Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Bri's mom

Does Anyone Throw Up With Celiac?

Rate this topic

Recommended Posts

My daughter has been diagnosed with celiac disease for 1 1/2 years and has been on a gluten free diet since day one. She of course gets glutened occasionally, but tries her darnest to eat gluten free. After talking to celiacs at our local celiac support group, I found out that no one there has a problem with throwing up and constipation. I was dumb founded! My daughter throws up several times a week and has to take laxatives everyday. IS THIS NORMAL? Please, I need everyone's advise!

Share this post


Link to post
Share on other sites

My oldest dd throws up when she is glutened. She gets really bad diarrhea, too. One of my other dd's is usually constipated, but has diarrhea when glutened.

Is your dd only having these symptoms when glutened, or is it all the time? If it is all the time, you shoucl look at other foods as the problem. If it is only after a glutening, then I would say it is normal for a Celiac.

Share this post


Link to post
Share on other sites
My daughter has been diagnosed with celiac disease for 1 1/2 years and has been on a gluten free diet since day one. She of course gets glutened occasionally, but tries her darnest to eat gluten free. After talking to celiacs at our local celiac support group, I found out that no one there has a problem with throwing up and constipation. I was dumb founded! My daughter throws up several times a week and has to take laxatives everyday. IS THIS NORMAL? Please, I need everyone's advise!

I've been gluten free for 8 months. When I get glutened I have the worse nausea. I don't throw up, but I wish I would. Nausea and vomiting are very often when glutened but I dont' know about constipation.

Share this post


Link to post
Share on other sites

Hi There! I am not yet diagnosed Celiac, but I can say for a fact that I have experienced severe nausea, and have also thrown up several times after eating foods high in gluten. I have also dealt with the diarrhea and constipation that fluctuates in severity. I do not know all that much yet about Gluten Intolerance/Sensitivity/Celiac, but from what I have gathered, the symptoms can manifest in different ways.

Share this post


Link to post
Share on other sites

I used to throw up. I haven't recently, though. Everyone's symptoms are so different that I'm not surprised that the small group of celiacs you talked to didn't have the same symptoms as your daughter.

Share this post


Link to post
Share on other sites

My neighbor's daugher wasnt dx'd for a long time, becuase the pediatricain kept saying, but celiac doesnt cause vomitting. She finally got a positive blood test and was told she couldnt get the biopsy for 3 weeks . .. and then that weekend, she had to take her daughter to the ER for dehydration AGAIN . . .and insisted she wouldnt leave the hospital until her daughter had the biopsy! She is doing very well now on a gluten-free diet.

I agree, tho, if your daughter still needs a stool softener every day, you mgiht want to reexamine other foods - i'd start with dairy, some people have trouble with soy.

Share this post


Link to post
Share on other sites
My daughter has been diagnosed with celiac disease for 1 1/2 years and has been on a gluten free diet since day one. She of course gets glutened occasionally, but tries her darnest to eat gluten free. After talking to celiacs at our local celiac support group, I found out that no one there has a problem with throwing up and constipation. I was dumb founded! My daughter throws up several times a week and has to take laxatives everyday. IS THIS NORMAL? Please, I need everyone's advise!

I'm thinking that if your daughter is throwing up "several times a week and has to take laxatives everyday" then she is either not as gluten free as she is trying to be, or there are other food issues involved. Either way I suggest a very precise and detailed food diary to see if you can pin point the problem because this is definitely NOT healthy! :o How old is your daughter? I hope she feels better soon!

Share this post


Link to post
Share on other sites

I threw up and had diarrhea the last time I was glutened, but I only get glutened about twice a year. I, too, am concerned that your daughter is throwing up so often. I had trouble with constipation when I was first diagnosed because I ate so much rice and stopped all the wheat cereals I'd been eating; I still have to be careful to eat enough fiber--usually legumes and some fruits and vegetables take care of things. I'm no expert but I'm not sure daily laxatives are a good idea.

Share this post


Link to post
Share on other sites

Oh, woah, I totally missed the part about her being gluten-free for 1-1/2 years already! Those are not normal symptoms for people on a gluten-free diet! I'd say she's either not completely gluten-free (have you checked pet food, personal care products, CC at home, "risky" foods like Cheetos/Doritos, going out to eat a lot, etc?) or she's got other food intolerances like casein (protein in dairy) or soy. Peanuts used to make me throw up, too.

I'd also be VERY concerned about the daily laxative use. You do that for too long and eventually your body "forgets" how to go on its own. She may already be at that point which is why she still has to take them everyday. I'd talk to her doctor about the best way to wean her off of them.

How old is your daughter?

Share this post


Link to post
Share on other sites

Also, how was she diagnosed? If it's a self-diagnosis, it could be that she's got some other issue causing gluten intolerance like Lyme disease.

Is she around chemicals or people wearing perfume or places with new carpeting? Chemicals used to make me throw up all the time. They don't have to be strong chemicals, either. The place that made me most sick was my lab in grad school, and there was just a slight not-quite-right smell about it.

Share this post


Link to post
Share on other sites

Vomiting was one of my major symptoms prior to diagnosis. I have only had it once since going gluten free 1 1/2 ago. That was immediately after coming home from eating out. I feel sure it must have been a glutening from cross contamination. I rarely eat out.

It would not be normal for your daughter to be vomiting 2 - 3 times a week while strickly following a gluten free diet. You need evaluate her diet and see where she may be getting contaminated, or out right eating gluten.

If you feel pretty certain that diet is not a problem, she needs to see her doctor. Something is not right. Perhaps another intolerance has shown up like dairy, soy or corn intolerance. I would think her stools should be normalizing as well. It certainly is not healthy to use laxatives on a regular basis.

I hope you can find the source of this soon. Regular vomiting can have some serious health risks in itself. Stomach acid can eat the enamel off her teeth and erode the esophagus.

Share this post


Link to post
Share on other sites

i when i eat gluten my oesophagus swells up so i can't swallow - i then have to throw up the food thats been stuck in my oesophagus - it's not nice and it really hurts and i end up having panic attacks because i can't beathe. but yeah i have that problem - it may not be the same because you sound like your properly throwing up the contents of your stomach...whereas for me its just the contents of food which is stuck in my oesophagus. xxxxxx

Share this post


Link to post
Share on other sites

When my 3-1/2 year old daughter gets gluttened, she has projectile vomit (she throws up with a lot of force) and she is constipated. In fact, she tries to hold the poop in since it is so hard and hurts her to come out. She refuses to eat again until she feels better. My other daughter gets very grumpy and has diarrhea when she is gluttened. Have you considered your child's vitamins? Your child's shampoo and toiletries? Your lipstick and makeup if you kiss her? After I changed lipsticks, we had a lot less issues (but my children are very oral and put everything in their mouths - yours may not be this way!) As far as I understand, celiacs feel fine if not glutened!

Share this post


Link to post
Share on other sites

I'll just add my two cents because I had the same issue and went to my GI doc with it. After showing him my food diary and everything I use for topical products I went for more testing.

I was then diagnosed with Gastroparesis because I was throwing up so often and had constipation.

Does she get full easily or feel like there is something stuck in her throat? Those are the other two indicators I had at least. This was just my experience though.

With the Celiac I just get the diarrhea and nausea if I'm glutenated.

My prayers are with your daughter. I hope this gets figured out soon. Excessive laxative use can make matter worse for that end to wear she'll need them more and more. Please go to the doc.

Share this post


Link to post
Share on other sites

I threw up every morning for 6 months prior to diagnoses. Since she is being gluten-free it could be a sign of another allergy or getting some minute of gluten from a strange or unknown source.

Good luck figuring it out.

My daughter has been diagnosed with celiac disease for 1 1/2 years and has been on a gluten free diet since day one. She of course gets glutened occasionally, but tries her darnest to eat gluten free. After talking to celiacs at our local celiac support group, I found out that no one there has a problem with throwing up and constipation. I was dumb founded! My daughter throws up several times a week and has to take laxatives everyday. IS THIS NORMAL? Please, I need everyone's advise!

Share this post


Link to post
Share on other sites
I used to throw up. I haven't recently, though. Everyone's symptoms are so different that I'm not surprised that the small group of celiacs you talked to didn't have the same symptoms as your daughter.

I have had Celiac's since I was 6 years old. I have always vomited and still do. It is more severe when I have been religiously gluten free, often eating a 2 crackers with gluten will stop it, it is the increased acid in the stomach according to my GI specialist and he is trying to reduce it through medication. I am sorry to say it won't get better but may get worse the longer she is totally gluten free.

Share this post


Link to post
Share on other sites
I have had Celiac's since I was 6 years old. I have always vomited and still do. It is more severe when I have been religiously gluten free, often eating a 2 crackers with gluten will stop it, it is the increased acid in the stomach according to my GI specialist and he is trying to reduce it through medication. I am sorry to say it won't get better but may get worse the longer she is totally gluten free.

So is your doctor saying that gluten is basic and thus increases the Ph of the stomach? I don't really understand this. And why would other grains not have the same effect?

This reminds me of my months 9-15 of being gluten-free. I started feeling sick again and occasionally throwing up. I eventually cut out peanuts which helped, and the rest of my nausea went away on its own. Something changed, but I don't know what. I'm guessing there was CC somewhere that I didn't realize? It could be that I was still healing, but that seems unlikely since I felt fine up until that point.

Share this post


Link to post
Share on other sites

I threw up ALOT, and had constipation as well...it seems so many people have such a wide range of symptoms, that nothing would seem out of the ordinary. Sometimes I would get real sick after eating dairy products... I have heard many celiac's have lactose intolerance too. hope you can figure it out. Throwing up is awful I know.

Julie

Share this post


Link to post
Share on other sites
Also, how was she diagnosed? If it's a self-diagnosis, it could be that she's got some other issue causing gluten intolerance like Lyme disease.

Is she around chemicals or people wearing perfume or places with new carpeting? Chemicals used to make me throw up all the time. They don't have to be strong chemicals, either. The place that made me most sick was my lab in grad school, and there was just a slight not-quite-right smell about it.

Thank you so much for your advise. My daughter was diagnosed through biopsey. She is a full time accounting student and she is not around any chemicals. She has not been tested for lactose intolerance. I hope her GI will test her for this and hopefully we will find out if it is the lactose intolerance that is causing all the throwing up.

Share this post


Link to post
Share on other sites
I threw up ALOT, and had constipation as well...it seems so many people have such a wide range of symptoms, that nothing would seem out of the ordinary. Sometimes I would get real sick after eating dairy products... I have heard many celiac's have lactose intolerance too. hope you can figure it out. Throwing up is awful I know.

Julie

Thank you so much for writing back. Just knowing others experience these same symptoms, somehow makes it seem better. She has not seen her GI in a few months and the throwing up has gotten much worse since her last visit, I hope he will set up the lactose intolerance test.

Share this post


Link to post
Share on other sites
I threw up every morning for 6 months prior to diagnoses. Since she is being gluten-free it could be a sign of another allergy or getting some minute of gluten from a strange or unknown source.

Good luck figuring it out.

Thanks.

Share this post


Link to post
Share on other sites
I have had Celiac's since I was 6 years old. I have always vomited and still do. It is more severe when I have been religiously gluten free, often eating a 2 crackers with gluten will stop it, it is the increased acid in the stomach according to my GI specialist and he is trying to reduce it through medication. I am sorry to say it won't get better but may get worse the longer she is totally gluten free.

Thank you Jules. It sounds like you have a very difficult life. I sure didn't know that being totally gluten-free would make you prone to throw up. When you eat crackers with gluten, how does that help? Does the gluten not make you sicker? I always ate crackers for morning sickness, but I didn't have celiac disease.

Share this post


Link to post
Share on other sites
My oldest dd throws up when she is glutened. She gets really bad diarrhea, too. One of my other dd's is usually constipated, but has diarrhea when glutened.

Is your dd only having these symptoms when glutened, or is it all the time? If it is all the time, you shoucl look at other foods as the problem. If it is only after a glutening, then I would say it is normal for a Celiac.

No, it's not just when she is glutened. There are times when she eats meals with me and I know that my meals are totally gluten-free and she still throws up. Hopefully her GI will test her for lactose intolerance. You must have your hands full with your two daughters and yourself being celiacs. Having celiac has been a very humbling experience for my family! I admire you so!

Share this post


Link to post
Share on other sites
My neighbor's daugher wasnt dx'd for a long time, becuase the pediatricain kept saying, but celiac doesnt cause vomitting. She finally got a positive blood test and was told she couldnt get the biopsy for 3 weeks . .. and then that weekend, she had to take her daughter to the ER for dehydration AGAIN . . .and insisted she wouldnt leave the hospital until her daughter had the biopsy! She is doing very well now on a gluten-free diet.

I agree, tho, if your daughter still needs a stool softener every day, you mgiht want to reexamine other foods - i'd start with dairy, some people have trouble with soy.

THANKS FOR YOUR ADVISE.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
  • Member Statistics

    • Total Members
      86,781
    • Most Online
      4,125

    Newest Member
    TDZ
    Joined
  • Forum Statistics

    • Total Topics
      112,056
    • Total Posts
      956,614
  • Who's Online (See full list)

  • Forum Discussions

    Hello, new here and new to the whole thing! My husband has been battling this rash and assorted digestive issues for years. He was diagnosed with contact dermatitis by the dermatologist, had some steroid injections and various creams over the last couple of years, and then in November he went to the ER and they said eczema and gave him steroid pills. This was after a huge bloom that pretty much hit him from head to toe, where it had been mostly arms and legs before. He finally concluded he
    For making oven-roasted pototoes, I cannot recommend highly enough using chicken fat, duck fat or goose fat, for those who can find or have access to these fats.  Not only are they significantly unsaturated, being almost liquid at room temperature (unlike say lard), they are surprisingly light in texture and "feel", and overall quite healthy.  I carefully skim off and save ALL the rendered fat when I make chicken soup from organic chickens, to use in later dishes. Another perfect fat for th
Oh yes, that does sound good!  I've always been fine with potatoes, but just haven't eaten them all that frequently, and usually in a recipe that specifically needed or called for them.  But for the next few months, at least, I think I'll be using them much more. Not that I want to try to subsist mostly on carbs here, but I am also going to be using more sweet pototoes, and also trying to incorporate both plantains (cooking bananas) and yuca (cassava root) into my diet as well.  Both of the
  • Blog Entries

  • ×
    ×
    • Create New...