-
Posts
300 -
Joined
-
Last visited
Coolclimates's Achievements
About Me
Recent updates, May 2015
moved to Bradenton, Florida.
November 2010:
Tested positive for the HLA DQ2 gene, making my Celiac diagnosis almost certain.
IgA levels are still high despite following a strict gluten free diet for the last 6 months. Unknown whether I am continuing to consume gluten and/or have other food intolerances.
I got diagnosed with Celiac Disease on May 4, 2010. As an avid baker, this came as a particularly unpleasant surprise. For years I've been suffering from fatigue, poor sleep, restless legs, facial congestion (pollen allergies), acne, acid reflux and some weight loss (although not an alarming amount, and I like my weight now, ha ha).
I don't really have the stomach problems that many associate with Celiac, although IBS runs in my family and I'm suspect that some of my other family members may have it.
I currently live in Champaign, Illinois (about 2 hours south of Chicago) and work at an alterations store. As I'm relatively new to celiac disease, I'm trying to gather more information, do more research about my new diet and meet others who have this condition. I'm especially interested in meeting people who live nearby Champaign. Other than the internet, I feel quite alone right now with this condition and feel somewhat overwhelmed and alienated. I hope to meet new people, gather more information, get new recipes and more!
-
I got retested in February 2012 at the Chicago Celiac Center and my numbers are finally going down. I also had a repeat endoscopy back in November 2011 which came out excellent. I'm happy to say that I'm finally making some progress and have been feeling better, too.
-
I read about your numbers still being high. This analysis of celiac research done by the FDA might be of interest to you.
-
Latest results Oct 2011 from the Chicago Celiac Center (worse than in April!):
TgG IgA 53 (20 or less is normal)
Deam gliadin IgA Ab 83 (20 or less is normal)
Have to get a repeat endoscopy on Nov 17 in the Chicago Celiac Center to see why I'm not responding to the gluten-free diet and if there are other issues.
-
Recent results from the University of Chicago Celiac Center (unfortunately, not good):
TgG IgA 44 (20 or less is normal)
glaiden gluten protein 79 (20 or less is normal)
they just told me to go on a stricter diet...