ironictruth
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HoneyD reacted to a post in a topic:
Internal Tremors
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About once or twice a month I eat these. After still having some damage on my year follow up endo, I am looking closer at what I am eating. I just noticed that they contain isolated oat protein. What is this stuff? I assume it is just as subject to cross contamination as regular non-certified oats?
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cristiana reacted to a post in a topic:
High (Normal?) Hemaglobin
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Hemochromatosis, iron overload, can affect celiacs. So, be sure your doc knows this and checks you often. Good news....usually treatable by a routine visit to the American Red Cross via blood donation. lucky for you your ferritin is low so highly unlikely. Lay off the iron supplements but keep your diet high in iron.
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Just a FYI, you posted in a post that is over 10 years old. So sorry about your suffering. Ugh. How awful. I get right sided pain as well and did all of the scans too. It is scary when you do not know what is wrong. Try to see a doctor to run the complete celiac panel: ttg, dgp, ema and overall iga. Look them up and insist they all get done. Some...
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Ttg 6 is the antibody involved with the brain. There have been studies on ALS symptoms being related to gluten. There is also a correlation between celiac and MS, but it is just that, a correlation. God, I read somewhere about a guy on a plane who had Celiac neurological symptoms and happened to be sitting near a physician who told him a minimum...
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You did not have the whole celiac panel. DGP and EMA should be tested. The PPI can cause a lot of bathroom trouble. PPI's can interfere with digestion as well. Do they have you on a plan to taper off?
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Have you cut out coffee and acidic foods during the time you were trying to heal the gastritis? As well as aspirin? Because if not, you are probably not healed. Use low acid coffee if you must (I use Rich Rewards) and DGL licorice root. Make sure it is DGL as plain licorice can mess with potassium. The chewables taste yummy! I did the above and...
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Diagnosis has triggered health anxiety and I'm struggling
ironictruth replied to Fbmb's topic in Coping with Celiac Disease
I am so sorry. I have this as well. Most of my anxiety comes from not actually having an official diagnosis and still being quite sick. I am terrified that by the time they figure out what I actually have It will be been too late. But I can totally relaTe. Unless you are extremely not capable of functioning during the day I would highly recommend... -
That is exactly how mine started! At the tail end of eating gluten again before an endoscopy last year. Same way, waking up in the middle of the night at first. Then it worsened, now better but I get some transient stuff in that arm.
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I will look this up. When the ulnar nerve was happening I found some exercises on line that helped. Would be nice tobget my leg back!
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Lower back pain in the am when I first get up. And I did notice some in the left hip today. Thinking about ditching the heels for awhile to see if that helps. Also my left leg. Dealt with a ton of ulnar nerve issues on that side as well. I bruised the left leg pretty badly awhile ago, but also noticed some pain back when I was running (stopped...
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I wish I had the answer. My left leg has been hurting and is now vibrating. I of course worry about a clot, but have a hunch it us nerve related. Is it your extremeties? If I find anything out I will keep you posted. I already take Mag too.
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anyone feel like it was an ulcer?
ironictruth replied to ironictruth's topic in Coping with Celiac Disease
Yes, the pain us much worse since August. Let me know how you make out! -
I was dx with duoedenitis end of August. No mention of a stomach, esophagus or duoendal ulcer. Just a small hernia. Less then 2cm. But I have a LOT of pain right below the breast bone and I jumped when it was recently touched on exam. I can even feel a small bump in the area. I feel so dizzy and unwell, like some kind of bacteria is invading my brain and...
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I am so sorry. How scary. I do know others get swollen lymphnodes. It was mentioned to me twice that mine might have been but no other doc found it and my labs were good. I have had night sweats for years as well. I hope they rush your appointment so you can get an answer. This is coming from someone who is totally freaked out herself so you are in good...
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ibgard
ironictruth replied to ironictruth's topic in Gluten-Free Foods, Products, Shopping & Medications
I totally ended up getting Traditional Medicinals peppermint tea instead and am sold.