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Jmg
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Delay Of Reaction And Symptoms Normal?
Jmg replied to loxleynew's topic in Coping with Celiac Disease
Hi Cristiana I've found I have a mixture of responses. I get 'early warnings' which are neurological, a trapped nerve, muscle twitches, greyed out vision, which I think can come from even small amounts of cross contamination. These are within hours. The sneezing, eye watering and shortness... -
madameflan reacted to a post in a topic:
What was your recovery like after newly starting a gluten-free diet?
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Hi Paula and welcome You do have symptoms that are consistent with coeliac / non coeliac gluten sensitivity, but obviously no-one can diagnose that on a forum! Have you been given a coeliac blood test? That would be the first step. Then it would be an endoscopy rather than colonoscopy...
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Hi moleface and welcome! I found your posts a tough read because I felt like I could've written them myself. I was raised to think of the doctor as all knowing and it's only through painful experience that I've taken them down from that childish pedestal and look at them dispassionately as...
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Jmg reacted to a post in a topic:
Gastro discharged me and cancelled endoscopy - in pain and worried!
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CharlesBronson reacted to a post in a topic:
Test results VERY high, but I still need biopsy and help.
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I think the very fact you notice such a response from eating gluten is a big signal that it's an issue for you. Most people wouldn't notice if they removed gluten from their diet but it's having a profound affect with you. Gluten can have an opiod effect on some people: https://www.ncbi.nlm.nih.gov...
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cyclinglady reacted to a post in a topic:
Gastro discharged me and cancelled endoscopy - in pain and worried!
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Attack Sent Me To The Er By Ambulance Today!
Jmg replied to Electra's topic in Coping with Celiac Disease
Hi Garry and welcome! This: sounds like Cyclic vomiting syndrome: https://ghr.nlm.nih.gov/condition/cyclic-vomiting-syndrome#diagnosis You may find the following links helpful: http://cvsa.websitetoolbox.com/post/gluten-free-diet-2184233?trail= but I'm just a layman what... -
squirmingitch reacted to a post in a topic:
Gastro discharged me and cancelled endoscopy - in pain and worried!
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Were these symptoms you had experienced before removing gluten? They are all symptoms associated with it, I had palpitations, reddened complexion and psoriasis/seborrhea dermatitis for instance which all improved once removing gluten. The period once I removed it was very up and down and this could...
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Hi and welcome Wow, what a great opening post. You've clearly thought this through. Difficult to know for certain but many experience an increased response to gluten once removing and then reintroducing it. So yes, possibly! Difficult to say. You don't mention what your symptoms...
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NHS professionals are generally ok but their are also some dreadful ones. You sound like you've been unlucky. I'd be inclined to put something in writing regarding both your treatment and where you go from here. This could either be in a letter to the consultant with your GP copied in or, via your...
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No gluten but still diahorrea
Jmg replied to Donna1970's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Donna, Just on this point: The same advice from your other thread still holds: You are going gluten free before you have testing, this isn't correct and it's going to make it much more difficult and potentially painful for you should you pursue a diagnosis later down the road... -
You should wash rice, but not because of fears about gluten, but because it helps to remove other toxic elements. Here's a good article explaining why and including some detailed advice on how to wash rice. It's especially relevant to you if you're eating a lot in your diet: http://www.bbc.co...
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Does Anyone Else Have Dysphagia?
Jmg replied to Demetria77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome Consider starting a new thread as more people will see your post and may be able to offer some help. Best, Matt -
Does Anyone Else Have Dysphagia?
Jmg replied to Demetria77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome Demetria77 and no you're not alone! There are people here who have gone through similar experiences and came through the other side stronger, healthier and happier. Things may seem bleak now but that doesn't mean they won't soon improve, that's what life is like sometimes. I...- 20 replies
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Hi Donna You can ask for a second opinion: https://www.nhs.uk/chq/Pages/910.aspx?CategoryID=68 See if you can get a printout of the blood test results. The practice wasn't very helpful, I had to pay £5 for mine, but it was helpful. I found that the standard NHS test in my area didn't ...
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That does make it a little harder. The messaging has to be about preventing harm and it may be a little more difficult for her to understand, there are plenty of adults who don't take the diet as strictly as they should because their particular symptoms aren't acute. However be aware that once...
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Hi and welcome I would present it as a positive, which, although it may not seem that way at the time, it is. Focus on the positive aspect, now you and her know what the issue is, and you know how to address it. Stress that this is a condition that has a very simple solution, the avoidance...