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Newly Diagnosed & Relapse

LisaB123
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LisaB123 Newbie
LisaB123
Posted

My 19 year old son was dx 2 mo's ago with Dermatitis Herpetiformis by a dermatologist (after a rash for 6 mo's and finally a biopsy) He has done fairly well with the gluten-free diet until a recent unknown contaminant (restaurant eating) and now rash back with a vengeance.  My question is should he see a GI or Rheumatologist since its an autoimmune disorder? I feel like he needs to see a specialist of some sort to help get this under control an understand the seriousness of his Dx.    He seems to get sick a lot and also had low platelets recently not sure related to the diagnosis.  Thanks for any advice you can provide.

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GFinDC Veteran
GFinDC
Posted

Sometimes people go to a dermatologist.  But they may not be the best source for info on DH.  Usually GI's are more familiar with celiac disease.  But often they aren't much help with it beyond diagnosis.  If you can find a celiac support group or a local hospital or university that has a celiac center they may suggest a doctor.

There is a section of the forum just for DH where you can find info too.

https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/

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