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T.H.

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T.H. last won the day on October 22 2012

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About Me

I'm a diagnosed celiac with food allergies, vocal cord dysfunction, sulfite sensitivity, and a mast cell activation disorder (MCAD). This latter causes me to be super sensitive to gluten, and my reactions to it very nasty.
 

I have only recently received my MCAD disorder and am still exploring what this means, but I hope to have it all figured out and back on my feet again in no time. 

  1. One possibility might be that your reaction that you consider a gluten reaction might actually be a combination of things you react to when they are together, or the gluten reaction is worse when you react to something else at the same time, or sometimes not even a gluten reaction at all. Sulfite allergy is one thing you can check that actually sounds...
  2. I don't know that there have been any studies on gluten particles specifically, but there have been studies on various allergens and whether particles are present in the air after processes such as boiling, frying, etc.... So far, the evidence is that there are enough particulates aerosolized by cooking processes that an allergic person can respond. Again...
  3. Yeah, I have before. :-( Toothpaste sounds like a good thing to check. Another you might want to check is if he uses chapstick or any other lip balm - that frequently has gluten and he might not be thinking about it. There was a study on peanuts and kissing that had some interesting results. What they boiled down to is that how much protein remains...
  4. It's a possibility, yes. You're correct in that some people would get damage from this, and not everyone will show symptoms. It's a very frustrating situation, because some people don't seem to be affected by this - they do this, they feel fine, and their follow up tests are fine as well, as well. There's just no way to know which category you are in until...
  5. Hi, how are the kids? I haven't seen you here much lately.

  6. Red snapper soup with lots of garlic. :-)
  7. For me, I tried all kinds. 4 varieties of Lundberg rice (including brown), 2 different brands of thai black rice, 2 brands of thai red (cargo) rice, and I think 5 more brands of white rices (love those Asian markets!). I react every, single time, to all grains and pseudo grains, but I don't actually think it's the grains themselves anymore, necessarily. ...
  8. Thank you so much for the warm welcome!! :)

  9. Hello T.H. I just wanted to say thank you for the response you posted on my "Glutened?" thread a while back!

  10. Did you by any chance mention where you lived when you were speaking to them? Sometimes when I'm talking to a company and they have an either/or ingredient that something is derived from, it's often different by country. Like, wheat derived ingredient for Britain, but corn derived for the USA. Might be worth calling them back to see if that's the issue with...
  11. Wow, that's a scary one! You know, it's things like this - the really bad reactions to gluten that are strange and unusual but potentially deadly - that make the idea of a gluten challenge to get diagnosed such a hot button for me. Potential celiacs are never told that one of the risks of a gluten challenge is that they could literally have a fatal...
  12. Ps my personal (non-celiac com ) email is ptfemail2000-gfindc@yahoo.com

  13. There's a few other things it could be aside from the pork, too, actually. Antibiotic residue that remains in the meat is one that can do you in - I had this problem crop up after going gluten free, when I started trying to eat meats. I don't know if pigs get different antibiotics than other animals to make them the only one you'd react to, but it might...
  14. If you do decide to go for sea salt, to avoid the dextrose or anti-caking agents in so much of the iodized salt, just make sure to up your sea food intake significantly or find a good iodine supplement. I did react to contamination in my salt, but I also react to pretty much all processed food, too. If you are eating processed food without much trouble...
  15. T.H.

    Brain Lesions

    I couldn't say that MS can be completely ruled out - celiacs tend to be in a higher risk category for developing other auto-immune disorders - but I CAN say that white matter brain lesions can be related to Celiac Disease, it's believed. white matter brain lesions in Celiac Disease There's been more than one study on this type of thing - neurological...
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