took hot showers and rest, rest rest. can you take benedryl until your itch clears up? i still avoid iodine (bc if it's dh, iodine can aggravate it) so, lay off the fish and switch to uniodized salt for awhile, maybe that will help. where's squirmy? she always has the best dh suggestions welcome to the forum and i hope you get relief soon!
  3. haha the first paragraph is incorrect: celiac is *not* an allergy to gluten. it's an autoimmune disease. so, then i had to not read the rest lolz
  4. How Soon After Gluten Do You React?

    for me it's 24-48 hours (starts with That Headache) then it lasts for 14 days. you are new, you might want to try keeping a food journal to figure out if anything else is irritating your guts. it's a good idea to skip dairy products for awhile until you heal some. the ends of your (possibly damaged villi) is where the enzyme is produced that breaks down dairy, so that could cause you malaise. (i think i cut it out for 6 months or so) for eating out (i didn't for about 5 years lolz and even now, it's only at a few trusted places) you might want to try the 'find me gluten free' app and only eat at places with good reviews FROM CELIACS. when shopping, my brother uses an app called 'gluten free food finder' that will scan the barcode and tell if it's gluten-free <he cheats lolz otherwise, read every label. welcome to the forum
  5. deep breaths! every one of us has been where you are. this is a good place to vent and ask questions once you have been gluten free for awhile, you should see other symptoms (seemingly unrelated) go away. this disease is a chameleon - i personally had migraines/ headaches/ joint pain/ fatigue/ dh skin rash etc along with the lovely big D and all the other g.i. issues. so, good news, you should feel better moving forward! you can get another job, you can get another house, you can't get another you! so, time to take care of you. indeed, read the newbie 101 thread -- lots of good info there. also, don't take any kids off gluten before testing is complete. maybe keep a food journal to see if any other foods are aggravating your gut. almost every thing you ate before can be duplicated to be gluten free. lots of new/good products out there lately, even flour tortillas! hang in there. you can do this! welcome to the forum
  6. i buy ground meat at the butcher. it's a small shop. they know i have to be gluten free. everything is clean and they even change their gloves between different proteins (ie:they won't touch the pork chops with the gloves they just touched chicken with) meat grinder only grinds meat and they clean it between batches. my daughter works in the deli department of a grocery store and the rules they have to follow for food safety/cc, etc, are stringent. plain ground meat should be just that: plain ground meat therefore safe.
  7. Glutened by Tate's cookies?

    tate's are my favorite! i'd be looking at the soy lecithin/chocolate or eggs or dairy if you had cookies with milk. you might want to keep a food journal to figure out what other foods are a problem right now until you heal up a bit. many of us had to remove some other foods for awhile. i have gotten to add almost everything back into my diet. still have to be careful with soy - i can have SOME but not alot. good luck! and welcome to the club you never wanted to join
  8. are you eating them every day? i thought i couldn't handle blueberries, but it turns out that i can eat them if i don't overdo it and if i don't eat them every day. i have frozen berries from kroger and i eat them in my cereal every third day or so. idk why fruit packers would have wheat..... (but they were labeled gluten free on those little purple squares on the price thingy)
  9. i looooove nuts.com. i've already ordered all my nuts, etc, for holiday baking from them. if you order (i think it's 65 bucks) enough, you get free shipping. the nuts are so pretty, not all busted up and stuff. they send you a little sample with your order (this time it was goji berries) also, i got pepitas and sweet rice flour. they have added alot of new products. i highly recommend them
  10. Does apple cider vinegar help?

    if you have celiac and you eat gluten, you will feel terrible and do damage to your body. there isn't any 'morning after' (for lack of a better term) tried and true remedy. if i am accidently glutened (and i am insanely careful, so this does not happen often anymore) i find that drinking plenty of water and long, hot showers make me feel better, but it doesn't leave until day 14. 14 days. ain't nobody got time for that. no matter what i try, it's naps and snacks for 14 days. then the fog lifts and my guts stop protesting. you will get better at avoiding gluten and cc by practicing being gluten free. i would eat whole foods (avoid processed while your guts are healing) and skip eating out for awhile until you get better at knowing how to determine which restaurants are safe and which ones don't give a crap if they give you the craps <see what i did there lolz) go to the coping page and read the newbie thread. there is much useful info there - more things to avoid than just bread - and ways to navigate this lifestyle. welcome to your new normal. pack a lunch, because if ya got celiac, every day's a picnic. literally.
  11. i was at a meeting recently, where they serve dinner, ironically the meeting is at a communitiy room at our local hospital (where the meal is catered by the hospital cafeteria and i do not eat BECAUSE THEY CAN'T DO GLUTEN FREE. AT A HOSPITAL.) but i digress.... 'oh, my doctor told me i have that, too. i just can't stop eating bread ha ha ha' as she chomps a bite of dinner roll. worse? she's a doctor's wife ya can't fix stupid
  12. i find that i can tolerate some foods that were off limits to me (soy, certain veggies, ice cream, chocolate, etc) if i do not eat them two days in a row, for whatever reason. i'm thinking histamines. whatever it is, i can eat many more/different foods. i usually eat the same sort of food/meal every 3 days. i was puzzled why i could eat something one day and be fine. then eat the same thing the next day and not fine. seems to be working i thought i had a problem with eggs bc i was eating them nearly every day for breakfast, but if i rotate it with cereal one day, a bagel or waffle or pancakes etc for day 2 then i can have eggs the third day as long as i go back to cereal the next day (for example) i can even tolerate fresh (and frozen lolz) fruit once every 3 days when i thought i couldn't tolerate fruit at all. so long as i don't eat it tomorrow it's trial and error, and what works for one may not work for another..... but this seems to be working for me. right now lolz
  13. yeah, i'm with cyclinglady - the deep freeze has been a blessing. i make stuff and put it in individual portions, so if it's just me eating, i'll get out one portion. if more than one, i just take that amount out. i do better with beans that i cook from dry (navy, pinto, etc) rather than the canned ones, even though most are safe. for whatever reason, i cook a 2 lb bag and freeze it in quart ziplocks for when i'm making chili or soup. i make chili ALOT especially in the cooler weather. it's one thing the grandkids looooove and i don't get an argument when that's what's for dinner. chili and cornbread (krustyz makes a box mix that's gluten-free) i got one of those electric pressure cooker thingys - it's great! i make chicken pot pie filling in it, cacciatore <however you spell it), venison stew, etc. it's fast and keeps all the flavors in breadcrumbs: i use the bread ends from gluten-free bread, toast in the oven and bust 'em up in the food processor when i have the time. otherwise, kroger sells them now (2 kinds!) so, when i'm rushed or lazy, i just use those. i can tolerate some fruit but when i would buy berries/etc they would always go 'fuzzy' before i could eat them all, so now i buy bags of frozen and take out whatever i'm going to eat (usually on my gluten-free cereal) i loves me some cheez and crackers, too, that's my favorite snackity snack
  14. 'but you look fine' and 'i wish i was skinny like you' ugh. for just one day, i would like to wear my intestines on the outside of my body lolz nothing like 25 years of damage from misdiagnosis (hopefully, they're not that scary anymore) also, everybody who thinks 'o, no big deal. you just hafta order off the gluten free menu' ummmmm. nope. i just hafta super-research the place and then make sure nobody's gonna cc me.