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Sienna2013
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Sienna2013 last won the day on October 26 2018
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It can take a looongggg time to feel better. We have two celiacs in our household; both were off the charts at diagnosis, and now 18+ months later, are still well above normal (but now only by 2x or so), and both are feeling better but not awesome. Keep the faith, and keep to as clean a diet as possible...
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frieze reacted to a post in a topic: 9 year old positive TTG but Paediatrician won’t investigate further
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apprehensiveengineer reacted to a post in a topic: My husband is celiac. We have 10 kids. Is it likely that any of the kids have celiac disease?
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Sienna2013 reacted to a post in a topic: My husband is celiac. We have 10 kids. Is it likely that any of the kids have celiac disease?
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terrible symptoms, need feedback
Sienna2013 replied to Ecgmmom's topic in Parents, Friends and Loved Ones of Celiacs
@Ecgmmom - At least you figured it out when she was 7 - took us until 12 Not a doctor, but based on the muscle tension mine experiences I would say test out magnesium supplementing. Magnesium glycinate, a couple of capsules with meals - according to our doc (who has her at 4 capsules daily... -
No specific recommendations, but you might look into finding a functional physician - they'll work with you on nutrition. In case it's helpful, my kid has psych effects from gluten; she also is likely low on magnesium and def low in Vit D, so we supplement both (magnesium glycinate from Pure Encapsulations...
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- gastro psychiatrist
- gastroenterology psychiatrist
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Celiac Reflex Panel Test Results
Sienna2013 replied to CatAli's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is it possible that your lab's TTG-IGA test's ceiling (250) is low enough that it's making it hard to measure your progress? At our lab, the ceiling is 3,000; my kids were diagnosed around the same time as you with results over that ceiling (>3,000) and have registered results in the 300s and... -
FWIW, our ped GI was firm that all first-degree relatives needed to be screened, whether or not they were symptomatic. (Our family is tall too - in fact, our kids' continued growth delayed their diagnosis because their ped took it as an indicator that all was well and didn't think of celiac - it...
- 31 replies
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- cross contamination
- new diagnosis
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Need Neurology Recommendation SF Bay Area/Peninsula
Sienna2013 replied to AWC_California's topic in Doctors
Updating: while her levels are not yet down to normal, she is improving. Things that seem to help: - Time - Strict gluten-free diet (obvs) - Supplementing Vit D and Magnesium (we are currently supplementing magnesium glycinate 3 capsules (= 90% of RDA) - Kombucha - she swears... -
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23 and Me- Celiac Gene Testing
Sienna2013 replied to desirun's topic in Parents, Friends and Loved Ones of Celiacs
It's not error-proof and doesn't test all variants; it reported, correctly, that I have one of the variants, and kid2 has one of the variants, but kid1's report did not note a higher risk (and she is oh-so-celiac - off the charts TTG IGA when diagnosed). So, don't take a negative report as an all...