Sienna2013
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Latest Celiac Disease News & Research:
Everything posted by Sienna2013
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Sorry, is your only test result this one - "Celiac Disease DQ2 (DQA1 0501/0505, DQB1 02XX) - Positive"? IANAD, but that shows that you have the genetics - it doesn't show anything else. (About 30% of the population has the genetics. It's not the same as having activated into celiac.) If they've run blood labs, you can post your results here to...
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It can take a looongggg time to feel better. We have two celiacs in our household; both were off the charts at diagnosis, and now 18+ months later, are still well above normal (but now only by 2x or so), and both are feeling better but not awesome. Keep the faith, and keep to as clean a diet as possible. BTW, look into celiac camp and sign her up if...
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TBH I would consider reporting this doc to the medical board (*after* you've found a new one and gotten your daughter properly cared for).
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I can't believe your husband is blaming the T1Diabetes diagnosis on you! (I noticed you said "my" changing his diet, not "our" changing his diet.) This is the same husband who is a diagnosed celiac yet opposed screening the kids, right? I imagine he is subconsciously trying to displace the guilt he feels onto you, but WOW that is not fair. My heart goes...
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I second Beverage's comments, and wish you strength. FWIW, my kid was heading toward being hospitalized for psych issues before someone finally thought to screen for celiac. Part of the reason I'm active on this forum is to help raise awareness, with the goal of saving other people from some of the pain our family went through over the decade between...
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PCP and husband both displaying questionable or just plain bad judgment, IMO (not a doctor, just a parent to celiacs). If your husband has low-level ongoinggluten exposure at home, seems like that could be contributing to the joint pain, stomach cramps, and fibromyalgia.
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I'd suggest screening them all (as noted above, screening all first-degree relatives is the standard of care when someone is diagnosed) *and* going gluten-free whatever the results. Odds are that one or more has active celiac (it can cause behavioral and physical symptoms like those you describe), and it will be much safer for the celiacs in the household...
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10 year old celiac and irrational, awful tantrums
Sienna2013 replied to Ari's mom's topic in Coping with Celiac Disease
My 12yo daughter has similar reactions - irrational, looping behavior, rage-y. I can't tell if it's a direct effect of the gluten consumption on her brain, or if it's secondary, meaning that the gluten's effect on her stomach causes so much pain that her ability to manage her behavior is shot, but either way, it's terrible. Sympathies.
