Posterboy

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  1. Becca4130, Cyclinglady is right. Most have those genotypes but they have found other gene types that doesn't always fit that mold. I haven't always known this (and I am not good at gene tests) I having only been diagnosed on blood serology alone. This verywell article explains it well. https://www.verywellhealth.com/hla-dq8-one-of-the-main-celiac-disease-genes-562571 depending on your ethnicity you might not type out well depending on where your ancestors are from. see their (verywell) paragraph about DQ8 variability by regions of the world. Be your own advocate your nutritionist is right to be cautious. see also this research about variations in genotyping can cause certain world/countries population to fail to show a positive gene typing depending on the region DQ2/DQ8 prevalence in the population mainly in Japan according to verywell. But it has shown up in people of Brazilian (assumingly) Portuguese ancestors as well (different gene typing). https://www.ncbi.nlm.nih.gov/pubmed/21484038 In their conclusion they noted in a subset of brazilians at least the wrong Regional gene typing test (American or European) might effect someone's test's causing a negative gene typing test. quoting CONCLUSIONS: "In this study, celiac disease was associated with the genotypes DQ2 and DQ8. DQ2 predominated, but the distribution of the frequencies was different from what has been found in European populations and was closer to what has been found in the Americas. The high frequencies of the HLA genotypes DQ2 and DQ8 that were found in first-degree relatives would make it difficult to use these HLA genotypes for routine diagnosis of celiac disease in this group." Assuming you don't have any of this mitigating factors then it is uncommon to be diagnosed as celiac disease without these gene types. You might only be able to get the more vague NCGS diagnosis. But do a month food allergy elimination diet then when you re-introduce you will know if gluten is the culprit. You won't have to get a doctor's confirmation of what your body already knows. Here is one more research article but a little older so there is probably newer research that might replace it. that might answer your question entitled "HLA-DQ typing in the diagnosis of celiac disease" https://www.ncbi.nlm.nih.gov/pubmed/11922565 I hope this is helpful. ******This is not medical advice. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  2. Posterboy

    Pregnant and worried.

    Jill1120, I have no medical training but I feel bad no body has answered your question. But I don't think bloating will harm your baby. Though it sure makes you uncomfortable. See this thread it might help you. As for the Corn issue. You might have Pellagra and the doctor's don't recognize it today. I had Celiac and Pellagra at the time of my diagnosis. see my story. stressors like pregnancy is common before a celiac diagnosis. see this research. quoting "They found that 186 adults (67.2%) with celiac disease reported more frequent and more severe life events in the years prior to the diagnosis, compared with 96 control patients (37.5%, p < 0.001, mean Paykel score 11.5 vs. 13.4, p = 0.001, respectively)." which is approx. twice as likely as those who did not have stress. as for heartburn in pregnancy it is very common. see this bumpnbabies article. http://www.bumpsnbaby.com/heartburn-during-pregnancy/ where they say quoting. "Indigestion is also called as dyspepsia. It is a very common problem during pregnancy which can make you feel nauseous and bloated. It is believed that about 80% of pregnant women experience it at some point during their pregnancy. Although it is very common complaint, many are not aware of the symptoms of indigestion. Some even confuse it for something serious." Watch your CARBS and it might help manage your Heartburn in the future. . .but probably not eliminate it all together. Again this is not medical advice ******* but I was concerned for your plight and wanted to reassure you heartburn is common in pregnancy. But have that Corn allergy (Pellagra) checked on because it can be treated very successfully with Niacinamide. It is probably in your prenatal but you have extra need for it in pregnancy (obviously). I would tell you take Niacinamide with each meal because it water soluble and see if it doesn't help the bloating and GERD in a couple months. Here is Prousky's resesarch on the topic of how Niacinamide can help digestive problems. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. ****Again I hope this is helpful but it not medical advice please share this research with your doctor. Think of Pellagra (Corn Allergy) in pregnancy the same way you might think of gestational diabetes. the stress is straining your body and supplemental Niacinamide can help restore the balance. Posterboy by the grace of God,
  3. Posterboy

    Please help.

    Weatherman, For energy try some Magnesium Citrate with meals or Magnesium Glycinate. I hope this is helpful. ***this is not medical advice but Magnesium helped me with my energy levels. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  4. Posterboy

    Gluten Intolerance & GERD

    Patricia, I had undiagnosed (misdiagnosed) low stomach acid at the time of my celiac diagnosis. I had GERD symptoms previous to my celiac diagnosis but didn't put 2 and 2 together until later. Here is my story. I didn't know the connection at the time. Here is some research from the Scand Journal of Gastroenterology that supports your concerns? Upper peptic disease is commonly known/coded as GERD as I understand it. https://www.researchgate.net/publication/38061447_Celiac-associated_peptic_disease_at_upper_endoscopy_How_common_is_it It (upper peptic disease) is just technical jargon aka GERD sometimes known as peptic (stomach) acid reflux disease. they concluded quoting "celiac disease should be included in the differential diagnosis of patients with non-HP PD and we suggest routine celiac disease serology and small bowel biopsy in patients with unexplained PD (aka (GERD)." But sadly most doctor's don't think this far in advance. It helps me think in term of "GI spectrum" problems lead to a Celiac diagnosis in time. Or IBS . . Intolerant Bowel Syndrome (my words) and they are are "I Be Stumped" by it all. Because they don't see it as a spectrum but individual diagnosis with not common cause (timeline). Actually the use of PPI's in the year prior to a celiac disease diagnosis note PPIs as a contributing to someone's celiac diagnosis. Here is the research as reported on celiac.com I think of it as smoke before a fire. quoting the above research's conclusion. "The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines. The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship." Which tells me someone stomach acid (digestive fire) is is not strong enough to digest gluten. And it explains to me why treating my low stomach acid helped most of GI problems. Also see this thread about this topic. This is only my story . . .yours might be different. I only know it helped me. *****this is not medical advice but I hope it is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  5. pdm1981, Anything you think you will miss! I don't miss the dougnuts or the bread. A croissant would be nice. Eat a Krystals or White Castle for me. Try your favorite pasta not named Pizza. I miss a good calzone or Lasagna. And maybe your favorite chocolate. I still remember a friend pointing out ferrero rocher hazelnut chocolates had wheat flour in it and I was so excited to eat it. It was for a christmas office gift . . .but I didn't and I still miss them! Posterboy,
  6. Posterboy

    Did Anyone Exhibit Ocd While Glutened?

    Chrissy-B and Etal, The link to B-12 that Knitty Kitty provided is a good link. I had high homocysteine levels when my OCD was at it worst. though I was being treated for high homocystiene levels (at the time and may have not put 2 and 2 together). But I didn't notice a great improvement until I took some Zinc. Here is an article link to the research. https://www.ncbi.nlm.nih.gov/pubmed/22465904 I took cold/zinc lozenges and let them dissolve under the tongue. They will become bitter when you get enough Zinc. quoting their conclusion of their research on Zinc. "CONCLUSION: The results show that zinc, as adjuvant agent for obsessive-compulsive disorder, produces improved outcomes." I used to have set (check) my alarm clock repeatedly for 10 or 20+ minutes before going to bed but now that is not a problem. Or I might take 20 minutes to enter a building because I thought I might of have left my lights on the car on (though I didn't turn them on) in the first place. I still had to "check" to make sure. Once I got my Zinc levels back to normal levels the zinc lozenges became bitter in my mouth and my OCD got better. You might also have white specks in your nail bed. Often referred to as stars that will go away if you have a Zinc deficiency. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  7. Dwayne, You might have a MTHFR gene mutation that can lead to abnormally high homocyteine levels. Here is an article about it. Also see this journal of Circulation article about it. http://circ.ahajournals.org/content/111/19/e289 the journal of circulation says "For MTHFR, as with homocysteine testing, no official guidelines exist as to who should be tested." so they might not of thought to test you for it. but with elevated homecycteine levels you should be checked to rule out this condition. ******this is not medical advice but I hope it is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,
  8. Posterboy

    Psychosis Episode

    Tina77, Where you by chance also taking Miralax? also known as Polyethylene Glycol. This laxative can have terrible side effects one of them psychotic episodes. Oneloved recently mentioned how her child was having a reaction to Miralax and why I mentioned it. Psychotic episodes (especially rage) are more common in children but if it does that to children who knows what it does in adults. Here is a FDA adverse event report on it. https://www.fda.gov/Drugs/GuidanceComplianceRegulatoryInformation/Surveillance/AdverseDrugEffects/ucm295585.htm but they (FDA) say " as they often do "no action is necessary" as they often do until someone dies. Polyethylene Glycol (PEG) 3350 over-the-counter oral laxative (Miralax) Neuropsychiatric events FDA decided that no action is necessary at this time based on available information. ***this is not medical advise but I hope this is helpful. To answer you original question psychosis is common in celiac's. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3641836/ But it is unclear if it the celiac disease specifically or associated Vitamin deficiency that occur when someone develop's celiac disease. see this research as first posted by knitty kitty that indicates OCD can be an early sign of a B12 deficiency entitled "Obsessive Compulsive Disorder as Early Manifestation of B12 Deficiency" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3271502/#!po=25.0000 And B-12 and your B-complex in general are often low in Celiac's. Again I hope this is helpful. . . but this is not medical advice just some other places to look to see if they are also contributing to your pyschosis like the helpful link ch88 provided. Along with gluten. posterboy, (sorry for the hanging chad) I couldn't delete it.
  9. Oneloved, I am glad you found out what it was. Here is a nice cbsnews article on the problems with Miralax in children. https://www.cbsnews.com/news/miralax-side-effects-in-kids-should-parents-be-concerned/ You should join the Parents against Miralax petition. As of a year ago according to cbsnews it had 16K+ members. Posterboy,
  10. Jdsalinas, Ennis_Tx, Beat me to it. Ennis_Tx and I are the Magnesium Warriors on this forum. Dose to tolerance is a common thing for Magnesium Citrate. I actually swapped from Natural Calm Magnesium Citrate powder to a tablet because to be sure I was getting the same amount each time. Usually a rounded up teaspoon was enough to produce a magnesium flush ie. bowel movement. then you can adjust your dose back to tolerance. ***note this is for other's who might read this thread. Knitty Kitty posted this link and it stuck with me. https://www.naturalnews.com/046401_magnesium_dietary_supplements_nutrient_absorption.html while Magnesium attracts water and thus helps lube the GI track much the same way dietary fiber might. .. what is unique about magnesium citrate is the Citrate portion turns to Citric Acid in the stomach when it reacts with your stomach acid. And depending on the strength of one's stomach acid this might be different depending on the person and citric acid has a mild laxative effect (ok a highly laxative effect) depending on the dose (and weight of the person). . . usually above 400mg every 4 hours. . . and especially on an empty stomach. It is like taking Citrucel with out the added harsh fibers of some other laxatives and we all need magnesium to function properly. Think muscle cramps. It (charlie horses) is someone low in Magnesium. So Magnesium Citrate works well as a natural laxative for this reason. magnesium Glycinate another highly biovailable form will not flush people who take it because it does not change into Citric Acid in the stomach. And have recently changed too Magnesium Glycinate because my BM movements have become regular enough now to not need to take Magnesium Citrate anymore for it's mild laxative effect. ***This is not medical advice but I hope this is helpful. Posterboy by the Grace of God,
  11. Cyclinglady, Trents, EnnisTx, Cyclingldady Trents didn't say you couldn't heal. Trents was wanting a medical agent or supplement that could help a leave some of the pressure of always having to eat gluten free. The problem with Medicines' or even supplements like Gliadinx you can never be sure it digested 100% of the gluten before it reaches your small intestine. Jefferson Adams had a nice article about this topic called "why all the hate for Celiac drug treatments". Here is the link for those who have not read it before. the problem with most peptides and digestive enzymes they need a relatively strong acid to activate them. AN-PeP (GliadinX) and other digestive enzymes often stop working above a pH of 4.0. And explains why GliadinX might help one individual but not the other. This is explained well in this Alternative Medicine review when they explain the gastric complications experienced by many celiac's. http://www.interclinical.com.au/publications/archived publications/CeliacDisease.pdf quoting their section on stomach acid and it's role in IgE mediate food reactions. sorry about formatting. Gastric Complications "Studies demonstrate 30-40 percent of celiac patients suffer from dyspepsia.26 Due to the commonality of occurrence, some researchers recommend that clinicians test for celiac disease in dyspeptic patients.27 Reflux is a common symptom of celiac disease as cases of silent celiac disease have been diagnosed after endoscopies for this disorder.28 . . . This might be unfortunate for celiac patients for two reasons. First, adequate pH is needed to break down protein fragments in foods (including gliadin and cow’s milk protein) to avoid further excitation of the immune system. One study found allergenic antigens were reduced up to 10,000-fold by adequate gastric acid.30 Subjects on acid-blocking medicateons were also 10.5 times more susceptible to IgE-mediated food reactions, with an elevation in IgE antibodies remaining five months after a three-month course of acid blocker therapy.31 Second, adequate pH is necessary to facilitate nutrient digestion, to limit the entry of non-beneficial organisms, to activate digestive enzymes, and to activate proton pump-dependent transporters for nutrient absorption. Due to the risk of increased fractures, vitamin B12 deficiency, Clostridium difficile-associated diarrhea, and other complications of proton pump inhibitor therapies, clinicians are calling for prudent utilization of these medications.32" Here is the original research entitled "The Effect (Role) of Gastric Digestion on Food Allergy". https://www.ncbi.nlm.nih.gov/pubmed/16670517 Here is the full abstract. The effect of gastric digestion on food allergy. Untersmayr E1, Jensen-Jarolim E. Author information Abstract PURPOSE OF REVIEW: The role of the stomach as the primary location of protein digestion is very well recognized, leading to classification of proteins as digestion-resistant or digestion-labile. This review analyses the role of gastric digestion in food allergy. RECENT FINDINGS: Hindrance of gastric digestion by elevation of the gastric pH, the therapeutic goal of anti-ulcer medication, was recently shown to trigger food allergy via oral sensitization in a murine food allergy model. The relevance in humans was assessed in an observational study of 152 gastroenterological patients who were medicated with anti-ulcer drugs due to dyspeptic disorders. Twenty-five percent of all patients developed a boost or de-novo IgE formation towards regular constituents of the daily diet. The clinical relevance of the induced antibodies was confirmed by positive skin and oral-provocation tests. Moreover, the importance of gastric digestion was also proven for food-allergic patients, as the allergenicity of allergens were reduced up to a 10,000-fold by gastric digestion. SUMMARY: These recent studies indicate for the first time the important gate-keeping function of gastric digestion, both in the sensitization and the effector phases of food allergy. PMID: 16670517 DOI: 10.1097/01.all.0000225163.06016.93 And what I liked about the Beyond celiac article is their realization that quoting. "But science is about questioning assumptions and following where the evidence leads." And I hope theey understand the gravity of their conclusions. And the more and more I study it and have studied it stomach acid keep coming up as being critical to digestion of not only our foods but harmful proteins before they get to our small intestine Villi causing celiac as a result of this destruction. Once I understood digestion is a north-south process it became clear to me. Strong stomach acid could help aid my digestion. It doesn't mean it will help other's the way it helped me . . .but if it helps me... it should help others too! But sometimes it is hard to see the connection, ie. the forest for the trees. If I remember correctly a pH over 3.0 (it might of been as low as 2.8) was the cut off from which stomach acid lost it ability to denature proteins into harmless peptides the way most digestive aids work to assist the action of proteolysis ie. (the breakdown of proteins or peptides into amino acids by the action of enzymes) usually in the stomach when our pH is strong enough for this to occur naturally. I think that is why taking BetaineHCL helped many of my digestive issues because it again made my stomach acid strong enough to again digest proteins, naturally healthy in the stomach acid. Our body is smart enough to know most viruses are proteins so the body can't discriminate (in the small intestine) between good and bad proteins . . once it reaches our small intestines. They are all bad. .. and gluten is the baddest of those. I have an agriculture background (as you can see from my profile avatar) and I see things in analogies.. . . I always remember(ed) the definition of a "weed'. Any plant growing where it is not wanted is a weed. A corn plant in a soybean field is a weed! Proteins are not wanted nor welcome (weeds) in our small intestine and the body must destroy it all cost(s) even if it includes destroying it's Villi in the process. All the eight most common food allergens are proteins and this is by design and not by accident. ******this is not medical advice but treating my low stomach acid helped me with many of my GI problems and I hope my sharing will help others. 2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
  12. Andy316, I tend to be a little aggressive with my supplementation schedule so I might not be the best to ask. but most people will notice a difference in 3 months and 6 months at the outside range. There a two reasons mainly for that and I probably can't explain this all in one post/reply. It takes about 3 months for most people's Villi to heal and 3 more months after you begin absorbing these minerals again to restore your body naturals' halogen balance between idodne, sodium and the other toxic halogens your body might now be full (metaphorically speaking) of instead of healthy/beneficial iodine. Here is a good article on how absorption occurs in the body through the blood stream first in the stomach and ultimately in our Villi in the small intestine using active and passive absorption. http://education.seattlepi.com/food-nutrients-bloodstream-osmosis-4574.html Here is an article about it how it (Iodine) remove floride and bromine in the same way from the body by displacement. http://www.naturallifeenergy.com/iodine-removes-fluoride-from-the-body-and-serves-as-a-fluoride-detox/ If you notice a smell (B.O.) problem it is working. It is a sign the other toxic halogens (bromine etc.) are being replaced with the healthy iodine and sweated/extracted out of your body. You will probably notice this body odor smell yourself and find yourself showering a little extra to make up for the extra Bromine be excreted and be self conscious for a couple weeks. This is a temporary effect and will shortly go away when all the binding sites have been replaced with Iodine. Another home test is Iodine loading test. Paint an one inch swab of betadine (Iodine) antisecptic one your skin (arm or thigh works well). It will dry in a few minutes. . .. go to bed if it is still there in the morning (stained) your body has absorbed enough iodine through supplementation. If it has disappeared then your body is still low in Iodine. . . .this is an in exact test but nominally helpful. Once my body begin rejecting absorbing Iodine through my skin my thyroid begin to improve. You can also have Bromine in your diet (that you might not be aware of) that can be thyroid toxic.. . . ironically it is in most bleached flours unless otherwise stated. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC501258/pdf/jclinpath00206-0074.pdf Here is an article about it. https://www.livescience.com/36206-truth-potassium-bromate-food-additive.html And one on livestrong https://www.livestrong.com/article/554803-food-additives-bromine-and-thyroid-disorder/ you can also self monitor your body temperature (+ or -) one point in your afternoon body temperature is considered normal for most people. . . anything more than that is out of range and a sign the the thyroid is not working properly. The thyroid is the bodies thermostat and how we regulate our body temperature and why doctor's traditionally/typically check your normal body temperature. I hope this is helpful. ****this is not medical advice just some of the ways I have supplemented that helped me. good luck on your continued journey. 2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things. Posterboy by the Grace of God,
  13. Andy316, I don't know if all thyroid problem are auto immune or not? they may be ? I am not sure. but sometimes supplementation can help when people are willing to try it. I had the beginning of a thyroid problem 10+ years ago and taking selenium (as first a Kelp supplement then Brazil nuts in my diet) helped my thyroid correct itself. You are right about the Vitamin D issue too. I was low in Vitamin D at the time too! With Low Vitamin D there is a link to thyroid health. Here is the research on the Vitamin D connection entitled "Vitamin D supplementation reduces thyroid peroxidase antibody levels in patients with autoimmune thyroid disease: An open‑labeled randomized controlled trial". https://www.researchgate.net/publication/301227488_Vitamin_D_supplementation_reduces_thyroid_peroxidase_antibody_levels_in_patients_with_autoimmune_thyroid_disease_An_open-labeled_randomized_controlled_trial Here is the connection to Selenium entitled "Myo-inositol plus selenium supplementation restores euthyroid state in Hashimoto’s patients with subclinical hypothyroidism" The research on Selenium and Vitamin D are fairly recent and most doctor's are probably not clinically are of this relatively new research. https://www.europeanreview.org/article/12297 You might also eliminate/reduce the soy in your diet. Here is how it can effect thyroid medicine entitled "Use of soy protein supplement and resultant need for increased dose of levothyroxine" https://www.ncbi.nlm.nih.gov/pubmed/11421567 I would also have your doctor check your stomach acid. Hypo or achlorydria is associated with low Vitamin D status and Hypothyroidism. https://www.healthline.com/health/achlorhydria#diagnosis quoting heathline Symptoms of achlorhydria "Achlorhydria can increase your risk of developing iron deficiency anemia. Without stomach acids, the body will have issues absorbing iron. Other vitamins and minerals such a calcium, folic acid, vitamin C, and vitamin D also rely on adequate stomach acid for their absorption into the digestive tract." Hypothyroidism according to heathline is risk factor for achlorhydria. quoting again. "There are a number of factors that can contribute to developing achlorhydria, including: Hypothyroidism. This condition can significantly slow down your metabolism, resulting in a decrease of gastric acid production." ****this is not medical advice but I hope it is helpful. I found out I had low stomach acid and after treating it with BetaineHCL (powdered stomach acid) it helped trigger my own stomach to again begin making it's own stomach acid. Here is my story about how I had to figure out on my own I had low stomach acid misdiagnosed. good luck on your continued journey. Again ****this is not medical advice just things I found that it helped me with my thyroid anomalies . . . at least before things stablized and I can only assume supplementing with Vitamin D and Selenium help my thyroid correct itself. 2 Timothy 2:7 Consider what I say; and the Lord give thee understanding in all things. Posterboy by the Grace of God,
  14. Andy316, If you think it is a Folic Acid Intolerance read this article about it on Celiac.com ****this is not medical advice but I hope it is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy,
  15. Michelina01, Ditto what everyone else said. Especially taking some magnesium Glycinate or Magnesium Citrate to help with your energy levels. Here a thread that might help you it is about someone else's journey with low stomach acid. also you might try taking some BetaineHCL (powdered stomach acid) when you take your Iron it can help improve your iron absorption. A strong acid is needed for good iron absorption. Here is link that explains how low stomach acid can limit our iron absorption. https://www.ncbi.nlm.nih.gov/pubmed/7286584/ Taking powdered stomach acid (betaineHCL) helped my absorption of Magnesium and thus my energy levels. Make sure to take with at least a glass of water so the stomach acid can be activated properly. Tea will work too. ***this is not medical advice but taking BetaineHCL can help many people GI problems. here is a case study about it. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4991651/ I only know it helped me. good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” Posterboy by the Grace of God,