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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,184 topics in this forum

  1. Reham
    Posterboy

    Nutrients injections

    By Reham, Last action:
    • 4 replies
    • 2.2k views
    • Posterboy
    • Posterboy
  2. Atflook
    Jenniw

    Wondering if 2 yo may have celiac. Looking for insight

    By Atflook, Last action:
    • 4 replies
    • 2k views
    • Jenniw
    • Jenniw
  3. lilgreen
    kareng

    Red Cinnamon Heart Candies... Gluten-free?

    By lilgreen, Last action:
    • 4 replies
    • 12.3k views
    • kareng
    • kareng
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  4. Marian mcdermott

    Marian mcdermott

    By Marian mcdermott, Last action:
    • 4 replies
    • 1.8k views
    • Marian mcdermott
    • Marian mcdermott
  5. wisefish
    desirun

    6 yr olds Iga test almost normal at 6 months? Doc is surprised.

    By wisefish, Last action:
    • 3 replies
    • 2.4k views
    • desirun
    • desirun
  6. RyanIN
    Ennis-TX

    Instant Behavior Change In Son After Going Gluten Free.

    By RyanIN, Last action:
    • 13 replies
    • 41.9k views
    • Ennis-TX
    • Ennis-TX
  7. Lcorb26
    cyclinglady

    Scholarship

    By Lcorb26, Last action:
    • 1 reply
    • 4.1k views
    • cyclinglady
    • cyclinglady
  8. hafadai43
    Lcorb26

    Scholarship

    By hafadai43, Last action:
    • 1 reply
    • 18.4k views
    • Lcorb26
    • Lcorb26
  9. SLG
    selectivefocus

    GLUTEN FREE VITAMINS

    By SLG, Last action:
    • 3 replies
    • 2.7k views
    • selectivefocus
    • selectivefocus
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  11. robin2
    cyclinglady

    9 year old glutened an hour ago - any way to mitigate?

    By robin2, Last action:
    • 6 replies
    • 3.3k views
    • cyclinglady
    • cyclinglady
  12. PhoebeC

    Lack of appetite after starting gluten-free diet

    By PhoebeC, Last action:
    • 15 replies
    • 10.9k views
    • PhoebeC
    • PhoebeC
  13. 3groovygirls
    kareng

    How Long Does The Gene Test Take To Come Back?

    By 3groovygirls, Last action:
    • 10 replies
    • 13.8k views
    • kareng
    • kareng
  14. E's mom
    desirun

    Daughter having stomach aches again, 7 months out from diagnosis

    By E's mom, Last action:
    • 3 replies
    • 1.9k views
    • desirun
    • desirun
  15. desirun

    First time traveling for a soccer tournament..food?

    By desirun, Last action:
    • 3 replies
    • 2.3k views
    • desirun
    • desirun
  16. desirun

    Cookie Sprinkles Safety

    By desirun, Last action:
    • 0 replies
    • 1.6k views
    • desirun
    • desirun
  17. melaniesilvers
    Ennis-TX

    Help Please - No Gluten, No Lactose, And No Sucrose

    By melaniesilvers, Last action:
    • 11 replies
    • 12.6k views
    • Ennis-TX
    • Ennis-TX
  18. Audrey’s Mom
    GF-Cheetah Cub

    Gingerbread Houses

    By Audrey’s Mom, Last action:
    • 5 replies
    • 5.3k views
    • GF-Cheetah Cub
    • GF-Cheetah Cub
  19. Bri's mom
    Audrey’s Mom

    Does Anyone Throw Up With Celiac? 1 2

    By Bri's mom, Last action:
    • 49 replies
    • 60k views
    • Audrey’s Mom
    • Audrey’s Mom
  20. vickyloveaimee
    cyclinglady

    How many times your child go to poop a day?

    By vickyloveaimee, Last action:
    • 4 replies
    • 2.1k views
    • cyclinglady
    • cyclinglady
  21. KeJo05
    Posterboy

    16 month old started gluten/dairy free smelly Bowel movement

    By KeJo05, Last action:
    • 4 replies
    • 2.1k views
    • Posterboy
    • Posterboy
  22. Mamabean
    kareng

    Hemorrhoid Issues?

    By Mamabean, Last action:
    • 10 replies
    • 16.5k views
    • kareng
    • kareng
  23. GloGlo
    Jmg

    confused about test results

    By GloGlo, Last action:
    • 4 replies
    • 3.1k views
    • Jmg
    • Jmg
  24. Lindsey1978
    cyclinglady

    Biopsy

    By Lindsey1978, Last action:
    • 2 replies
    • 2.4k views
    • cyclinglady
    • cyclinglady
  25. Lindsey1978

    Biopsy results

    By Lindsey1978, Last action:
    • 14 replies
    • 4.3k views
    • Lindsey1978
    • Lindsey1978
  26. mamaupupup
    Mermaid's Mom

    Need Help With Sibo In Kids--Input? 1 2

    By mamaupupup, Last action:
    • 29 replies
    • 19.6k views
    • Mermaid's Mom
    • Mermaid's Mom

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  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    2. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      16

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    4. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
    5. knitty kitty
      - knitty kitty replied to Aileen Cregan's topic in Related Issues & Disorders
      5

      Coeliac And Cardio Vascular Disease

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1. I am no longer on high blood pressure medication. I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine. The particular high blood pressure...
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  • Posts

    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
    • gregoryC
      Walt Disney World Gluten Free

      By gregoryC · Posted

      Walt’s Hash
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