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Charli61

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About Charli61

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  1. Wondering if anyone has had luck with anything other than Synthroid and related drugs for Hashimotos... I do not tolerate that family of drugs, they are talking about dessicated thyroid but my Dr. is dragging his heels and still trying to push Synthroid. Wanted to see if anyone else has a similar issue?
  2. I have had Raynauds for about 25 years, did not have Celiac until about 15 years ago... My Dr. at the time with the Raynauds had lovely advice for me.... "Stay warm" It still makes me smile. I live in Canada, and no, staying warm isn't really an option, and over the years the Raynauds has gotten worse, now it is most of my feet.. and my hands I try to stay warm and wear gloves when going into the freezer etc. I never thought about getting gangrene and having digits amputated... That is an awful thought, I think you should stop thinking that way! Anyway here I am 57 years old living in COLD Canada and surviving it all anyway!
  3. I bought a bottle of Gliadin X a few months ago. I do not know that it is wonderful or is not wonderful, what I do know is that if I have to eat out, I take one. Even if I am assured that it is G.F. And, I have not been C.C.ed since doing that. I don't eat out a lot, but when I do... I protect myself. Maybe I would have been fine, but in my prior experience probably not. So, Gliadin X, you do seem to work!!
  4. I think 3 weeks is ample, especially if she is feeling so awful during the challenge. I am an adult and it darn near did me in doing a challenge, and mine was 3 weeks. I had been essentially off of it for several months, and then did the challenge and it was sufficient.
  5. Charli61

    GliadinX

    Thank you, I wish I had asked BEFORE I spent $100 on the bottle. I just thought for the odd time I am out and the only choice is french fries and no dedicated fryer I would maybe cut down the risk of CC.
  6. Charli61

    GliadinX

    Hi, I only got them for the odd time I want to eat out, maybe have french fries even without a dedicated fryer. I live in a small city in BC Canada and there aren't a lot of choices. I don't intend to take them and intentionally eat gluten. I am far too sensitive for that. I just thought that if I could take one or two and maybe just maybe not get CC on my gluten-free food it would be worth it.
  7. Hi all, I just ordered a bottle of GliadinX capsules, has anyone else tried them? I am both excited at the thought of being able to order French fries etc. without concern of CC and terrified to try!
  8. Charli61

    New Dx of DH

    For me it took almost a year of being gluten-free to get it mostly cleared up also the arthritis took about the same time to go away, but I had been un-diagnosed for about 10 years - which may have made things a little more difficult to get rid of. Apparently I am an odd one, DH and the typical intestinal issues.... I had the whole works and how!! My understanding is that most have one or the other, not both ( I guess I am just an over achiever).
  9. Charli61

    Snacks!

    Que Pasa are my go to tortilla chips, not only gluten-free but also non GMO, which is really important to me.
  10. I'm from Canada too, and they suggested the biopsy, but given the high numbers on the blood test they said it really wasn't necessary (also I have DH but that was never 'formally diagnosed' either, but it was seen and noted) The Dr. said the biopsy is the de facto test to confirm Celiac. So, I didn't have the biopsy. Question for you all..... Did your Dr.s suggest a yearly scope? Mine did and I suggested that I had one and sure as heck didn't think I needed another one, much less one a year!
  11. My daughter has not been officially diagnosed Celiac, but she will be, it is just a time thing. (I am and I know she is!) She also has come up with a severe systemic reaction to Sunflower anything... and there is sunflower oil/lecithin etc. in a lot of foods. Even in 'Vegetable oil' there is allowed to be (I think) 14% before they have label it as containing. Could you not do a food log? Try to isolate a common denominator. As I say for my daughter it was sunflower, very quickly after ingestion she is in the bathroom in tremendous pain...
  12. I bought some of the ones labeled Gluten Free and have had NO problems at all. I only have a few left and since I have not found them in Canada I figure I will save these ones for treats! I have Celiac and am very sensitive. Hope this helps you.
  13. Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats? I had only tried a little of the oats at Christmas time and thought I was okay with them. So the other day I was craving cookies. I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them! So then I had a terrible night with DH type rash, mouth sores and generally feeling kinda lousy.... Finally took an antihistamine and drank a lot of water which helped greatly and the next day was better. Today I am okay but curious, was it an isolated thing? OR did I just think I was okay with gluten-free Oats, but in reality I am not. Sheesh, I am so disappointed, I really wanted those darn cookies!
  14. So, was it a generic then? I just recently found out that most generic medications have a wheat based binder in them. The article I read specified Generics.
  15. Charli61

    Vegetarian Roll Call!

    Vegetarian for about 25 years, give or take. I do eat eggs and dairy and honey, so it's a lot easier for me than going Vegan. I support local family farms for my eggs and dairy, so it's at least cruelty free. I had it much easier before I became Celiac (probably happened 10 years ago, but only diagnosed about 3 or 4 years ago) The mainstream vegetarian substitutes for meat seemed to all contain gluten until a year ago... Not sure if that is actually a true statement elsewhere, but the small town I live in was that way. Anyway it's always nice to hear other people's histories a little.
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